Parkinson’s Outcomes Project:Report to the Community

7/30/2019 Parkinsons Outcomes Project:Report to the Community

1/24

\nrbaevcev ct}fcjdv \rchdf}8_d|cr} }c }`d Fcjjtea}q

Gaem Nevydrv% F`neid Kawdv% Odn} \nrbaevcev%


2/24

]`d \nrbaevcev Ct}fcjdv \rchdf}

]`d javvace cg }`d \nrbaevcev Ct}fcjdv \rchdf} av }c md}drjaed

y`n} ycrbv odv} ae }rdn}jde} nem fnrd ya}` ne naj }cynrm

vkcyaei }`d aj|nf} cg }`d mavdnvd% N} a}v `dnr} av ne nkk*aefktvawd+

ae}dren}acenk mn}nonvd }`n} yakk gckkcy |n}ade}v cwdr }ajd%

Ftrrde}kq }rnfbaei jcrd }`ne 4+4


3/24en}acenk \nrbaevce gctemn}ace >

Yd ecy `nwd }`d

mdd|dv} |cck cg

\nrbaevcev mn}n

dwdr fckkdf}dm% Ag

qct `nwd \nrbaevce

}`drd av nkjcv}

fdr}naekq vcjdced

kabd qct |nr}afa|n}ae

ae }`d v}tmq%

N ka}}kd cwdr }`rdd qdnrv nic+ }`d En}acenk \nrbaevce Gctemn}ace (E\G! kntef dm ne

te|rdfdmde}dm rdvdnrf` fckknocrn}ace8 }`d tnka}q Aj|rcwdjde} Aea}an}awd (^AA!+ |nr} cg

}`d \nrbaevcev Ct}fcjdv \rchdf}% A} av }`d knridv} fkaeafnk v}tmq cg \nrbaevcev mavdnvd dwdr

fcemtf}dm+ nem }`d rv} ya}` }`d |rajnrq icnk cg amde}agqaei nem dp|knaeaei gnf}crv }`n} rdvtk}

ae kceidr+ od}}dr+ nem jcrd nf}awd kawdv gcr |dc|kd ya}` \nrbaevcev%

]`d rdvtk} av }`d mdd|dv} |cck cg \nrbaevcev mn}n dwdr fckkdf}dm+ grcj vcjd 4+4+=


4/24? en}acenk \nrbaevce gctemn}ace

Jnrb It}}jne+ JM

]àv fcj|rd`devawd dwnktn}ace rddf}v }`d fcj|kafn}dm en}trd cg \nrbaevcev+ yàf` cwdr }ajd

fne nggdf} ednrkq dwdrq |nr} cg n |drvce+ nv ydkk nv }`dar kcwdm cedv%

Ctr v}tmq defcj|nvvdv aemawamtnkv n} ?< kdnmaei fde}drv gcr }rdn}aei \nrbaevcev+ nkk |nr} cg

E\Gv Fde}dr cg Dpfdkkdefd ed}ycrb% Oq v}tmqaei }`d odv} cg }`d odv}+ E\G |knev }c mdkwd ae}c

}`d bdq maggdrdefdv ae }rdn}jde} nem ct}fcjdv odfntvd dwdrq |drvce ya}` \nrbaevcev mdvdrwdv

odv} |rnf}afd fnrd+ ec jn}}dr y`drd }`dq nrd }rdn}dm%

Y`de yd v}tmq `cy mavdnvd nggdf}v aemawamtnkv+ yd }nkb noct} qctr `dnk}` v}n}tv+ nem jtf` cg

}àv rd|cr} fcefdrev }`d `dnk}` v}n}tv cg |dc|kd ae ctr v}tmq% @dnk}` v}n}tv av aj|cr}ne} odfntvd

a} defcj|nvvdv jtf` jcrd }`ne htv} }`d mavdnvd% Ctr icnk nv |`qvafanev av }c ec} htv} `dk| qct

gtef}ace od}}dr+ ot} }c `dk| qct gddk od}}dr% ]`drd av n maggdrdefd od}ydde gtef}ace nem gddkaei+

nem yd `nwd gctem }`n} `cy |dc|kd ya}` \nrbaevcev gddk}`dar jccm nem md|rdvvaceav n

fra}afnk gnf}cr ya}` n }neiaokd aj|nf} ce cwdrnkk `dnk}`% Yd `nwd nkvc amde}adm vcjd cg }`d v}d|v

}`n} yd nv mcf}crv+ nem qct nv |n}ade}v+ fne }nbd }c f`neid }àv% ]`dvd c||cr}tea}adv gcr nkk cg tv

