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National Voices Annual Conference 2017 9am – 6pm, 25 January 2017 Holiday Inn, Regent’s Park, London W1W 5EE 9.45 – 10am Welcome address Jeremy Taylor, Chief Executive, National Voices

10 – 10.30am Convincing the system to innovate: a case study Chris Dabbs, Chief Executive, Unlimited Potential

10.30 – 11.30am Living a life in the community

Andrea Sutcliffe, Chief Inspector of Adult Social Care, Care Quality Commission, joined by David Pearson, Dr Sam Everington and Dr Arvind Madan for a panel discussion

11.30am – 12pm Break and refreshments

12 – 1pm First breakout sessions See page four of this programme for more detail

1 – 2pm Lunch

2 – 3pm Second breakout sessions

See page six of this programme for more detail

3 – 3.30pm Break and refreshments

3.30 – 4pm People, places and healthier lives Duncan Selbie, Chief Executive, Public Health England

4 – 4.45pm Realising the value of people and communities

Dr Alf Collins, National Policy Advisor in Person-Centred Care, NHS England, joined by Don Redding, Dr Helen Seers and Samantha Jones for a panel discussion

4.45 – 4.50pm Closing remarks

5 – 6pm Drinks reception

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A warm welcome to National Voices’ Annual Conference 2017.

Today’s event is one of the largest gatherings of health and care charities in the country and promises to be an exciting, stimulating and thought-provoking day.

Thank you to our speakers, sponsors, and most importantly, our delegates for your continued support and input into the day’s discussions. Enjoy the conference – and don’t forget to join the conversation on Twitter using #nvconf17.

Morning plenary

Chair

Sally Brearley Fellow in Patient and Public Involvement, Centre for Health and Social Care Research, Kingston and St George’s

10 – 10.30am

Convincing the system to innovate: a case study At a time of major change and challenge, new approaches are needed. Unlimited Potential is a social enterprise in Salford that specialises in social innovation. This session will explore its experience of working with larger agencies towards innovation, what relationships are most effective, and what learning might be transferable.

Chris Dabbs Chief Executive, Unlimited Potential @UPSalford

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10.30 – 11.30am Living a life in the community Andrea will stimulate a lively panel discussion with a short reflection on the current state of Adult Social Care, the challenges the sector faces and the action needed to ensure good care for citizens.

Andrea Sutcliffe Chief Inspector of Adult Social Care, Care Quality Commission (CQC) @Crouchendtiger7

David Pearson Sustainability and Transformation Lead, Nottingham and Nottinghamshire @25DavidPearson

Dr Sam Everington Chair, Tower Hamlets Clinical Commissioning Group @TowerHamletsCCG

Dr Arvind Madan Director of Primary Care, NHS England @arvindmadan

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You are registered to attend a breakout session at 12pm and a breakout session at 2pm. The coloured dots on your delegate badge match the colour of the session you are registered to attend.

12 – 1pm

First breakout sessions

Oxford Suite (main room): The new relationship with people and communities

Rob Webster Sustainability and Transformation Plan lead for West Yorkshire @NHS_RobW

Somerville Suite: Supported self-management in action: a case study of HIV support services Voluntary sector services play a fundamental role in supporting the self-management that allows people to live well with HIV. In this panel session, Cheryl Gowar (National AIDS Trust) explains the current state of HIV support service commissioning in the UK; Garry Brough (Positively UK) reports on the lessons learned from implementing a nationwide peer support programme; and Alex Sparrowhawk (Terrence Higgins Trust) discusses the benefits and challenges of providing on-line self-management tools and support.

Cheryl Gowar Policy and Campaigns Officer, National AIDS Trust @cherylgowar

Garry Brough London Coordinator – Project 100, Positively UK @Positively_UK

Allan Anderson Chief Executive, Positively UK @allan_anders

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Alex Sparrowhawk Membership and Involvement Officer, Terrence Higgins Trust @birdy_tweet

Trinity Suite: The perfect patient information journey The Patient Information Forum (PIF) is creating a model of what successful access to information for people with long-term conditions looks like in practice, and modelling it in a clinical setting. As well as providing an overview of the project, the workshop will offer participants the opportunity to reflect on existing barriers to information for their patient community, as well as to develop solutions to help overcome those barriers.

