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Promoting Positive Caregiving Barry J. Jacobs, PsyD Julia L. Mayer, PsyD AARP Meditations for Caregiving

Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It

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Page 1: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It

Promoting Positive CaregivingBarry J. Jacobs, PsyDJulia L. Mayer, PsyDAARP Meditations for Caregiving

Page 2: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It

Today’s TalkCaregiving in

AmericaStrains and

gainsKeys to

positive caregiving

Page 3: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It
Page 4: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It
Page 5: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It
Page 6: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It
Page 7: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It
Page 8: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It
Page 9: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It
Page 10: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It
Page 11: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It

Family Caregiving in America40 M Americans engage in some

form of caregiving activity in a year (NAC/AARP, 2015)

Numbers increasing because of demographics, medical advances

Page 12: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It

But caregivers and their reactions to caregiving are highly varied:

38% highly stressed45% somewhat stressed16% not at all stressed

Page 13: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It

Most Stressed Caregivers

Spousal Caregivers

Military Caregivers

Dementia Caregivers

Page 14: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It

Research on Caregiving’sNegative Effects Dementia caregiving linked with

63% increased mortality (Schulz & Beach, JAMA, 1999)

Schulz & Martire, 2004: Insomnia Depression and anxiety Musculoskeletal problems (e.g.,

back pain) Decreased use of preventative

medical services

Page 15: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It

Research on Caregiving’s Positive Effects

AP-NORC 2017 survey of 1000 caregivers:

95% said caregiving was worthwhile

(77% said it was stressful)

Page 16: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It

“When I wake up, I make the decision to speak in a joyous voice, to nurture positive energy, and to make this a good day.”

“[The disease] is not something to be afraid of; the more you know, the more empowered you become.”

Page 17: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It

Bettyville

"I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It has taken me so long to feel okay in my own skin, but I feel better, more at home in the world. Most days."

Page 18: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It

“The majority of caregivers…readily endorse caregiving gains or positive aspects of caregiving [including] having the opportunity to serve as a role model, having the chance to give back to care recipients…,experiencing an enhanced sense of purpose…, feeling appreciated, and helping to maintain the identity and well-being of the family (Coon, 2012, p. 233)

Page 19: Promoting Positive Caretiving...Bettyville "I know this home is just for now, but I treasure our days. I feel different than when I arrived because I have come through for her. It

Caregiving brings “strains and gains”

How do we minimize its strains and maximize its gains in order to make this a more positive experience?