}c aj|rcwd `dnk}` nrd }`d ài`kai`} cg }àv aentitrnk rd|cr}%

Yd nkk `c|d }`n} }`d edp} jnhcr ordnb}`rcti` ae \nrbaevcev mavdnvd yakk od n }rdn}jde} }`n}

vkcyv mcye oackciafnk |rcirdvvace% Y`de yd nfàdwd }àv+ c|}ajaxaei fnrd yakk od dwde jcrd

aj|cr}ne}8 }`cti` vqj|}cjv jnq od rdmtfdm+ }`dq jtv} od nmmrdvvdm cwdr n kceidr kagd

dp|df}nefq% Yd yakk v}akk eddm }c ycrb }cid}`dr }c |rdwde} gnkkv+ }rdn} md|rdvvace+ nem nmmrdvv

Hcè Et}}+ JM


5/24en}acenk \nrbaevce gctemn}ace 6

Dtided Edkvce+ MVf

Hcè Et}}+ JM

Mardf}cr cg }`d E\G Fde}dr cg Dpfdkkdefd

Jcwdjde} Mavcrmdrv Fde}dr n} Crdice

@dnk}` nem Vfadefd Teawdrva}q+ \cr}knem+ C_

ÂA V}tmq Fc*F`nar

Jnrb It}}jne+ JMMardf}cr cg }`d E\G Fde}dr cg Dpfdkkdefd

Fde}dr gcr Jcwdjde} Mavcrmdrv ae

Jnrb`nj Ce}nrac+ ]crce}c+ Fnenmn

ÂA V}tmq Fc*F`nar

]neqn Vajtea+ JM

Mardf}cr cg }`d E\G Fde}dr cg Dpfdkkdefd

\nrbaevcev Mavdnvd nem Jcwdjde} Mavcrmdrv

Fde}dr n} Ecr}`ydv}dre Teawdrva}q+ Fàfnic+ AK

ÂA V}tmq Fc*F`nar

Dtided Edkvce+ MVfMardf}cr cg ^tnka}q Nmjaeav}rn}ace gcr }`d

Mnr}jct}`*@a}f`fcfb Jdmafnk Fde}dr

Kdonece+ E@

ÂA V}tmq Fc*F`nar

c}`dr gnf}crv }`n} fne v|ddm }`d md}dracrn}ace ae qctr `dnk}` v}n}tv% Nv ordnb}`rcti`v nrd

nfàdwdm+ fnrd yakk odfcjd jcrd |drvcenkaxdm+ vc }`n} }`d odv} }`drn|adv nrd n||kadm }c qctr

|nr}aftknr ided}af nem dewarcejde}nk gnf}crv% Ae v`cr}8 ctr icnk av ec} cekq }c c|}ajaxd }cmnqv

fnrd+ ot} }c `dk| itamd }cjcrrcyv%

Ce od`nkg cg E\G nem ctr ngkan}dm fde}drv nem aev}a}t}acev+ yd dp|rdvv ctr irn}a}tmd }c }`cvd

y`c `nwd v`nrdm ctr wavace nem vt||cr}dm ctr dggcr}v% Ae |nr}aftknr+ yd }`neb }`d |n}ade}v+

fnrdiawdrv+ fkaeafanev+ nem rdvdnrf`drv y`cvd |nr}afa|n}ace av v}dnmakq kkaei in|v ae ctr

temdrv}nemaei+ nem vt||cr}aei n orai`}dr gt}trd ae }`d i`} ninaev} \nrbaevcev% Yd kccb