Claire Murray Joint Head of Operations, PIF (Patient Information Forum) @PiFonline

Neil Cowan Policy and Public Affairs Adviser, PIF (Patient Information Forum) @PiFonline

Merton Suite: Wellbeing Our Way Repeated session. National Voices’ Wellbeing Our Way programme brings together people with long-term health needs and those working in charities, community organisations and wider health and care services to spread person-centred approaches like peer support and supporting self-management. This session will be an opportunity to learn more about the Wellbeing Our Way approach, including its impact to date.

Natalie Koussa Programme Lead – Wellbeing Our Way, National Voices @nataliekoussa

Emma Baylin Regional Coordinator – Wellbeing Our Way, National Voices @emmabaylin

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2 – 3pm

Second breakout sessions

Oxford Suite (main room): Good Data, Powerful Patients - two things that will change the NHS forever

Annie and David will provide real examples of what has helped and got in the way of changing how the NHS acts on patient experience data and works with patients as true partners for change.

Annie Laverty Director of Patient Experience, Northumbria Healthcare NHS Foundation Trust @annielaverty

David Gilbert Patient Director, Sussex Musculoskeletal Partnership @DavidGilbert43

Somerville Suite: House of Care Programme The House of Care is a flexible framework which supports the introduction of collaborative care and support planning conversations for people with long term conditions. British Heart Foundation and Arthritis Research UK will describe how the two organisations are using the House of Care as a framework for implementing care and support planning for people with long term conditions.

Dr Iain Armstrong Programme Manager, British Heart Foundation Scotland @BHFScotland

Tracey Loftis Head of Policy & Public Affair, Arthritis Research UK @ArthritisRUK

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Trinity Suite: Addressing health inequalities amongst BAME and LGBT groups through community-based approaches Using learning from Compassion in Dying's My Life, My Decision programme, this workshop will explore the benefits of adopting community-based approaches to address the health inequalities experienced by Black, Asian and Minority Ethnic and Lesbian, Gay, Bisexual and Trans* individuals when planning for the end of life.

Usha Grieve Director of Partnerships and Information, Compassion in Dying @UshaGrieve

Stacey Halls My Life, My Decision Programme Manager, Compassion in Dying @AGoodDeath

Merton Suite: Wellbeing Our Way Repeated session. National Voices’ Wellbeing Our Way programme brings together people with long-term health needs and those working in charities, community organisations and wider health and care services to spread person-centred approaches like peer support and supporting self-management. This session will be an opportunity to learn more about the Wellbeing Our Way approach, including its impact to date.

Natalie Koussa Programme Lead – Wellbeing Our Way, National Voices @nataliekoussa

Emma Baylin Regional Coordinator – Wellbeing Our Way, National Voices @emmabaylin

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Afternoon plenary

3.30 – 4pm People, places and healthier lives

Duncan Selbie Chief Executive, Public Health England @PHE_uk

4 – 4.45pm Realising the value of people and communities Building on the recent Realising the Value programme, we take a look at how we can implement person- and community-centred approaches.

Dr Alf Collins National Policy Advisor in Person-Centred Care, NHS England @alf_collins

Don Redding Director of Policy, National Voices @MightyDredd

Samantha Jones Director – New Care Models National Programme, NHS England @SamanthaJNHS

Dr Helen Seers Research and Evaluation Lead, Penny Brohn UK @seers_helen

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National Voices team

Jeremy Taylor Chief Executive @JeremyTaylorNV

Jeremy Taylor is Chief Executive of National Voices, the national coalition of health and care charities for England. Jeremy acts as a representative, expert advisor, writer, commentator and speaker on issues that National Voices champions, especially person centred care, and patient and public engagement.

Don Redding Director of Policy @MightyDredd

Don Redding is Director of Policy for National Voices, the coalition of national health and social care charities working to bring service user voice into policy making in England. He has led National Voices’ work on integrated care, including the production of five ‘narratives’ demonstrating what people themselves want from ‘person centred coordinated care’. This has helped define the purpose of integration across all system leading bodies and in local areas, and Don remains engaged with the integration pioneers programme. A former social care journalist, Don has worked for leading national voluntary organisations since 1991, and was previously head of policy and communications for Picker Institute Europe.

