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Background Online surveys of societal preferences – do we know what respondents are doing? A literature review Donna Rowen, Mandy Ryan, Aki Tsuchiya, Verity Watson, Universities of Sheffield and Aberdeen Corresponding author: Donna Rowen <[email protected]> www.sheffield.ac.uk/heds; @sharrheds; www.abdn.ac.uk/heru; @HERU_Abdn Contact us Conclusion Ex post perspective? Key word Search -“social values” -“resource allocation” -“on-line survey” -“health” Database: Medline 1946 onwards in English Hits: 207 Included: Societal values in health using online survey: 13 papers, covering 14 studies Year of publication: 2002- 2013, and 9 of the 13 published 2010 or later Journals: 9 different journals including British Medical Journal [2]; Health Economics [3]; and Value in Health [2] Countries: Australia [2]; Europe [8]; US; other Topics covered: patient age, baseline health (QOL, survival), health gain (QOL, survival), unmet need, end of life, dependents, sex, ethnicity, income, smoking (responsibility), rarity Recruitment: self selected open access [1]; convenience sample [2]; online panel [10] Sample size: 127-4118; median 800; mean 1198 Method: DCE [5]; PTO/budget pie [6]; other Search and hits School Of Health And Related Research The question Desser, A.S., Gyrd-Hansen, D., Olsen, J.A., Grepperud, S., Kristiansen, I.S., 2010. Societal views on orphan drugs: cross sectional survey of Norwegians aged 40 to 67. BMJ 341, c4715. Eisenberg, D., Freed, G.L., Davis, M.M., Singer, D., Prosser, L.A., 2011. Valuing health at different ages: evidence from a nationally representative survey in the US. Applied Health Economics & Health Policy 9, 149- 156. Lim, M.K., Bae, E.Y., Choi, S.E., Lee, E.K., Lee, T.J., 2012. Eliciting public preference for health-care resource allocation in South Korea. Value in Health 15, Suppl-4. Linley, W.G., Hughes, D.A., 2013. Societal views on NICE, cancer drugs fund and value-based pricing criteria for prioritising medicines: a cross- sectional survey of 4118 adults in Great Britain. Health Economics 22, 948- 964. Norman, R., Hall, J., Street, D., Viney, R., 2013. Efficiency and equity: a stated preference approach. Health Economics 22, 568-581. Richardson, J., Sinha, K., Iezzi, A., Maxwell, A., 2012. Maximising health versus sharing: measuring preferences for the allocation of the health budget. Social Science & Medicine 75, 1351- 1361. Schwappach, D.L., 2002. The equivalence of numbers: the social value of avoiding health decline: an experimental Web-based study. BMC Medical Informatics & Decision Making 2, 3. Schwappach, D.L., 2003. Does it matter who you are or what you gain? An experimental study of preferences for resource allocation. Health Economics 12, 255-267. Schwappach, D.L., 2005. Are preferences for equality a matter of perspective? Medical Decision Making 25, 449-459. Schwappach, D.L., Strasmann, T.J., 2006. "Quick and dirty numbers"? The reliability of a stated-preference technique for the measurement of preferences for resource allocation. Journal of Health Economics 25, 432-448. Singh, J., Lord, J., Longworth, L., Orr, S., McGarry, T., Sheldon, R., Buxton, M., 2012. Does responsibility affect the public's valuation of health care interventions? A relative valuation approach to health care safety. Value in Health 15, 690-698. van der Wulp I. van den Hout WB. de Vries M. Stiggelbout AM. van den Akker-van Marle EM., 2012. Societal preferences for standard health insurance coverage in the Netherlands: a cross-sectional study. BMJ Open 2, e001021. Werntoft, E., Edberg, A.K., 2009. The views of physicians and politicians concerning age-related prioritisation in healthcare. Journal of Health Organization & Management 23, 38-52. The papers reviewed Societal perspective? Ex ante Ex post Clearly societal 0 7 Potentially personal 0 5 This poster was prepared for HESG / GCU June 2014, with thanks to Anna Cantrell for conducting the literature search. Acknowledgements

Policies on how to allocate resources in health care are typically based on two kinds of information: (a) the factual benefits and costs of different treatments;

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Page 1: Policies on how to allocate resources in health care are typically based on two kinds of information: (a) the factual benefits and costs of different treatments;

Background

Online surveys of societal preferences – do we know what respondents are doing?

