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The Evidence Program overview Local Initiatives
Living with Stroke: The Evidence Research tells us:
• Post d/c time is difficult• Psychosocial support improves outcomes
↑QOL ↓Caregiver stress ↓Re-admit rates ↓Depression
CBPR:6.2 Patient and Family Education
Living with Stroke: CBPR 6.2 Patient and Family Education should include:
• Information sharing• Timed Right• Caregiver training• Promote self efficacy • Self management skills
Action planning Problem solving Modeling behaviours Group support and guidance
» Evidence Level B
Living with Stroke: CBPR 6.2
Self Management training should include:• Medications
• Exercise
• Symptom management
• Risk factor management
• Secondary prevention
Evidence Level B
• Emotions
• Cognitive and memory changes
• Communication with health professionals
• Health related problem solving
Living with Stroke: Development
Revised in 2006 9 pilots: February, March, April, 2007 6 in Ontario, 2 in Saskatchewan, 1 in Alberta Urban, rural, north, marginalized population Evaluations conducted on content and
facilitator/participant experience
Living with Stroke: Program
FREE community based education program for people with stroke and their caregivers
Six two hour sessions Total 12 hours – 6 weeks Community based
Living with Stroke: Facilitators
Facilitators: health care providers, use of peer facilitators supported
Remove the “clinical hat” – not the expert Trained by HSFO (FREE) Full Day training -program and group
facilitation
Living with Stroke: Facilitators Ability to engage participants in discussion and
skills in dealing with group dynamics Comfort in teaching using a discussion format
rather than didactic teaching methods Facilitation experience and ability to manage
participant expectations Knowledge of stroke across the continuum of care Community orientation rather than acute care
focus Knowledge and awareness of local community
resources Client-focused approach to care
Living with Stroke: Facilitators
Ongoing support for facilitators
• Newsletter• Training
opportunities (eg. Recruitment)
Living with Stroke: Participants
People with stroke and their family member/caregivers.
Living in the community. Completed active rehabilitation. Readiness for the program.
Living with Stroke: Objectives To provide participants with introductory
information, tools, and support to:
• Understand their condition• Improve quality of life • Reduce the risk of another stroke• Participate in recovery• Find the help needed to adjust to life after
stroke• Practice problem solving and goal setting
Living with Stroke: Topics
Impact of stroke on your life Physical changes and activity Importance of nutrition to your recovery Communication and mental function issues Emotions after stroke Maintaining activities and relationships Reducing your risk of stroke Using your knowledge to continue with your
recovery and your life.
Living with Stroke: Format Interactive workshop Discussion Videos -Survivor and Professional Activities to help participants learn about
dealing with stroke Weekly goal setting Peer support & modeling Facilitator and Participant manuals
Living with Stroke: Feedback
Participants generally rated the program very highly.
Three main reasons for participating • wanting to learn more about living with stroke• learn more about managing and coping• learn about how to prevent another stroke.
Living with Stroke: Feedback
Realized that they were not alone Value in learning from others experiences and
understanding that progress would be slow but there is hope of recovery and improved function
Caregivers learned what the major stroke issues were and the need for patience during recovery as well as how to search out support.
Living with Stroke: Local Initiatives
For example – fill in news about your regionOshawa program beginning April 30th
Recruiting facilitators May 2012 training session in Newmarket
Living with Stroke: Local Initiatives
Discussion
In your current role, how can you support the Living with Stroke™ program in your Community
QUESTIONS?
THANK YOU