Maximizing Your Relationship with Community Partners · Maximizing Your Relationship with Community Partners ... Team Members •Baton Rouge Regional Eye Bank •Legacy ... Hispanic

Maximizing Your Relationship with Community Partners

AMAT Conference

September 20, 2012

Team Members

• Baton Rouge Regional Eye Bank

• Legacy Donor Foundation

• Louisiana Hospital Association

• LOPA

• Louisiana Lions Eye Bank

• National Kidney Foundation of LA

• Ochsner Multi-Organ Transplant

• Office of Motor Vehicles

• Southern Eye Bank

Louisiana Demographics

• 4.53 million residents

– 62.5% Caucasian

– 32% African American

– 5.5% Other Races

• 4.2% Hispanic or Latino – biggest growth

• 3.42 million are 18+

Louisiana Registry

• 2,086,975 in registry (as on 9/1/12)

– 59% of 18+ population registered

– 46% of all population

• Registrations by OMV (% of pop.)

– 72% Caucasian (47%)

– 25% African American (32%)

– 3% Other (3%)

Louisiana Donors

Race % of donors in 2011 % in registry

African American 31% 50%

Caucasian 64% 40%

Asian 3% 75%

Hispanic 2% 25%

Louisiana Wait List

All Ethnicities 1,632

African American 961

Caucasian 586

Asian 29

Hispanic 51

American Indian/Alaska Native 4

Pacific Islander 1

OFFICE OF MOTOR VEHICLES DONATE LIFE LOUISIANA

HISTORY • Partnered with LOPA in mid 1990’s.

• Registered almost 2 million potential donors since program’s inception.

• In 2008 LOPA created a new consent/authorization form specifically for registered donors. Since then over 300 people have become organ donors through the registry, and well over 1,000 tissue and cornea donors.

TECHNOLOGY

• Mail-in renewals for driver’s license and identification cards

• COMING SOON!!! On-line renewals for driver’s license and ID cards

LEADERSHIP • 2 OMV Administrators involved with Donate

Life Louisiana State Team and regularly attend meetings

• All OMV employees have received training on donation and how to ask patrons if they wish to register as a donor

• Management participates in key community outreach drives

COMMUNITY OUTREACH

• Alexandria

• New Orleans

• Rose Bowl Parade

• Driving Schools Education

BATON ROUGE FIELD OFFICE

ROSE BOWL PARADE CAMPAIGN

OMV SIGNS UP POTENTIAL DONORS

OMV STATE AWARD

GREINER FAMILY TRAVELS ACROSS THE COUNTRY AND STOPS IN BATON ROUGE PROMOTING AWARENESS

FEBRUARY 14, 2011

Greiner Family, cont.

SOUTHERN EYE BANK

Serves the Southern Part of Louisiana

- 26 of the 64 parishes in Louisiana, population 2,451,032.

- In the State of Louisiana:

Average number of Donors: 700

Average number of surgeries: 950.

4th oldest Eye Bank in the Country.

Established in 1947.

SOUTHERN EYE BANK

77%

1%

21%

1% 0% 0% 0%

10% 20% 30% 40% 50% 60% 70% 80% 90%

2011 Donors

38%

5%

17%

1% 0%

39%

0% 5%

10% 15% 20% 25% 30% 35% 40% 45%

2011 Recipients

77%

0%

22%

1% 0% 0% 0%

10% 20% 30% 40% 50% 60% 70% 80% 90%

2012 Donors (Jan-Aug)

31%

4%

11%

1% 0%

41%

0% 5%

10% 15% 20% 25% 30% 35% 40% 45%

2012 Recipients (Jan-Aug)

SOUTHERN EYE BANK

• Health Fairs

– Local Hospitals, Schools, Organizations, LOPA, Legacy Foundation

• Educating about donation

• Free Vision Screening

SOUTHERN EYE BANK

• Mobile Vision Bus – “Be Thankful for your Vision Week”

– Local Ophthalmic Professionals volunteer to perform eye exams, including SEB Medical Directors

– Free Eye glasses for anyone in need who do not have vision insurance

SOUTHERN EYE BANK

• Asian Pacific Islander Festival

- Collaborated with LOPA & Legacy Foundation

- Donor Brochures Translated for multiple cultures:

Japanese, Chinese, Vietnamese

SOUTHERN EYE BANK

• Gift of Sight Celebration -Audubon Zoo in March

“National Eye Donor

Awareness Month”

- Celebrates all of the Donors and

their families from the past year

for the gift they have given.

