Patient association, chapters, self support groups, programs

Zalatnai Klara - HOPA

EPF Autumn Regional Advocacy Seminar for Patient LeadersBudapest, Hungary 25-26-2 October 2010

Introduction of HOPA

• Based in Budapest • Set up in 1998 • NGO non profit umbrella

organization• 25 chapters• More than 2000 patients

across the country

• Vision:Vision: • Decreasing number of

fragility fractures• Improved quality of life

of the patients

http://www.obme.hu

Key issues

• Health education programs, campaigns about

• Prevention• Early detection of

osteoporosis• Progression of the disease

could be stopped• Patients’ involvement

• In decision making process• Lobbying• Capacity building

Major events of HOPA

• WOD Program• Osteoporosis Civilian Forum• Joint program with the Rehabilitation Section of Osteoporosis

Medical Society

Major programs of HOPA

• Joint program with the Rehabilitation Section of Osteoporosis Medical Society

• April 2009• Funny Role-playing ….

Patient Education and Counseling

• The art of the Therapy

Major programs of HOPA

• Osteoporosis Civilian Forum• May 2110

• It happened to me - what about the quality of life?

Major programs of HOPA

• WOD Program• October 20, 2110

• Don’t miss the signs of breaking spine

It is never too late - Extend

/

http://www.extend.org.uk

Sketches of kids