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Long Term Condition CYP
Audit Analysis 2016
Provider Trusts
Project Managed by: Laura Strawson
Prepared by: Jason Gladwin
Tweet us: @jgladwin2013 @nwcscnSenate
2
Audits included in this report
- Asthma
- Diabetes
- Epilepsy
- Transition
Quality of data
Data was collected from clinicians at each site who we identified as leads for each area and
so the data quality is of a good standard in this draft and is not completed yet. If you spot
any errors please let us know.
Providers who took part in the audits
Alder Hey Children's NHS Foundation Trust
Betsi Cadwaladr University Health Board
Countess of Chester NHS Foundation Trust
East Lancashire Hospitals NHS Trust
Mid Cheshire Hospitals NHS Foundation Trust
Lancashire Teaching Hospitals NHS Foundation Trust
Nobles Hospital, Isle of Man
University Hospitals of Morecambe Bay NHS Foundation Trust
Southport and Ormskirk Hospital NHS Trust
Wirral University Teaching Hospital NHS Foundation Trust
Warrington & Halton Hospitals Foundation NHS Trust
St Helens and Knowsley Teaching Hospitals NHS Trust
Stockport NHS Foundation Trust
East Cheshire NHS Trust
Blackpool Teaching Hospitals NHS Foundation Trust
3
Asthma Paediatric Audit
Asthma analysis section
Question 1a - Do you have a named clinical lead for paediatric asthma?
Question 1b - If yes, please indicate what this Asthma Clinical Lead role
entails. E.g. Training, re-design, audits etc.
20.00%
80.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
No Yes
Nu
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Response Answer
1aDo you have a named clinical lead for paediatric asthma ?
10.00%
90.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
Don’t Know Yes
Nu
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Response Answer
1bIf yes, please indicate what this Asthma Clinical Lead role entails. Eg Training, re-design, audits etc
4
Question 1c – Please provide their name(s) and email address(es)
Question 2a – Do you have a named Asthma nurse?
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
Yes
Nu
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Response Answer
1cPlease provide their name(s) and email address(es)
30.77%
69.23%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
No Yes
Nu
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Response Answer
2aDo you have named Asthma nurse?
5
Question 2b – Please provide their name(s) and email address(es)
Question 3a – Do you have a named Paediatric Physiotherapist?
22.22%
77.78%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
No Yes
Nu
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of
resp
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Response Answer
2bPlease provide their name(s) and email address(es)
46.67%
53.33%
42.00%
44.00%
46.00%
48.00%
50.00%
52.00%
54.00%
No Yes
Nu
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resp
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Response Answer
3aDo you have a named Paediatric Physiotherapist?
6
Question 3b – Please provide their name(s) and email address(es)
Question 4a – Do you have a named Paediatric Phycologist?
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
Yes
Nu
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of
resp
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Response Answer
3bPlease provide their name(s) and email address(es)
91.67%
8.33% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
No Yes
Nu
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resp
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Response Answer
4aDo you have a named Paediatric Phycologist?
7
Question 4b – Please provide their name(s) and email address(es)
Question 4c – Do you have regular MDT meetings/reviews to discuss difficult
asthma cases?
75.00%
25.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
No Yes
Nu
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of
resp
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Response Answer
4bPlease provide their name(s) and email address(es)
69.23%
30.77%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
No Yes
Nu
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Response Answer
4cDo you have regular MDT meetings/reviews to discuss difficult asthma cases?
8
Question 4d – In total how many full time equivalent posts do you have in your
service seeing children with asthma?
Question 5a - Do you have an Asthma Pathway?
14.29% 14.29%
71.43%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
Don’t Know No Yes
Nu
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Response Answer
4dIn total how many full time equivalent posts do you have in your service seeing children with asthma?
28.57%
71.43%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
No Yes
Nu
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resp
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Response Answer
5aDo you have an Asthma Pathway?
9
Question 5b - When was this Asthma pathway last reviewed/updated?
Question 6a - Do you have a 'difficult' Asthma clinic?
28.57%
71.43%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
No Yes
Nu
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resp
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Response Answer
5bWhen was this Asthma pathway last reviewed/updated?
80.00%
20.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
No Yes
Nu
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of
resp
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Response Answer
6aDo you have a 'difficult' Asthma clinic?
10
6b - if yes, who see's children with difficult Asthma cases?
