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May/June 2017
POSTPOLIOCLUB.WORDPRESS.COM ISSUE 49
POWER OVER POLIO NEWS
WHATS INSIDE!
MEETINGS P 1-2
HELP WANTED P—2
VISION P 3
E-MOTION BIKE P 5
WELCOME P 6
RETURN BOOKS P 6
ASK DR MAYNARD P -7
STERPOID INJECTIONS P 8
DRUG INTERACTIONS P 10
POPS CREW P 12
DIRECTIONS P-13
This newsletter will
provide:
A positive attitude
Polio info, local and national
Tips and advice on healthy
living
Entertainment
Access to interesting Internet
sites
Space for member participa-
tion
Barbara Meyers
Phil Stevens, the husband, father,
mountain climber, hiker and polio sur-
vivor told us his polio story at the April
Meeting. He began at the beginning
and finished with his current status
with emotion and humor. We gave
him a big hurray!
I hope more of you will volunteer to tell your story beginning
in October. Sharing your story is cathartic for you and a boon
for the rest of us to hear when and how the virus came to
you, what medical treatment you received, and then the rest
of the story to date. Just see me to book a month for your
story Barbara Meyers
Our speaker at the April meeting was the owner of a company
called “Mr. Handyman.” His presentation gave us suggestions
on how to retrofit our homes to make them more user friendly
and eliminate some of the areas that could be dangerous to us
as we age. He recommended Grab Bars in the bathroom that
have been installed properly not the one that sticks to the
shower walls via suction. Grab bars make entering and leaving
a shower safer. He also talked about how to increase the width
of doorways to allow a wheelchair to enter by using a special
hinge that brings the door flat to the wall. He recommended
wood flooring, maybe vinyl like wood. He said that was best
for assistive devices but if you wanted to use carpet make sure
the carpet is stretched tight.
2
After “Mr. Handyman” we had a surprise
newcomer to the group, Terry French. Ter-
ry came in on his E- Motion bike and gave
us a demonstration. But there is more
about his story on page 5 of the newsletter.
May 12, 2017. Will be the last meeting until Oc-
tober. Beverly Centellas, one of our members,
will discuss our current library, how we may im-
prove it. Help us know how reading new books
related to polio and post-polio will help us bet-
ter recognize ourselves, encourage us to contin-
ue trying, understand others have faced the
same problems we are facing and maybe even
learn new coping techniques. Beverly was a li-
brarian in her life before she and her husband
retired to Florida. She has a great love of books
and an appreciation of their worth.
After the presentation we will have time to talk
one to one while we enjoy the treats provided by
our volunteers.
There will be a surprise visit from one of our
newest members, Terry French who will bring
some electric bikes for us to try.
HELP WANTED I am hoping to keep the newsletters current
and contain things you want to read and
learn about and have a smile about.
So I am asking you all to be on the lookout
for information, articles you find in the
newspaper, magazines, books that would
be of interest to our readers.
Cute cartoons, sayings, fitness news, ways
to live safely and in good health.
If you come across something that made
you stop and think, made you smile, or
gave you pause to wonder, share it with
your post-polio friends by sending it to me
via email or in an envelope by snail mail.
You know how in conversation you might
say, “Did you read about this new flu virus
and how it comes in three strains: the first
makes you ill and lowers your immunity,
the second hits you because your immunity
is so low and the third comes when you are
at your worst.” Info like this should be
shared. Or maybe you hear about a new
mode of transportation for those with mo-
bility issues. Or even something new about
post-polio.
I find I cannot read all the magazines, read
all the newspapers, or search all the web
sites. I need you to be my assistants, story
finders and information gatherers.
Thanking you for your assistance in ad-
vance.
Barbara Meyers
_________________________________
3
Q. My mother has just gotten her first
eyeglasses with progressive lenses
and has fallen twice. Could her glass-
es be the reason?
A. Maybe. A recent study found a significant link between the risk of falling and "optical blur" caused by progressive lenses.
The lenses can cause blurring of the lower field of vision, which then affects the accuracy with which people step, according to the study published in the journal Optometry and Vision Science in June 2016.
While the blurring may not be a problem on level, uncluttered surfaces, it can be a major issue when precision stepping is necessary—for example, when using stairs or walking on uneven pavement.
