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A P R I L 2 0 1 5 A N E W S L E T T E R F O R
PAT I E N T S , FA M I L I E S , S TA F F
A N D C O M M U N I T Y M E M B E R S
IN THIS ISSUE
The Cottage
Dreams Cancer
Recovery Program
Library Corner:
April is Head
& Neck Cancer
Awareness Month
The Pancreas and
Pancreatic Cancer
Care at the Wallace
McCain Centre for
Pancreatic Cancer
Patient & Family Education NewsP R I N C E S S M A R G A R E T C A N C E R C E N T R E
The Cottage Dreams Cancer Recovery ProgramThe Cottage Dreams program helps families touched by cancer reconnect and rejuvenate at a private, donated cottage.
As a result of her own mother’s breast cancer diagnosis, life-long cottager Seana O’Neill decided that she would like to share her Haliburton, Ontario cottage with those who would not otherwise have the opportunity to get away. She was inspired to invite cancer survivors to visit her cottage when she was not there and thought other cottage owners would do the same if given the opportunity. The response to the idea was immediate, passionate and sparked the creation of Cottage Dreams, a one-of-a-kind registered charity that provides time away at a donated cottage to bring cancer survivors and their families together to reflect upon and celebrate recovery at the cottage.
Cottage Dreams is available to Ontario residents of all ages and types of cancer who have completed treatment within two years before taking a Cottage Dream getaway. There is no deadline to request a getaway in 2015.
For more information, visit the Cottage Dreams website at www.CottageDreams.ca
Adapted from www.cottagedreams.ca/about
Library Corner: April is Head & Neck Cancer Awareness MonthBy Michelle Snow, Librarian, Patient & Survivorship Education, Princess Margaret Cancer Centre
Listed inside are some resources and support services available from the Princess Margaret Patient & Family Library. Learn more about head and neck cancers, detection and diagnosis, treatment options, nutrition information, and side effect management by visiting the Patient & Family Library on the Main Floor Atrium at Princess Margaret.
Read more
Brochures on Head and Neck Cancers:
Ask library staff for a free copy.
Visit the library:
Hours: Monday to Thursday 8:30 am – 4:30 pm Fridays 8:30 am – 4:00 pm
Location: Princess Margaret Cancer Centre, Main floor, atrium
Phone: 416 946-4591 x 5383
E-mail: [email protected]
Eat well stay nourished: a recipe and resource guide for coping with eating challenges Vol. 1 and Vol. 2 by Nancy Leupold
Online information on Head and Neck Cancers:
• About Face Canada: www.aboutface.ca
• Canadian Cancer Society: www.cancer.ca
• Head and Neck Cancer Alliance: www.headandneck.org
• SPOHNC Support for People with Oral and Head and Neck Cancer: www.spohnc.org
• WebWhisperers: www.webwhisperers.org
Books in the Library Collection:
Johns Hopkins patients' guide to head and neck cancer by Christine Gourin
Meeting the challenges of oral and head and neck cancer: a guide for survivors and caregivers by Nancy Leupold
Goes down easy: recipes to help you cope with the challenges of eating during cancer treatment by Elise Mecklinger
• Coping with Head and Neck Cancer: Information and Support Resources
• Eating Tips for Sore Mouth and Throat
• Taking Care of Your Mouth During Cancer Treatment
• Getting Back on Track: Life after treatment for Head and Neck Cancer
• Head and Neck Cancer: Supporting you through treatment
• Swallowing Exercises for Patients with Head and Neck Cancer Receiving Radiation Treatment
• Tips to Speak Clearly and Be Understood
• What to Expect While Receiving Radiation Therapy for Head and Neck Cancer
The Pancreas and Patient Care at the Wallace McCain Centre for Pancreatic Cancer By Aileen Trang MSc, Patient Education & Research Coordinator, Princess Margaret Cancer Centre
February’s Lunch and Learn focused on pancreatic cancer and how the McCain Centre for Pancreatic Cancer at Princess Margaret supports patients and their families. Below is a brief summary of what the McCain Centre’s Director Dr. Malcolm Moore and Clinical Nurse Specialists Shari Moura and Shahnaaz Dhalla shared in their presentation.
The pancreas is a large gland that sits behind the stomach, close to the gall bladder, liver, and intestines. The pancreas makes:
• Digestive juices that help digest your food after it leaves your stomach
• Insulin and other hormones that help your body use or store energy you get from eating food
Pancreatic cancer is a cancer tumour that starts in the pancreas. The average Canadian’s risk of getting pancreatic cancer is 0.2 to 0.5%. People who have familial pancreatitis, or are BRCA2, PJS, HNPCC or p16 gene carriers have a 5 to 10% risk of getting pancreatic cancer. People with family members who have had pancreatic cancer have a 20 – 30% risk of getting the disease.
