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Private and Public Partnerships Developed to Improve Services for Children with Special Health
Care Needs (CSHCN)
Private and Public Partnerships Developed to Improve Services for Children with Special Health
Care Needs (CSHCN)Presentation to
3rd International Conference on Patient and Family Centered Care
Monday, July 30, 2007
byMarcia O’Malley
Executive Director, Family TIES of Nevada
Debra Wagler Health Program Manager, Nevada State Health
Division
MISSION
Nevada State Health Division
promotes and protects the health
of
all Nevadans and visitors to the
state through its leadership in
public health and enforcement
of laws and regulations
pertaining to public health.
Nevada Partners
MISSION
To increase the hope, confidence,
and independence of people with
disabilities and chronic health
conditions of all ages and their
circle of support through training,
information, emotional support,
and advocacy.
Nevada’s Services Landscape Early Intervention Services
Public School Districts
Public Health Agencies
Community Service Organizations
Physicians and other medical service providers
Mental Health Service Providers
Public Assistance Agencies
Pediatric Specialists
Mental Health Providers
Respite care
Child care
Dentists that accept Medicaid
Very few services in remote areas of the
state
Gaps
Why?
Tremendous population growth
24.9% change between 2000 and 2006
Distribution of the population 0
500,000
1,000,000
1,500,000
2,000,000
2,500,000
2000
2006
Why? Lack of resources Medicaid reimbursement process is
cumbersome Some caregivers have unrealistic
expectations Transient families
High turnover in education and medical professionals
Staff are overwhelmed Language and cultural barriers
Survival of the Fittest
Partnering
is a necessity to
meeting the needs!
Partnering
is a necessity to
meeting the needs!
Meaningful Involvement• Recruited for the Genetics Subcomittee
• Assisted with needs assessments
• Participated on hiring committees and RFP review panels
Partnerships for Information & Referral
Real Choice Systems Change Grantees
Office of Disability Services Personal Care Assistance Medicaid HIWAA (Money Follows the Person) Family TIES of NevadaFamily to Family Health Information and Education
Center Nevada Bureau of Family Health ServicesSystems Change for CSHCN Nevada Division of Aging Services Aging and Disability Resource Center
Medical Home Initiative
Family Centered Organizations Nevada PEP (Parent Training Information
Center) Family TIES of Nevada Northern Nevada Center for Independent Living
State Agencies: Title V, Medicaid, Community Health Nurses
Medical providers Hospital Associations FQHC Tribal clinics
University Departments School of Social work and nursing school Epidemiology Office of Rural Health
Health Insurance Coverage
Statewide Governing Council
Regional Coalitions (Northern & Southern Nevada)
Provides assistance and
resources in the areas of:
Medicaid Medicare Private Insurance The Uninsured
Early Period Screening, Detection, and Treatment
Community-based Organizations Nevada PEP (Parent Training Information Center) Family TIES of Nevada Head Start Great Basin Primary Care Association
State Agencies: Title V, Medicaid, DCFS, Welfare, Early Intervention Services, WIC
Community Health Nurses Governor’s Council on Developmental Disabilities (SPAC)
Public FQHC Tribal clinic staff Inter Tribal Council Network Nevada Public Health Foundation
Private Managed Care Organizations Physicians
What worked?
What didn’t?
Information & Referral
STRENGTHS
Statewide collaboration
Cross promotion and referral
Draws on assets of each partner
CHALLENGES
Requires cross training of all front line staff
Resource databases need to have current listings
Real Choice Systems Change Grantees
STRENGTHS
Statewide collaboration on a management level
Shared resources
CHALLENGES
Less involvement and support from state admin
Lack of sustainability plan
Medical Home Initiative
STRENGTHS
Topic of Interest
Organizations identify benefit of participating
Cross referring
Shared tracking and monitoring system
CHALLENGES
Status of medical home in Nevada
Lack of resources Lack of education
and awareness
Health Insurance Coverage
STRENGTHS
Topic of Interest
Organizations identify benefit of participating
Cross referring
CHALLENGES
Growing, transient population
Lack of resources
Lack of education and awareness
STRENGTHS
Resources are available
Organizations identify benefit of participating
Cross referring
Early Period Screening, Detection, and Treatment
CHALLENGES
Staff turnover Keeping EPSDT
a priority Maintaining a
statewide network
Common Elements for Success
A common goal! Meaningfully involvement! Everyone gets something out
of it!
ContactMarcia O’Malley
Executive Director, Family TIES of Nevada
Toll-Free: 866-326-8437
Email:[email protected]
g
Website:www.familytiesnv.org
Debra WaglerHealth Program Manager
Systems Change for CSHCN,Bureau of Family Health
Services,Nevada State Health Division
Phone: 775-684-3479
Email:[email protected]
Website:health.nv.gov/cshcn/CSHCN
