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Mind the Gap: Supporting Successful Care Transitions and Recovery after a Stroke . Janet Prvu Bettger, ScD, FAHA – [email protected]. Associate Professor of Nursing and Senior Fellow in Aging Faculty Affiliate, Duke Global Health and Clinical Research Institutes June 24, 2014. - PowerPoint PPT Presentation
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Mind the Gap: Supporting Successful Care Transitions and
Recovery after a Stroke
Janet Prvu Bettger, ScD, FAHA – [email protected] Associate Professor of Nursing and Senior Fellow in Aging
Faculty Affiliate, Duke Global Health and Clinical Research InstitutesJune 24, 2014
All Rights Reserved, Duke Medicine 2007
Presentation Outline
• Burden of stroke• Systems perspective of stroke care • Evidence gaps • Care models for improved recovery from stroke
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Projected Deaths by Cause for High-, Middle- and Low-Income Countries
Other NCDs
Cancers
CVD
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Burden of Stroke: DALY
Johnston et al. Lancet Neurol 2009;8:345-54
Leading cause of serious, long-term disability in the US
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Burden of Stroke in the United States (US)
• Incidence: 795,000 new or recurrent stroke each year
• Every 40 seconds someone in the US has a stroke• Every 4 minutes, someone dies of a stroke• 3 of 4 stroke survivors are dependent at some level for self-
care • Over 60% of stroke patients have cognitive impairment• About 15%-30% are permanently disabled• Stroke survivors requiring constant care 3 months following
their stroke have a 7-fold increased 1-year mortality risk
AHA Heart Disease and Stroke Statistics 2014 Update/ CDC National Vital Statistics Reports 2010
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Challenges Specific to Stroke Care
• Average length of acute hospital stay = 4 days• Episode of care for stroke = 82-109 days• Almost 80% of stroke patients experience more than
two transitions of care after hospital discharge • 1 in 3 are rehospitalized within 3 months• 1 in 3 are institutionalized in a nursing home within 6
months
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WHERE ARE OUR INTERVENTION POINTS?
Once someone has a stroke…
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Community
ResponseEMS Acute Care
Rehab & Recover
y
Stroke System of Care and Transitions in Care
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A Critical Intervention Point
Olson DM, Prvu Bettger J, Alexander KP, et al. AHRQ 2011
General Population
PopulationAt-Risk
Acute Care
Post-AcuteCare & Rehab
Living in Community
Living in LTC
The Transition to Post-Acute Care
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Medicare Beneficiaries: Comparing patients’ 1st post-acute setting for all dx to stroke
D/C to PAC IRF SNF LTAC HH Outpatient0
10
20
30
40
50
60
70All Medicare
Stroke
Inpatient Community
%
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Evidence-based Information is Lacking to Guide Delivery of Stroke Care After Hospital Discharge
• What services should a stroke patient receive after being hospitalized for an acute stroke? – Compare post-acute and transitional care
treatment options that matter to patients and their caregivers
– Focus on outcomes of interest to patients and their caregivers
• What strategies should be in place to improve the transition from inpatient care and improve longer-term outcomes?
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Services After Acute Care
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153,775 Acute Ischemic Stroke Patients in GWTG w/ Medicare FFS Parts A+B Alive at Hospital
Discharge (2006-2008)
51.1% Discharged to Short-term
Inpatient Post-acute Care
24.1% Inpatient Rehabilitation Facility or Unit
(N=37,064)
27.0% Skilled Nursing Facility
(N=41,457)
48.9% Discharged from the Hospital to the Community
14.9% Home Health
(N=22,875)
7.1% Outpatient Rehabilitation(N=10,982)
26.9% No Post-acute Care
(N=41,397)
Care Following the Acute Hospitalization
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A TREMENDOUS OPPORTUNITY
…to generate key evidence that can be used to guide a critical decision faced by stroke survivors, their caregivers and health care providers every day, almost 1 million times a year…
what services to choose following an acute stroke hospitalization
?
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Specific Aims (what we promised we would do … at a high level)
1. Identify the factors associated with stroke survivors’ use of rehabilitation and health care services following hospital discharge (who gets what services and why based on our data)
2. Compare high intensity rehabilitation (provided in inpatient rehabilitation facilities; IRF) and low intensity rehabilitation (provided in skilled nursing facilities; SNF) on several outcomes
3. Compare outpatient (OP) rehabilitation and home health (HH), and how either are better than no rehabilitation.
4. Compare PCP and neurologist follow-up on outcomes
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Who are we studying and how?
This is a study using existing data of adults who had a stroke in 2006-2008.
The person had to have been treated in a hospital participatingin the Get With The Guidelines-Stroke program.
The person had to be a Medicare fee-for-service beneficiary for health care.
