NIH Activities Related to Big Data

Jerry SheehanAssistant Director for Policy DevelopmentNational Library of Medicine

Board on Research Data and Information - National AcademiesWashington, DC23 September 2013

Context: Data and Informatics Working Group Report – June 2012

Biomedical research generating large volumes of data

Diverse data types (e.g., omics, imaging, phenotype, clinical)

Bottleneck is analysis to generate knowledge from data

acd.od.nih.gov/diwg.htm 23 SEP 2013BRDI 2

Scientific Data Council(SDC)

Big Data to Knowledge

(BD2K)

Associate Directorfor Data Science

(ADDS)

Elements of NIH Approach to Big Data

23 SEP 2013BRDI 3

 1. Facilitating Broad Use of Biomedical

Big Data

2. Developing and Disseminating Analysis Methods and Software for Biomedical Big Data

3. Enhancing Training for Biomedical Big Data

4. Establishing Centers of Excellence for Biomedical Big Data

BD2K: Programmatic Areas

23 SEP 2013BRDI 4

BD2K: Funding Plan  Initial 7-year funding plan: FY2014 – FY2020 Ramps to > $100M by FY2017 Funding model:

Early front-loading contributions by Common Fund

Increasing Institutes/Centers’ contributions

Complete budgetary ‘adoption’ by Institutes/Centers by FY2020 to ensure sustainability

FY13 – seed funding for information gathering

23 SEP 2013BRDI 5

 Broad Use of Big Data:Data Catalog - Aug 21-22 Enabling Research Use of Clinical Data - Sept 11-12 Frameworks for Data Standards - Sept 25-26

Software:Software Catalog – Feb 2014 Underserved Areas – Date TBD Platforms for Data Analysis – Date TBD

Training:Big Data and Training – July 13-14

Centers:Data Integration - Spring 2014

Workshops

23 SEP 2013BRDI 6

Requests for Information (RFIs)

23 SEP 2013BRDI 7

Funding Opportunity Announcement Investigator-Initiated Centers of Excellence

23 SEP 2013BRDI 8

For More Information: BD2K Websitehttp://bd2k.nih.gov

23 SEP 2013BRDI 9

But there’s more. . . NIH Genomic Data Sharing Policy

Promotes sharing, for research purposes, of large-scale human and nonhuman genomic data

Draft published on 20 September 2013 for public comment

Federal Register Notice http://www.federalregister.gov/a/2013-22941. 

Pdf version available at: https://s3.amazonaws.com/public-inspection.federalregister.gov/2013-22941.pdf.

Comments due by November 20. More information at http://gds.nih.gov/

23 SEP 2013BRDI 10