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Children with multiple disabilities can benefit from thoughtful, well- coordinated early intervention services and supports to develop communication, mobility, tactile skills, and the concepts that are the framework for further learning. This landing pad highlights resources including research, policies, and position statements (Why Do It?), print materials (Read All About It), videos and DVDs (See for Yourself), and web resources (Find It Online) that can support professionals and family members in growing each young child’s full potential. Featured resources are high-quality, readily available, and no-cost or low-cost. A special section (Virginia Guidance) features state-specific resources. Additional resources for supporting young children with multiple disabilities may be found in the resource landing pads on assistive technology and autism. Mul%ple Disabili%es Landing Pad Why Do It? Read About It Find It Online See For Yourself Virginia Guidance Part 1 | Part 2 Part 1 | Part 2 | Part 3 | Part 4

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Page 1: Part1|Part2 Part1|Part2|Part3|Part4 !!!!!Mul%ple!Disabili ...€¦ · Children with multiple disabilities can benefit from thoughtful, well-coordinated early intervention services

Children with multiple disabilities can benefit from thoughtful, well-

coordinated early intervention services and supports to develop

communication, mobility, tactile skills, and the concepts that are the

framework for further learning. This landing pad highlights resources

including research, policies, and position statements (Why Do It?),

print materials (Read All About It), videos and DVDs (See for

Yourself), and web resources (Find It Online) that can support

professionals and family members in growing each young child’s full

potential. Featured resources are high-quality, readily available, and

no-cost or low-cost. A special section (Virginia Guidance) features

state-specific resources. Additional resources for supporting young

children with multiple disabilities may be found in the resource

landing pads on assistive technology and autism.

         Mul%ple  Disabili%es  Landing  Pad  

Why  Do  It?   Read  About  It  Find  It    Online  See       For  You

rself  Virginia  Guidance  

Part  1  |  Part  2   Part  1  |  Part  2  |  Part  3  |  Part  4  

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Assessing  Communica6on  and  Learning  in  Young  Children  Who  Are  

Dea>lind  or  Who  Have  Mul6ple  Disabili6es  

This  2009  guide  is  intended  for  all  professionals  who  are  responsible  

for  assessing  and  developing  interven%ons  for  young  children  who  

are  deaJlind.  The  contents  should  also  be  helpful  for  families  of  

these  children  who  seek  to  become  ac%vely  involved  in  educa%onal  

planning.  Some  families  may  use  the  informa%on  to  beNer  

understand  their  important  role  in  the  assessment  process,  while  

other  families  may  want  to  share  this  guide  with  professionals  who  

have  been  asked  to  evaluate  their  children.  The  strategies  and  

materials  described  here  are  applicable  to  many  children  who  have  

mul%ple  disabili%es  as  well  as  to  children  who  are  deaJlind.  

hDp://www.ohsu.edu/oidd/d2l/com_pro/

DeafBlindAssessmentGuide.pdf    

         Why  Do  It?  Posi6on  Statement  on  Access  to  Communica6on  

Services  and  Supports:  Concerns  Regarding  the  

Applica6on  of  Restric6ve  “Eligibility”  Policies  

This  posi%on  statement  was  developed  by  the  Na%onal  

Joint  CommiNee  for  the  Communica%on  Needs  of  

Persons  With  Severe  Disabili%es  of  the  American  

Speech-­‐Language-­‐Hearing  Associa%on.  hDp://www.asha.org/policy/PS2003-­‐00227.htm    

Why  Do  It?   Read  About  It  Find  It    Online  See       For  You

rself  Virginia  Guidance  

Part  1  |  Part  2   Part  1  |  Part  2  |  Part  3  |  Part  4  

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         See  For  Yourself  

Early  Emergent  Literacy  Video  Clips  

Webcasts  and  clips  for  suppor%ng  emergent  literacy  of  young  children  with  significant  disabili%es  are  featured  on  this  site.  

hDp://literacy.na6onaldb.org/index.php/early-­‐emergent-­‐literacy/  

 