A literature review

Donna Rowen, Mandy Ryan, Aki Tsuchiya, Verity Watson, Universities of Sheffield and Aberdeen

Corresponding author: Donna Rowen <[email protected]> www.sheffield.ac.uk/heds; @sharrheds; www.abdn.ac.uk/heru; @HERU_Abdn

Contact us

Conclusion

Ex post perspective?

Key word Search-“social values” -“resource allocation”-“on-line survey”-“health”

Database: Medline 1946 onwards in English

Hits: 207

Included: Societal values in health using online survey: 13 papers, covering 14 studies

Year of publication: 2002-2013, and 9 of the 13 published 2010 or later

Journals: 9 different journals including British Medical Journal [2]; Health Economics [3]; and Value in Health [2]

Countries: Australia [2]; Europe [8]; US; other

Topics covered: patient age, baseline health (QOL, survival), health gain (QOL, survival), unmet need, end of life, dependents, sex, ethnicity, income, smoking (responsibility), rarity

Recruitment: self selected open access [1]; convenience sample [2]; online panel [10]

Sample size: 127-4118; median 800; mean 1198

Method: DCE [5]; PTO/budget pie [6]; other

Search and hits

School OfHealthAndRelatedResearch

The question

Desser, A.S., Gyrd-Hansen, D., Olsen, J.A., Grepperud, S., Kristiansen, I.S., 2010. Societal views on orphan drugs: cross sectional survey of Norwegians aged 40 to 67. BMJ 341, c4715.

Eisenberg, D., Freed, G.L., Davis, M.M., Singer, D., Prosser, L.A., 2011. Valuing health at different ages: evidence from a nationally representative survey in the US. Applied Health Economics & Health Policy 9, 149-156.

Lim, M.K., Bae, E.Y., Choi, S.E., Lee, E.K., Lee, T.J., 2012. Eliciting public preference for health-care resource allocation in South Korea. Value in Health 15, Suppl-4.

Linley, W.G., Hughes, D.A., 2013. Societal views on NICE, cancer drugs fund and value-based pricing criteria for prioritising medicines: a cross-sectional survey of 4118 adults in Great Britain. Health Economics 22, 948-964.

Norman, R., Hall, J., Street, D., Viney, R., 2013. Efficiency and equity: a stated preference approach. Health Economics 22, 568-581.

Richardson, J., Sinha, K., Iezzi, A., Maxwell, A., 2012. Maximising health versus sharing: measuring preferences for the allocation of the health budget. Social Science & Medicine 75, 1351-1361.

Schwappach, D.L., 2002. The equivalence of numbers: the social value of avoiding health decline: an experimental Web-based study. BMC Medical Informatics & Decision Making 2, 3.

Schwappach, D.L., 2003. Does it matter who you are or what you gain? An experimental study of preferences for resource allocation. Health Economics 12, 255-267.

Schwappach, D.L., 2005. Are preferences for equality a matter of perspective? Medical Decision Making 25, 449-459.

Schwappach, D.L., Strasmann, T.J., 2006. "Quick and dirty numbers"? The reliability of a stated-preference technique for the measurement of preferences for resource allocation. Journal of Health Economics 25, 432-448.

Singh, J., Lord, J., Longworth, L., Orr, S., McGarry, T., Sheldon, R., Buxton, M., 2012. Does responsibility affect the public's valuation of health care interventions? A relative valuation approach to health care safety. Value in Health 15, 690-698.

van der Wulp I. van den Hout WB. de Vries M. Stiggelbout AM. van den Akker-van Marle EM., 2012. Societal preferences for standard health insurance coverage in the Netherlands: a cross-sectional study. BMJ Open 2, e001021.

Werntoft, E., Edberg, A.K., 2009. The views of physicians and politicians concerning age-related prioritisation in healthcare. Journal of Health Organization & Management 23, 38-52.

The papers reviewedSocietal perspective?

Ex ante Ex post

Clearly societal 0 7

Potentially personal 0 5

This poster was prepared for HESG / GCU June 2014, with thanks to Anna Cantrell for conducting the literature search.

Acknowledgements