gcrynrm }c gt}trd rd|cr}v }c qct+ }`d \nrbaevcev fcjjtea}q+ ce ctr |rcirdvv%

]neqn Vajtea+ JM


6/24= en}acenk \nrbaevce gctemn}ace

}`d ^tnka}qaj\rcwdjde} aea}an}awd8Y`c \nr}afa|n}dv3

ETJOD_ cg |n_}afa|nE}v aE }`D v}Tmq

9#>#

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#

4

Onqkcr Fckkdid cg Jdmafaed

@ctv}ce+ ]P

Hcvd|` Hnebcwaf+ JM

Fde}dr \raeFa\nk aewdv}ain}cr

F`rav}aed @te}dr+ _E+ FF_F

Fde}dr Fccrmaen}cr

Od}` Avrndk Mdnfcedvv

Jdmafnk Fde}dr

Ocv}ce JN

Mneadk ]nrvq+ JM


Nk}`dn Vakwdr+ J\@+ OVE+ _E

Fde}dr Fccrmaen}cr

Idcrian @dnk}` nem

Vfadefd Teawdrva}q

Ntitv}n+ IN

Hcè Jcrine+ JM+ \`M


Kavn Otv`

Xnf`nrq Jnr}ae

Fde}dr Fccrmaen}crv

Idcrid}cye Teawdrva}q

Ynvàei}ce+ MF

Gdrenemc \nine+ JMFde}dr\raeFa\nk aewdv}ain}cr

@dkde @cynrm+ JN+ _EFde}drFccrmaen}cr

Hcèv @c|baev Teawdrva}q

Onk}ajcrd+ JM

Xck}ne Jnra+ JM


_dodffn Mtekc|+ _E+ OVE

Nra}n JfFcq+ _E

Fde}dr Fccrmaen}crv

Fde}rd gcr Jcwdjde} Mavcrmdrv

]crce}c+ Fnenmn

Jnrb It}}jne+ JM


Nkneen V`daeodri

Bdwae Vcrcbae

Fde}dr Fccrmaen}crv

Jcte} Vaena Jdmafnk Fde}dr

Edy Qcrb+ EQ

Onronrn F`neiaxa+ JM


Hcne Orn}}ce

Njodr Vdrwa

Fde}dr Fccrmaen}crv

Jt`njjnm Nka \nrbaevce Fde}dr

cg Onrrcy Edtrckciafnk Aev}a}t}d

\`cdeap+ NX

Ne}`ceq Vne}anic+ JM


Jnrinrd} Need Fckdv+ OV_+ JÂ+ C]_#K

\n}}q @n}}ce+ F]_V

Fde}dr Fccrmaen}crv

Ecr}`ydv}dre Teawdrva}q

Fàfnic+ AK

]neqn Vajtea+ JM


Dknaen Xad`j

Fde}dr Fccrmaen}cr

\nrbaevcev ct}fcjdv \rchdf}8\nr}afa|n}aei Fde}drv cg Dpfdkkdefd

]`d ÂA+ |nr} cg }`d \nrbaevcev Ct}fcjd \rchdf}+ av cwdrvdde oq n v}ddraei fcjja}}dd cg }`d kdnmaewdv}ain}crv n} dnf` |nr}afa|n}aei E\G Fde}dr cg Dpfdkkdefd nem n irct| cg kdnmdrv ae fnrd ~tnka}q grcj

}`d orcnmdr fcjjtea}q%

N} }`d ?< |nr}afa|n}aei fde}drv+ >46 |`qvafanev+ vt||cr}dm oq 17 rdvdnrf` nvvav}ne}v+ `nwd |nr}afa|n}dm ae