But the blur is not the only problem. When people walk, often their gaze is fixed not on where they are going to step but rather on where they'll land a couple of steps later.
The further ahead the gaze is fixed, the more likely a person is to miss the next step. With blurring from corrective lenses, the stepping error is significantly greater.
There are a couple of things your mother can do to lessen her risk of falling. One is to prac-tice keeping her gaze fixed on exactly where she needs to step until her foot touches down. And the other, especially if she is an active person, is to get a pair of single-vision pre-scription eyeglasses to wear when walking.
Night Vision Problems and Driving
If you have more difficulty seeing when you drive at night than in the day, you’re hardly alone. But it’s not something to be taken in stride, since problems in night vision are a ma-jor factor in traffic fatalities. According to Con-sumer Reports, about 70 percent of accidents involving cars striking pedestrians occur at night. Improved highway lighting, reflective paints on roads, and shoulder rumble strips, among oth-er infrastructure initiatives, have all made night driving safer. Ironically, however, fog lights, high beams, and auxiliary lights, all designed to increase safety, can put drivers of oncoming vehicles at risk because of increased glare from them. Older people are especially susceptible to night vision problems—even if their daylight vision is okay—because of changes that occur in aging eyes, including a gradual reduction in the size of the pupil (so less light hits the reti-na) and a decrease in the number of rods in the retina (the cells that are important for twi-light and night vision). .There is also a loss in contrast sensitivity (the ability to distinguish an object from its background), which makes it harder to see pedestrians, animals, and obsta-cles on the road. Plus, the retina’s ability to quickly adjust between bright light (as with on-coming headlights) and low-light conditions decreases with age. On top of these changes, older people are more likely to have other eye conditions that affect the ability to see in low light, including cataracts, macular degeneration, and glauco-ma. Night vision may also worsen in people of all ages who have diabetes or dry eye syn-drome and after LASIK and other refractive eye surgeries.
4
Routine eye exams typically test vision only under daylight conditions, which does not predict night vision. In fact, many people test well in standard eye exams but have night vi-sion problems, whether they are aware of them or not. How low light affects vision In a small study in the journal Optome-try and Vision Science, researchers tested the visual acuity of 43 people (ages 14 to 32)—first at daylight levels and then at different lev-els of twilight—using light filters and found that vision decreased significantly with each drop in illumination. In fact, the subjects, who had about 20/20 vision at daylight levels, dropped on average one to two lines on the eye chart in twilight conditions and almost three lines in dimmer light. An older study, published in Human Factors, tested the driving performance of young, middle-aged, and older people under both day and night conditions. Participants in all age groups slowed their vehicles under low light conditions, but not enough to compensate for degraded visibility at night. And the middle-aged and older groups performed worse in spotting pedestrians. What you can do If you have trouble seeing in low light, con-
sult an eye care professional, who, in addi-tion to giving you a standard eye exam, may use special charts or other equipment to pinpoint any night vision problems. You may be a candidate for prescription night-driving glasses, even if you don’t wear glasses during the day.
Ask your eye care professional for glasses with anti-reflective coatings, which cut down on glare. High-definition lenses can give you sharper vision and also reduce glare for nighttime driving. Yellow-tinted lenses can increase contrast sensitivity, though they may also intensify glare, and any tint reduces the amount of light that reaches the eye.
If you are having cataract surgery, ask about getting an aspheric intraocular lens, a type of “premium” lens that improves con-trast sensitivity (though these lenses are not covered by Medicare or other insur-ance).
Treat dry eye syndrome if you have it (and
get evaluated if you think you have it). The condition can cause you to experience light scatter.
When driving at night, make sure your headlights, windows, and mirrors are clean; use your window defoggers in inclement weather; slow your speed; and turn on the high-beams more often (but not in fog or when there are oncoming vehicles).
If you are in the market for a new car—and can afford the über-expensive price tag—check out models that have new night-vision systems, such as infrared cameras that detect people and animals and then alert you to their presence through an im-age on the dashboard or by beeping. Such high-tech features, available only on high-end luxury cars now, should become more common and affordable in the future.
Lastly, some tips for home owners, pedes-trians, and cyclists: Problems with night vi-sion are responsible for an untold number of falls, so you should keep your walkways well illuminated at night and not skimp on indoor lighting. Wear light-colored clothing or reflective markings if you are walking or cycling on dark streets.