Question 6c - Do you have a threshold for what/who goes into this 'difficult' clinic?
12.50% 12.50%
75.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
Don’t Know No Yes
Nu
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of
resp
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Response Answer
6bif yes, who see's children with difficult Asthma cases?
11.11%
66.67%
22.22%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
Don’t Know No Yes
Nu
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of
resp
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Response Answer
6cDo you have a threshold for what/who goes into this 'difficult' clinic?
11
Question 6d - Are all children with asthma provided with written guidance in the form
of a personal asthma action plan (PAAP) that details their own triggers and current
treatment?
Question 6e - Do all children accessing difficult clinics have a structured
annual/yearly review?
15.38% 15.38%
69.23%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
Don’t Know No Yes
Nu
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of
resp
on
ses
Response Answer
6dAre all children with asthma provided with written guidance in the form of a personal asthma action plan (PAAP) that details their own triggers and current
treatment?
88.89%
11.11% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
No Yes
Nu
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Response Answer
6eDo all children accessing difficult clinics have a structured annual/yearly review?
12
Question 6f - For children with difficult asthma due to non-clinical reasons e.g. social,
please describe these social determinants.
Question 6g - How many cases of children with difficult asthma did you have in
2015/16?
20.00%
80.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
Don’t Know No
Nu
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of
resp
on
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Response Answer
6fFor children with difficult asthma due to non clinical reasons e.g social, please describe these social determinants.
16.67%
33.33%
50.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
Don’t Know No Yes
Nu
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of
resp
on
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Response Answer
18Are you aware of any areas of best practice in Asthma services being delivered and/or developed by your organisation?
13
Question 7 - When treating children with Asthma what would be the reasons/triggers
for referring a child to Tertiary service?
Question 8a - Do you have an effective system in place to follow up children that have
been admitted to hospital for asthma?
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
Yes
Nu
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of
resp
on
ses
Response Answer
7When treating children with Asthma what would be the reasons/triggers for referring a child to Tertiary service?
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
Yes
Nu
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resp
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Response Answer
8aDo you have an effective system in place to follow up children that have been admitted to hospital for asthma?
14
Question 8b - If yes, what % are followed up (if known)?
Question 9a - Do you have an effective system in place to follow up children that have
attended A&E two or more times with an asthma attack in the last 12 months?
71.43%
28.57%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
Don’t Know Yes
Nu
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resp
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Response Answer
8b If yes, what % are followed up (if known)?
7.69%
61.54%
30.77%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
Don’t Know No Yes
Nu
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of
resp
on
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Response Answer
9aDo you have an effective system in place to follow up children that have attended A&E two or more times with an asthma attack in the last 12 months?
15
Question 9b - If yes, what % are followed up? (If known)
Question 10 - Do you have a rapid access clinic (within 48 hours)?
83.33%
16.67% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
Don’t Know No
Nu
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of
resp
on
ses
Response Answer
9b If yes, what % are followed up? (if known)
66.67%
33.33%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
No Yes
Nu
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of
resp
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Response Answer
10Do you have a rapid access clinic (within 48 hours)?
16
Question 11 - Do you consistently request follow up by GP for children that have
attended A&E once within a 12 month period?
Question 12 - Do children with asthma who present with an exacerbation of their
symptoms receive an objective measurement of severity at the time of presentation
7.69%
61.54%
30.77%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
Don’t Know No Yes
Nu
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of
resp
on
ses
Response Answer
11Do you consistently request follow up by GP for children that have attended A&E once within a 12 month period?
6.67%
93.33%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
No Yes
Nu
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of
resp
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Response Answer
12Do children with asthma who present with an exacerbation of their symptoms receive an objective measurement of severity at the time of presentation
17
Question 13 - For acute asthma cases steroid treatmentis provided within 1 hour of
presentation
Question 14 - Children admitted to hospital with an Acute Exacerbation of Asthma
have a Structured Review by a member of a Specialist* Respiratory team before
Discharge
20.00%
80.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
Don’t Know Yes
Nu
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resp
on
ses
Response Answer
13For acute asthma cases steroid treatmentis provided within 1 hour of presentation
60.00%
40.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
No Yes
Nu
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of
resp
on
ses
Response Answer
14Children admitted to hospital with an Acute Exacerbation of Asthma have a Structured Review by a member of a Specialist* Respiratory team before Discharge
18
Question 15 - Every child receives a diagnosis in accordance with BTS/SIGN
guidance
Question 16 - Children with asthma are given specific training and assessment in
inhaler technique before starting any new inhaler treatment
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
Yes
Nu
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Response Answer
15Every child receives a diagnosis in accordance with BTS/SIGN guidance
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
Yes
Nu
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of
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Response Answer
16Children with asthma are given specific training and assessment in inhaler technique before starting any new inhaler treatment
19
Question 17 - Do you have or contribute to structured local incident reviews where
asthma is considered to be the cause of death?