Some were in a prospectivecohort study, AVAIL.
PCORI Population
AVAIL Cohort
Medicare FFS
GWTG-Stroke
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Outcomes from Claims Data
Outcomes Definition Timing
Hospital readmission All-cause readmission 30 and 90 days
Time to hospital readmission
Time in days from index hospitalization to readmission
Up to 12 months
Long-term care placement Nursing home = residence (nursing facility assessment CPT code AND place of service code with no associated SNF claim)
12 months
Survival (analyzed as death) Mortality (alive/not; will use for death & disability)
12 months
Survival Time in days from index hospitalization to date of death
Up to 12 months
Home-time Number of days from hospital discharge to 12 months without inpatient services, a rehospitalization or LTC admit
Up to 12 months
Health care utilization (proxy for cost)
All billable services (inpatient days, ED visits, observation stays & provider visits)
30 and 90 days
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Patient Reported Outcomes
Outcomes Definition Timing
Primary: living independently Alive, community-dwelling, modified Rankin (mRS) 0-2 3 &12 mo.
Functionally independent mRS 0-1 3 &12 mo.
Change in function +/- 1 or > change in mRS from 3 to 12 months 12 months
Depression PHQ-8 >10 3 &12 mo.
Persistent depression PHQ-8 >10 at 3 and 12 months 12 months
Return to work Employed pre-stroke and returned to work 3 &12 mo.
Medication adherence Actions correspond with hospital provider recommendations (warfarin, antihypertensive, antiplatelet, lipid-lowering, and diabetic medications)
3 &12 mo.
Smoking cessation Actions correspond with hospital recommendations 3 &12 mo.
Quality of life Normalized EQ-5D 3 &12 mo.
Change in quality of life Change in EQ-5D score from 3 to 12 months 12 months
Death and disability Composite outcome 12 months
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Soon we’ll have clearer evidence of what services for which patients…
But how do we support them along the journey back home?
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STROKE TRANSITIONS IN CAREA look at care across the continuum…
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Most Common Trajectories or Patterns of Care
There were 3,016 unique care patterns in the 120 days after an acute ischemic stroke
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Most Common Trajectories or Patterns of Care
Discharged to Short-term Inpatient
Post-acute Care
24.1% Inpatient Rehabilitation Facility or Unit (N=37,064)
5.3% IRF only 19.9% IRF + HH
8.0% IRF + HH + OP
6.2% IRF + HH + Readmit
+ SNF or + HH
After Readmit
16.0% IRF + OP
8.4% IRF + SNF
5.8% IRF + SNF + HH
27.0% Skilled Nursing Facility (N=41,457)
30.5% SNF only
21.0% SNF + Readmit
+ SNF or + HH/OP
After Readmit
19.0% SNF + HH
5.2% SNF + HH + Readmit
+ SNF After Readmit
11.5% SNF + OP
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Most Common Trajectories or Patterns of Care
Discharged from the Hospital to the Community
14.9% Home Health(N=22,875)
63.2% Home Health only
20.8% HH + Readmit
+ HH or
+ SNF After Readmit
10.1% HH + OP
7.1% Outpatient Rehabilitation (OP)
(N=10,982)
77.0% OP Rehabilitation Only
26.9% No Post-acute Care (N=41,397)
52.6% No Post-acute Care (no readmission and alive at 120 days)
27.4% Readmitted after hospital d/c without post-
acute care
20.0% Died after hospital d/c without post-acute
care
?Involvement of
Primary and Specialty Care?
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A Critical Intervention Point
Olson DM, Prvu Bettger J, Alexander KP, et al. AHRQ 2011
General Population
PopulationAt-Risk
Acute Care
Post-AcuteCare & Rehab
Living in Community
Living in LTC
The Transition to Post-Acute Care
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Critical Intervention Points for Stroke Survivors
Olson DM, Prvu Bettger J, Alexander KP, et al. AHRQ 2011
Acute Care
Post-AcuteCare & Rehab
Living in Community
Living in LTC
Transitions
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Gaps Identified By Observation, Provider and Patient Reports, and Research
Stroke Patients’ Needs
Hospital Discharge Planning
Rehabilitation Expertise
Stroke Patients’ and Caregiver’s Needs at Home
Community-based Care
Rehabilitation Expertise
Transitional Care
Interventions
GAP
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Transitions are a National Priority• HHS Triple Aim: Better Care, Better
Health, Lower Cost• HHS Priorities = National Quality
Strategy: Efficiency, population/public health, clinical effectiveness and processes, care coordination, patient and family engagement, patient safety
• CMS: The right care for every person every time• Partnership for Patients: Reduce HAC
by 40% and readmissions by 20%
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• National readmission rate: 13.8%
• Hospital risk-standardized readmission rate (RSRR) range: 9.1%-20.6%
Stroke Readmission: Opportunity for Improvement
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Shifting and Narrowing the Curve – How?