SOUTHERN EYE BANK

• LA CHILDREN’S MUSEUM

SOUTHERN EYE BANK

• EYE HEALTH AND SAFETY CLASSES

– Local Schools

• Education

SOUTHERN EYE BANK

• MISSIONARY TRIPS

– Local Surgeons, Universities, Hospitals

• Guatemala, India, Mexico

LOPA

Working with Community Partners

Grass Roots Approach

New Orleans City Health Dept.

• Grants to work in underserved neighborhoods

• LOPA invited to participate in events year round

– Churches

– Schools

– Community Events

• Resource for new partnerships

Essence Music Festival

• Largest event celebrating African American culture in US

• Signed up over 300 people over 3 day celebration

• Community partner since 2002

Social Groups and Service Organizations

• LINKS

• Delta Sigma Thetas

• AKA Sorority

• Zulu Social Aid & Pleasure Club

Maximizing Hospital Contacts

OLOL Opens Doors to Multi-cultural Outreach in Baton Rouge

• Kym Vincent-McCoy - OLOL nurse & Southern University Nursing Teacher

– Research

– Registry Drives

Hospital Partnership cont.

• Paula Mercer – OLOL Parish Nurse

– National Donor Sabbath, minority focused health fairs and other events

• Minority Health Awareness Day @ Mary Bird Perkins

Partnerships with Universities

• LSU Ag. in Shreveport

– Summer programs for underprivileged kids

– Focus in preventative care

• PR/PE programs

– LSU

– Loyola

Church Outreach

• Opportunities year round

• Strongest programs involve communities with personal connection

• Utilizing volunteers

Hispanic Outreach

• Churches in north and south of state

• Cinco De Mayo Festival in Shreveport

– 3 day festival

– Included in PSAs

– All materials in Spanish

WWL Perfect Match Donor Drive

Cheryl McGee-Hill & Natalie Rowe at one of the registry drives – over 100 new organ, eye & tissue donors registered and close to 700 came out to join the bone marrow registry

Maximizing Your Relationship with Community Partners

presented by

Julie Gable,

Program Services Director

“Kidneys in the

Classroom”

An Interactive presentation for

children in grades 3 - 5 about kidney function and the importance of organ donation

“Kidneys in the Classroom”

Why It Works • Children welcome new

information and get excited when they feel they have the same knowledge as adults

• Children are great at relaying a message

• Children are open to helping others

• Children are learning about science

How It Works • Designed as an interactive

presentation

• You need limited supplies

• Involves the use of transplant recipients as volunteers

• The presentation can be adjusted to fit a time frame between 45 – 75 minutes

What supplies are needed...

• Vests/shirts with velcro tabs • Attachable Kidneys made of paper or

styrofoam • Large Cards to show the potential donor’s

health status, blood type, etc. • Pictures of kidney in the body, dialysis

machine and fistula or graft • Doctor’s gown, gloves and mask • Special give-aways to the children

What will ch ildren learn ...

• How the kidneys work

• What happens when kidneys don’t work

• The functions of the kidney

• Some causes of kidney disease

• What is an artificial kidney

• What is an organ transplants and the

• Importance of organ donation

Before the presentation ...

• Recruit and train the volunteers who will be the presenters.

• Select schools and send letter of intent, with possible timeframe for presentation.

• After teacher has confirmed a date, send an overview of presentation along with pre-test and vocabulary sheet.

The Presentation ... • Give some general facts about the function

and importance of the kidneys.