Why  Do  It?   Read  About  It  Find  It    Online  See       For  You

rself  Virginia  Guidance  

Part  1  |  Part  2   Part  1  |  Part  2  |  Part  3  |  Part  4  

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All  Children  Can  Read  The  Na%onal  Consor%um  on  Deaf-­‐Blindness  (NCDB)  has  created  this  website  to  provide  informa%on  and  resources  to  state  deaf-­‐blind  projects,  

teachers,  family  members  and  related  service  providers  interested  in  beginning  or  enhancing  literacy  instruc%on  for  children  who  have  

combined  vision  and  hearing  loss  and  children  with  other  complex  learning  challenges.  Two  sec%ons  (Early  Emergent  Literacy  and  Emergent  Literacy)  include  ar%cles,  video  clips,  and  other  kinds  of  resources.  

hDp://literacy.na6onaldb.org  

   

Center  for  Literacy  and  Disability  Studies  The  University  of  North  Carolina’s  Center  for  Literacy  and  Disability  Studies  website  has  a  sec%on  devoted  to  early  childhood  that  includes  

assessments,  handouts,  presenta%ons,  BoardMaker  files,  resource  lists,  and  more.  

hDp://www.med.unc.edu/ahs/clds/resources/early-­‐childhood-­‐resources-­‐1      

Design  to  Learn  

The  Design  to  Learn  team  specializes  in  developing  effec%ve  assessment  and  teaching  strategies  for  children  and  adults  with  low-­‐incidence  

disabili%es.  They  have  special  exper%se  in  addressing  the  educa%onal  needs  of  children  who  are  deaf-­‐blind  and  children  with  au%sm  spectrum  disorders.  The  Communica%on  Matrix,  an  easy  to  use  assessment  instrument  designed  for  family  members  and  professionals  to  use  with  

individuals  of  all  ages  who  use  any  form  of  communica%on,  is  an  example  of  the  kind  of  resource  to  be  found  on  this  website.  

hDp://www.designtolearn.com/    

         Find  It  Online  Part  1  

Why  Do  It?   Read  About  It  Find  It    Online  See       For  You

rself  Virginia  Guidance  

Part  1  |  Part  2   Part  1  |  Part  2  |  Part  3  |  Part  4  

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FamilyConnect  

On  FamilyConnect  you'll  find  videos,  personal  stories,  events,  

news,  and  an  online  community  that  can  offer  %ps  and  support  

from  other  parents  of  children  who  are  blind  or  visually  

impaired.  Several  discussion  boards  focus  exclusively  on  issues  

for  family  members  of  children  with  mul%ple  disabili%es.  

hDp://www.familyconnect.org/parentsitehome.asp  

   

         Find  It  Online  Part  2  Na6onal  Consor6um  on  Deaf-­‐Blindness  

Resources  for  families,  technical  assistance,  and  

professional  development  are  readily  available  at  this  

website.  Search  the  database  under  “infant/toddler”  or  

“early  interven%on”  to  find  books,  videos,  websites  and  

other  resources  to  support  work  with  children  and  families.  

hDp://www.na6onaldb.org  

   

Perkins  Scout  

This  is  a  searchable  database  of  carefully  evaluated  online  

resources  related  to  blindness  and  visual  impairment.  Visit  

the  sec%ons  labeled  Early  Childhood  or  Emerging  Skills  and  

Early  Interven%on  for  resources  to  support  infants,  toddlers,  

and  young  children.  

hDp://www.perkins.org/resources/scout/  

Why  Do  It?   Read  About  It  Find  It    Online  See       For  You

rself  Virginia  Guidance  

Part  1  |  Part  2   Part  1  |  Part  2  |  Part  3  |  Part  4  

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         Read  About  It  

Why  Do  It?   Read  About  It  Find  It    Online  See       For  You

rself  Virginia  Guidance  

Implica6ons  for  Early  Interven6on  Services  to  Infants  who  are  Deaf-­‐Blind  and  Their  Families.  

