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People with developmental disabilities JANUARY 2010 DSHS | One Department, One Vision, One Mission, One Core Set of Values PLANNING, PERFORMANCE AND ACCOUNTABILITY | RESEARCH AND DATA ANALYSIS DIVISION | OLYMPIA, WASHINGTON Percent of clients receiving this DSHS service 40,637 of 2,177,023 TOTAL, SFY 2008 2% DSHS clients receiving services for a developmental disability DSHS clients NOT receiving services for a developmental disability 98% Supporting the potential of people with developmental disabilities 2008 CLIENT SERVICE COUNTS DEVELOPMENTAL DISABILITY SERVICES: DSHS provides support services and opportunities for the personal growth and development of persons with developmental disabilities resulting from mental retardation, epilepsy, cerebral palsy, autism, or another neurological or other condition closely related to mental retardation or that requires treatment similar to that required for individuals with mental retardation. Clients' disabilities are lifelong and constitute a substantial handicap to everyday functioning. Children under age 6 may receive services if they have Down Syndrome or developmental delays of 25 percent or more below children of the same age. 1 In State Fiscal Year (SFY) 2008, 40,637 clients received the services described below from the Aging and Adult Services Administration, Division of Developmental Disabilities (ADSA|DDD). The average cost per client was $19,793. CASE MANAGEMENT Case managers perform intake, eligibility determinations, and reviews, and provide information and referral services to applicants and eligible clients. Case managers also help eligible clients and families assess needs; develop individual service plans; authorize service provision; link clients with needed medical, social, educational, or other services, and provide support and assistance in handling life crises. Case management services are not provided to clients living in state institutions. Habilitation Plan Administrators at institutions monitor these clients. 40,138 clients, average client cost = $1,054 COMMUNITY RESIDENTIAL SERVICES Clients with developmental disabilities who require assistance with daily living may receive services in their own homes or in live-in facilities. For clients living in their own homes, either alone or with a roommate, contracted agencies provide the necessary support. These non-facility based services include Alternative Living, Companion Homes, Medical/Dental services (for clients who are not Medicaid-eligible), Supported Living and State Operated Living Alternatives (SOLAs). Additionally, other residential support may include summer recreational activities, specialized aids or equipment purchases, reimbursement for activity fees, client transportation, interpreters, and other community supports such as client allowances. Staff provide support and training for clients living in Community Intermediate Care Facilities for the Mentally Retarded, Adult Residential Centers, Group Homes, and Adult Family Homes. 5,433 clients, average client cost = $55,266 Number of clients receiving developmental disability services SFY 2008 Total Clients = 40,637 DSHS Client Services Database NOTE: Since most clients receive more than one service, the sum of the categories shown at right will exceed the total number of clients served by the program. 40,138 13,610 12,893 6,891 5,858 5,433 1,019 270 Case Management County Services Personal Care Services Individual and Family Services Community Residential Services Professional Support Services RHCs and Nursing Facilities Voluntary Placement-Children Developmental disability client trend 34,797 35,530 37,609 39,423 40,637 2004 2005 2006 2007 2008 0 Clients need many services In SFY 2008, percent using developmental disability services and . . . 21% 29% 32% 18% 1 other type of DSHS service 2 other types of DSHS services 3 or more other types of DSHS services No other DSHS service PROGRAM CONTACT Doug Washburn, 360.725.3452 [email protected] RDA CONTACT (CSDB) Maija Sandberg, 360.902.0749 [email protected] BUDGET CONTACT Marcia Wendling, 360.902.7769 [email protected] www1.dshs.wa.gov/rda/ Report Number 11.146.040 NOTE: CSDB identifies service use information and expenditures specific to each DSHS client. Costs that cannot be assigned to individual clients are not included—such as facilities, licensing, admin, outreach, prevention, fraud investigation, community block grants, and cost recoveries.

