8/19/2018

1

8/19/2018

2

8:30 AM - 9:30 AM Registration / Breakfast / Exhibits

9:00 AM Welcome & Introductions Paige Humble, MBA Executive Director Lung Cancer Initiative of NC

9:30 AM Lung Cancer Treatment Updates Edward S. Kim, MD, FACP Levine Cancer Institute

10:15 AM Break / Exhibits

10:30 AM Lung Cancer Screening • Overview - Scott Skibo, MD Haywood Regional Medical Center • Access Grant Update - Maria K. Long, MS, RD, LDN, Prevention and Early

Detection, Manger Novant Health Cancer Care, Presbyterian Medial Center • Atrium Health Lung Cancer Mobile Screening - Darcy Doege, RN, Program

Coordinator of the Lung B.A.S.E.S. 4 Life Program, Levine Cancer Institute

11:45 AM Lunch / Exhibits / Tour Mobile Screening Unit

Agenda

8/19/2018

3

12:45 PM Breakout Sessions

• Survivor Breakout - Cheryl Lecroy, Wind River Cancer Wellness Retreats & Programs

• The Unsung Hero: The Oncology Caregiver -• Tomma Hargraves, Patient Lay Navigator, UNC Cancer Hospital • Graham Self, Caregiver • Elatt Spiller, Reimbursement Specialist, McKesson

1:30 PM Break / Exhibits

1:45 PM Mind, Body & Spirit Refresh Cheryl Lecroy Wind River Cancer Wellness Retreats & Programs

2:00 PM Translating Your Experience into Action Adam Taliaferro, Esq. State Advocacy & Alliance Development, Bristol-Myers Squibb

2:30 PM How You Can Make a Difference: Ways to Get InvolvedJenni Danai, MPH, Director of Programs, Lung Cancer Initiative

Agenda

8/19/2018

4

Thank you to our sponsors!

8/19/2018

5

Lung Cancer Initiative Update

Build Hope. Take Action.

End Lung Cancer.

8/19/2018

6

Mission

Save lives and provide support to those affected by lung cancer through research,

awareness, education and access programs across North Carolina

8/19/2018

7

Organizational Vision

Our vision is to improve life for those affected

by lung cancer

Three-Year Strategic Vision

To reach and impact every county in the state of NC by 2019

Vision

8/19/2018

8

Who We Are

• 501(c)(3)

• State’s leading non-profit organization supporting lung cancer research and education

• Specializing in connecting patients, survivors and loved ones with the medical and research community

• Dedicated to increasing lung cancer awareness and research funding

• Responsible stewards: In 2017, 78% spent on research, education, awareness and access

8/19/2018

9

Paige Humble Executive Director

Our Staff

Lynne Hicks

Director of Finance

Sandy Oehler

Manager of Development & Special Events

Jenni Danai Director of Programs

Courtney Freeman Programs Coordinator

Megan Snowdowne

Manager of Marketing

Michelle McLean

Operations

Administrator

8/19/2018

10

Our Board of Directors

Amy Cipau, MBA,

President

Advocate

Jennifer Garst, MD, Board

Chairman

Duke Cancer Institute at

Duke Raleigh Cancer Center

Jeremy Holden, Advocate

Chief Strategy Officer,

Clean Design

Liz Hynson, Advocate

Edward S. Kim, MD

Levine Cancer Institute

Carolinas Healthcare System

Hiren Mehta, MD

UNC REX Pulmonary

Specialists

Justin Brian Nicholson,

Survivor

Sterling Capital

Emily Parks, Advocate

Organize for Success,

LLC

Jared Weiss, MD

UNC Lineberger

Comprehensive

Cancer Center

Shirley Sulick,

Survivor

Jim Sheegog, Advocate

Rowhill Consulting

Group

Chris Rallis, JD

Pappas Ventures

Chad Pecot, MD

UNC Lineberger

ComprehensiveCancer Center

8/19/2018

11

Jeff Petty, MD, Committee ChairWake Forest Baptist Comprehensive Cancer Center

Jennifer Garst, MDDuke Cancer Institute at Duke Raleigh Cancer Center

Jared Weiss, MDUNC Lineberger Comprehensive Cancer Center

Ed Kim, MDLevine Cancer Institute

Paul Walker, MDBrody School of Medicine at East Carolina University

Amy Cipau, MBAFounder and President, LCI

Patti Pozella, PhDPursuit-Solutions

Liling Warren, PhDOmicSoft Corporation and Acclarogen

Chad Pecot, MDUNC Lineberger Comprehensive Cancer Center

Kathryn Mileham, MDLevine Cancer Institute

Jimmy Ruiz, MDWake Forest Baptist Comprehensive Cancer Center

Neal Ready, MDDuke Cancer Institute

Mark Bowling, MDBrody School of Medicine at East Carolina University

Scientific Advisory Committee

8/19/2018

12

2009

• Hired first employee and opened office.

2010

• Hired second employee.

2012

• Held first Charlotte 5K.

• Held first NC Lung Cancer Advocacy Summit.

2013

Lung Cancer Initiative

• Disaffiliated from Free to Breathe and gained independent 501(c)(3) status, rebranding as Lung Cancer Initiative

• Funded $500,000 toward lung cancer research cumulatively.

• Launched the Access to Care gas card program.

Our History

8/19/2018

13

Our History2014

• Held first Expert Speakers Series.

2015

• Established Research Fellows Program for funding fellows at teaching hospitals throughout the state.

2016

• Funded more than $1 million in lung cancer research in NC, cumulatively.

• Began research partnership with The V Foundation for Cancer Research.

• Began to fund local access grants at community hospitals to improve patient access to care.

