Māori and Pacific Island Disabled Peoples Hui/Fono 2012 Report from the MPDF Organising Committee to Disability Support Advisory Committee of CCDHB & HVDHB

Māori and Pacific Island Disabled Peoples Hui/Fono 2012

Report from the MPDF Organising Committee toDisability Support Advisory Committee of CCDHB &

HVDHB

13 August 2012


Overview1. To provide an update from the 2010 Hui/Fono and

highlight service changes.

2. To provide a safe space for Māori and Pacific disabled people to come together

3. To provide a means for the voices to these communities to be heard, and understood.

4. Gain further understanding of issues, and identify ways to facilitate better healthcare access

5. Develop recommendations to inform CCDHB disability responsiveness strategy & education programme


Discussion Themes1. Needs Assessments/Service

Coordination

2. Consumer Engagement

3. Equipment Management Services


1. Needs Assessment Presentation by Mr David Darling (Service Leader, Capital Support)

1.Disparities of access by Māori and Pacific

2.Lack of cultural awareness/ empathy

3.Lack of agency collaboration → duplication of assessments/ forms

4.Client ‘focus’ rather than ‘process’ focus → more timely responses


Needs Assessment/ Service Coordination

Issues/feedback RecommendationsStatistics/Data of those accessing services vs. those that don’t

Advocate for research project to collate this information

Lack of demonstrated cultural awareness amongst health professionals

Evaluate cultural training, content, providers, post course accountability

Lack of demonstrated cultural empathyEvaluate cultural training, content, providers, post courses accountability

Improve and catered Needs Assessment processesConsumer involvement in design & development phases- ONE MULTIAGENCY FORM

Consumer-friendly Needs Assessment process / Assessors

Consumer involvement in training and implementation

Lack of agency collaboration & services for consumer / duplication

The development of a standard Needs Assessment process across medical fields

More client focussed, rather than ‘process’ or compliance focussed

The development of client focuses/driven approach to collaborate with DHB

Response timing reflects NEED of the person rather than process

Review current process – Consumer engagement

Support services more available and accessible Develop a call centre (Hotline) that can access services at all times

Training consumers to provide services for consumer Provide training opportunities for consumers & build capacity. Recruitment of staff with “lived experiences” of disability

Support Services: Need to be experience, not just qualifies

Recommend all providers are trained in cultural awareness/ ethnic specific areas (see above)


2. Consumer Engagement Presentation by Mrs Kerrie Hayes (Director Nursing/ Midwifery

CCDHB)

1.Lack of cultural empathy/ understanding by staff of how to engage in culturally appropriate manner

2.Staff lack staff training in disability-specific support for inpatient services

3.Inadequate opportunities for consumer input/engagment

4.Need for capacity-building of disabled people to be involved in service provision


Consumer Engagement

Issues/feedback Recommendations

One size fits all approach More adaptable approach for all peoples

Nurses / staff: “Robotic” vs. “Human”Cultural training all cultures and understand ways and beliefs

Lack of demonstrated cultural empathy Consumer engagement in cultural training

Nurses not trained appropriately to support people with disabilities

Consumer engagement in specific training

Equipment in hospitals not designed with needs in mind

Database for disabled peoples needs

Methods of communication not ideal to reach ALL peoples/communities

More appropriate communication equipment/ services

Lack of consumer in involvement at a strategic level & decision making

Māori/Pacific Disability Consumer Engagement Group

Lack of consumer input in the community with implementing funding & services

Māori/Pacific Disability Consumer Engagement Group

Recognition of different pacific identities in delivery Māori/Pacific Disability Consumer Engagement Group

Training consumer to engage with consumers Māori/Pacific Disability Consumer Engagement Group

Irregular and erratic opportunities for consumers to collaborate

More regular engagement meetings/ opportunities


3. Equipment Management Services Presentation by Rachael Tatham (on behalf of Equipment Services Manager,

MoH)

1.Lengthy, convoluted process → long delays

2.Inability to readily view/ access trial equipment → poorly suited equipment (poor selection)

3.Inadequate ‘lifetime’ entitlements

4.Lack of holistic approach/ responsiveness to client needs (funding driven process)

5.Lack of availability of communication equipment/services


Equipment Management Services

Issues/feedback Recommendations

Long and convoluted process More timely and appropriate equipment

Limited equipment optionsLoan equipment more easily available. Loan instead of buy/ rent (Toy Library model). Loan instead of buy/ rent

Trial equipment not easily available Warehouse to trial equipment (better system for returns)

Lack of communication for deaf and people with speech impairment

Improved access to deaf communication aides (outpatients, emergency department etc).

Lack of communication for deaf and people with speech impairment

111 text service. SMS text communication

Deaf communication aides TTY/ Voice interface first appointments/ in hospital

Lifetime entitlement (Vehicle modification etc.) Review of entitlements to remove lifetime limit.


RecommendationsNeeds Assessment/ Service Coordination

1. Advocate for a common, shared, electronic disability assessment tool for use with all NASC’s & providers

2. Identify barriers to access of NASC services

3. Address the lack of culturally appropriate processes & staffing

4. Evaluation of service effectiveness for Māori & Pacific


RecommendationsConsumer Engagement

1. Improved & more regular consumer interaction with Māori and Pacific disabled communities

2. Establish Māori and Pacific Consumer Engagement Group to regularly liaise with CCDHB (service delivery & staff training)


RecommendationsEquipment Management Services

1. Improved communication equipment/ services for inpatients/outpatients with disability

2. Audit effectiveness of current service processes from client/ outcomes perspective

3. Improved access to trial equipment with selection of types and sizes available


Documents

Māori and Pacific Island Disabled Peoples Hui/Fono 2012 Report from the MPDF Organising Committee to Disability Support Advisory Committee of CCDHB & HVDHB