8
View this email in your browser Summer 2018 Newsletter President's Message Yes it's June but we are already in the throes of planning our annual conference, which will take place Saturday, November 17, 2018 at Stanford. We welcome submissions here and you'll find details below. Registration opens in September .... A big welcome to our newest board members Mawuko Nyuiadzi and Michelle Condit, and please meet all our wonderful SFASA leaders on our website here.... April was packed with awareness activities, and let me share some examples. Board member Stephen Prutsman presented on awareness and acceptance to hundreds of SF middle schoolers. We hosted an "Evening with Alycia Halladay, PhD," Chief Science Officer of Autism Science Foundation, who provided an update on the latest research. A lively crowd grooved at our Dance-a-thon for Autism on April 14 (pics below). I had the pleasure of joining Swathi Haragopal on the Autism Awareness radio show (right) and you can hear our conversation here. Thanks to Brad Goldberg of Vault 164 Restaurant and Bar in San Mateo for hosting another wonderful fundraising awareness day. And to Spectrum at Cal (UC Berkeley) for its awareness event. SFASA VP Feda Almaliti also increased awareness of the importance of moms with her #AutismMomsLivesMatter presentations in Fremont and at the SELPA conference in Sacramento. SFASA Secretary Cristina Moretto and her son Justin attended the Rowell Ranch Rodeo (left) where even cowboys honored our autism community and SFASA received with a generous donation from their fundraiser. And finally, Feda and I made autism awareness presentations all around the Bay Area, including public agencies (thanks Caltrans for wanting to learn more about our population), employers (thanks Monolith Materials team for putting in 10k steps a day to support autism) and schools. Board member Connie Boyar Frenzel and

President's Message - Autism Society San Francisco Bay Area · This year's Autism Society San Francisco Bay Area conference will be held Saturday, November 17, 2018 from 8am-5pm at

  • Upload
    others

  • View
    0

  • Download
    0

Embed Size (px)

Citation preview

Page 1: President's Message - Autism Society San Francisco Bay Area · This year's Autism Society San Francisco Bay Area conference will be held Saturday, November 17, 2018 from 8am-5pm at

View this email in your browser

Summer 2018 Newsletter

President's Message

Yes it's June but we are already in the throes of planning our annual conference, which will take place

Saturday, November 17, 2018 at Stanford. We welcome submissions here and you'll find detailsbelow. Registration opens in September.... A big welcome to our newest board

members Mawuko Nyuiadzi and Michelle Condit, and please meet all our wonderful SFASA leaders on

our website here.... April was packed with awareness activities, and let me share some examples. Board

member Stephen Prutsman presented on awareness and acceptance to hundreds of SF middle

schoolers. We hosted an "Evening with Alycia Halladay, PhD," Chief Science Officer of Autism Science

Foundation, who provided an update on the latest research. A lively crowd grooved at our Dance-a-thonfor Autism on April 14 (pics below).

I had the pleasure of joining Swathi Haragopalon the Autism Awareness radio show (right) and

you can hear our conversation here. Thanks to

Brad Goldberg of Vault 164 Restaurant and Bar

in San Mateo for hosting another wonderful

fundraising awareness day. And to Spectrum at

Cal (UC Berkeley) for its awareness event.

SFASA VP Feda Almaliti also increased awareness of the importance of moms with her

#AutismMomsLivesMatter presentations in Fremont and at the SELPA conference in Sacramento.

SFASA Secretary Cristina Moretto and her son

Justin attended the Rowell Ranch Rodeo (left)

where even cowboys honored our autism

community and SFASA received with a generous

donation from their fundraiser. And finally, Feda

and I made autism awareness presentations all

around the Bay Area, including public agencies

(thanks Caltrans for wanting to learn more about

our population), employers (thanks MonolithMaterials team for putting in 10k steps a day to

support autism) and schools.

