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PAP Journal
Cover
❂
My Journal
How to use these stickers:
NEW: Shows your new psoriasis patches.
WORSE: Shows your psoriasis patches that have gotten worse over time.
NO CHANGE: Shows your psoriasis patches that haven’t changed since you last recorded.
BETTER: Shows your psoriasis patches that have improved.
©2011 Abbott Laboratories Abbott Park, IL 60064 64Y-604210 May 2011 Printed in U.S.A.
Spread #1
DATE:
❂
My Journal
How to use these stickers:
NEW: Shows your new psoriasis patches.
WORSE: Shows your psoriasis patches that have gotten worse over time.
NO CHANGE: Shows your psoriasis patches that haven’t changed since you last recorded.
BETTER: Shows your psoriasis patches that have improved.
©2011 Abbott Laboratories Abbott Park, IL 60064 64Y-604210 May 2011 Printed in U.S.A.
Spread #2
Spread #3 Spread #4
Back cover (opposite side of last notes page)
❂
My Journal
How to use these stickers:
NEW: Shows your new psoriasis patches.
WORSE: Shows your psoriasis patches that have gotten worse over time.
NO CHANGE: Shows your psoriasis patches that haven’t changed since you last recorded.
BETTER: Shows your psoriasis patches that have improved.
©2011 Abbott Laboratories Abbott Park, IL 60064 64Y-604210 May 2011 Printed in U.S.A.
BACK
FRONT
Track your symptoms.
It’s a good idea to keep track of your psoriasis symptoms. This journal can help you see how your psoriasis symptoms on the front and back of your body change over time. You can also write notes daily or weekly about what’s going on in your life to see if there are certain triggers that make your condition worse. This journal can help you have a more productive conversation with your doctor, so bring it with you on your next visit.
Tracker instructions:
• Select stickers that best describe the condition of your plaque psoriasis on your body
• Place that sticker on the body chart to show where the plaque psoriasis patch is located
• Date the sheets so that you can continue to record how your condition progresses, either daily or weekly
• Bring this journal to your next doctor’s appointment so you can have a more informed conversation with your doctor
Example:
BACK
FRONT
DATE:
BACK
FRONT
DATE:
BACK
FRONT
DATE:
Spread #5 Spread #6
BACK
FRONT
DATE:
BACK
FRONT
DATE:
Spread #7 Spread #8
BACK
FRONT
DATE:
BACK
FRONT
DATE:
Spread #9 Spread #10
BACK
FRONT
DATE:
BACK
FRONT
DATE:
Spread #11 Spread #12
BACK
FRONT
DATE:
BACK
FRONT
DATE:
Spread #13
BACK
FRONT
DATE:
Patient Advocate Program
I'm here to help.
Let's get started.
b
b
©2011 Abbott Laboratories Abbott Park, IL 60064 XXX-XXXXXXX May 2011 Printed in U.S.A.
b
Making the most of the skin you’re in.
Did you know that your skin is the largest organ you have? It’s true—it covers over 19 square feet of your body. Your skin is often the first thing you see when you look in the mirror. If you’re not happy with how your skin looks, it can sometimes trigger a lot of emotions. When you have psoriasis, the appearance of your skin can impact you, and may even affect how people react to you. So it’s understandable that you want to do all that you can to take care of it.
What causes psoriasis?
No one knows exactly what causes psoriasis, but scientists believe it involves the immune system and genetics. Psoriasis occurs when the immune system is overstimulated, causing skin to grow too quickly. Usually, skin cells grow and fall off the body in about 30 days. But with psoriasis, the skin cells mature in only 3 or 4 days. When this happens, there’s nowhere for these extra skin cells to go, so they eventually “pile up” instead of shedding from the body normally. This is what causes the rough, red patches characteristic of psoriasis.
Types of psoriasis.
There are 5 types of psoriasis, each with its own characteristics.