This article is based on the findings found
in Scientific American Consumer Health White Papers. The 2017 annual guide to sight-saving therapies. Don and I sub-scribe to this publication to learn and be updated on current procedures for Macular Degeneration. An eye condition that Don deals with. Barbara
5
E– MOTION an adult mobility alternative
Terry French’s mother was pregnant with him when
she contracted polio. Terry was born with polio and
did not walk until he was 5 years old. Terry's mother
is now 80 years old and walks with assistance. Terry
graduated from high school and went on to Michigan
State University to become an engineer. He married
his wife, Joy, and together they had 3 children and
have 11 grandchildren. Terry is now feeling the
effects of Post-polio .
In his quest
to find a mo-
torized
means of
transporta-
tion that
would put
him on the
same level as
other folks
he came up
with a proto-
type for his electric bike. He feels great pride when
he can reach high things in the grocery store unlike
being in a scooter and having to ask for help. Gradu-
ally other disabled folks saw the bike with Terry on it
and also wanted one. It has now grown into almost a
full time job in his retirement.
The bike frames are made In his home town of Lan-
sing, Michigan and sent to him where he adds the
batteries, wheels and all the bells and whistles. He
says he builds his electric bikes with the buyer in
mind with dedication to making it the most comforta-
ble and safe bike for the disabled.
His first electric bike cost him about $30,00.00. he
now sells them for $2,599.00.
Don and I met Terry and Joy at Saddlebrook in the
parking area. There they were with their trailer and
several bright shiny bikes to show us. I had a purple
blouse on that day and spied a purple bike and fell for
it. Terry and Joy explained the controls to me and
convinced me to ride it around the parking area.
The maximum speed of the bike is 25 miles an hour.
Whoa that’s fast. There is a control on the handle bar
to govern the speed of the bike. With caution I got
up on the bike. It was really easy, first sit on the seat
and then bring your legs up to the floor of the
platform. I situated myself took hold of the handle
bars, got some last minute information from Joy, re-
leased the break and turned
the control towards me and I
was off. A beautiful ride, so
comfortable, a good feeling of
stability, and the wonderful
feeling of movement. When I
decided to stop the brake was
easy to handle and lock.
Terry and Joy told me the
bike’s name was Violet and
they called her Vi. I love Vi.
6
Terry has a shop in Belleview, FL where he creates the bikes
to meet the requirements of the buyers. His shop is outfitted
with pulleys and hydraulic lifts to make his work space con-
form to his disability. He does not have to lift anything and
workspace rises and lowers to any level he needs it to be. He
calls the bikes his labor of love and is not interested in pro-
duction lines and a business that takes all of his time.
Back in Lansing, MI Terry left his printing business to his two
sons. Terry has many stories about his life with polio and I
hope he will share more of them with us at future meetings.
Barbara
_______________________
WELCOME, NEWEST MEMBERS
TERRY & JOY FRENCH,
CONNIE SIEDLECKI,
RONALD &
ANNA MARIA ACEVEDO
PLEASE RETURN ON THE SECOND FRIDAY IN MAY,
SAME TIME, 1:00, AND SAME PLACE, SEABREEZE
REC CENTER IN THE VILLAGES. YOU SHOULD
HAVE RECEIVED YOUR FIRST COPY OF OUR NEWS-
LETTER. DON’T FORGET TO CHECK OUT THE WEB
SITE.
POSTPOLIOCLUB.WORDPRESS.COM
_____________________________________
POPS BOOKS ON LOAN
Please, if you have taken a book
from our library and have not yet re-
turned it bring it to the next meeting.
We are very generous in our policy
of lending books and expect you to
be responsible in returning the
books you have borrowed. No harm
no foul, just set the book back on the
table and we will be thankful it is
there for someone else to read.
