NDAU Database

Yevgeniy (Eugene) Statnikov

NDAU Data Manager

Data Capture

Neonatal.Net

THANK YOU!

Receive Data: NHS

Server at NDAU

Review Data: NDAU

Transfer to NDAU:NHS Connection

Extraction: Clevermed

Storage: Clevermed

Server

Overview

Data Capture on Neonatal Unit: Neonatal.Net

Reporting: NDAU/NNAP

Create Database:

NDAU Database

Data Capture

Neonatal.Net

Static items – recorded once (1st admission)• Name, NHS number, gestational age, birthweight

Episodic items – recorded at each episode of care• Admission and discharge time, infection, diagnoses

Daily items – recorded at each day of care• Enteral feeding today, respiratory care today

Storage

Securely uploaded and held on NHS Server (Clevermed, Ltd)

Data are truly ‘raw’

NHS Server

Extraction

Information for neonatal units with

Caldicott Guardian permission only

All patient identifiers removed• No names or addresses given• NHS numbers encrypted• All dates (including date of birth) converted into

minutes

Clevermed

Transfer

Data encrypted

Transferred via NHS connection

Data received and held on NHS server at NDAU

NHS Connection

Review Data

Examine the data

Completeness• Gestational age for all babies• Infection form: Sample recorded as taken but

no pathogen results recorded thereafter

Dataset

Incomplete data entryNNAP AUDIT

Create NDAU Database

Assign numeric equivalents to frequently occurring free text items • Enteral feeding: (Formula name) → ‘Formula’

Assign numeric equivalents to string items • Gender: ‘Female’ → ‘0’ / ‘Male’ → ’1’

Remove duplicate items• If Admission Time of Episode 2 is before Discharge Time of

Episode 1 then all days of care in Episode 1 will be duplicated in Episode 2

NDAU Database

Inaccurate time entry

Create NDAU Database

Neonatal.Net

Static items – recorded once (1st admission)• Name, NHS number, gestational age, birthweight

Episodic items – recorded at each episode of care• Admission and discharge time, infection, diagnoses

Daily items – recorded at each day of care• Enteral feeding today, respiratory care today

Create NDAU Database

Link static data items to episodic and daily items to create a dataset

Derive variables• ROP data for NNAP Episodic available in the following

Neonatal.Net forms : Daily-details form, Ad-hoc ROP form, Discharge summary, Clinical summary of stay

• Infection data for NNAP Episodic available in the following Neonatal.Net forms: Daily-details form, Ad-hoc Infection form, Discharge summary, Clinical summary of stay

Data entered in multiple locationsNNAP AUDIT ITEMS

Deriving data items: ROP

Ad hoc ROP form

Daily details

Clinical summary of stay

Discharge diagnosis, Principal diagnosis

NNAP

Deriving ROP

Ad hoc ROP form

Daily details

Reporting: Index of Multiple Deprivation

Reporting: Breast Feeding by Network of Booking

Summary

Thank you for data submission

Help improve neonatal care and baby outcomes through audit

Audit requires high quality data• Completeness• Accuracy

Raw data• Daily clinical records

Acknowledgements

All neonatal units contributing to the NDAU

NDAU Team

NDAU Steering BoardJane Abbott (BLISS) Jacquie Kemp

Prof. Peter Brocklehurst Prof. Azeem Majeed

Prof. Kate Costeloe Prof. Neena Modi

Prof. Liz Draper Prof. Andrew Wilkinson

Imperial College London Academic Neonatal Medicine Unit

Reporting: Completeness of BAPM Data Items

AdmitUnitCode (BAPM-Item 1 Name of Hospital) DeprivationScore (Derived from BAPM-Item 3 Postcode of mother’s residence at time of birth) IntendedPlaceofDelivery (BAPM-Item 4:Planned place of delivery at booking) PlaceofBirth (BAPM – Item 5 Place of Birth) AnonPatientId (Derived from BAPM-Item 6 Baby’s NHS Number) AdmitFromUnitCode (BAPM – Item 9: Source of admission to unit) AdmissionMonth/AdmissionTime (BAPM – Item’s 10 and 11 Date and Time of Admission) Birthweight (BAPM Item 12) GAWeeks (BAPM Item 13: best estimate of gestational age at delivery) Gender (BAPM Item 14) MultipleTotal ( BAPM Item 15: Number of fetuses) MultipleIndicator (BAPM Item 16: Birth Order) SteroidsGiven (BAPM Item 17: Antenatal steroids) DischargeTime (BAPM Item 18) DischargeStatus (BAPM Item 20: Discharge or Transfer destination) ChestDrain/Tracheostomy (BAPM Item 27: Air leak requiring drainage) ROPSurgery (BAPM Item 29: Therapy for retinopathy of prematurity) VPShunt (BAPM Item 32: Surgical procedures as a result of post haemorrhagic hydrocephalus) PDASurgery (BAPM Item 33: Surgery for PDA) NECSurgery (BAPM Item 34: Surgery for NEC) RespiratorySupport (BAPM Item 35: Days when an endotracheal tube is in situ/ Item 36: Days on CPAP) CareLevel (BAPM Item 38: Number of IC days/Item 39: Number of HDC days/Item 40: Number of special care

days)

Data entered in multiple locations: NEC

Suspected NEC form

Daily details

Clinical summary of stay

Discharge diagnosis, Principal diagnosis