Protecting the Rights of Parents with

Disabilities

By: Ellie Dunning, Lori Hansen, Ashley Housten, Katherine Hutson, Hailey Johnson, Jamie Kaplan, Jessica Koster, Katy

Lyznicki, Cambey Mikush, & Kara Peters

Introduction Movie– I am Sam

I am Sam Trailer

Parenting is the “last frontier for people with disabilities” in their fight for full inclusion, and is a highly likely arena for prejudice (Kirshbaum & Olkin).

Issue: Attitudinal & Political Barriers

Societal Stigma State Policies There are approximately 8.4 million parents with disabilities = 15% of all U.S. Parents

Issue: Negative Actions and Behaviors

In a national survey by Through the Looking Glass, 13% of parents reported pressure to have an abortion 15% reported attempts to have their child taken away 8% faced barriers interfering with or preventing them from adopting

For parents with mental illnesses, custody loss rates are as high as 70-80%

In the early to middle 1900s, there were laws allowingfor the forced sterilization of 60,000 Americans with disabilities,some as young as 10 y.o.

Issue: Reasons for Continued Limitations...

Inadequate financial resources Environmental barriers Lack of positive role models and familial support Limited social support networks Prevailing stigma and societal views Limited and flawed research and literature Largely unsuccessful implementation of the ADA and Adoption and Safe Families Act of 1997 State codes that focus on conditions rather than behaviors

Target Population

People with disabilities who are parents or wish to become parents 2000 US Census polled 72.3 million families

28.9% had someone in the family with a disability 18% reported the head of the household as having a disability

General lack of recent, substantive data on the number of parents currently living with a disability

Remain a highly invisible population Flawed assumptions about the low prevalence of parents with

disabilities

Context Parenting is an important and meaningful occupation OTs can help individuals with disabilities participate in

this occupation by: Providing comprehensive person, environment, and activity

assessments Determine which supports and education are needed to

enable the individual to be a successful parent Help the individual obtain the needed supports and

education Society’s focus needs to change from the parent’s

disability to the child’s well-being If proper supports are provided and the child’s well-being is

secure, then it shouldn’t matter that the parent has a disability

Efforts to Address the Issue

Through the Looking Glass Giving parents with disabilities the support they need to be

successful parents 3 year grant awarded in 2008

Funds research in hopes of increasing knowledge about the issue Informs local, regional, and national policies in hopes of a

change Baby-care equipment

Wheelchair lap trays for nursing Baby lifters

National Parent to Parent Network National Parents with Disabilities Blog

OptionsADA of 1990 prohibits discrimination based on disability Title II

People with disabilities are able to benefit from state and local government activities, programs, and services

People with disabilities cannot be discriminated against in areas of their child’s education or social services

Covers services such as Child Protective Services and public education

Title III Non-discrimination requirements limiting exclusion,

segregation and unfair treatment from public accommodations such as public accommodations, private schools, and day care centers 

Definition Recommendation Child protection systems

operate on the three central themes when assessing parental rights:1. Child safety 2. Child permanency 3. Child well-being

By outlining these three areas as protections for parents with disabilities, the focus will be on the child’s well-being rather than the stigma of the parent with a disability.

Policy Recommendation

We propose amending the ADA by adding Title VI to specifically outline the rights of parents with disabilities though: 1. Social policy2. Community supports 3. Research funding

to ensure that adults with disabilities will have equal opportunity to be a parent

Social Policy Recommendations Increase public awareness

by creating coalitions of like-minded organizations to pool resources and advocate together for change on a global scale

Increase the resources available to Lobby Conduct research Disseminate information Address framing and

marketing issues Increase financial backing

Community Support Recommendations

Enhancing community supports for parents with disabilities is a critical step in enabling successful parenting Inclusive parenting classes Flexible childcare services Central transportation centers Home support programs Equipment sharing programs

Funding Recommendations

Creation of a coalition to compel the government to increase the scope of funding to meet the needs of parents with disabilities

Local community grants, like the United Way

National Parents with Disabilities and their Families

Implementation: Obstacles

Funding Lack of money Securing initial funds

Allocating Resources

Stigmas: Community and individual

Occupational Therapy Role Person Level: Identify the client’s strengths and limitations related to parenting Environment Level: Identify supports and barriers to successful parenting Advocate Spread awareness Help build alliances within a community Serve as consultants Highlight the existing parents that are loving and supportive parents to their children

Conclusion & Discussion

I Am Sam clip

Thank you for listening!Any Questions or Comments?

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