Barbara
7
ASK DR. MAYNARD By
Frederick M. Maynard, MD Question: I would like your take on using
drugs such as gabapentin for use in
treating PPS pain. With the new drug laws,
my doctor has prescribed this drug for
pain instead of the hydrocodone I was tak-
ing. (Editor’s Note: Under a final rule is-
sued by the U.S. Drug Enforcement Ad-
ministration, hydrocodone combination
products are now in a more restrictive cat-
egory of controlled substances, along with
other opioid drugs for pain like morphine
and oxycodone.) I can usually manage the
pain during the day but have problems
sleeping. Some nights it feels like some-
one is trying to peel my muscles from my
bones. I am asking because gabapentin is
used to treat seizures, but I do not have
seizures. When I looked up the usage, it is
also given for treatment of pain for the
shingles for a period of three to four
months. Whatever I decide to take for
pain, I will possibly use for the rest of my
life. Has anyone done a study of the long-
term usage of gabapentin for post-polio
pain? I do not want to take this medica-
tion and find out it was not good for man-
aging post-polio syndrome.
Answer: Gabapentin and pregabalin are
only approved for control of seizures and
fibromyalgia (in the case of pregabalin).
There are no studies supporting their
effectiveness for leg cramps in the survi-
vors of polio. Gabapentin is the most
widely prescribed drug and used “off-
label” for chronic pain syndromes of all
sort. If these drugs are used for leg
cramps, they should be evaluated careful-
ly on an individual basis relative to their
effectiveness and the optimal minimally
effective dose. For survivors with leg
cramps, a thorough history and exam
should be done regarding the most likely
cause(s) of the cramps. Tight muscles are
the most common contributing factor, but
they can be treated with stretching.
The next most common cause is overuse/
misuse of the leg muscles. Metabolic im-
balances of calcium and magnesium are
also common. None of these common
causes are likely to respond to treatment
with gabapentin/pregabalin. In regard to
your specific concerns about trying it:
gabapentin appears to be safe from the
standpoint of serious side effects from
long-term use. There are many non-
serious side-effects in the short-term for
many people who take it, particularly
sleepiness, fatigue, mental slowness, nau-
sea. They stop when the drug is not taken.
In your question, you mention problem-
atic pain, particularly at night, and for this
problem I would encourage you to try
gabapentin at a small dose (100 mg) taken
about one hour before going to bed.
8
If it is helpful and your night-time problem
is not every night, you can take it “as need-
ed” at night, but it may take an hour or
more to be helpful. Don’t be too concerned
about it being listed as an anti-seizure med-
icine or a helpful treatment for shingles-
related pain. It does help these conditions
& because they have been studied suffi-
ciently, it is legal & appropriate to say that
it helps some with these conditions. I know
from my own practice & from speaking with
other physicians that it can be prescribed
safely & is sometimes helpful as an adjunct
to effective pain management for polio sur-
vivors. It is probably a better choice for
chronic pain than regular use of hydroco-
done. Nevertheless, it should be considered
as a “pain modulator” for chronic musculo-
skeletal pain & certainly not a true analge-
sic or primary treatment for PPS pain.
Follow-up from questioner: I have been
taking 300 mg of gabapentin three times a
day for almost three weeks. I cannot seem
to stay awake. I feel sluggish, keep stum-
bling and am dizzy. I’m afraid I am going to
fall. This drug seems to be robbing me of
what little energy I have. I may suggest to
my physician that I try only 100 mg at night.
Reprinted from Post-Polio Health (formerly called Po-
lio Network News) with permission of Post-Polio
Health International (www.post-polio.org). Any fur-
ther reproduction must have permission from copyright
holder.
DR RICHARD BRUNO, PHD – WARNING –
STEROID INJECTIONS 3-3-2016
Ohio Polio Network, Spring 2017
Study: Hip Replacement too soon after a steroid injection increases infection risk.
Released: 2, March, 2016 Source Newsroom: Hospital for Special Surgery
“””””””””””””””””””””””””””””””””””””
Patients considering hip replace-ment surgery would do well to wait three months if they’ve had a steroid injection to relieve hip pain, according to a study by Hospital for Special Surgery (HSS0) researchers.
“The risk of developing an infection after surgery increased significantly in patients who had a hip replacement with-in 3 months of receiving a steroid injec-tion,” said William Schairer, MD, lead study author. “However, in patients who had a steroid injection and then waited 3 months or longer to have the surgery, there was no increased risk at all.
”Researchers reviewed thousands of patient’s records in California and Flor-ida databases for their study, which was presented at the annual meeting of the American Academy of Orthopedic Sur-geons (AAOS), on March 2, in Orlando, Florida.