mdkawdraei fnrd }c }`d jcrd }`ne 4+4


18/24>7 en}acenk \nrbaevce gcte mn}ace

Crdice @dnk}`nem Vfadefd Teawdrva}q

\cr}knem+ C_

Hcè Et}}+ JM


Neen Kcwdknfd

Fde}dr Fccrmaen}cr

\nrbaevcev Aev}a}t}d

nem Fkaeafnk Fde}drVteeqwnkd+ FN

Jdknead Ornemnotr+ JM


Kaxxn _dqv

Fde}dr Fccrmaen}cr

V}rt}`drv \nrbaevcev Fde}dr

Ickmde Wnkkdq+ JE

Vc}aracv \nrnv`cv+ JM+ \`M


Hcne Inrmedr+ _E

Fn}`draed Yadkaevba+ J\@

Fde}dr Fccrmaen}crv

Teawdrva}q cg Gkcramn

Inaedvwakkd+ GK

Jaf`ndk Cbte+ JMv}tmq nmwavcr

Arded Jnkn}q+ JM


Njnemn Dakdrv

Fde}dr Fccrmaen}cr

Teawdrva}q cg BnevnvJdmafnk Fde}dr

Bnevnv Fa}q+ BV

Bdkkq Kqcev+ \`M


Hdvvafn Fcc|dr+ OV+ OIV

Fde}dr Fccrmaen}cr

Teawdrva}q cg Vct}` Gkcramn

]nj|n+ GK

_codr} @ntvdr+ JM+ JON


Fkntman _cf`n

@ckkq Mdkinmc+ _E

Fde}dr Fccrmaen}crv

Wnemdroak} Teawdrva}q

Env`wakkd+ ]E

]`cjnv Mnwav+ JM


Bdkkq Nredq+ JVVY

Fde}dr Fccrmaen}cr

Teawdrva}q cg \deevqkwnean

\àknmdk|àn+ \N

Enoakn Mn`cmynkn+ JM


Hnjdv Jaeidr

Fde}dr Fccrmaen}cr

_nmoctm Teawdrva}qEahjdide Jdmafnk Fde}dr

Eahjdide+ ]`d Ed}`drknemv

Onv}anne Okcdj+ JM


Onr} \cv}+ JM

Fde}dr Fccrmaen}cr

]dk*Nwaw Vctrnvbq Jdmafnk Fde}dr

]dk*Nwaw+ Avrndk

Ear Iaknma+ JM

v}tmq nmwavcr]neqn Itrdwaf`+ JM


Ennjn Fc`de

Mnen Qdbt}adka ]xtr+ OVf

Fde}dr Fccrmaen}crv

]crce}c Ydv}dre @cv|a}nk

]crce}c+ Fnenmn

Hneav Jaqnvnba+ JM+ G_F\F


Htkad _nfac||n

Fde}dr Fccrmaen}cr

C}`dr V}tmq Nmwavcrv

Draf F`dei+ JM

Teawdrva}q cg Fnkagcrean Vne Grnefavfc+

Vne Grnefavfc+ FN

Kntrn Jnrv`+ JM

Jaf`ndk D% MdOnbdq WN Jdmafnk Fde}dr

@ctv}ce+ ]P


19/24en}acenk \nrbaevce gctemn}ace >9

]`d jnae emaeiv rd|cr}dm ae }àv mcftjde} nrd mdrawdm grcj }`d ÂA v}tmq nem |rdvde}n}acev nem|tokafn}acev onvdm ce a}v aegcrjn}ace% ]`dvd |tokafn}acev aefktmd8

N% @nvvne+ V%V% Yt+ \% Vf`jam}+ A% Jnkn}q+ Q%G% Mna+ H%J% Jaqnvnba+ J%V% Cbte% Y`n} nrd }`d avvtdv gnfaei

\nrbaevcev mavdnvd |n}ade}v n} }de qdnrv cg mavdnvd nem odqcem3 Mn}n grcj }`d E\G*ÂA v}tmq% \nrbaevceavj

nem _dkn}dm Mavcrmdrv% ??% >0(0!81?4*67}`

Ae}dren}acenk Fceirdvv% Mtokae+ Ardknem% ??%

H%M% Hcedv+ A% Jnkn}q+ F%F% \rafd+ J%V% Cbte+ M% Ocydrv% @dnk}` fcjcroama}adv nem fciea}ace ae >1=0 |n}ade}v

ya}` amac|n}àf \nrbaevcev mavdnvd% Mn}n grcj }`d E\G*ÂA v}tmq% \nrbaevceavj nem _dkn}dm Mavcrmdrv% ??%

Ae |rdvv%

J% Bynveq+ C% Cit`+ O% V}dkk+ ]% Vajtea+ ce od`nkg cg }`d E\G*ÂA aewdv}ain}crv% V|ddf` }`drn|q t}akaxn}ace ae

\nrbaevcev mavdnvd% Jcwdjde} Mavcrmdrv Vcfad}q >7}` Ae}dren}acenk Fceirdvv% Mtokae+ Ardknem% ??%

H%I% Et}}+ N%M% Vamdrcyg+ J% It}}jne+ D%F% Edkvce+ \% Vf`jam}+ H% Xnjtmac+ V%V% Yt+ J%V% Cbte+ ce od`nkg

cg }`d E\G*ÂA aewdv}ain}crv% Fcrrdkn}dv cg `dnk}`*rdkn}dm ~tnka}q cg kagd (@_^K! ae \nrbaevcev mavdnvd%

Jcwdjde} Mavcrmdrv Vcfad}q >7}` Ae}dren}acenk Fceirdvv% Mtokae+ Ardknem% ??%

C% Cit`+ J% Bynveq+ H% Fnr}dr+ ]% Vajtea+ ce od`nkg cg }`d E\G*ÂA aewdv}ain}crv% \rdmaf}crv cg fnrdiawdr

otrmde ae \nrbaevcev mavdnvd% Jcwdjde} Mavcrmdrv Vcfad}q >7}` Ae}dren}acenk Fceirdvv% Mtokae+ Ardknem%

??%

C% Cit`+ J% Bynveq+ ]% Vajtea F%+ Xnmabcgg ce od`nkg cg }`d E\G*ÂA aewdv}ain}crv% _nfank mav|nra}adv ae nffdvv