Plaque psoriasis is the most common, affecting 80% of people with psoriasis. The red, silvery, scaly patches show up on joints such as elbows and knees, as well as other places such as the lower back and scalp.
Guttate psoriasis often looks like small red spots and affects the trunk and limbs. This kind of psoriasis usually occurs in young adults and children (may start after a sore or strep throat) and may clear up by itself within a few months.
Pustular psoriasis can be identified by pus-filled bumps (or white blisters) surrounded by red skin. It’s usually localized in areas such as the palms of the hands and soles of the feet, but if it becomes widespread (which is rare), it can be life threatening.
Inverse psoriasis is characterized by shiny, bright red, smooth patches. It can be found in skin folds such as the neck, underarms, under the breasts, groin, and buttocks.
Erythrodermic psoriasis is very rare, and severe cases often require hospitalization. Shedding of skin is a characteristic, as well as a bright red color.
4 5
Psoriasis Patient Advocate Program
Education. Resources. Support. The
Psoriasis Patient Advocate Program*
is an advocacy program designed to
be a go-to educational resource for
people like you living with psoriasis. Your
advocate is specially trained to help
educate you about psoriasis and provide
resources to help you have productive
conversations with your doctor. Working
with you one-to-one, you and your
advocate will have the opportunity to set
goals and get the resources and support
you need.
* The Psoriasis Patient Advocate Program is not a substitute for a medical professional or a dermatologist trained in treating psoriasis. Your advocate cannot provide medical advice.
3
Patient Advocate ProgramPsoriasis Patient Advocate Program
Living with psoriasis:
There’s more
than meets the eye.
b
b
©2012 Abbott Laboratories Abbott Park, IL 60064 XXX-XXXXXX March 2012 Printed in U.S.A.
Here are some
things that are
important to discuss
with your doctor.
b
1. How does psoriasis affect your daily life? Is it interfering with doing the things you enjoy?
2. What symptoms of psoriasis are you experiencing?
3. Is your psoriasis considered mild, moderate, or severe?
4. What are the risks and benefits of different treatments?
Psoriasis Patient Advocate Program
Melissa LeighPatient Advocate
PsoriasisSpeaks.com
b
My Journal
How to use these stickers:
NEW: Shows your new plaque psoriasis patches.
WORSE: Shows your plaque psoriasis patches that have gotten worse over time.
NO CHANGE: Shows your plaque psoriasis patches that haven’t changed since you last recorded.
BETTER: Shows your plaque psoriasis patches that have improved.
©2011 Abbott Laboratories Abbott Park, IL 60064 64Y-604210 May 2011 Printed in U.S.A.
Psoriasis Patient Advocate Program
Living with psoriasis:
There’s more
than meets the eye.
❂
❂
©2012 Abbott Laboratories Abbott Park, IL 60064 64Y-840663 May 2012 Printed in U.S.A.
Here are some
things that are
important to discuss
with your doctor.
❂
1. How does psoriasis affect your daily life? Isit interfering with doing the things you enjoy?
2. What symptoms of psoriasis are you experiencing?
3. Is your psoriasisconsidered mild, moderate, or severe?
4. What are the risks and benefits of different treatments?
©2012 Abbott Laboratories Abbott Park, IL 60064 XXY-XXXXXX March 2012 Printed in U.S.A.
Meet Melissa Leigh
Your advocate is Melissa Leigh. She has
10 years of experience in the health care field
and joined the Psoriasis Patient Advocate
Program to help people like you learn more
about psoriasis through individualized
education and support.
Through one-to-one communication with
Melissa by phone, in person, or by e-mail,
you’ll have the opportunity not only to set
personal goals together, but also to get the
resources and support you need to live well
with psoriasis.
