Photo Essay 2015

Boston Children's Hospital

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Friday, June 19, 2015

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In Photos: Family Advocacy DayTwo Boston Children's families recently travelled to Washington D.C. torepresent the hospital at Family Advocacy Day, an event where patientfamilies get to meet with their Senators and Congressional Representativeson behalf of children's hospitals around the country. The two-day eventincluded face-painting, tours of the Capital and a day of meetings on CapitolHill. If you couldn't make it down to D.C. to join the fun, don't worry. BostonChildren's Today has you covered.

You Made The Walk Great!Thank you to everyone who supported the Eversource Walk for BostonChildren's Hospital. On Sunday, June 14, more than 4,300 walkers gatheredat DCR's Baxter Park at Assembly Row in Somerville and strolled the 2- or 7-mile course along the Mystic River while enjoying beautiful weather, food andfamily entertainment. Click to find out more about the incredible impact ourwalkers, volunteers and supporters had and see photos from the day.

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In Photos: Family Advocacy Day - Home Page Stories - Children's Hospital Boston Intranet

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Children's Today Home Page Stories In Photos: Family Advocacy Day

In Photos: Family Advocacy Day

Two Boston Children's families recently travelled to Washington D.C. to represent the hospital at Family Advocacy Day, atwo-day event where patient families get the chance to meet with their Senators and Congressional Representatives tolobby on behalf of children's hospitals around the country. The two patients who traveled on Boston Children's behalf thisyear have complex conditions and a wealth of first-hand experience that decision-makers on Capitol Hill rely on tounderstand the impact of healthcare legislation. Continue to check Boston Children's Today for more stories about the tripand scroll down for photos:

Click on any photo to enlarge it.

Above, The Ferrera family from Rhode Island was one of two patient families to represent Boston Children's Hospital atFamily Advocacy Day. From left to right: Deyven, a Boston Children's patient, now 18, his mother Venus and his sisterDeyreni.



Deyreni and Venus pose for selfies at the Lincoln Memorial, the first stop in a winding tour of Washington on the first dayof Family Advocacy Day.

Family Advocacy Day was the Ferreras' first trip to Washington, and they took the chance to see as much of the NationalMall as they could.



It's not Family Advocacy Day without a party. Kate Pecora, was the second Boston Children's Hospital patient to travel toWashington along with her parents and her younger sister Caroline. Here, she gets a caricature at a party the night beforeshe visits Capitol Hill.

Devyen and Beth Hawkins, RN, MSN, FNP, shoots some hoops at the party. Hawkins has been Deyven's nursepractitioner since he received an LVAD device and is usually the first person he calls with questions or care problems.



Family Advocacy Day is also an opportunity for parents of children with complex and rare conditions to meet other parentsand caregivers in similar situations. Above, Deyven's mother Venus, talks with another mother about Deyven's LVAD andthe changes it has made in their lives.

Venus admires Deyven's caricature.



The second day of Family Advocacy Day takes place on Capitol Hill where families meet with their Senators andCongressional Representatives. Senator Whitehouse stepped out of a committee meeting to meet with Deyven and hisfamily. Deyven shared his story - including taking an AP exam while having symptoms of heart failure - and askedWhitehouse to support legislation beneficial for pediatric healthcare.

Boston Children's Chief Operating Officer and Executive Vice-president of Health Affairs Kevin Churchwell, MD, was onhand to visit Capitol Hill alongside Deyven and Kate. Above, he is introduced to Senator Whitehouse.



Kathryn Audette, MSW, director of State Government Relations and Churchwell talk policy with one of MassachusettsSenator Ed Markey's policy advisors across the table from Kate Pecora and her family.

Markey and Churchwell dispense with the usual formalities and share a fist-bump. Markey sat down to meet the Pecorafamily and hear their story.



The Pecora family poses for a photo with Ed Markey.

The Pecora family later met with recently elected Representative Seth Moulton, who joined them in his office shortly afterreturning from a vote.



The Ferrera family share a laugh with Rhode Island Congressman Jim Langevin.

Part of the Government Relations team travelled to Washington with the Ferraras and Pecora families. From left to right:Joshua Greenberg, JD, vice president of Government Relations, Amy DeLong, manager of Federal GovernmentRelations, Kathryn Audette, MSW, director of State Government Relations and Katherine Lauretano, GovernmentRelations specialist

2015 Boston Children's Hospital

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Photo Essay 2015