Upload
others
View
0
Download
0
Embed Size (px)
Citation preview
1
Patient Stories & Resources
2
IndexWritten Articles
Tangela Page 3Rosheen Page 4Renard Page 5Ken Page 6Will & Bridget Page 7Bernie & Brenda Page 8Matt Page 9Chelsea (parts 1,2,3) Page 10Maria (parts 1,2) Page 11Maria (parts 3,4) Page 12LaTasha & Ralph Page 13
VideosDon & Leo Page 14Maria & Maggie Page 15Erich/Terrance & Angela Page 16Bill & Judy Page 17Robby & Nieltje Page 18David & Henning Page 19Rosheen Page 20Using the System One (parts 1,2,3) Page 21System One Setup Overview Page 22Home Hemo – Setup &Cannulation (animated)
Page 23
I Have Kidney Disease, Now What? (animated)
Page 23
NxStage Customer Service (animated) Page 24NxStage Technical Support (animated) Page 24
3
When Tangela experienced unexpected health problems and lost her kidney function, she learned all she could about her dialysis options. With two daughters and an active lifestyle to nurture, she did everything she could to stay healthy, strong and ready for whatever came next.
Battles & Butterflies – Tangela’s Story
Themes: in-center to HHD, work, transplant
Link: https://atlas.nxstage.com/article/battles-and-butterflies/
4
Living with a chronic disease could make most people want to give up hope. For Rosheen, it was all part of his journey to wellness and a long list of reasons to be thankful.
From Trauma to Transplant – Rosheen’s Story
Themes: PD, Solo HHD, travel, transplant
Link: atlas.nxstage.com/article/trauma-to-transplant/
5
Decades of health-related adversity gave Renard Williams a different outlook on life, but he never gave up on himself.
Patient Dedication – Renard’s Story
Themes: PD, Travel
Link: https://atlas.nxstage.com/article/patient-dedication/
6
Dialysis didn't stop Ken and Glynis from living their dreams and vacationing with friends in France. Read about their trip and see some of the beautiful spots they visited.
Exploring the South of France With a NxStage Cycler Along for the Journey – Ken’s Story
Themes: International Travel
Link: https://atlas.nxstage.com/article/travels-with-ken/
7
After meeting in a clinic, Bridget and Will discovered love, trained for home hemodialysis, and tied the knot, all within a few months! These days they do everything together, from grocery shopping to global travel.
Couples Therapy: A dialysis Love Story – Will and Bridget’s Story
Themes: In-center to HHD, Travel
Link: https://atlas.nxstage.com/article/couples-therapy/
8
Back in 2015, Bernie and Brenda thought they'd be giving up their favorite pastime, RV’ing around the country, due to an illness that required Brenda to start dialysis. But then they discovered home hemodialysis, and a reason to keep racking up the miles!
Bernie and Brenda’s Extended Adventures
Themes: Travel
Link: https://atlas.nxstage.com/article/bernie-and-brenda/
9
In 2016, a diagnosis of kidney failure forced Matt to change direction on his dream of becoming a firefighter. But that didn't mean he was done fighting. Through a combination of healthy living, hard work and determination, Matt trains and competes in Mixed Martial Arts.
A Ringside Seat – Matt’s Story
Themes: Control, HHD as first therapy
Link: https://atlas.nxstage.com/article/a-ringside-seat/
10
Imagine going through your whole life expecting that something life-changing was in your future. For Chelsea, that experience started at a very early age - birth. Read Chelsea's journey from premature infant to solo home hemodialysis patient.
Preparation and Perseverance – Chelsea’s Story
Themes: Solo HHD, Transplant
Link: https://atlas.nxstage.com/article/chelseas-story-part-1/
For Chelsea, dialysis was never an "if," but a "when," and at age 33, "when?" became "now." Read more about Chelsea’s journey.
Having battled kidney disease since birth, Chelsea spent decades taking steps that would preserve her kidney function and keep her body as healthy as possible. Read about her kidney transplant in part 3.
Link: https://atlas.nxstage.com/article/chelseas-story-part-2/
Link: https://atlas.nxstage.com/article/prepara tion-and-perseverance/
Part 1 Part 2 Part 3
Themes: Solo HHD, Transplant Themes: Solo HHD, Transplant
11
In part 1, Maria describes the ups and downs she experienced during in-center hemodialysis and the steps she took to regaining control over her health and quality of life.
My Journey to Transplantation – Maria’s Story
Themes: In-center to HHD, TransplantLink: https://atlas.nxstage.com/article/my-journey-to-transplantation-part-1/
In part 2, Maria describes overcoming her fear of putting in her own needles and being trained to perform hemodialysis at home. Maria was able to take part in family events again and experienced many positive changes in her life.
Part 1 – Crashing into Dialysis Part 2 – No Place Like Home
Themes: In-center to HHD, TransplantLink: https://atlas.nxstage.com/article/my-journey-to-transplantation-part-2/
12
My Journey to Transplantation – Maria’s Story
In part 3, Maria and her kidney donor describe the emotional journey of preparing for transplant surgery. They discuss how the process was an act of love, faith, and the strong bond that formed between them.
Part 3 – Preparing for Transplantation Part 4 – Life After Transplantation
"After my transplant, it was a time where I felt totally blessed and at ease. I would wake up and think, I don't have to plan my schedule today; there is no dialysis that needs to happen today, tonight, tomorrow."
Themes: In-center to HHD, Transplant
Link: https://atlas.nxstage.com/article/my-journey-to-transplantation-part-4/
Themes: In-center to HHD, Transplant
Link: https://atlas.nxstage.com/article/my-journey-to-transplantation-part-3/
13
As an attorney, LaTasha crisscrosses the southeastern U.S. defending the safety and wellbeing of America’s workforce. During her time off, she enjoys many hobbies, activities, and traveling. And to help make it all possible, she relies on her care team and PD with her Liberty Select cycler.