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TRANSITIONAL CARE INTERVENTIONS
What is effective for stroke survivors?
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TRANSITIONAL CARE
“the set of actions designed to ensure the coordination and continuity of health care as patients transfer between different locations or different levels of care within the same location”
Coleman et al., J Am Geriatr Soc 2003;51(4):556-7.
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Transitional care is…
• Supportive of patients during handoffs • A time-limited service • Focus on continuity • Commonly led by a nurse (more than 50% of interventions
summarized in systematic reviews were nurse-led)• An emerging key factor in care coordination
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Poorly executed or discontinuous health care transitions increase the risk of
medical and medication errors, poor patient outcomes,
caregiver stress, and unnecessary services
Why is this important?
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There are Many “TOC” Models
RED
BOOST
Care
TransitionsTCM
INTERACT
STARR
GRACE
BRIDGE
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Core Interventions in Evidence-Based Transitional Care Models Interventions RED CTI BOOST TCM Bridge GRACE* INTERACT*Evaluation/risk assessment X X X X XMedications reconciled & plan confirmed X X XPatient education (with teach-back) on:
Diagnosis (daily) X X XCompleted tests & appropriate follow-up X“Red flags” and response to problems X X X X X
Patient education on medication management X X X XDischarge plan X X X X X
Written discharge plan or personal record X X X XDischarge plan reconciled with national clinical guidelines X XAppointments made for clinician follow-up, services , tests X X X XAppointments to be scheduled by patients X N/ADischarge summary (transition record) sent to post-discharge providers
X X X
Documented receipt of information by next provider X X
Telephone follow-up with patient to ID / resolve problems In 2-
3 Days
XIn 3 Days X
In 2, 30 days X N/A
Home visit X X X N/ATransitional care point person(s) X X XFacilitated engagement of patients, families, providers across episode X X
*GRACE is a community-based model; INTERACT is a nursing home-based models
Which Intervention?
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Evidence of Effectiveness?
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KNOWLEDGE GAPS
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Knowledge Gaps
1. Do these work for stroke patients?2. Which strategies? (each intervention is multi-
component)3. Do we replicate these interventions? Adapt locally?
Integrate strategies from different interventions?4. Which transition or handoff?5. For what period of time?6. For which patients?
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Transitional Care for Stroke: Roots in Policy
National Health Reform: Reduce
hospital readmissions
CDC commissioned a systematic review
Disseminated internationally
Wave 1: Heart Failure, Pneumonia, Myocardial Infarction
Proposed Wave 2: Stroke, Chronic Obstructive Pulmonary Disease
2012 Guidelines International Network2012 International Stroke Conference2013 International Association of Gerontology and Geriatrics
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Do we have the evidence we need?Do these work for stroke patients?
?Very few of the nationally promoted care transitions
models included stroke patients. Of those that did, none presented findings for stroke
patients.
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Evidence of Effectiveness?
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EARLY SUPPORTED DISCHARGE
Team based approach including caregivers to return stroke patients home earlier but with continued rehabilitation of similar intensity and duration to inpatient care
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ESD Components
• Patient identified in acute care (or inpatient setting)• Discharged earlier• Home visit within 24 hours of hospital discharge • Goal-driven and patient-specific rehabilitation
delivered in the home• Services provided 4 x day (ESD phase), 6-7 days
week for up to 4 weeks and then reducing to weekly visits by the point of exit (at most 4-6 weeks)
• Different levels of engagement with stroke specialist (neurology)
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Models of ESD
1. Stand-alone acute outreach ESD only– Prevalent in denser populated urban cities and where there are
large city hospitals2. ESD with community stroke/neurology team service
– In-hospital component hands off to a usually well established community-based rehab team partnering with neurology
3. Integrated ESD within community stroke team service– All the components of models 1 and 2, plus support workers for
rehab every day & multiple visits a day for up to six weeks4. Integrated ESD within community neurology service
– Often extends beyond stroke but then requires advanced skill set; prevalent in less urban areas
5. RECOVER trial– Nurse facilitated and organized, caregiver delivered
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Evidence for ESD
• Multiple randomized controlled trials • Meta-analysis confirmed patients who received these services
returned home earlier (shorter inpatient length of stay) and were more likely to remain at home in the long term (longer “home time”) and to regain independence in daily activities (reduced death and dependency). – The best results with well organized discharge teams and patients
with less severe strokes.• International Consensus Guidelines and considered best practices in
UK and Canada– Canada ESD: $132.9 million direct cost savings.