Deborah  Chen,  Linda  Alsop,  and  Lavada  Minor  share  their  perspec%ves  in  this  brief  but  informa%ve  ar%cle.    

hDp://www.dea>lind.com/earlyint.html  

 

Deaf-­‐Blind  Perspec6ves  

This  free  publica%on  has  ar%cles,  essays,  and  announcements  about  topics  related  to  people  who  are  deaf-­‐blind.  

hDp://na6onaldb.org/dbp/  

   

Motor  Impairment  Associated  with  Neurological  Injury  in  Premature  Infants  

Sheena  L.  Carter’s  ar%cle  addresses  the  issue  of  neurologically  based  motor  impairment  in  preterm  infants.  Children  born  prematurely  

are  more  likely  than  full-­‐term  children  to  develop  motor  problems  during  infancy.  About  10%  of  the  smallest  (<1000  grams)  preterm  

infants  will  develop  cerebral  palsy.  Because  having  any  neurological  injury  increases  the  likelihood  that  other  areas  of  the  brain  have  also  

been  affected,  children  who  have  early  motor  impairments  that  resolve  may  also  have  con%nuing  difficul%es  related  to  weak  motor  

abili%es  rela%ve  to  peers,  learning  disabili%es,  and  sensory  issues.  

hDp://www.comeunity.com/disability/cerebral_palsy/cerebralpalsy.html  

Part  1  |  Part  2   Part  1  |  Part  2  |  Part  3  |  Part  4  

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Why  Do  It?   Read  About  It  Find  It    Online  See       For  You

rself  Virginia  Guidance  

         Virginia  Guidance  Part  1  The  Arc  of  Virginia  

The  Arc  of  Virginia  promotes  and  protects  the  human  rights  of  people  with  intellectual  and  developmental  disabili%es  and  ac%vely  

supports  their  full  inclusion  and  par%cipa%on  in  the  community  throughout  their  life%mes.  The  Arc  is  available  as  a  resource  to  families  

regarding  advocacy,  informa%on,  and  linking  to  community  resources.  

hDp://www.thearcofva.org/index.html  

   

Disability  Resources  –  Virginia  

This  site  provides  a  list  of  state  and  na%onal  resources  by  disability  category.  

hDp://www.disabilityresources.org/VIRGINIA.html  

 

Partnership  for  People  with  Disabili6es,  Virginia  Commonwealth  University  

The  Partnership  for  People  with  Disabili%es  is  Virginia’s  only  university  center  for  excellence  in  developmental  disabili%es  (UCEDD).  The  

mission  of  the  Partnership  is  to  partner  with  people  with  disabili%es  and  others  to  build  communi%es  where  all  people  can  live,  learn,  

work,  and  play  together.  Ac%vi%es  of  the  Partnership  span  the  life%me  and  include  ac%vi%es  specific  to  early  interven%on  and  early  

childhood.  Visit  the  website  for  more  details.  

hDp://www.partnership.vcu.edu  

Part  1  |  Part  2   Part  1  |  Part  2  |  Part  3  |  Part  4  

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Why  Do  It?   Read  About  It  Find  It    Online  See       For  You

rself  Virginia  Guidance  

         Virginia  Guidance  Part  2  T/TAC  Online  –  Mul6ple  Disabili6es  Resource  Page  

T/TAC  Online  is  a  resource  for  educators  working  with  children  with  special  needs.  Informa%on,  resources,  and  training  can  be  accessed  

on  this  site  by  disability  topic.    

hDp://Daconline.org/staff/s_resources/s_resources_subcontent.asp?dis=9  

 

Virginia  Board  for  People  with  Disabili6es  

The  Board  serves  as  the  state’s  Developmental  Disabili%es  Planning  Council,  addressing  the  needs  of  Virginians  with  developmental  

disabili%es  (DD).  The  Board  advises  the  Governor,  the  Secretary  of  Health  and  Human  Resources,  federal  and  state  legislators,  and  other  

cons%tuent  groups  on  issues  related  to  people  with  disabili%es  in  Virginia.  The  Board's  purpose  is  to  engage  in  advocacy,  capacity  

building,  and  systems  change  ac%vi%es  that  contribute  to  a  coordinated  consumer  and  family  centered,  consumer  and  family  directed,  

comprehensive  system  of  services,  individualized  supports,  and  other  forms  of  assistance  that  enable  individuals  with  DD  to  exercise  self-­‐

determina%on,  be  independent,  be  produc%ve,  and  be  integrated  and  included  in  all  facets  of  community  life.  This  is  accomplished  

through  outreach,  training,  technical  assistance,  suppor%ng  and  educa%ng  communi%es,  barrier  elimina%on,  system  design/redesign,  

coali%on  development  and  ci%zen  par%cipa%on,  informing  policymakers,  and  demonstra%on  of  new  approaches,  services,  and  supports  

to  community-­‐based  service  delivery.  

