1
Palliative Care Nursing: Principles and Evidence for Practice. Edited by Sheila Payne, Jayne Seymour and Christine Ingleton. Open Uni- versity Press, 2004. 808pp. (paperback). £29.99, ISBN: 0-335-21243-3. The editors of and contributors to this book are very well known as leading researchers in palliative care nursing and the world of palliative care in general. It aspires to be a core text for palliative care courses and related health and social care courses that are set at post graduate and post registration level. Organised into four sections the first two focus on the illness experience, the third section on loss and bereavement and the final section addresses contemporary issues in nursing and palliative care. This weighty book is excellent as an introduction to key issues in palliative care. It offers the practitioner the opportunity to deepen their under- standing of how death and dying and bereavement are constructed and experienced in western society. As a guide to the seminal writing on approaches to understanding and articulating palliative care this text is a very useful resource. It deals eloquently with the big ideas and offers a theoretical framework that might underpin how palliative care is approached and patients, their families and carers are supported. This book is a very useful counterbalance to writing that focuses on the patient and their illness, to the exclusion of any discussion on the context, setting, experience and social construction of the dying experience. Jessica Corner’s chapter for example, on Working with Difficult Symptoms offers a challen- ging critique of why and how symptom management dominates thinking and writing in palliative care. Her conclusions offer a useful starting point for nurses and their colleagues who work with patients who are seen as having difficult symptoms. Another strength of the book is that threaded through all four sections of the book there is an emphasis on the needs of carers and families for care and support. Merryn Gott engages with the rhetoric of user involvement and raises some fascinating questions about how practitioners in palliative care can and should engage with these issues. As a resource for nurses who want information and an evidence base (or how to find it) for their everyday practice this book is less useful. There are chapters on assessment and on pain that provides an overview of theories, evaluation and management but other chapters on providing care focus on the principles and not the detail. Consequently, there is a minimal discussion of the different cancers and long-term conditions that often precipitate the need for palliative care. There is a disappointing lack of discussion on providing culturally sensitive palliative care within an ethnically diverse society and the chapter on ethical issues at the end of life provides a brief overview but does not discuss the implications of recent and proposed changes in legislation around end of life decision making and mental incapacity for palliative care. Issues that practitioners have to engage with and discuss with patients and their families. Similarly, although the impact of an ageing population and the needs of older people who are dying are identified it is a missed opportunity that the palliative care needs of the oldest old are not more extensively discussed. For the nurse who wants to understand the context of health care and how health policy has shaped service provision and the relationship nursing has with medicine there is little discussion. One could almost assume from this book that the wider health service and doctors have very little to do with palliative care provision. It is also interest- ing that there is a chapter on palliative care in institutions but not an equivalent one on palliative care in primary care. These criticisms however only reflect how very difficult it is to encompass the subject of palliative care within one text. Overall this book represents a significant contribution as a textbook on palliative care and is to be recommended for practitioners engaged in further and specialist education. The question remains for how much longer there will be texts for nurses and texts for doctors and therapists? So much of the material in this book is of relevance to all and the title may actually militate against it achieving the breadth of read- ership it deserves. Claire Goodman Director, Primary Care Nursing Research Unit UCL/KCL, Department of Primary Care and Population Sciences, UCL Archway Campus, London N19 5LW, UK DOI: 10.1002/pon.884 BOOK REVIEWS 81 Copyright # 2005 John Wiley & Sons, Ltd. Psycho-Oncology 14: 79–82 (2005)

Palliative care nursing: Principles and evidence for practice. Edited by Sheila Payne, Jayne Seymour and Christine Ingleton. Open University Press, 2004. 808pp. (paperback). £29.99,

Embed Size (px)

Citation preview

Page 1: Palliative care nursing: Principles and evidence for practice. Edited by Sheila Payne, Jayne Seymour and Christine Ingleton. Open University Press, 2004. 808pp. (paperback). £29.99,

Palliative Care Nursing: Principles and Evidencefor Practice. Edited by Sheila Payne, JayneSeymour and Christine Ingleton. Open Uni-versity Press, 2004. 808pp. (paperback). £29.99,ISBN: 0-335-21243-3.

The editors of and contributors to this book arevery well known as leading researchers in palliativecare nursing and the world of palliative care ingeneral. It aspires to be a core text for palliative carecourses and related health and social care coursesthat are set at post graduate and post registrationlevel. Organised into four sections the first twofocus on the illness experience, the third section onloss and bereavement and the final section addressescontemporary issues in nursing and palliative care.

This weighty book is excellent as an introductionto key issues in palliative care. It offers thepractitioner the opportunity to deepen their under-standing of how death and dying and bereavementare constructed and experienced in western society.As a guide to the seminal writing on approaches tounderstanding and articulating palliative care this textis a very useful resource. It deals eloquently with thebig ideas and offers a theoretical framework thatmight underpin how palliative care is approached andpatients, their families and carers are supported. Thisbook is a very useful counterbalance to writing thatfocuses on the patient and their illness, to theexclusion of any discussion on the context, setting,experience and social construction of the dyingexperience. Jessica Corner’s chapter for example, onWorking with Difficult Symptoms offers a challen-ging critique of why and how symptom managementdominates thinking and writing in palliative care. Herconclusions offer a useful starting point for nursesand their colleagues who work with patients who areseen as having difficult symptoms. Another strengthof the book is that threaded through all four sectionsof the book there is an emphasis on the needs ofcarers and families for care and support. MerrynGott engages with the rhetoric of user involvementand raises some fascinating questions about howpractitioners in palliative care can and should engagewith these issues.

As a resource for nurses who want information andan evidence base (or how to find it) for their everydaypractice this book is less useful. There are chapters on

assessment and on pain that provides an overview oftheories, evaluation and management but otherchapters on providing care focus on the principlesand not the detail. Consequently, there is a minimaldiscussion of the different cancers and long-termconditions that often precipitate the need for palliativecare. There is a disappointing lack of discussion onproviding culturally sensitive palliative care within anethnically diverse society and the chapter on ethicalissues at the end of life provides a brief overview butdoes not discuss the implications of recent andproposed changes in legislation around end of lifedecision making and mental incapacity for palliativecare. Issues that practitioners have to engage with anddiscuss with patients and their families. Similarly,although the impact of an ageing population and theneeds of older people who are dying are identified it isa missed opportunity that the palliative care needs ofthe oldest old are not more extensively discussed.

For the nurse who wants to understand thecontext of health care and how health policy hasshaped service provision and the relationshipnursing has with medicine there is little discussion.One could almost assume from this book that thewider health service and doctors have very little todo with palliative care provision. It is also interest-ing that there is a chapter on palliative care ininstitutions but not an equivalent one on palliativecare in primary care. These criticisms however onlyreflect how very difficult it is to encompass thesubject of palliative care within one text.

Overall this book represents a significantcontribution as a textbook on palliative careand is to be recommended for practitionersengaged in further and specialist education. Thequestion remains for how much longer there willbe texts for nurses and texts for doctors andtherapists? So much of the material in this book isof relevance to all and the title may actuallymilitate against it achieving the breadth of read-ership it deserves.

Claire GoodmanDirector,

Primary Care Nursing Research Unit UCL/KCL,Department of Primary Care and Population Sciences,UCL Archway Campus, London N19 5LW, UK

DOI: 10.1002/pon.884

BOOK REVIEWS 81

Copyright # 2005 John Wiley & Sons, Ltd. Psycho-Oncology 14: 79–82 (2005)