An injection of a steroid into the
hip joint is a common treatment to re-
lieve
Too much medicine isn’t always
a good medicine….
9
pain and inflammation in patients with arthritis. This is the first large popu-lation study to provide strong evidence of an increased risk of surgical site infection in patients who have hip replacement 12 weeks or sooner after the injection, ac-cording to the researchers. They note that the immune system is weakened by corticosteroids, and this may contribute to the higher infection risk.
“Hip replacement is a common and safe procedure that relieves pain and im-proves quality of life, and overall, the risk of developing a joint infection is low,” said Seth Jerabek, MD, an orthopedic surgeon at Hospital for Special Surgery and senior study author “Although the risk is low, an infection is one of the most dreaded complications of joint replacement. Pa-tients often need to undergo additional surgery, receive intravenous antibiotics treatment, and are off their feet during a lengthy recovery.”
For their study, investigators looked at the Statewide Ambulatory Sur-gery and Inpatient Databases for Florida and California from 2005-2012, which in-cluded more than 17,000 patients who had hip replacement surgery for osteoar-thritis. Researchers narrowed down the list to those who had received steroid in-jections prior to surgery and reviewed follow-up records to determine which of those patients developed a surgical-site infection within one year of hip replace-ment. Patients were grouped into those who received NO injection; those who had hip replacement within 6-12 months of an injection; those who had the sur-gery within 3-6 months; and those who had hip replacement within 0-3 months of receiving an injection.The infection
rate was2.06% in non-injection patients and jumped to 2.8% in those who had the surgery from 0-3 months after an injec-tion, representing an increased risk of 40%. There was no statistically signifi-cant increase in infection risk in patients who had hip replacement from 3-12 months after the injection.
“Based on study findings, we rec-ommend that elective hip replacement surgery be deferred for at least 3 months from an injection to avoid the elevated risk of infection,” said Dr. Jerabek. “However, in some cases, such as patients who are still in a great deal of pain after the injection, it may not be feasible to wait. This is something the patient and doctor should discuss to determine what will provide the most benefit and least risk to the patient.”
Reprinted from Pennsylvania Polio Network newsletter, March 2016 and then into our POPS newsletter from the Polio Heroes of Tennessee Newsletter dated Spring 2017.
Dr. Richard Bruno, PhD is the author of the bestselling book “THE POLIO PARADOX.” Dr. Bruno has been researching polio and post-polio for over 40 years.
10
Drug interactions can result in unwanted side effects, reduce the effectiveness
of your medication or possibly increase the action of your medication. Did you
know prescription and over-the-counter medications can:
Interact with food or beverages we consume.
Interact with existing diseases or conditions.
Cause side effects or symptomatic responses ranging from mild to severe. (If
you experience any unusual side effect after taking a medication, no matter how
mild or severe, consult your doctor or pharmacist.)
You might know that certain prescription medications can interact with one an-
other and cause potentially harmful side effects. But did you know that interac-
tions can occur not only with prescription medications, but also with over-the-
counter medications, supplements, and foods and beverages? Medications can
even interact with diseases or conditions you may have. Fortunately, with a lit-
tle careful planning, you can avoid serious drug interactions.
There are 3 basic types of drug interactions:
These occur when one drug interferes with another drug, affecting how one or
both act in or are eliminated from the body. These interactions can occur be-
tween prescription drugs, over-the-counter drugs, and even herbal or other die-
tary supplements, including vitamins. For example, vitamin E and aspirin both
act to thin the blood. Taking these together could cause excessive bleeding.
And combining antidepressants with the pain medication tramadol could cause
seizures.
It is particularly important to remember that herbal products, which many peo-
ple regard as natural alternatives to drugs, still behave like drugs in the body.
For example, the herb called St. John’s wort can reduce blood levels of certain
medications. Furthermore, if a person is already taking St. John’s wort along
with another drug, stopping the herb may cause drug levels to rise, potentially
leading to dangerous complications.
Drug-Drug Interactions
Avoid unwanted drug interactions
11
Drug-food/beverage interactions occur when a prescription or over-
the-counter medication interacts with food or beverages. For exam-
ple, taking the antibiotic tetracycline with a glass of milk can lessen
the absorption of the antibiotic in the body and make it less effec-
tive. Grapefruit juice can block enzymes that metabolize numerous
drugs, including some blood pressure-lowering drugs, anti-
depressants, antihistamines, and the drug cyclosporine, thereby in-
creasing blood levels of these drugs. Toxicity could result.