Question 18 - Are you aware of any areas of best practice in Asthma services being
delivered and/or developed by your organisation?
7.69%
30.77%
61.54%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
Don’t Know No Yes
Nu
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of
resp
on
ses
Response Answer
17Do you have or contribute to structured local incident reviews where asthma is considered to be the cause of death?
16.67%
33.33%
50.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
Don’t Know No Yes
Nu
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of
resp
on
ses
Response Answer
18Are you aware of any areas of best practice in Asthma services being delivered and/or developed by your organisation?
20
Asthma transition section
Question 1 - Do you have a structured Transition process/model/pathway/policy for
within your Trust?
Question 2 - How many cases of children with asthma required transition support to
adult services in 2015/16?
66.67%
33.33%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
No Yes
Nu
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of
resp
on
ses
Response Answer
1Do you have a structured Transition process/model/pathway/policy for within your Trust?
50.00% 50.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
Don’t Know Yes
Nu
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Response Answer
2How many cases of children with asthma required transition support to adult services in 2015/16?
21
Question 3 - How do you gather feedback from Young people, Parents and carers re:
their experience of transition?
Question 4 - How is data and information re quality and performance gathered. What
data is collected?
23.08%
61.54%
15.38% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
Don’t Know No Yes
Nu
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of
resp
on
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Response Answer
3How do you gather feedback from Young people, Parents and carers re: their experience of transition?
18.18%
72.73%
9.09% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
Don’t Know No Yes
Nu
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of
resp
on
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Response Answer
4How is data and information re quality and performance gathered. What data is collected?
22
Question 5 - How are the transition needs of young people identified?
Question 6 - Are the challenges and barriers in relation to transition?
25.00%
37.50% 37.50%
0.00%
5.00%
10.00%
15.00%
20.00%
25.00%
30.00%
35.00%
40.00%
Don’t Know No Yes
Nu
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Response Answer
5How are the transition needs of young people identified?
14.29%
57.14%
28.57%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
Don’t Know No Yes
Nu
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Response Answer
6What are the challenges and barriers in relation to transition?
23
Question 7 - How old are young people when transition process begins?
Question 8 - Do young people have a transition plan?
14.29% 28.57%
57.14%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
Don’t Know No Yes
Nu
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of
resp
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Response Answer
7How old are young people when transition process begins?
75.00%
25.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
No Yes
Nu
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on
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Response Answer
8Do young people have a transition plan?
24
Question 9 - Do you have a transition lead? Who?
Question 10 - Do Young People have a ‘Health Passport’ or other similar
documentation?
92.86%
7.14% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
No Yes
Nu
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of
resp
on
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Response Answer
9Do you have a transition lead? Who?
76.92%
23.08% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
No Yes
Nu
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on
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Response Answer
10Do Young People have a ‘Health Passport’ or other similar documentation?
25
Question 11 - Are young people allocated a key worker for transition?
Question 12 - Do you hold joint transition clinics?
7.14%
78.57%
14.29% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
Don’t Know No Yes
Nu
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of
resp
on
ses
Response Answer
11Are young people allocated a key worker for transition?
78.57%
21.43% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
No Yes
Nu
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on
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Response Answer
12Do you hold joint transition clinics?
26
Question 13 - Is work force development & Training in place for staff involved in
transition
Question 14 - Are there any plans for the future around transition?
92.86%
7.14% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
No Yes
Nu
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of
resp
on
ses
Response Answer
13Is work force development & Training in place for staff involved in transition
50.00% 50.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
No Yes
Nu
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Response Answer
14Are there any plans for the future around transition?
27
Diabetes Paediatric Audit
Diabetes analysis section
Question 1 - Do you have a Diabetes Pathway?
Question 1a - If yes, when was this Pathway last reviewed/updated?
92.31%
7.69% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
YES Yes
Answer Responses
1Do you have a Diabetes Pathway?
