National Cancer Survivorship Initiative

The survivorship vision

Mike Richards & Ciarán Devane Co-Chairs, NCSI

National Cancer Survivorship Initiative

Ciarán DevaneChief Executive, Macmillan Cancer Support

National Cancer Survivorship Initiative – September 2009• Seven workstreams:

– Assessment and Care Planning– Active and Advanced Disease– Consequences of Treatment– Self Management– Work and Finance– Children and Young People– Research

• 27 test communities

• Cross cutting themes – patient information, workforce, commissioning, equalities

• Involving service users, carers, clinicians, service commissioners, researchers, charities …

National Cancer Survivorship Initiative

Picker Experience of Care Questionnaire – overviewInterim results from the questionnaire highlight significant numbers of respondents who:

• lacked an up to date care plan• have a named key worker who they can contact if they have a concern• knew who to contact during office hours; although a larger proportion did not know

who to contact out of hours• were able to access specialist advice when they needed it all or most of the time• would have liked more information and advice on the following:

• physical aspects of living with and after cancer (e.g. side effects or signs of recurrence)• diet and exercise• psychological or emotional aspects of living with and after cancer

National Cancer Survivorship Initiative

Review of current practice

• professional led, medical long term follow up model• variation in practice, including use of assessment tools and care

plans. • majority of patients have no choice or control over follow up

assessment or planning• variation in service provision including in access to emotional and

psychological support• some areas of innovation e.g. risk stratified follow up for patients

after colorectal cancer in Taunton

National Cancer Survivorship Initiative

6

We have six expectations of the National Cancer Survivorship Initiative

• A document describing our vision of the care of people living with or beyond cancer

• A supporting implementation plan• A set of models of care which we have piloted and we know

work • Acceptance of ‘survivorship’ as a priority for patients• Translation of the vision into action at a local level, using

approaches similar to those tested• A community of interested people who will continue to lead

this agenda

National Cancer Survivorship Initiative

NCSI Looking ahead

• 2008/09• Early work by workstreams, testing work underway

• 2009/10

• Principles from workstreams, results of testing work, developing commissioning guidance

• 2010/11

• Commissioning guidance available for 2011/12 planning

National Cancer Survivorship Initiative

National Cancer Survivorship Initiative

The survivorship vision

Mike Richards National Cancer Director

Five Shifts?

• Attitudes

• Information

• Care planning

• Support

• Measurement

National Cancer Survivorship Initiative

Are these right? What’s missing?

Please feedback – www.ncsi.org.uk

The QIPP Challenge

National Cancer Survivorship Initiative

QUALITYQUALITY

PRODUCTIVITYPRODUCTIVITY

INNOVATIONINNOVATION

PREVENTIONPREVENTION