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Partners in Health Care, Pillars of Hope:Why engaging family caregivers is essential in quality improvement
Breakout session F3
Barb MacLeanExecutive [email protected]
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Disclosure I work for the Family Caregivers’ Network Society
of BC. We receive funding from the BC Ministry of Health, Patients as Partners Initiative.
I am biased toward patient and family centered care.
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3 Themes:1. Incredible yet invisible: the family caregiver role 2. Making the shift to patient and family centered
care3. How can we ACT to:
include family/friends as partners in care engage in health planning and policy refer them for support & education
family caregivers
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Family Caregivers’ Network of BC
Dedicated to family caregiver support, education and representation in health system improvement
for 25 years.
family caregivers
A Family Caregiver is….…anyone who provides care and support for an adult family
member or friend who is in poor health, frail, elderly or disabled.
The care recipient can live either in their own home, with the family caregiver or in a care facility.
1,000,000One in 3.6
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80%80%
family caregivers
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70%family caregivers
10 family caregivers
$25-26 billion
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Why are we caring?
Impact of Caregiving on Health Depression and anxiety
High levels of stress
Chronic health conditions twice the rate of general population
Hypertension
Compromised immune system
Back injuries
Insomnia
And then there’s the financial impact $$$
14 family caregivers
Impact of Caregiving on Health Depression and anxiety
High levels of stress
Chronic health conditions twice the rate of general population
Hypertension
Compromised immune system
Back injuries
Insomnia
And then there’s the financial impact $$$
15 family caregivers
X
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4 years
I’m fine. I’m fine. I’m fine.
Crisis
Accept help
family caregivers
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Let’s tangle
family caregivers
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Why are caregivers excluded? privacy legislation - professionals cautious about
sharing with families Stigma or assumption that they will interfere or be
trouble. Lack of understanding Indifference Staff Work load – too busy No simple established communication process
family caregivers
Source: Wendy Sutton
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Individuals - us 50% resistant to change 8% innovators
Family caregivers
The Global Challenge......
[Jennings,Miller,Materna1997] after Tom Ferguson -Healthcare Forum Journal Jan/Feb 1995 pp28-33
System is shifting to the least expensive and most available
resources
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How do we shift to patient and family centered care?
family caregivers
23 Family caregivers
Setting Prioritiesfor the B.C. Health System PRIORITY1: Provide patient-centred care
Shift the culture of health care from being disease-centred and provider- focused to being patient-centred.
Feb. 2014
and family
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BC Ministry of Health Patients as Partners
Patients and family caregivers are partners in health care when they are supported and encouraged to participate:
in their own health care in decision making about that care at the level they choose in quality improvement and health care redesign
family caregivers
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Patient, Family, Public EngagementMinistry of Health Patients as Partners
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Engagement Examples:
Family Caregiver Week May 4-10
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Simple, free and easy: MAKE A REFERRAL
BC Family Caregiver ProgramCaregiver Support Line
1-877-520-3267
Education & Resource Center:www.familycaregiversnetwork.org
family caregivers
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family caregivers
Inventory of resources in BC – living document
31family caregivers
32 family caregivers
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I have been impressed with the urgency of doing. Knowing is not enough; we must apply. Being willing is not enough; we must do.
Leonardo da Vinci
Family caregivers
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What will YOU DO? include = part of the care team Inquire, “How are you?” refer for support invite to the planning table ??
Family caregivers
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Caregiver Support Line:
1-877-520-3267
Education & Resource Center:
www.familycaregiversnetwork.org
family caregivers