These occur when a prescription or over-the-counter medication in-
teracts with a disease or condition. For example, decongestants,
such as those found in many over-the-counter cold remedies, can
cause an increase in blood pressure, which could be dangerous for
people who already have high blood pressure.
Symptoms of Drug Interactions
The most common symptoms of drug interactions tend to be less se-
rious and include the following:
Nausea
Headache
Heartburn
Lightheadedness
More serious—but less common—symptoms and results of drug inter-
actions include the following:
Sharp increase or decrease in blood pressure
Irregular heartbeat
Buildup of toxins that could damage vital organs, such as the liver or
heart
Consult your doctor or pharmacist if you experience any unusual side
effect after taking a medication, no matter how mild or severe.
Drug-Food/Beverage Interactions
Drug-Condition Interactions
12
It takes dedication to keep the POPs group together, provide infor-mation along with interesting meetings. Our goal is to maintain a friendly welcoming atmosphere for all polio survivors and their caregivers, family And friends.
FOUNDING LEADERS
PAST MEETING LEADERS
DON AND JO AN SUTTLE
CLIFF AND DIANA KENNEDY
TREASURER BILL HAMILTON [email protected]
SECRETARY LYDIA WHITE [email protected]
PROGRAMS: MARDA HAMILTON [email protected]
BARBARA MEYERS [email protected]
KAY MOSURE [email protected]
JO AN SUTTLE [email protected]
ROSEMARY HUGHES [email protected]
BEVERLEY CENTELLAS [email protected]
SUSAN KEENAN [email protected]
PUBLICITY KAY MOSURE [email protected]
LIBRARIAN AVAILABLE BRING BOOKS BACK AND FORTH TO
MEETINGS IN ROLLING SUITCASE.
NEWSLETTER/WEBSITE
CONTRIBUTING REPORTER
PROOF READER
BARBARA MEYERS
MARION SCHOELLER
LYDIA WHITE
SOCIAL/ATTENDANCE ROYCE RUTHER [email protected]
CARE AND CONCERN SUSAN KEENAN [email protected]
E MAIL LYDIA WHITE [email protected]
KEEP IN TOUCH DON SUTTLE [email protected]
NEW MEMBER INFO JO AN/ DON SUTTLE [email protected]
NAME TAGS MARGARET KOCHANOWSKI [email protected]
13
OUR MEETINGS ARE HELD AT THE
SEA BREEZE RECREATION CENTER
THE VILLAGES, FLORIDA
Using the back entrance is an option. Use the driveway so you
won’t have to negotiate the curb. Enter the back door, turn right,
down 2 doorways and turn left. In the kitchen area you will find
coffee and treats, and then step into our room.
DIRECTIONS TO THE CENTER BELOW.
We hope that you will find these direc-
tions helpful and we look forward to see-
ing you at our meetings.
From the north:
Via Morse Blvd:
Either take Morse down from the north, crossing 466 or turn south onto Morse from 466. In both events,
continue on Morse going over the bridge. Go past the exit into Lake Sumter Landing, continuing south on
Morse. At the next circle (just past Winn Dixie Grocery Store which will be on your right), go one quarter of
the way around and exit onto Stillwater Trail. Go to the end of Stillwater and then go three quarters of the
way around that traffic circle exiting onto Buena Vista Blvd, going south.
Stay on Buena Vista going half way around the next three traffic circles. Just past the third traffic circle you
will see the Sea Breeze Recreation Center on your right and should turn into its entrance off Buena Vista.
Via Buena Vista:
Take Buena Vista south, going through several traffic circles. Once past the Stillwater traffic circle, follow the
directions shown above.
From the south:
You should travel to County Road 466A taking it east if coming from Highway 301 and west if coming from
27/441. Travel to the light at Buena Vista Blvd and turn north on Buena Vista (that will be a left turn coming
from 301 and a right turn coming from 27/441). Go one half way around the first traffic circle and continue
north on Buena Vista. Shortly after going around that circle you will see the Sea Breeze Recreation Center on
your left and will come to a left hand lane that will allow you to turn left into the center.