hDp://www.vaboard.org  

Part  1  |  Part  2   Part  1  |  Part  2  |  Part  3  |  Part  4  

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Why  Do  It?   Read  About  It  Find  It    Online  See       For  You

rself  Virginia  Guidance  

         Virginia  Guidance  Part  3  

Virginia  Department  of  Educa6on  Resources  (VDOE)  

 Deaf-­‐blindness:  What  cons6tutes  eligibility  for  the  disability  category  deaf-­‐blindness,  and  why  is  iden6fica6on  cri6cal?  

 This  informa%on  sheet  provides  informa%on  about  eligibility  for  Virginia  special  educa%on  services  for  children  who  experience  

 deaf-­‐blindness.    hDp://www.doe.virginia.gov/special_ed/disabili6es/sensory_disabili6es/deaf_blind/deaf_blindness_eligibility.pdf    

 Mul6ple  Disabili6es  

 Visit  this  site  for  more  informa%on  about  how  children  with  mul%ple  disabili%es  are  supported  in  Virginia  schools.    hDp://www.doe.virginia.gov/special_ed/disabili6es/mul6ple_disabili6es/index.shtml    

 

VA  Department  for  the  Blind  and  Vision  Impaired  (VDBVI)  

Infants  and  children  with  visual  disabili%es,  their  families  and  teachers  can  receive  technical  assistance  and  support  through  the  VDBVI  

that  will  help  them  during  the  child's  developmental  and  educa%onal  process.  Staff  provide  technical  assistance  for  evalua%on,  program  

planning,  curriculum  modifica%on,  transi%on  programs,  informa%on  about  blindness,  and  adap%ve  equipment.  

hDp://www.vdbvi.org    

Part  1  |  Part  2   Part  1  |  Part  2  |  Part  3  |  Part  4  

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Why  Do  It?   Read  About  It  Find  It    Online  See       For  You

rself  Virginia  Guidance  

         Virginia  Guidance  Part  4  Part  1  |  Part  2   Part  1  |  Part  2  |  Part  3  |  Part  4  

Virginia  Department  for  the  Deaf  and  Hard  of  Hearing  (VDDHH)  

The  VDDHH  offers  informa%on,  resources  and  services  for  persons  who  are  deaf  or  hard-­‐of-­‐hearing,  persons  with  speech  impairment,  

and  those  with  deaf-­‐blindness.  

hDp://www.vddhh.org  

 

Virginia  Department  of  Medical  Assistance  (VDMAS),  Medicaid  Waiver  Services  

Visit  this  page  for  an  overview  of  waiver  services  and  descrip%ons  of  the  Medicaid  Waivers.  hDp://www.dmas.virginia.gov/Content_pgs/ltc-­‐wvr.aspx    

   

Virginia’s  Medicaid  Waivers  for  Persons  with  Disabili6es,  their  Parents,  &  Caregivers  

This  booklet  provides  more  detailed  informa%on  about  Virginia’s  Medicaid  Waivers.  hDp://www.dmas.virginia.gov/Content_atchs/ltc/ltc_md_waiver.pdf    

 

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Virginia Early Intervention

Professional Development Center

Copyright © 2012 | Updated 2013

Virginia Commonwealth University | Partnership for People with Disabilities | www.eipd.vcu.edu

This professional development activity is supported by the Integrated Training Collaborative (ITC), with funding support from the Virginia Department of Behavioral Health and Developmental Services (DBHDS), American Recovery

and Reinvestment Act (ARRA)