LaTasha
Themes: PD, Career, Travel Link: https://www.nxstage.com/wp-content/uploads/2020/09/LaTasha-patient-story.pdf
Within the span of 6 years, Ralph saw his seaside home and his health nearly destroyed. Read about his journey back toward health and happiness.
Themes: PD, schedule flexibility, travel Link: https://atlas.nxstage.com/article/weathering-the-storm/
Ralph
14
Themes: Energy, In-center vs. HHD, Quality of Life
Link: https://www.youtube.com/watch?v=9jnLI_ADXPM
Don's in-center treatments left him feeling washed out and too tired to enjoy family and friends. That changed when he started more frequent home hemodialysis.
Link: https://www.youtube.com/watch?v=Rr_KAsn_PCQ
Leo was ready to give up his active lifestyle. Until he discovered more frequent home hemodialysis. His decision to change therapies helped bring him back to a life he loved.
Themes: Freedom, In-center vs. HHD, Quality of Life
Don Leo
15
Themes: Freedom, In-center vs. HHD
Link: https://www.youtube.com/watch?v=3nSGOA1WrCw
When Maria started in-center dialysis she had to pull herself away from her community. She struggled to adjust to her new life. Until she tried Home Hemodialysis.
Link: https://www.youtube.com/watch?v=QOxsuGRk7Wc
Maggie didn’t want to give up her days to dialysis, so she chose nocturnal home hemodialysis and now she has her days free to do what she loves.
Themes: Nocturnal, Care Partner
Maria Maggie
16
Themes: Nocturnal, Cannulation, Family
Link: https://www.youtube.com/watch?v=tJehB-5aQMY
Erich and Terrance were both afraid of needles. Then they decided to take control, learned to self-cannulate, and helped build a better life for themselves with more frequent home hemodialysis.
Link: https://www.youtube.com/watch?v=moc1nq2v5gg
Angela felt she was no longer the healthy, vibrant person she once was. She couldn't work or enjoy her favorite things in life. Then her nurse asked her if she wanted to try more frequent home hemodialysis.
Themes: Energy, In-center vs. HHD, Quality of Life
Erich & Terrance Angela
17
Themes: Cardiovascular, PD to HHD
Link: https://www.youtube.com/watch?v=-TakLbceq4w
Bill knew he wanted to stay on a home therapy, but his current therapy wasn’t allowing him to achieve the quality of life he wanted. Bill’s open conversations with his doctor and care team helped him transition from one home modality to another.
Judy empowered herself and learned all her dialysis options. She talks about how important it was for her to take control of her therapy.
Themes: In-center vs. HHD, Care Partner
Link: https://www.youtube.com/watch?v=-49dP4_s9n4
Bill Judy
18
Themes: Nocturnal, Energy, Back to Work
Link: https://www.youtube.com/watch?v=6otE-EPnnmo
Robby felt transformed from washed out to loving life again when he switched to nocturnal home hemodialysis.
Link: https://www.youtube.com/watch?v=DNjVfFgb9Mc
Nieltje shares how she felt a newfound independence when she transitioned from in-center to solo home hemodialysis.
Themes: Solo, Freedom/Independence
Robby Nieltje
19
Themes: In-center vs. HHD, Freedom/Independence
Link: https://www.youtube.com/watch?v=dFiwcrXPTWY
David was 24 years old and told he only had a year to live. He learned about his treatment options and the possibilities for survival. Then he followed his dreams!
Themes: Freedom/Independence
Link: https://www.youtube.com/watch?v=6otE-EPnnmo
David Henning
Henning did not let dialysis define him. Watch as he shares his journey toward more freedom.
20
Rosheen never gave up hope. His dialysis journey took him down many paths. His positive and uplifting story is truly inspirational.
Themes: PD, Solo HHD, Freedom/Travel, Transplant
Link: https://www.youtube.com/watch?v=DNjVfFgb9Mc
Rosheen
21
These videos provide an overview of how to use the NxStage System One Cycler with bagged dialysate and the Express Fluid Warmer.
Using the System One
Link: https://www.youtube.com/watch ?v=YTq52j9ViSk
Link: https://www.youtube.com/watch?v= o6dfDGWhru8
Link: https://www.youtube.com/watch?v=7rmPol8OuG0
Part 1 Part 2 Part 3
22
10 steps closer to home hemodialysis, with the NxStage System One. This high-level overview shows you the steps involved in setting up the NxStage System One.
System One Setup Overview
Link: https://www.youtube.com/watch?v=rOzCKz4oy80
*This is not meant to replace you System One user guide or instructions for use
23
Link: https://www.youtube.com/watch?v=X2vlcdFfTsw
What you can expect when starting home hemodialysis therapy, information on access types and overcoming concerns about self-cannulation.
Link: https://www.youtube.com/watch?v=ALbtKbghn18
Information about your kidneys - location, size, shape and function, as well as some details about dialysis and options for this essential therapy.
Home Hemodialysis –Setup and Cannulation
I Have Kidney Disease –Now What?
24
Link: https://www.youtube.com/watch?v=cJtKbKgz7a4
There is a lot to learn about bringing hemodialysis therapy into your home. NxStage Customer Service has you covered.
Link: https://www.youtube.com/watch?v=jDLD53VMx9g
Our tech support team believes there are no bad questions and they are right!
NxStage Customer Service NxStage Technical Support
25
© 2020 Fresenius Medical Care. All Rights Reserved. Fresenius Medical Care and NxStage are trademarks of Fresenius Medical Care Holdings, Inc. or its affiliated companies. All other trademarks are the property of their respective owners. APM3941 Rev A.