Board member Connie Boyar Frenzel and

Page 2: President's Message - Autism Society San Francisco Bay Area · This year's Autism Society San Francisco Bay Area conference will be held Saturday, November 17, 2018 from 8am-5pm at

committee member Anna Wang of Friends ofChildren with Special Needs traveled to

Sacramento to help educate policymakers about

issues affecting our community, including how

rules for overtime, local minimum wage

requirements, and the state median rate rule

combine to sabotage community programs—our service providers' actual operating costsexceed what the system allows.

FCSN has chartered a bus to attend the Disability Capitol Action Day on Thursday June 7. Contact

FCSN to join them and advocate for the special needs community. Free round trip bus trip and lunch.

California shuttered its institutions on the promise that DD services would be provided in our communities.

But every day that promise is looking more like a bait and switch. And as Michelle Condit reports below,

the Sonoma Developmental Center sale proceeds will be diverted away from community care.

We also thank San Andreas Regional Centerfor its annual legislative lunch, and director

Javier Zaldivar's emphasis (his slide at right)

that the autism bubble is

imposing unprecedented challenges to our

system, necessitating reforms to address the

burgeoning need.

VP Feda joined advocates to plan an upcoming

disability awareness game with the Warriors(left). Please follow us on Facebook for more

news and event announcements (summerhighlights are below, and more to come). And

please continue sending your news to

[email protected]. And finally, Go Dubs!

—Jill Escher, president, Autism Society San

Francisco Bay Area

Proposals now being accepted for the SFASA November17, 2018 conference

Page 3: President's Message - Autism Society San Francisco Bay Area · This year's Autism Society San Francisco Bay Area conference will be held Saturday, November 17, 2018 from 8am-5pm at

This year's Autism Society San Francisco Bay Area conference will be heldSaturday, November 17, 2018 from 8am-5pm at Stanford University's LKS Center. We are currently accepting proposals for our conference, which will feature information onday programs, employment, financial and estate planning, housing, health care,government benefits, policy and other issues. Our conferences are geared toward theinformation needs of parents and caregivers of older teens and adults with autism andrelated developmental disabilities. Formats include: general sessions, breakout sessions,information tables (sponsors only) and discussion groups. We expect 40-50 speakers and400-450 live attendees, in addition to those watching via electronic means.(See conference archives for content from past conferences.) Deadline for submissions: August 1, 2018. Submissionpage: https://www.sfautismsociety.org/2018-conference-submissions.html

Summer camp listing on SFASA website

Looking for last-minute ideas for summer camps for kids or adults with autism or other specialneeds? Check out our camps page at the button below. We welcome updates and newsubmissions: [email protected].

From the SFASA Blog

See the submission page

See our camps page

Page 4: President's Message - Autism Society San Francisco Bay Area · This year's Autism Society San Francisco Bay Area conference will be held Saturday, November 17, 2018 from 8am-5pm at

The Closure of Sonoma Developmental Center Is NoVictory for California's Developmentally Disabled

"The soon-to-be-closed Sonoma Developmental Center land covers 2.6 square miles in agorgeous setting, and is of immense value. But proceeds will be shunted away from thedevelopmentally disabled."... Blog post by Michelle Condit

Is it time to give up on a single diagnostic label forautism? This father says YES

"Let the saber-rattling begin! Judging from the latest round of social media Autism Wars 2.0, onewould have thought conflicts about 'autism' were as deep-seated and hate-filled as any in the war-torn Middle East. (BTW, how on earth did humans entertain themselves before the days ofFacebook?). Anyway, on its Facebook page SFASA posted a photo of the backseat of our board

Read the blog

Page 5: President's Message - Autism Society San Francisco Bay Area · This year's Autism Society San Francisco Bay Area conference will be held Saturday, November 17, 2018 from 8am-5pm at

president’s car, ripped up by her severely autistic son, with the tag: When autism awarenessmonth starts out like this…#AuthenticAwarness.."... Blog post by Stephen Prutsman

Why You Should Pursue Genetic Testing for Your AutisticChild

"Despite the fact that chances of a definitive finding are still small—probably a bit less than 10%—some of us, like author Denise, hit the jackpot, unleashing a flood of insights about our children’sconditions. Also, even if nothing in the DNA looks fishy right away, you might get a geneticdiagnosis in the coming years as the research continues to progress. And finally, and perhapsmost important, by giving your child’s DNA (and/or brain, which we'll also discuss) to science, youwill further the noble research quest to plumb the mysteries of the autisms."... Blog post by JillEscher and Denise Haas