• In the U.S.? – Failed and not feasible given payment model for services
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Proposed US Model (Govt. focus = ↓ costs)
Reduce costs by 34%, saving $2.4 million over a 3 year period for
300 stroke patients
Reduce rehospitalizations
Improve patient functional status and
reduce secondary complications of stroke
Implement and optimize uptake of Early Supported Discharge as the new health care delivery model for post-acute comprehensive stroke
management
Reduce utilization of post-acute services (in skilled nursing facilities, inpatient rehabilitation,
and multipe episodes of home health care)
Improve self-management of stroke,
co-morbid chronic conditions and CV risk
factors
Integrate primary care with Early Supported Discharge to improve
access and transition care to community-based providers
Reduce long-term care nursing home placement
Improve patient and caregiver satisfaction
with post-acute stroke care
Transition to community-based wellness and exercise programs, and
case management as needed
“Task” shifting at 3 levels: rehab,
primary and community care
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Not Quite a Global Perspective
Olson DM, Prvu Bettger J, Alexander KP, et al. AHRQ 2011
General Population
PopulationAt-Risk
Acute Care
Post-AcuteCare & Rehab
Living in Community
Living in LTC
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Adapting ESD Globally
• ATTEND trial (Family-Led Rehabilitation after stroke in India)
• RECOVER trail (A randomized controlled trial on rehabilitation through caregiver-delivered
• nurse-organized service programs for disabled stroke patients in rural China)
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Evidence of Effectiveness?
What is appropriate for rural China?
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A Randomized Controlled Trial on Rehabilitation through Caregiver-delivered Nurse-organized Service Programs for Disabled Stroke Patients in Rural China
REC VERThe
Trial
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RECOVER Collaborating Institutions
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RCT Study DescriptionIntervention and Control
Nurses from County Hospitals
Physicians / Rehabilitation Therapists
Training
♦ Intervention Group:
♦ Control Group: conventional care
Patients & family-nominated caregivers
Intervention
In-hospital• “Teach-back” on stroke recovery, risk
identification, and management• Task oriented training• Joint goal setting• Evidence-based discharge planning
Nurse + Patient + Family Caregiver
After hospital discharge• Call or visit at 2, 4, 6 and 8 weeks • Blinded researcher measures outcomes
by phone at 3 mo. & in person at 6 mo.
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HypothesesPrimary Hypotheses• To improve physical function
Secondary Hypotheses• To improve physical functioning• To improve quality of life• To reduce disability• To reduce depression
Exploratory Hypotheses• To relieve burden of caregivers• To reduce hospitalization • To reduce hospital length of stay &
costs
Primary Outcome• Barthel Index
Secondary Outcomes• Functional Ambulation Classification• EQ-5D• modified Rankin Scale• Patients Health Questionnaire-9
Exploratory Outcomes• Caregiver Burden Index• Re-admission and hospitalization• Hospital length of stay and medical
costs
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Study Design-Patient Recruitment
Inclusion criteria• Adults (≥18 years);• Recent (<1 month) first-ever acute ischemic/hemorrhagic/undifferentiated stroke
patients; • Expected to survive to discharge from hospital with a reasonable expectation of 6
month survival (i.e. not palliative, no evidence of widespread cancer etc.);• Residual disability (requiring physical assistance for core activities of daily living
defined as a Barthel Index score of 80 or lower).
Exclusion criteria• Unable to identify a suitable family-nominated caregiver for training and
subsequent delivery of care; • Unable to provide informed consent from both the patient (or by proxy) and the
caregiver.
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Zhangwu
Qingtongxia
Pilot and Main Study Samples and Sites
Sites:•Zhangwu County, Liaoning Province,
•Qingtongxia County, Ningxia Province
Pilot Study• Number of patients: 80 20 (I) + 20 (C) x 2 sites
Main Study• Number of patients: 200
100 (I) + 100 (C) (1/2 each site)
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Complementary Models
RECOVER2.0
Telehealth
Transitional Care
Early Supported Discharge
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Meeting the Needs of Stroke Survivors and Caregivers Globally
Many possibilities for efficacy and/or implementation effectiveness trials• Urban or rural• Single or multi-component strategy• Inpatient- or community-based or both• GPs or nurses or community workers or trained lay people• Mobile phones and ipads or centrally located computers• Intervention(s) to focus on functional impairment,
secondary prevention, or prevention of complications• Patients with or without cognitive impairment• Different levels of inpatient care• Different levels of caregiver engagement
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Why are we committed to this global research agenda?
• Improve the lives of stroke survivors• Reduce the burden on informal (family) caregivers• Improve adherence to evidence-based care• Improve the quality of care
• Improve physician-nurse partnership in the care of patients with stroke, disability, and chronic illnesses
• Build rehabilitation nursing capacity as leaders for caring for people with disabilities and chronic illness
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Improving Stroke Outcome: It is going to take a
village