• Recruit volunteer who will role-play a person with kidney disease/failure.

• Explain organ donation.

• Recruit 6 volunteers to role-play potential living organ donors.

• Recruit 1 volunteer to role-play surgeon.

• Explain the lifestyle of living with a transplanted organ.

After the presentation ...

• Present children with give-aways; stickers, pencils, information on organ donation along with your local information.

• Provide teachers with a evaluation of the presentation and also a post-test. (optional)

• Present literature to teacher about upcoming events and possible networking opportunities in the future.

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®. 45

The Power to Save a Life!

• It’s an Incredible Power that Each person, Each group Can help Fulfill


Your Organization Can Save Lives!

• Be The Match® offers a unique opportunity for community organizations to work together to save lives.


The Need is Great

• More than 10,000 patients a year are diagnosed with life-threatening diseases such as leukemia.

• They do not have a matching marrow donor in their family.

• A marrow transplant from an unrelated donor may be their best or only hope for a cure.


The Need is Great

• These patients rely on Be The Match to find a marrow donor to give them a second chance at life.

<Take the First Step video>


Who We Are

• Be The Match Registry® is the world’s largest, most diverse registry of potential marrow donors.

• Since 1987, we have facilitated 50,000 transplants.

• By 2015, we hope to facilitate 10,000 transplants a year.


Our Goal

We strive to serve all patients who need a life-saving transplant.


Diversity is Crucial

• Because tissue types are inherited, patients are more likely to match someone who shares their racial or ethnic heritage.

• To increase the likelihood of a match for everyone, more registry members of diverse

backgrounds are needed.


Registry Diversity

Be The Match Registry

(9 million total)

Caucasian: 74%

Hispanic/Latino: 10%

African American/Black: 7%

Asian/South Asian: 7%

Multiple Race: 3%

American Indian/Alaska Native: 1%

Native Hawaiian/

Other Pacific Islander: 0.1%

Numbers, percentages and totals may not coincide due to rounding.


Registry Guidelines

Anyone can join the registry, as long as they:

• Are between 18 and 44 years old

• Meet health guidelines

• Are committed to donating to any patient in need


Donation Processes

Blood-forming cells used for transplant come from:

• Peripheral blood stem cells (PBSC) • Similar to giving blood,

plasma or platelets

• Most common way of donating

• Bone marrow • Less common – 24%


Your Organization Can Save Lives!

• Partnerships with community organizations, health care groups, businesses, colleges, universities and others help us add new registry members, support patients and advance research.

• Your Organization’s participation can make a difference!


How Your Organization Benefits

Presents a life-saving opportunity for all, enhancing morale.

Encourages everyone’s involvement.

Provides a positive

team-building

experience.

Strengthens

relationships at your

organization and in

your community.

Increases a sense of pride and

responsibility at your

organization.

Heightens recognition of your

organization.

Becomes a part of

who you are and

what you stand for.


How You Can Help

• Host a donor registry drive — Committed registry members become part of

every patient’s search for a donor, giving more patients hope for a cure

• Be The Match supplies:

– Staff person to work with your organization for successful results

– Promotional materials (flyers, posters, signs, banners, etc.)

– Drive materials (registration forms, cheek swab kits, etc.)


How You Can Help

• Help cover cost by contributing to Be The Match Foundation

• Every $100.00 raised helps to add another member to the registry.


How You Can Help

• Engage Volunteers

— Many are needed to support registry drives

• Social media advocates help spread the word about your drive and our work together.

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Join Us!

Every individual at your organization has the power to save a life!

• Host a Donor Registry Drive to add committed members to Be The Match Registry

• Educate the community about marrow donations and encourage others to join the registry

For questions and to

schedule a drive contact:

Natalie Rowe

[email protected]

985-788-9461

mailto:[email protected]

Questions?

Thank you for your time!


Documents

Maximizing Your Relationship with Community Partners · Maximizing Your Relationship with Community Partners ... Team Members •Baton Rouge Regional Eye Bank •Legacy ... Hispanic