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8/14/2019 Nico Brochure English
http://slidepdf.com/reader/full/nico-brochure-english 1/5
FACTS ABOUT ME !FACTS ABOUT ME1 I was born in Medellin, Colombia on the 10th of
February 1998.
1 I was Diagnosed with Angelman Syndrome on
May 2003.
1 I was a Blessing for my parents Luisa Otero
and Oscar Betancourt.
1 I live in St Louis Missouri, US with my mother
Luisa , my stepfather Mike and Paul an Andrew
my stepbrothers.
1 I have great and very cool cousins , Isa, Gaby,
July, Dany , Jaime Andres , Andrea and
Andres Felipe.
1 I Have a lot of sensory needs, put rubber
things in my mouth, chewing , massages and
some pressure in my head or ears generallymake me calmer.
1 I attend Ackerman Special School in St Louis.
1 I have Speech therapy and Ocupational
therapy at school.
1 I go twice a week to my Biofeedback Sensory
integration sessions.
1 I Can walk very fast , I like to walk and run
around the house with my stepbrothers, we doa lot of laps in a few seconds, they barely can
reach me.
1 I love to jump on the trampoline, but beds are
great too!
1 My favorite food is Pasta, Tortellinis and
Noodles are the best!
1 My favorite snacks are Graham crackers,
Golden Cereal, and Pita chips, sometimes I
choose to eat only crunchy food.
1 I am a Water drinker, after that I like to
drink shakes and hot chocolate.
I was born in Medellin, Colombia on the 10th of
February 1998.
I was Diagnosed with Angelman Syndrome on
May 2003.
I was a Blessing for my parents Luisa Otero
and Oscar Betancourt.
I live in St Louis Missouri, US with my mother
Luisa , my stepfather Mike and Paul an Andrew
my stepbrothers.
I have great and very cool cousins , Isa, Gaby,
July, Dany , Jaime Andres , Andrea and
Andres Felipe.
I Have a lot of sensory needs, put rubber
things in my mouth, chewing , massages and
some pressure in my head or ears generallymake me calmer.
I attend Ackerman Special School in St Louis.
I have Speech therapy and Ocupational
therapy at school.
I go twice a week to my Biofeedback Sensory
integration sessions.
I Can walk very fast , I like to walk and run
around the house with my stepbrothers, we doa lot of laps in a few seconds, they barely can
reach me.
I love to jump on the trampoline, but beds are
great too!
My favorite food is Pasta, Tortellinis and
Noodles are the best!
My favorite snacks are Graham crackers,
Golden Cereal, and Pita chips, sometimes I
choose to eat only crunchy food.
I am a Water drinker, after that I like to
drink shakes and hot chocolate.
1
1
1
1
1
1
1
1
1
1
1
1
1 © Design Christos [email protected]
HI
I’m
HI
I ’m
NICOICO
I have
Angelman Syndrome
Thanks for taking the time
to learn more about me
May 2009
You can contact my Mom Luisa
by email on [email protected]
or by phone 314 524 6789 Home or
314 327 9678 Cell
You can contact my Mom Luisa
by email on [email protected]
or by phone 314 524 6789 Home or
314 327 9678 Cell
8/14/2019 Nico Brochure English
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Angelman
syndrome is rare
non-degenerative
neurological
disorder. I have a
deletion in my
chromosome 15that affects
parts of my brain
particularly
associated with
language and movement. You can find more
detailed information on the Angelman Syndrome
Foundation website www.angelman.org or
www.angelmanforum.org The form of Angelman
Syndrome I have, is nonhereditary from my
family.
Angelman
syndrome is rare
non-degenerative
neurological
disorder. I have a
deletion in my
chromosome 15that affects
parts of my brain
particularly
associated with
language and movement. You can find more
detailed information on the Angelman Syndrome
Foundation website www.angelman.org or
www.angelmanforum.org The form of Angelman
Syndrome I have, is nonhereditary from my
family.
I am still a boy who enjoys the same things as
most other boys.
These are things in particular that I like:
0 Smiles , Words and Hugs from you0 Walking, running and climbing
0 bubble baths, Pools
0 Being outdoors
0 Being on a trampoline
0 Watching videos, Barney, Ernie and theGiggles, are still my favorites
0 Listening music and Dancing. From Classical to
Colombian, music is great!
0 Playing with sand
0 Soft play areas
0 Sliding down chutes
0 Eating & drinking
0 Getting massages
I am still a boy who enjoys the same things as
most other boys.
These are things in particular that I like:
Smiles , Words and Hugs from youWalking, running and climbing
bubble baths, Pools
Being outdoors
Being on a trampoline
Watching videos, Barney, Ernie and theGiggles, are still my favorites
Listening music and Dancing. From Classical to
Colombian, music is great!