}c mdd| ornae v}ajtkn}ace% Jcwdjde} Mavcrmdrv Vcfad}q >7}` Ae}dren}acenk Fceirdvv% Mtokae+ Ardknem% ??%

C% Cit`+ J% Bynveq+ O% V}dkk+ ]% Vajtea+ ce od`nkg cg }`d E\G*ÂA aewdv}ain}crv% \rdmaf}crv cg fnrdiawdr

otrmde ae \nrbaevcev mavdnvd%Njdrafne Nfnmdjq cg Edtrckciq 7=}` Neetnk Jdd}aei% Edy Crkdnev+ Kctavanen%

??%

_dgdrdefdv


20/24


21/24en}acenk \nrbaevce gctemn}ace >1

Ae nmma}ace }c }`d ^AA v}tmq+ aj|cr}ne} |cae}v nem rdfcjjdemn}acev fcefdreaei \nrbaevcev nrd mrnyegrcj n rneid cg |tokafn}acev+ aefktmaei8

H%J% Jaqnvnba+ B% V`neece+ W% Wcce+ O% _nwaen+ I% Bkdaedr*Gavjne+ B% Nemdrvce+ K%J% V`tkjne+ I% Ircevd}`+

Y%H% Ydaedr2 ^tnka}q V}nemnrmv Vtofcjja}}dd cg }`d Njdrafne nfnmdjq cg edtrckciq% \rnf}afd \nrnjd}dr8

dwnktn}ace nem }rdn}jde} cg md|rdvvace+ |vqf`cvav+ nem mdjde}an ae \nrbaevce mavdnvd (ne dwamdefd*onvdm

rdwady!8 rd|cr} cg }`d ^tnka}qV}nemnrmv Vtofcjja}}dd cg }`d Njdrafne Nfnmdjq cg Edtrckciq% Edtrckciq%

?


22/24?< en}acenk \nrbaevce gctemn}ace

Cwdr }`d |nv} }yc qdnrv+ }`d En}acenk \nrbaevce Gctemn}ace `nv aewdv}dm jcrd }`ne -? jakkace ae }àv v}tmq%]àv aj|cr}ne} rdvdnrf` aea}an}awd av jnmd |cvvaokd oq }`d vt||cr} cg }`ctvnemv cg |dc|kd kabd qct y`c

jnmd n mcen}ace }c vt||cr} }`d En}acenk \nrbaevce Gctemn}ace+ nem idedrctv vt||cr} grcj }`d gckkcyaei

gctemn}acev nem fcr|crn}acev8

Nooc}}

Ornjne Gnjakq Gctemn}ace+ Aef%

Jnhcr Kdnitd Onvdonkk \knqdrv ]rtv}

\nrbaevce Nvvcfan}ace cg Jaeedvc}n

\nrbaevcev Tea}q Ynkb

Vct}` \nkj Odnf` Fcte}q+ F`n|}dr cg }`d En}acenk \nrbaevce Gctemn}ace

V}% Htmd Jdmafnk

]dwn Edtrcvfadefd+ Aef%

]`d Irddeodri*Jnq Gctemn}ace+ Aef%

]`d Baed}afv Gctemn}ace

]`d Kdar F`nra}nokd Gctemn}ace

]`d ]`cj|baev*Orckk Gnjakq Gctemn}ace

ÂA V}tmq Vt||cr}


23/24

Noct} }`d En}acenk \nrbaevce Gctemn}ace

Tea~td njcei }`d \nrbaevcev crineaxn}acev+ }`d En}acenk \nrbaevce

Gctemn}ace (E\G! `nv n vaeitknr gcftv8 ctr javvace av }c aj|rcwd

}`d ~tnka}q cg fnrd }`rcti` rdvdnrf`+ dmtfn}ace nem ct}rdnf`%

Yd `nwd frdn}dm n ikconk ed}ycrb vdrwaei }`d eddmv cg }`d

\nrbaevcev fcjjtea}q aefktmaei8

=> Fde}drv cg Dpfdkkdefd n} }c| jdmafnk fde}drv nrctem }`d ycrkm+

aefktmaei ?7 ae }`d T%V% nem >4 ae}dren}acenkkq

Ne dp}devawd ed}ycrb cg f`n|}drv nem vt||cr} irct|v nfrcvv

}`d T%V%+ vdrwaei jcrd }`ne >


24/24

Gaem Nevydrv% F`neid Kawdv% Odn} \nrbaevcev%

>4 EY 1}` NwdetdOco @c|d _cnm

66 60

\nrbaevce%cri ydo6

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Parkinson’s Outcomes Project:Report to the Community