Contact information:
901.277.0343
National Psoriasis Foundation Bill of Rights
✥
✥
This Bill of Rights was created by the National Psoriasis Foundation, an organization dedicated to finding a cure for psoriasis and psoriatic arthritis. It is meant to inform you, empower you to seek the quality of life you deserve, and to help you get a conversation started with your healthcare professional in order to get the best treatment for you. Please read the NPF Bill of Rights below:
Discrimination. Many people with psoriasis report facing discrimination in public places such as swimming pools, hair salons, and gyms because others fear psoriasis is contagious. Fortunately, there are federal laws designed to protect you from discrimination. When it comes to challenging discrimination, you are your own best advocate.
Accessing health care. As with most chronic, autoimmune diseases, psoriasis and psoriatic arthritis require ongoing treatment. In order to best manage your condition, it is important to see a doctor regularly who specializes in treating psoriasis and/or psoriatic arthritis.
Navigating the health care system and applying for disability are not always easy, so we’ve compiled this list of resources to help you access the care you need to get—and stay—healthy with a chronic condition.
Applying for disability. Making the decision to apply for disability from the Social Security Administration (SSA) is not easy, and there are several factors to consider before you apply. It is often difficult to meet the SSA’s definition of “disabled,” and for many people, the process is time-consuming and can take months to complete.
The Psoriasis Foundation can help you present a successful case to the SSA by providing supporting documentation and information. It is important to involve your doctor in your case, and have him or her write a letter supporting your disability claim. Your doctor is best suited to discuss your specific medical history and how psoriasis and/or psoriatic arthritis have compromised your ability to work.
Bill of Rights and Responsibilities for People With Psoriasis and Psoriatic Arthritis
People with psoriasis and/or psoriatic arthritis have the right to receive medical care from a healthcare provider who understands that psoriasis and psoriatic arthritis are serious autoimmune diseases that require lifelong treatment.
People with psoriasis and/or psoriatic arthritis have the responsibility to be actively involved in managing their disease by participating in healthcare decisions, closely following treatment plans recommended by their healthcare providers, and making healthy lifestyle choices to ease their symptoms.
People with psoriasis and/or psoriatic arthritis have the right to a healthcare provider who is able to fully assess their disease and related conditions, is knowledgeable about the benefits and risks of all psoriasis treatments and medications, and readily coordinates psoriasis treatment plans with the individual’s other providers.
People with psoriasis and/or psoriatic arthritis have the responsibility to be honest with their healthcare provider about their health and lifestyle decisions that may affect the success of his or her treatment plan.
People with psoriasis have the right to expect clear or almost clear skin with effective treatment throughout their lifetime, and to seek another healthcare provider if his or her current provider is not comfortable with prescribing and monitoring the range of psoriasis treatments.
People with psoriasis and/or psoriatic arthritis have the responsibility to ask for support and encouragement from their loved ones, friends, healthcare providers, clergy and others with whom they feel comfortable discussing personal and health issues.
People with psoriasis and/or psoriatic arthritis have the right to be treated in a courteous and nondiscriminatory manner by their healthcare providers, employers and others.
PAP Journal
Cover
❂
My Journal
How to use these stickers:
NEW: Shows your new psoriasis patches.
WORSE: Shows your psoriasis patches that have gotten worse over time.
NO CHANGE: Shows your psoriasis patches that haven’t changed since you last recorded.
BETTER: Shows your psoriasis patches that have improved.
©2011 Abbott Laboratories Abbott Park, IL 60064 64Y-604210 May 2011 Printed in U.S.A.
Spread #1
DATE:
❂
My Journal
How to use these stickers:
NEW: Shows your new psoriasis patches.
WORSE: Shows your psoriasis patches that have gotten worse over time.
NO CHANGE: Shows your psoriasis patches that haven’t changed since you last recorded.
BETTER: Shows your psoriasis patches that have improved.
©2011 Abbott Laboratories Abbott Park, IL 60064 64Y-604210 May 2011 Printed in U.S.A.
Spread #2
Spread #3 Spread #4
Back cover (opposite side of last notes page)
❂
My Journal
How to use these stickers:
NEW: Shows your new psoriasis patches.
