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Patient association, chapters, self support groups, programs
Zalatnai Klara - HOPA
EPF Autumn Regional Advocacy Seminar for Patient LeadersBudapest, Hungary 25-26-2 October 2010
Introduction of HOPA
• Based in Budapest • Set up in 1998 • NGO non profit umbrella
organization• 25 chapters• More than 2000 patients across
the country
• Vision:Vision: • Decreasing number of fragility
fractures• Improved quality of life of
the patients
http://www.obme.hu
Key issues
• Health education programs, campaigns about
• Prevention
• Early detection of osteoporosis
• Progression of the disease could be stopped
• Patients’ involvement
• In decision making process
• Lobbying
• Capacity building
Major events of HOPA
• WOD Program
• Osteoporosis Civilian Forum
• Joint program with the Rehabilitation Section of Osteoporosis Medical Society
Major programs of HOPA
• Joint program with the Rehabilitation Section of Osteoporosis Medical Society
• April 2009
• Funny Role-playing …. Patient Education and Counseling
• The art of the Therapy
Major programs of HOPA
• Osteoporosis Civilian Forum
• May 2110
• It happened to me - what about the quality of life?
Major programs of HOPA
• WOD Program
• October 20, 2110
• Don’t miss the signs of breaking spine
It is never too late - Extend
/
http://www.extend.org.uk
Sketches of kids