2017

• Employing 5 full-time employees

• Launched Development and Marketing Committees.

8/19/2018

14

Celebrating

10 Yearsas a 501c3

8/19/2018

15

Lung Cancer: A Snapshot

American Cancer Society. Cancer Facts and Figures 2017. Atlanta:

American Cancer Society; 2017.

99%

90%

18%

0%

20%

40%

60%

80%

100%

ProstateCancer

Breast Cancer Lung Cancer

Five-Year Survival Rates

Prostate Cancer

Breast Cancer

Lung Cancer

8/19/2018

16

US Cancer Deaths vs. Federal Funding

Source: https://report.nih.gov/categorical_spending.aspx

8/19/2018

17

Not Just For Smokers!

20-25,000

people in the

U.S. get lung

cancer each

year, despite

never smoking.

Those who have

quit smoking

remain at risk.

8/19/2018

18

Faces of Lung Cancer

8/19/2018

19

• Research

• Awareness

• Education

• Access

What We Do

8/19/2018

20

Research:

Fueling Medical Discovery

Our support has jump-started the careers of researchers who have gone on to receive further funding from the National Institute of Health, Department of

Defense and the American Cancer Society

The amount secured in lung cancer research for North Carolina in 2018.

The number of researchers being funded at five leading cancer centers across the state.

The total amount we have raised in lung cancer research since 2008.

$275,000 11 $1.6 Million

8/19/2018

21

2018-19 Research Fellows

8/19/2018

22

V Foundation, Co-Funded Research

Qingyi Wei, MD, PhD

Duke Cancer InstituteEdward Kim, MDLevine Cancer Institute

Co-funded $400,000 with The V Foundation for Cancer Research• Projects that recognize and address the disparities in

cancer incidence and death rates in African-Americans, as compared to all other ethnic groups

• Research presentation in November

8/19/2018

23

We are committed to increasing public awareness about lung cancer, through:

• Events

• Education & Outreach Initiatives

• And other grassroots opportunities

Education & Awareness

8/19/2018

24

Education:

Changing the Conversation

The number of providers and oncologists educated around the state

The number of free patient education materials given out around the state in 2016.

The number of people educated at our 2016 Expert Speaker Series with six cancer centers.

3,000+ 1,600 + 200+

8/19/2018

25

Access:

Easing the Burden

Number of $50 gas cards given in 2017 to patients in 78 counties.

Amount funded in Access Grants in 2017.

356 $25,000

“Thank you for the gas card. I appreciate it more than words can say. I will be traveling 60 miles one way for at least six weeks, five days a week and this will help tremendously.” --2017 gas card recipient

8/19/2018

26

Access Grants

8/19/2018

27

Education:

Changing the Conversation

The number of providers and oncologists educated through ASCO Update dinners.

The number of online pledges to date for Screen Together.

The number of people educated at our 2017 Expert Speaker Series with six cancer centers.

60 243 183

8/19/2018

28

• Expert Speaker Series– Allows for patients and their families to come together to hear from experts on

topics related to lung cancer and research

• HCP Education – Provides educational opportunities for health care providers throughout North

Carolina in order to improve diagnosis, referral and treatment

• Materials Distribution– Distributes free print and online materials to patients and physician offices

• Advocate Speakers Program– Free lung cancer educational sessions to businesses and civic groups to increase

wellness

• Health Fairs/ Community Tables– Builds lung cancer awareness within local communities and businesses

Education

8/19/2018

29

Our Goal: More Survivors!

Survivors in 2017 &

2018!

8/19/2018

30

Lung Cancer Hope

There is hope!

Research has brought about improvements

in screening and treatments for other

cancers that have led to longer and better

lives for patients.

We need to do the same for lung cancer!

8/19/2018

31

We have opportunities that allow you to bring your strengths to benefit our organization and

those we serve…

We Need You!

8/19/2018

32

How You Can Help

• Become a sponsor

• Create a Corporate Team

• Participate in an event

• Make an in-kind tax deductible contribution

• Matching Gift Program

• Distribute educational materials

• Host a fundraiser

• Volunteer at an event

• Join a planning team

• Publicity/Media Assistance

8/19/2018

33

Greensboro LUNGe Forward 5K, Run, Walk & Rally

Saturday, November 10, 2018Center City Park, Greensboro, NC

Triad.LUNGeForward.org

Raleigh LUNGe Forward 5K, Run, Walk & Rally

Sunday, September 23, 2018Midtown at North Hills, Raleigh

Raleigh.LUNGeForward.org

Charlotte LUNGe Forward 5K, Run, Walk & Rally

Saturday, March 30, 2019McAlpine Park, Charlotte, NC

Charlotte.LUNGeForward.org

8/19/2018

34

Together, there is always something we

can do.

8/19/2018

35

Who is here?

12Survivors

15Cities

4States

61Participants

8/19/2018

36

Build a Movement! Why?

• Too many affected cannot speak for themselves

• We cannot make progress without research, education and awareness about this disease

We need EVERYONE advocating for more research dollars and researchers in the field

8/19/2018

37

• We cannot do it without you!

• There is strength in numbers!

• This has worked for other diseases!

• This is the first step…

Why are we here?

8/19/2018

38

If you’re waiting for someone else to do something about lung cancer ... don’t hold your breath!

Why are we here?

8/19/2018

39

If not us, WHO?

If not now, WHEN?

Why are we here?

8/19/2018

40

Lung Cancer Initiative Summit:

• Attend all sessions

• Listen effectively

• Contribute – your questions, ideas, perspective

• Respect others who may have different viewpoints from your own

What we expect of you

8/19/2018

41