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Pediatric Neurology: Paul R. Carney, MD Zhao Liu, MD, PhD
Edgard Andrade, MD
Pediatric Gastroenterology (GI): Joel Andres, MD
Christopher Jolley, MD
Research Coordinators: Peggy R. Borum, PhD Lauren L. Jones, PhD
Overview of KT Fasting was recognized as a way to control
seizures.
Seizures would return once a normal diet was resumed.
In 1921 KT was born.
Although the therapy helps many children, we do not know how it works.
Ketogenic Therapy (KT)
High fat, low carbohydrate, adequate protein diet
Ketogenic Ratio = Fat : protein + carbohydrate
Forces the body to utilize fat (in the form of ketones) rather than carbohydrates as the main source of energy Ketones are a byproduct of fatty acid metabolism
Ketogenic Therapy (KT)
Neurological treatment not a diet for weight control
Similar to your other therapies for seizures such as antiepileptic drugs (AEDs)
All changes that are made must be cleared by the research team and your clinical providers
For these reasons, we do not call it the Ketogenic Diet
Ketogenic Therapy (KT) KetoBuddy
Support network Improve your child’s care Research the mechanism of KT Weekly contact Data collection Create and make meals Resource to assist you with all your child’s needs
We DO NOT change medications or provide any medical advice.
UF Ketogenic Therapy Research Program KetoBuddy support system More frequent monitoring of your child’s overall health
More labs More measurements Metabolic cart Daily records
Monitor the progress and personalize your child’s therapy
Patient visits are at Shands in the GCRC All research procedures are done free of charge Inpatient visits at the GCRC are free of charge
Qualifications for Ketogenic Therapy Typically (but not exclusively) used for
children If AEDs or other therapies are ineffective or
produce undesirable side effects If a surgical procedure is not an option Intended for patients without fatty acid
oxidation disorders
Before Initiation
Food Preferences Questionnaire
In order to help your child adjust into a state of ketosis easier, the weekend before: Limit simple sugars and starches Drink sugar-free or unsweetened liquids
Night before Initiation: Overnight fast for at least 8 hours Allowed to have water and medications
Initiation
Day 1-2Start on a 1.5:1 ratio of fat : protein + carbohydrateRatio increases by 0.5 every 1-2 meals
Day 3Usually discharge between a 3:1 to 4:1 ratio
What to Bring to Initiation Caregivers Guide
Foods/drink for Initiation that you and your KetoBuddy discussed
Daily home records of seizures
Multistix 10 SG
Food Scale
All medications and supplements in their original bottles
Videos, DVD player and DVDs, favorite toys, coloring books…something to keep your child occupied and feel more at home
What will be provided at Initiation A mini fridge, microwave, and kitchen
supplies One caregiver will be provided with
meals during their GCRC stay Wireless internet access is available if
you wish to bring your laptop
What to expect the first few weeks after Initiation Adjustment period may include
Lethargy Nausea/Vomiting Hunger
Record keeping