Patient and Public Involvement in Programme Development and Research at Maggies Mandy McMahan PhD (Clinical Psychology) Maggies Dundee & Fife [email protected]

Patient and Public Involvement in Programme Development and Research at Maggie’s

Mandy McMahanPhD (Clinical Psychology)Maggie’s Dundee & [email protected]

Maggie’s: A foundation of patient & public involvement• Maggie Keswick Jencks & Charles Jencks

“Above all, what matters is

not to lose the joy of living in

the fear of dying”

www.maggiescentres.org

http://www.maggiescentres.org/

Maggie’s Programme of Support

Remains Well

Remission

Long Term Effects

DiagnosisPrimary

TreatmentRecurrence

Active and Advanced Disease

2nd and Subsequent Treatments

End of Life

Maggie's Support Programme

Quality assurance & Research

Programme development and evaluation

Getting Started

3-hour group workshop for patients & carers before or at beginning stages of treatment

Education & discussion about managing side effects, keeping physically active, nutrition and well-being

Where Now?

6-week post treatment programme

Personalised exercise & nutrition, stress management & well-being

Patient & Carer perceptions of barriers to participating in Maggie’s services

Programme Development

Getting Started & Where Now?

Partnership

Wellness Community & Lance Armstrong Foundation

Pilot

Frankly Speaking & Cancer Transitions

Evaluation & Feedback

Standard measures + participant feedback and comments

Integration & Development

Research: Identifying barriers to services & participation


Research: Identifying barriers




Documents

Patient and Public Involvement in Programme Development and Research at Maggies Mandy McMahan PhD (Clinical Psychology) Maggies Dundee & Fife [email protected]