Position Paper 8:Position Paper 8:Providing Nutrition Services Providing Nutrition Services

for Infants, Children, and for Infants, Children, and Adults with Developmental Adults with Developmental

Disabilities and Special Disabilities and Special Health Care NeedsHealth Care NeedsGroup 8: Group 8:

Best of Times HokiesBest of Times HokiesAshley Holmes, Nikki Houck, Amy McMahon, Gabrielle Ashley Holmes, Nikki Houck, Amy McMahon, Gabrielle

WillisWillisNovember 13, 2008November 13, 2008

Objectives Objectives

-ADA Position -ADA Position StatementStatement

-Defining of population -Defining of population -Selected conditions-Selected conditions -Nutritional risk factors-Nutritional risk factors -Recommendations for -Recommendations for

DietitiansDietitians -Legislation-Legislation - Critique- Critique

Position of ADAPosition of ADA

“It is the position of the American Dietetic Association that nutrition services are essential components of comprehensive care for infants, children, and adults with development disabilities and special health care”

Nutrition care should be continuous.Service should include a variety of methods.Special health complications and Risk Factors.Legislation is an evolutionary Process.

PopulationPopulation

May or may not be associated with a May or may not be associated with a diagnosed conditiondiagnosed condition

Includes people who require ongoing Includes people who require ongoing coordinated services/supportcoordinated services/support

3 to 4 million Americans in 20043 to 4 million Americans in 2004 Increased nutritional risk Increased nutritional risk

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Selected Conditions Selected Conditions

Cerebral palsy Cerebral palsy Down syndrome Down syndrome Prader-Willi syndrome Prader-Willi syndrome Autism Autism Cystic Fibrosis Cystic Fibrosis Spina bifidaSpina bifida

http://www.blaenau-gwent.gov.uk/images/Images_Children/Children_With_Disabilities.jpg

Nutritional Risk FactorsNutritional Risk Factors Overweight/obesityOverweight/obesity

Prevalent in people with Down SyndromePrevalent in people with Down Syndrome Medication-Nutrient InteractionMedication-Nutrient Interaction

Anticonvulsants, psychotropics, Tricyclic Anticonvulsants, psychotropics, Tricyclic antidepressants ect.antidepressants ect.

Energy NeedsEnergy Needs Differ depending on disabilityDiffer depending on disability

Oral Motor/ Feeding IssuesOral Motor/ Feeding Issues Self-feeding skills, swallowing functionSelf-feeding skills, swallowing function

Advocate

Address

Implement

Provide

Attain

Support

Dietitian’s Role as an Dietitian’s Role as an Agent of ChangeAgent of Change

Legislation:Legislation:Transition from Institutions to Home and Community-based Transition from Institutions to Home and Community-based

servicesservices

Major Contributors:Major Contributors:-Developmental Disabilities Assistance Act (1963)-Developmental Disabilities Assistance Act (1963)

-Individuals with Disabilities Education Act (1975)-Individuals with Disabilities Education Act (1975)

-Americans with Disabilities Act (1990)-Americans with Disabilities Act (1990)

-Head Start (1965)-Head Start (1965)

-The Child Nutrition Act (1996)-The Child Nutrition Act (1996)

-Special Supplementation Nutrition Program-Special Supplementation Nutrition Program

for Women, Infants, and Children WIC (1972)for Women, Infants, and Children WIC (1972)

-National School Lunch Program-National School Lunch Program

-Children’s Health Insurance Program (1997)-Children’s Health Insurance Program (1997)

As result of advocacy from parent and professional organizations

CritiquesCritiques

ProsPros ConsCons

Written for multiple Written for multiple healthcare healthcare professionalsprofessionals

Significant Legislative Significant Legislative InformationInformation

Detailed Overview of Detailed Overview of Target PopulationTarget Population

Difficult to readDifficult to read

The content did not The content did not correspond with the correspond with the title or position of the title or position of the paperpaper

Focus more on how Focus more on how nutrition services nutrition services benefits the target benefits the target populationpopulation