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People with developmental disabilities

JANUARY 2010 DSHS | One Department, One Vision, One Mission, One Core Set of Values

PLANNING, PERFORMANCE AND ACCOUNTABILITY | RESEARCH AND DATA ANALYSIS DIVISION | OLYMPIA, WASHINGTON

Percent of clients receiving this DSHS service 40,637 of 2,177,023 TOTAL, SFY 2008

2%DSHS clients

receiving services for a

developmental disability

DSHS clients NOT receiving services for a

developmental disability 98%

Supporting the potential of people

with developmental disabilities 2008 CLIENT SERVICE COUNTS

DEVELOPMENTAL DISABILITY SERVICES: DSHS provides support services and opportunities for the personal growth and development of persons with developmental disabilities resulting from mental retardation, epilepsy, cerebral palsy, autism, or another neurological or other condition closely related to mental retardation or that requires treatment similar to that required for individuals with mental retardation. Clients' disabilities are lifelong and constitute a substantial handicap to everyday functioning. Children under age 6 may receive services if they have Down Syndrome or developmental delays of 25 percent or more below children of the same age.1 In State Fiscal Year (SFY) 2008, 40,637 clients received the services described below from the Aging and Adult Services Administration, Division of Developmental Disabilities (ADSA|DDD). The average cost per client was $19,793.

CASE MANAGEMENT Case managers perform intake, eligibility determinations, and reviews, and provide information and referral services to applicants and eligible clients. Case managers also help eligible clients and families assess needs; develop individual service plans; authorize service provision; link clients with needed medical, social, educational, or other services, and provide support and assistance in handling life crises. Case management services are not provided to clients living in state institutions. Habilitation Plan Administrators at institutions monitor these clients. 40,138 clients, average client cost = $1,054

COMMUNITY RESIDENTIAL SERVICES Clients with developmental disabilities who require assistance with daily living may receive services in their own homes or in live-in facilities. For clients living in their own homes, either alone or with a roommate, contracted agencies provide the necessary support. These non-facility based services include Alternative Living, Companion Homes, Medical/Dental services (for clients who are not Medicaid-eligible), Supported Living and State Operated Living Alternatives (SOLAs). Additionally, other residential support may include summer recreational activities, specialized aids or equipment purchases, reimbursement for activity fees, client transportation, interpreters, and other community supports such as client allowances. Staff provide support and training for clients living in Community Intermediate Care Facilities for the Mentally Retarded, Adult Residential Centers, Group Homes, and Adult Family Homes. 5,433 clients, average client cost = $55,266

Number of clients receiving

developmental disability services

SFY 2008

Total Clients = 40,637

DSHS Client Services Database

NOTE: Since most clients receive more than one service, the sum of the

categories shown at right will exceed the total

number of clients served by the program.

40,138

13,610

12,893

6,891

5,858

5,433

1,019

270

Case Management

County Services

Personal Care Services

Individual and Family Services

Community Residential Services

Professional Support Services

RHCs and Nursing Facilities

Voluntary Placement-Children

Developmental disability client trend

34

,79

7

35

,53

0

37

,60

9

39

,42

3

40

,63

7

2004 2005 2006 2007 2008

0

Clients need many services In SFY 2008, percent using developmental disability services and . . .

21%

29%32%

18%

1 other type of DSHS service

2 other types of DSHS

services

3 or more other

types of DSHS

services

No other DSHS service

PROGRAM CONTACT Doug Washburn, 360.725.3452

[email protected]

RDA CONTACT (CSDB) Maija Sandberg, 360.902.0749

[email protected]

BUDGET CONTACT Marcia Wendling, 360.902.7769

[email protected]

www1.dshs.wa.gov/rda/

Report Number 11.146.040

NOTE: CSDB identifies service use information and expenditures specific to each DSHS client. Costs that cannot be assigned to individual clients are not included—such as facilities, licensing, admin, outreach, prevention, fraud investigation, community block grants, and cost recoveries.