Movin and groovin at our 2018 Dance-a-thon for Autism

Thanks for shaking your groove thing with us during Autism Awareness Month in April. OurAll-Abilities Dance-a-thon at Cubberley Pavilion in Palo Alto raised money for local autism-serving nonprofits. Special thanks to our amazing DJ Christie James (in the gold shirt) of103.7FM KOSF who kept us on our feet for nearly four straight hours!

Read the blog

Read the blog

Page 6: President's Message - Autism Society San Francisco Bay Area · This year's Autism Society San Francisco Bay Area conference will be held Saturday, November 17, 2018 from 8am-5pm at

Thank you Mawuko Nyuaidzi and College of Adaptive Arts for the photos.

Summer Calendar Highlights

Page 7: President's Message - Autism Society San Francisco Bay Area · This year's Autism Society San Francisco Bay Area conference will be held Saturday, November 17, 2018 from 8am-5pm at

Starting June and Fridays through Summer: Music is Magic Summer Concert Series kicksoff at Magical Bridge Playground, Palo Alto, Fridays 6-7.30pm. Details at Facebookpage: https://www.facebook.com/MagicalBridge/

June 7: Disability Capitol Action Day in Sacramento --Contact FCSN to join via chartered busfcsn1996.org June 9: Crissy Field walk, SF (pic at left), 10am - Noon, with Autism Fun BayArea autismfunbayarea.org June 10: Family Access Day SF Zoo, 9-11.30am https://www.eventbrite.com/e/family-access-day-at-the-sf-zoo-tickets-45918753227 June 15: Kitka at Pomeroy Live! (pic at center), 7.30-9.30pm, Pomeroy Center,SF https://secure.qgiv.com/for/kit/ June 16: SARC Summer Festival at Rotary Play Park, 490 Coleman Avenue, SanJose http://www.sanandreasregional.org

June 30: "Strings of Summer" concert at Stanford (pic at right) by Autism Fun BayArea autismfunbayarea.org July 16: Week of July 16th Great America Autism Awareness Link to buy tickets ($2 is donatedto Autism Society of America): https://pages.cedarfair.com/autism August 1: Deadline to submit proposals for SFASA 2018 conference Throughout summer: Autism Fun Bay Area Hikes (primarily Half Moon Bay Coastal Trail,Sunday mornings): get info via Facebook Group. Joinhere: https://www.facebook.com/groups/AutismFunBayArea/

Share Tweet Forward

Donate

SFASA is a volunteer-run nonprofit that relies on donations from our community: Please donate today. You can also donate simply by designating "Autism Society San Francisco Bay Area" as your nonprofit onAmazon Smile: https://smile.amazon.com

Like Us on Facebook

Like us on Facebook to learn all the latest news.

Want to Volunteer?

Donate Today

Page 8: President's Message - Autism Society San Francisco Bay Area · This year's Autism Society San Francisco Bay Area conference will be held Saturday, November 17, 2018 from 8am-5pm at

Like what we do and want to be part of our team? Just email us letting us know of your particular skillsand interests (for example, graphic design, accounting, websites, event management, writing, legal, policyadvocacy, etc.) location, and time availability. [email protected]

Autism Society San Francisco Bay Area PO Box 249 San Mateo, CA 94401 [email protected] 650-637-7772 Autism Society San Francisco Bay Area is a volunteer-run, grass-roots organization of parents, familymembers, friends and professionals concerned about the well-being of local autism families, with anemphasis on expanding the limited lifespan care options for the dramatically increasing numbers of adultswith autism. See our Mission / Vision / Values Website • Facebook • Donate • Volunteer Board of Directors President: Jill Escher Vice President: Feda Almaliti Secretary: Cristina Moretto Treasurer: Anne Hare All Board Members

Copyright © 2018 SFASA, All rights reserved.

No longer wish to receive these emails? Unsubscribe from this list