Playing with sand
Soft play areas
Sliding down chutes
Eating & drinking
Getting massages
000
0
0
0
0
0
0
0
0
0There are many characteristics of Angelman
Syndrome
Some of the common ones that I share are:
1 Happy, smiling demeanor; easily excitable
personality
1 Developmental Delay (but no loss of skills)
1 Speech Impairment (non-verbal)
1 Movement or balance disorder usually
ataxia of gait
1 Hyperactivity, short attention span
1 Excessive chewing/mouthing behaviour
1 Seizures, abnormal EEG
1 Sleeping Disorder
1Obsession with water
There are many characteristics of Angelman
Syndrome
Some of the common ones that I share are:
Happy, smiling demeanor; easily excitable
personality
Developmental Delay (but no loss of skills)
Speech Impairment (non-verbal)
Movement or balance disorder usually
ataxia of gait
Excessive chewing/mouthing behaviour
1111
1111
1 Hyperactivity, short attention span
Seizures, abnormal EEG
Sleeping Disorder
Obsession with water
0
Walking, Running, Climbing0 Greeting people
0 Smiling
0 Making people laugh
0 Giving kisses
0 Finding water to play in
0 Emptying things
0
Tearing paper
0Walking, Running, Climbing
0 Greeting people
0 Smiling
0 Making people laugh
0 Giving kisses
0 Finding water to play in
0 Emptying things
0Tearing paper
WHAT MY FAMILY & FRIENDS SAYH A T M Y F A M I L Y & F RI E N D S S A YWHAT IS ANGELMAN SYNDROME ?HAT IS ANGELMAN SYNDROME ? REMEMBEREMEMBER
ABOUT ANGELMAN SYNDROME ?BOUT ANGELMAN SYNDROME ?
THINGS I AM GOOD AT HINGS I AM GOOD AT
NICO will always
have a great
unconditional smile,
he offers me his
hugs and his unique
energy; the sound ofhis laughter brings
joy to any place and
makes us feel united
around a special and
delicate star.
Uncle Quique
“NICO.... is an angel that heaven gave us, his
family, so that when we look at him in theeyes we can remember the kindness and
sweetness of God's own look.”
Aunt Cecilia
“When I want to feel the beauty of God
beyond what surrounds me, all I need to do is
to bring his eyes
and his smile to
memory.” Nico's
Dad
“Nico is love
personified...he
is the most
beautiful angel on the planet. Every day I
thank the supreme God for having me allowed
the gift of spending time of his existence by
his side, and for sharing with him his energy,
filled with love and sweetness. “
Grandmother Elsa
NICO will always
have a great
unconditional smile,
he offers me his
hugs and his unique
energy; the sound ofhis laughter brings
joy to any place and
makes us feel united
around a special and
delicate star.
Uncle Quique
NICO.... is an angel that heaven gave us, his
family, so that when we look at him in theeyes we can remember the kindness and
sweetness of God's own look.”
Aunt Cecilia
“When I want to feel the beauty of God
beyond what surrounds me, all I need to do is
to bring his eyes
and his smile to
memory.” Nico's
Dad
“Nico is love
personified...he
is the most
beautiful angel on the planet. Every day I
thank the supreme God for having me allowed
the gift of spending time of his existence by
his side, and for sharing with him his energy,
filled with love and sweetness. “
Grandmother Elsa
“
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! Excessive chewing/mouthing behavior
! Seizures Disorder. abnormal EEG
! Sleeping Disorder
! Water Obsession
ABOUT ME
0 I was born in Medellin, Colombia on the 10th of February 1998.
0 I was Diagnosed with Angelman Syndrome on May 2003.
0 I was a Blessing for my parents Luisa Otero and Oscar Betancourt.
0 I live in St Louis Missouri, US with my mother Luisa , my stepfather Mike and Paul anAndrew my stepbrothers.
0 I have great and very cool cousins , Isa, Gaby, July, Dany , Jaime Andres , Andrea andAndres Felipe.
0 I Have a lot of sensory needs, put rubber things in my mouth, chewing , massages andsome pressure in my head or ears generally make me calmer.
0 I attend Ackerman Special School in St Louis.
0 I have Speech therapy and Ocupational therapy at school.
0 I go twice a week to my Biofeedback Sensory integration sessions.
0 I Can walk very fast , I like to walk and run around the house with my stepbrothers, we
do a lot of laps in a few seconds, they barely can reach me.
0 I love to jump on the trampoline, but beds are great too!
0 My favorite food is Pasta, Tortellinis and Noodles are the best!
0 My favorite snacks are Graham crackers, Golden Cereal, and Pita chips, sometimes Ichoose to eat only crunchy food.
0 I am a Water drinker, after that I like to drink shakes and hot chocolate.
REMEMBER
................................
! Smiles , Words and Hugs from you
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