Page 2: People with developmental disabilities - dshs.wa.gov

2 ● SFY 2008 | DEVELOPMENTAL DISABILITIES CLIENTS DSHS | RDA

Comparing FTEs and caseload 1999-01 to 2007-09 Biennium

99-01 01-03 03-05 05-07 07-09

FTEs

Caseload

3,800

3,000

38,000

30,000

Case

s FTEs

31,741

37,400

3,455

3,521

COUNTY SERVICES DSHS contracts with county governments to provide services to both adults and infants with developmental disabilities. Adult-oriented services include Individual Supported Employment that helps clients find and keep jobs in the community, Group Supported Employment that enables clients to work in groups or enclaves at local businesses, Prevocational Employment/Specialized Industries that provide employment in training centers, , Community Access, , and Person-to-Person services which are a part of an individual's pathway to Individual Employment. A client in Person to Person is not yet stable in employment. Through county contracts, DSHS also funds Child Development services which involve specialized therapeutic or educational services for infants, toddlers, and their families to maximize the child's development and enhance parental support.2 13,610 clients, average client cost = $3,989

INDIVIDUAL AND FAMILY SERVICES The purpose of the Individual and Family Services Program is to partner with families as care providers for children with developmental disabilities and adults who choose to live in the family home. To the maximum extent possible, individuals and families must be given choice of services and exercise control over the resources available to them. The Individual and Family Services (IFS) Program allows participants to use their award to pay for services related to, and resulting from, their disability and identified and agreed to in your DDD Assessment Individual Support Plan (ISP) such as respite, Therapies, equipment and supplies. 6,891 clients, average client cost = $2,996

PERSONAL CARE SERVICES DSHS provides Personal Care Services to Medicaid-eligible children and adults with developmental disabilities. The major difference between children’s and adult’s Personal Care is in the age appropriate level of need for specific Personal Care tasks. This service enables eligible individuals to remain in their community residences through the provision of semi-skilled maintenance or supportive services. These services can be provided in the person's own home, a licensed Adult Family Home, or an Adult Residential Center. 12,893 clients, average client cost = $14,160

PROFESSIONAL SUPPORT SERVICES DSHS funds Professional Support Services for adults with developmental disabilities supported by Community Residential Services providers and for those who live with their families.3 These include medical and dental services for clients Medicaid-eligible, psychological services provided to determine eligibility, professional evaluations , counseling, nursing care, specialized equipment, environmental adaptations, occupational, physical, instructional, communication, behavioral and other therapies approved by exception. 5,858 clients, average client cost = $223

RHCS AND NURSING FACILITIES State Residential Habilitation Centers provide residential and habilitation services to persons with developmental disabilities either under Intermediate Care Facilities for the Mentally Retarded (ICF/MR) or Nursing Facility regulations. Rainier School and the Frances Haddon Morgan Center have only ICF/MR beds; Fircrest and Lakeland Village have both ICF/MR and nursing facility beds. Yakima Valley has only nursing facility beds. 1,019 clients, average client cost = $186,807

VOLUNTARY PLACEMENT-CHILDREN A family may ask for out-of-home placement for their child under 18 due solely to the child's disability. Under certain circumstances, the child may be placed in licensed out-of-home care. 270 clients, average client cost = $46,682

1CSDB obtains service and expenditure information for some clients who do not appear in ADSA|DDD information systems due to the inclusion of additional source information systems (for example, the Medicaid Management Information System). ADSA|DDD also typically reports point in time counts rather than annual counts. For these reasons, CSDB client counts and dollar sums may differ from those reported by DDD. 2For county services, expenditures for county administration are not included. 3CSDB counts for Medical/Dental services include only clients whose treatment was paid for by DDD. Clients whose treatment was paid for by Medical Assistance are included in MA counts.

Not in this report: Training, payments for ADSA|DDD Group Home vacancies, and employment and day service authorizations.

Trends in institutional care Since 1980

1980 1990 2000 2008

993

1,702

1,139

986

0

Living in communities SFY 2008

Community97%

n = 36,800

Non-Community

3%n = 986

Total clients = 37,786

Balancing adult and child care FY 2008

Children49%

n = 19,220

Adults51%n = 18,566

Total clients = 37,786

Client age distribution SFY 2008

0-17 18-64 65+

0

Age Age Age

Children and Youth

n = 20,000

Working Age

Adults

n = 19,726

Seniors

49% 49%

2%n = 903