WORSE: Shows your psoriasis patches that have gotten worse over time.
NO CHANGE: Shows your psoriasis patches that haven’t changed since you last recorded.
BETTER: Shows your psoriasis patches that have improved.
©2011 Abbott Laboratories Abbott Park, IL 60064 64Y-604210 May 2011 Printed in U.S.A.
BACK
FRONT
Track your symptoms.
It’s a good idea to keep track of your psoriasis symptoms. This journal can help you see how your psoriasis symptoms on the front and back of your body change over time. You can also write notes daily or weekly about what’s going on in your life to see if there are certain triggers that make your condition worse. This journal can help you have a more productive conversation with your doctor, so bring it with you on your next visit.
Tracker instructions:
• Select stickers that best describe the condition of your plaque psoriasis on your body
• Place that sticker on the body chart to show where the plaque psoriasis patch is located
• Date the sheets so that you can continue to record how your condition progresses, either daily or weekly
• Bring this journal to your next doctor’s appointment so you can have a more informed conversation with your doctor
Example:
BACK
FRONT
DATE:
BACK
FRONT
DATE:
BACK
FRONT
DATE:
Spread #5 Spread #6
BACK
FRONT
DATE:
BACK
FRONT
DATE:
Spread #7 Spread #8
BACK
FRONT
DATE:
BACK
FRONT
DATE:
Spread #9 Spread #10
BACK
FRONT
DATE:
BACK
FRONT
DATE:
Spread #11 Spread #12
BACK
FRONT
DATE:
BACK
FRONT
DATE:
Spread #13
BACK
FRONT
DATE:
b
My Journal
How to use these stickers:
NEW: Shows your new plaque psoriasis patches.
WORSE: Shows your plaque psoriasis patches that have gotten worse over time.
NO CHANGE: Shows your plaque psoriasis patches that haven’t changed since you last recorded.
BETTER: Shows your plaque psoriasis patches that have improved.
©2011 Abbott Laboratories Abbott Park, IL 60064 64Y-604210 May 2011 Printed in U.S.A.
Patient Advocate Program
I'm here to help.
Let's get started.
b
b
©2011 Abbott Laboratories Abbott Park, IL 60064 XXX-XXXXXXX May 2011 Printed in U.S.A.
bTo help make things easier for you, I’ve included the following information:
• My business card, so it’s easy for you to get in touch with me by phone, in person, or by e-mail
• Living with Psoriasis, a brochure that gives you a better understanding of what psoriasis is, and includes strategies for working together with a dermatologist to find the right treatment plan for you
• A handy journal, so you can track your symptoms or note any changes you see over time
©2012 Abbott Laboratories Abbott Park, IL 60064 XXX-XXXXXX April 2012 Printed in U.S.A.
I’m so glad we have had a chance to connect. There’s no doubt that psoriasis can be frustrating. That’s why I’m here for you—as part of the Psoriasis Patient Advocate Program.
As a specially trained advocate, I will do what I can to help you live well with psoriasis. I have 10 years of experience working in health care and became an advocate to help psoriasis patients like you get the education and support they need. I can provide information and resources, suggest tips to help you have productive conversations with your dermatologist, and we can work together to set personal goals.
While I am your advocate, I am not a replacement for a medical professional or a dermatologist trained in treating psoriasis, and I cannot provide medical advice. What I can do is give you the opportunity to work one-to-one together and provide you with the resources and support you deserve to live well with psoriasis. I look forward to helping you. So let’s get started.
Sincerely,
Melissa Leigh
Meet Melissa Leigh
[I also speak (variable language/s)]
S:8”
S:10.5”
T:8.5”
T:11”
B:8.75”
B:11.25”
©2012 Abbott Laboratories Abbott Park, IL 60064 XXY-XXXXXX March 2012 Printed in U.S.A.
