PowerPoint Presentation

Oncology Patient Education Journal

~ Your Guide To Your Care ~

This presentation will guide you through each section of your patient education binder.

Be sure to have your binder in front of you as we talk about each section, this will help you easily locate information later. Every time you hear a chime during the presentation look to the screen to see what page to see what page to turn to. 1Open Your Binder

In Your Binder You Will Find: Additional Educational Material In The Inside Cover Pocket of the Binder Business Cards With Contact Information for: The Infusion CenterOncology Social WorkerOncology Nurse CoordinatorNurse NavigatorNurse PractitionerFinancial Counselor

Table of Contents

Open Your Binder and you should find some additional educational material in the front cover pocket of the binder.

This information was put there by your nurse to customize your binder to your learning needs, it will be reviewed with you by your nurse after the presentation.

You will also find contact information for the Infusion Center, Oncology Social Worker, Oncology Nurse Coordinator, Nurse Navigator, Nurse Practitioner and Financial Counselor and a Table of Contents.

We will follow the Table of Contents to review the remainder of the binder. 3Turn To:

Page 5 Section One: How We Care For YouThis Section describes the roles of different healthcare professionals you may encounter during your treatment.

This section of the binder describes the roles of different healthcare professionals you may encounter during your treatment.

Please review these at your convenience.

We will discuss when and who to call as outlined on page 10 of the binder at a later time. 5Turn To:

Page 10 Section One: How We Care For You DepartmentPhone NumberMedical Oncology (Cancer Treatment)231.487.3390Oncology Triage Nurse231.487.3390 then press 2Medication Refill Line231.487.3390 then press 5 Radiation Oncology (Radiation Therapy)231.487.4209McLaren Northern Michigan Switchboard231.487.4000Nights / Weekends / HolidaysPhone NumberDoctor On Call231.487.4555

This is a list of important numbers that you will want to have available at all times. Medical Oncology (Cancer Treatment) 231.487.3390

Oncology Triage Nurse.. 231.487.3390 then press 2.

Medication Refill Line .231.487.3390 then press 5.

Radiation Oncology (Radiation Therapy) 231.487.4209

McLaren Northern Michigan Hospital 231.487.4000

NIGHTS, WEEKENDS AND HOLIDAYS (for the doctor on call) 231.487.55557Turn To:

Page 13 Section Two: Preparing For Each VisitPlease bring:This binder with you to each visit. Your medication bottles with you for review. Tell your doctor if you need any refills at your visit.A medication log is providedTell your doctor about any changes since your last visit. A symptom log is provided in your journalA pain log is provided in jour journalAll prescriptions for tests/proceduresAny forms that need to be filled outTell the office staff of any changes in address or insurance

It is recommended that you bring this binder with you to each visit, but it is not required.

The doctor would like you to bring your medication bottles with you for review. Let your doctor know if you need any refills at your visit.

For your records, a medication log is provided

Tell you doctor about any changes since your last visit. (A symptom log and a pain log are provided in your journal).

Bring all prescriptions for tests/procedures.

Bring any forms that need to be filled out.

Tell the office staff of any changes in address or insurance.

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Page 14 Section Two: Preparing For Each VisitManaging Your Medications:

Take Medications as Prescribed

Talk With Your Provider and Nurse

Medication Safety

Read Labels

Take Medications as PrescribedDo not stop taking medications unless your provider instructs you to. If you miss a dose of medicine, do not take two doses at the next scheduled time unless directed by your provider.Medications to be taken every eight hours may be taken at 6 am, 2 pm, and 10 pm. Medications to be taken every 12 hours may be taken at 10am and 10 pm. Talk with your provider, nurse, or pharmacist for help in setting up a medication schedule that meets your needs.

Talk with your Provider and NurseLet us know before you start taking any new medications, even those that do not require a prescription. This includes all vitamins, supplements, herbs, over the counter medications, cold medicines, and home remedies.If you are running low or need a refill on your medication, try to give at least 48 hours notice.If you cannot afford or do not have access to medications, tell your provider or nurse.

Medication SafetyKeep all medications away from children and animals.Keep medications in original containers. Do not combine pills into one container. Many pills look alike or their names sound alike, but the drugs are different.Ask your pharmacist for bottles that open easily.Before cutting pills, check with your provider, nurse, or pharmacist. Inexpensive pill cutters are available at most pharmacies.

Read LabelsDo not take more than the recommended maximum daily dose (4000 mg) of Tylenol (Acetaminophen), in a 24-hour period.Tylenol (Acetaminophen) is an ingredient in many cold and pain medicines.If you are taking or think you are taking a combination of medications with Tylenol (Acetaminophen) in them, talk with your health care team.11Turn To:

Page 15

Section Two: Allergy Log

This allergy log, located in your binder is for your record.