Often, the signs and symptoms of pancreatic cancer show when the tumour gets bigger or spreads to other areas of the body. The main signs and symptoms of pancreatic cancer include:
• Fatigue
• Jaundice (darker urine, yellow colour in the skin and the whites of the eyes)
• Weight loss
• Itchiness
• Pain
• Nausea and vomiting
Pancreatic cancer is the 4th leading cause of cancer death in both men and women. By 2020, pancreatic cancer is expected to become the 2nd leading cause of cancer death in Canada. Older adults (those 70 years or older) are affected the most.
According to the Canadian Cancer Society (2013), people with pancreatic cancer have an 8% chance of surviving five years after their diagnosis. Dr. Moore
explains that the low survival rate is likely due to the aggressive nature of the disease and the late stage when the cancer is detected.
Health care providers and researchers continue to look for and test more effective treatment options for pancreatic cancer. Compared to 10 years ago, there have been great improvements in pancreatic cancer treatment. Current treatment options include:
• Surgery to remove the tumour and healthy tissue around the tumour. Common surgeries include the Whipple procedure, distal and total pancreatectomy. If the tumour has spread, surgery can be done to reduce discomfort, control symptoms and improve quality of life.
• Chemotherapy to shrink the tumour before surgery and control growth of the tumour. Chemotherapy can also be used to relieve pain or control other symptoms if the tumour cannot be removed.
• Radiation to damage or kill cancer cells.
• Clinical trials, which are new treatments that are still being tested. Clinical trials can involve new types of treatments or combining existing treatments.
About the Wallace McCain Centre for Pancreatic Cancer
The Wallace McCain Centre is a one-stop clinic for pancreatic cancer patients and their families. The McCain health care team is made up of health care providers ranging in health profession and expertise.
The Centre offers quick diagnosis and coordinated care. Information and clinical support is available for patients, their families and referring doctor throughout the cancer experience.
Thank you to Dr. Moore, Shari Moura and Shahnaaz Dhalla for the informative presentation.
Thanks to Starbucks for providing coffee and tea.
At the Next Lunch and Learn:So this is Palliative Care?? Let’s talk about it…
When: Tuesday, April 28, 2015, 11:30 – 12:30
Where: Dr. Bob Bell Auditorium
Princess Margaret Cancer Centre
6th floor, Room 604
Staff, volunteers, patients and family members…
all are welcome! No registration required.
Watch this presentation and past Lunch & Learn talks
online at: http://theprincessmargaret.ca/LunchAndLearn
The information contained in this newsletter is to be used for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis or treatment. Please consult your health care provider for advice about a specific medical condition. A single copy of these materials may be reprinted for non-commercial personal use only. © University Health Network - Princess Margaret Hospital - Patient and Family Library - 2015
Patient & Survivorship Education Editor: Alaina Cyr, Patient Education Coordinator | Editorial Board: Nazek Abdelmutti, Daniela Fierini, Robin Forbes, Myann Marks, Lauren ShorserGraphic Artist: Kristin Foster | Please forward comments, questions or submissions to [email protected]
The Patient Education and Survivorship Programs are supported by the Princess Margaret Cancer Foundation.
“When you’ve had cancer, every day is a gift.”
“ Thanks to the groundbreaking research, the care of Dr. Messner and the compassion of the whole team at The Princess Margaret, I’m here today.”
See Chris Taylor’s story at www.thepmcf.ca
A gift left in your Will can save lives. If cancer is your cause, support one of the top 5 cancer research centres in the world. To learn more about planning your gift, call 416-946-2295 or email [email protected]
“When you’ve had cancer, every day is a gift.”
“ Thanks to the groundbreaking research, the care of Dr. Messner and the compassion of the whole team at The Princess Margaret, I’m here today.”
See Chris Taylor’s story at www.thepmcf.ca
A gift left in your Will can save lives. If cancer is your cause, support one of the top 5 cancer research centres in the world. To learn more about planning your gift, call 416-946-2295 or email [email protected]
“When you’ve had cancer, every day is a gift.”
“ Thanks to the groundbreaking research, the care of Dr. Messner and the compassion of the whole team at The Princess Margaret, I’m here today.”
See Chris Taylor’s story at www.thepmcf.ca
A gift left in your Will can save lives. If cancer is your cause, support one of the top 5 cancer research centres in the world. To learn more about planning your gift, call 416-946-2295 or email [email protected]
“When you’ve had cancer, every day is a gift.”
“ Thanks to the groundbreaking research, the care of Dr. Messner and the compassion of the whole team at The Princess Margaret, I’m here today.”
See Chris Taylor’s story at www.thepmcf.ca
A gift left in your Will can save lives. If cancer is your cause, support one of the top 5 cancer research centres in the world. To learn more about planning your gift, call 416-946-2295 or email [email protected]
–Chris Taylor
1-800-339-5662 | willowpublishing.com
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