Meet Melissa Leigh
Your advocate is Melissa Leigh. She has
10 years of experience in the health care field
and joined the Psoriasis Patient Advocate
Program to help people like you learn more
about psoriasis through individualized
education and support.
Through one-to-one communication with
Melissa by phone, in person, or by e-mail,
you’ll have the opportunity not only to set
personal goals together, but also to get the
resources and support you need to live well
with psoriasis.
Contact information:
901.277.0343
National Psoriasis Foundation Bill of Rights
✥
✥
This Bill of Rights was created by the National Psoriasis Foundation, an organization dedicated to finding a cure for psoriasis and psoriatic arthritis. It is meant to inform you, empower you to seek the quality of life you deserve, and to help you get a conversation started with your healthcare professional in order to get the best treatment for you. Please read the NPF Bill of Rights below:
Discrimination. Many people with psoriasis report facing discrimination in public places such as swimming pools, hair salons, and gyms because others fear psoriasis is contagious. Fortunately, there are federal laws designed to protect you from discrimination. When it comes to challenging discrimination, you are your own best advocate.
Accessing health care. As with most chronic, autoimmune diseases, psoriasis and psoriatic arthritis require ongoing treatment. In order to best manage your condition, it is important to see a doctor regularly who specializes in treating psoriasis and/or psoriatic arthritis.
Navigating the health care system and applying for disability are not always easy, so we’ve compiled this list of resources to help you access the care you need to get—and stay—healthy with a chronic condition.
Applying for disability. Making the decision to apply for disability from the Social Security Administration (SSA) is not easy, and there are several factors to consider before you apply. It is often difficult to meet the SSA’s definition of “disabled,” and for many people, the process is time-consuming and can take months to complete.
The Psoriasis Foundation can help you present a successful case to the SSA by providing supporting documentation and information. It is important to involve your doctor in your case, and have him or her write a letter supporting your disability claim. Your doctor is best suited to discuss your specific medical history and how psoriasis and/or psoriatic arthritis have compromised your ability to work.
Bill of Rights and Responsibilities for People With Psoriasis and Psoriatic Arthritis
People with psoriasis and/or psoriatic arthritis have the right to receive medical care from a healthcare provider who understands that psoriasis and psoriatic arthritis are serious autoimmune diseases that require lifelong treatment.
People with psoriasis and/or psoriatic arthritis have the responsibility to be actively involved in managing their disease by participating in healthcare decisions, closely following treatment plans recommended by their healthcare providers, and making healthy lifestyle choices to ease their symptoms.
People with psoriasis and/or psoriatic arthritis have the right to a healthcare provider who is able to fully assess their disease and related conditions, is knowledgeable about the benefits and risks of all psoriasis treatments and medications, and readily coordinates psoriasis treatment plans with the individual’s other providers.
People with psoriasis and/or psoriatic arthritis have the responsibility to be honest with their healthcare provider about their health and lifestyle decisions that may affect the success of his or her treatment plan.
People with psoriasis have the right to expect clear or almost clear skin with effective treatment throughout their lifetime, and to seek another healthcare provider if his or her current provider is not comfortable with prescribing and monitoring the range of psoriasis treatments.
People with psoriasis and/or psoriatic arthritis have the responsibility to ask for support and encouragement from their loved ones, friends, healthcare providers, clergy and others with whom they feel comfortable discussing personal and health issues.
People with psoriasis and/or psoriatic arthritis have the right to be treated in a courteous and nondiscriminatory manner by their healthcare providers, employers and others.
©2012 Abbott Laboratories Abbott Park, IL 60064 XXX-XXXXXX April 2012 Printed in U.S.A.
PsoriasisSpeaks.com
Business Card Front—Melissa Leigh Business Card Back—Melissa Leigh
Psoriasis Patient Advocate Program
Melissa LeighPsoriasis Patient Advocate
VERSION 1—MELISSA EXAMPLE