Sarah Hutchinson Policy Advisor @SarahHutchDPhil

Sarah Hutchinson is Policy Advisor at National Voices, focusing on the work of the Five Year Forward View People and Communities Board. She previously worked in policy and research at St Mungo’s Broadway, focusing on improving access to healthcare for homeless people, and on addressing women’s homelessness. She has also worked as policy officer at women’s charity Platform 51. Sarah has a doctorate in social policy.

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Natalie Koussa Programme Lead – Wellbeing Our Way @nataliekoussa

Natalie leads National Voices’ Wellbeing Our Way programme. Wellbeing Our Way uses regional and national communities of practice to spread person-centred approaches like peer support, supporting self-management and care and support planning. Natalie began her career as a child in need social worker and has a background in involving children, young people and parents in commissioning decisions across a Local Authority and Clinical Commissioning Group. She is a Trustee of Ditch the Label, one of the UK's largest anti-bullying charities.

Emma Baylin Regional Coordinator – Wellbeing Our Way @emmabaylin

Emma has joined National Voices’ Wellbeing Our Way programme as Regional Coordinator for Greater Manchester. Emma has over 20 years' experience of working and volunteering in health and community organisations, leading on local, regional and national programmes. Emma’s roles have predominantly seen her based in the Voluntary Sector although she has also worked in local authorities and the Department of Health. Most recently Emma has worked for Regional Voices coordinating projects across Yorkshire and Humber as well as delivering on the Realising the Value programme with NHS England.

Andrew McCracken Head of Communications @hellomccracken

Andrew McCracken is Head of Communications at National Voices and leads on external communications and membership for the organisation. Prior to joining National Voices, Andrew was Head of PR and Communications at London South Bank University. He previously led the Public Affairs function at the Royal College of Physicians and has held a number of communications positions within the NHS.

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Michael Bourke Membership Manager @MchlBrk

Michael Bourke is Membership Manager at National Voices and leads on all membership activities for the organisation. He is the coordinator of the Local Influencing and Campaigning Network and leads on member engagement and recruitment. Please contact him to discuss your existing membership or to find out more about joining our coalition. Prior to joining National Voices, Michael was Communications and Membership Officer at Irish in Britain, a charity leading in culturally-specific care models for BAME communities. Previous to this he has worked in the charity sector here in London, a Government Department in Ireland and a marketing body in Denmark.

Holly Dawson Communications and Membership Officer @whathollythinks

Holly Dawson has been the Communications and Membership Officer for National Voices since March 2016. She works on external and member communications, including the website, newsletter, social media and digital design. Holly has worked in the health and care voluntary sector since graduating with a degree in Psychology from the University of Oxford. Her previous roles were in communications, campaigns and volunteer management within a small learning disability charity.

Matt Lloyd Head of Operations

Matt is Head of Operations at National Voices. He brings 16 years’ experience in operational, membership, communications and IT roles across the voluntary and private sectors. Most recently Matt served as Operations Manager at the National Council for Palliative Care.

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Pia Charles PA/Administrator

Pia has worked for the organisation since 2004 when it was still the Long-term Conditions Alliance. She balances giving PA support to an extremely busy chief executive with supporting the National Voices’ team with administration support. This includes involvement in finance, membership, purchasing, events, diary management and day to day troubleshooting.

Hannah West Projects and Events Assistant @hanwest94

Hannah is National Voices’ Projects and Events Assistant and assists the team in events organisation, administration and membership engagement. After graduating in 2015 with a degree in International Development, she has undertaken roles in several organisations, in areas including policy and campaigns, and diversity.

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Supporters We are very grateful to the organisations that are supporting this event.

Mutual Ventures provide tailored support to organisations delivering (or seeking to deliver) public services. They work with clients to help them grow sustainability and become more effective and resilient, whilst maintaining service excellence.

The New Care Models Team supports the design and implementation of new care models in the NHS through vanguards, Integrated Pioneers and primary care home and acute medical models. Website: www.england.nhs.uk/vanguards. Twitter hashtag: #futurenhs.

Principle Consulting - award winning policy, public affairs and campaigns support for charities. Website: www.principleconsulting.org.uk.

The Professional Record Standards Body (PRSB) for health and social care works with patients, the public, and professionals providing care to define the standards needed for the content of good care records in order to improve the safety and quality of health and social care. Email: info@theprsb.org. Website: www.prsb.org. Twitter: @ProfRecordsSB.

This conference is supported by a charitable donation from Pfizer Ltd.