Use it to keep track of any allergies that you have or new ones you may develop throughout your treatment. 13Turn To:

Page 16 Section Two: Medication Log

Use the medication log in your binder to list all of your medications including prescriptions and over-the-counter medications (Tylenol, vitamins, supplements, aspirin, herbs and home remedies).

Update the list as your prescriptions and medications change. 15Turn To:

Page 18-19 Section Two: Symptom Log

There are two different types of symptom logs available in your binder.

Choose the one you like best and use it to track your symptoms throughout treatment. 17Turn To:

Page 23 Section Two: Pain Log

A pain log can be found in your binder.

Use this log to track the location and types of pain or discomfort, severity, actions taken, and your response. 19Turn To:

Page 25 Section Two: Questions for the Provider or Nurse

Use the question sheet found on page 25 of your binder to record any questions or concerns you may want to address with the doctor or nurse.

Be sure to bring this with you to your next appointment. 21Turn To:

Page 29 Section Three: Treatment Calendar

You can use the treatment calendar found in your binder to keep track of your appointments and other important dates. 23Turn To:

Page 35 Section Three: Laboratory Test

You can use the laboratory test sheet found in your binder to track your laboratory tests.

You can either ask to have it filled in by the MA at your doctors appointment, the nurse in the infusion room or simply request a copy of the lab results for each day you have them drawn. 25Turn To:

Page 38 Section Three: Chemotherapy and You

For a PDF version of this book CLICK HERE

For a Kindle or E-Reader Version of this book CLICK HERE

This book is an excellent resource for managing side effects.

Please open the book and turn to the table of contents. 27Section Three: Chemotherapy and You

As you can see, side effects are listed here.

If you are having any of these side effects you can turn to the page listed and review the dos and donts.

If you are unable to manage side effects with the suggestions in this book and the prescriptions given to you by the doctor you can call the triage nurse.

We will talk more about when and who to call later. 28Turn To:

Page 43 Section Four: Smoking CessationIf you smoke, it is a good idea to quit. If you quit, youll live longer and stay healthier - and so will your family. When you quit you will start showing signs of physical recovery right away. Ask your doctor about help to quit smoking.

If you smoke, it is a good idea to quit.

If you quit, youll live longer and stay healthier-and so will your family.

When you quit smoking you will start showing signs of physical recovery right away.

See the effects of quitting smoking over time on page three of the set yourself free book provided.

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Page 46 Section Four: NutritionEvery patient should meet with the dieticianUpon starting treatment if desired With any significant change in appetite, ability to eat or weight.If you do not already have an appointment scheduled with the dietician please let your doctor or nurse know so he or she can contact the dietician on your behalf.

The Oncology Department has their own dietician.

Every patient should have a meeting with the dietician upon starting treatment if desiredwith any significant change in appetite, ability to eat or weight.If you do not already have an appointment scheduled with the dietician, please let your doctor or nurse know so he or she can contact the dietician on your behalf.

32Section Four: Eating Hints For a PDF version of this book CLICK HERE

For a Kindle or E-Reader Version of this book CLICK HERE

This book is an excellent resource for managing side effects.

Please open the book and turn to the table of contents. 33Turn To:

Page 47 Section Four: Caregiving

Here you will find information on caregiving. We recognize that being a caregiver for a patient who is being treated for cancer can be very difficult. For this reason we welcome caregivers to meet with our Oncology Social worker. Our social worker is willing to meet with caregivers as needed with our without the patient being treated. The social worker may also help by referring caregivers to appropriate support groups. 35Turn To:

Page 49-50 Section Four: Designation of Patient Advocate FormThis is an important legal document that will help you to assign an advocate, should you become unable to make decisions for yourself. This form will help you to give specific instructions about what types of measures you are comfortable with. This may include life-sustaining treatment such as mechanical ventilation or organ donation. Read this form carefully and entirely before making any designations. If you have any questions about this form please contact your doctor or attorney.

Designation of Patient Advocate Form:

This is an important legal document that will help you to assign an advocate, should you become unable to make decisions for yourself. This form will help you to give specific instructions about what types of measures you are comfortable with. This may include life-sustaining treatment such as mechanical ventilation or organ donation. Read this form carefully and entirely before making any designations. If you have any questions about this form please contact your doctor or attorney.

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Page 53 Section Five: Community ResourcesSupport Groups and Contacts

Community Resources and Transportation

In your folder you will find many Names and Numbers of Community, Regional and National Support groups and contacts.

Please take a moment to look these over.

If you would like more information about support groups, financial assistance, transportation assistance, or prosthetics, please contact the Oncology Social Worker whose phone number is in the front of your binder. 39Chemotherapy VideoPlease watch this video on your computer. http://www.nlm.nih.gov/medlineplus/tutorials/chemotherapyintroduction/htm/video.htm

Your Chemo RegimenYour nurse and/or doctor will review the specific chemotherapy drugs and any unique side-effects that you should be aware of. They will also give you printed material on each of the drugs that you will be receiving.

for choosing us for your care.

Thank you