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
YES
Answer Responses
1aIf yes, when was this Pathway last reviewed/updated?
28
Question 2 - Do you have a named clinical lead for paediatric diabetes?
Question 2a - If yes, please indicate what this Diabetes Clinical Lead role entails. E.g.
Training, re-design, audits etc.
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
YES
Answer Responses
2Do you have a named clinical lead for paediatric diabetes ?
11.11%
88.89%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
DON’T KNOW YES
Answer Responses
2aIf yes, please indicate what this Diabetes Clinical Lead role entails. Eg Training, re-design, audits etc
29
Question 2b - Please provide their name(s) and email address(es)
Question 3 - Do you have a named Diabetes Nurse?
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
YES
Answer Responses
2bPlease provide their name(s) and email address(es)
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
YES
Answer Responses
3Do you have a named Diabetes Nurse?
30
Question 3a - If yes, please indicate what this Diabetes nurse role entails. Eg Training,
re-design, audits etc.
Question 3b - Please provide their name(s) and email address(es)
14.29%
85.71%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
NO YES
Answer Responses
3aIf yes, please indicate what this Diabetes nurse role entails. Eg Training, re-design, audits etc
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
YES
Answer Responses
3bPlease provide their name(s) and email address(es)
31
Question 4 - Do you work as part of a diabetes multi-disciplinary team?
Question 4a - If yes, please describe who is part of this MDT
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
YES
Answer Responses
4Do you work as part of a diabetes multi disciplinary team?
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
YES
Answer Responses
4aIf yes, please describe who is part of this MDT
32
Question 5 - Do all patients have a joint care plan which is co-produced with the
service user and their family?
Question 6 - Do you have a robust plan/policy in place to reduce 'disengagement ' and
DNA’s?
10.00%
90.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
NO YES
Answer Responses
5Do all patients have a joint care plan which is co produced with the service user and their family?
8.33%
91.67%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
NO YES
Answer Responses
6Do you have a robust plan/policy in place to reduce 'disengaement ' and DNA's?
33
Question 7 - Do you work alongside GP’s to emphasise the importance of their role in
monitoring attendance and signposting to other services?
Question 8 - Do you work alongside pharmacists to emphasise the importance of their
role in monitoring attendance and signposting to other services?
40.00% 60.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
NO YES
Answer Responses
7Do you work alongside GP's to emphasise the importance of their role in monitoring attendance and signposting to other services?
72.73%
27.27% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
NO YES
Answer Responses
8Do you work alongside pharmacists to emphasise the importance of their role in monitoring attendance and signposting to other services?
34
Question 9 - Do you work with local authorities to ensure all development and support
needs are recognised?
Question 10 - Does the diabetes transition care you deliver incorporate mental health
services?
9.09% 18.18%
72.73%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
DON’T KNOW NO YES
Answer Responses
9Do you work with local authorities to ensure all development and support needs are recognised
18.18%
81.82%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
NO YES
Answer Responses
10Does the diabetes transition care you deliver incorprate mental health services?
35
Question 11 - Are you aware of any areas of best practice in Diabetes services being
delivered and/or developed by your organisation?
Diabetes transition section
Question 1 - Do you have a structured Transition process/model/pathway/policy
within your Trust?
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
YES
Answer Responses
11Are you aware of any areas of best practice in Diabetes services being delivered and/or developed by your organisation?
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
YES
Answer Responses
1Do you have a structured Transition process/model/pathway/policy within your Trust?
36
Question 2 - How many cases of children with diabetes required transition support to
adult services in 2015/16?
Question 3 - How do you provide information that’s allows for things such as literacy,
physical/sensory needs/technology?
12.50% 12.50%
75.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
16 19 YES
Answer Responses
2How many cases of children with diabetes required transition support to adult services in 2015/16?
14.29% 14.29% 14.29%
57.14%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
Leaflets and newsletters NO We do not currentlyprovide written
information to pupils attransition.
YES
Answer Responses
3How do you provide information that’s allows for things such as literacy, physical/sensory needs/technology?
37
Question 4 - How do you gather feedback from Young people, Parents and carers re:
their experience of transition?
Question 5 - How is data and information re quality and performance gathered? What
data is collected?
12.50% 12.50% 12.50%
62.50%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
formal and informalfeedbacks. Planning to do
audits regularly
NO not currently done YES
Answer Responses
4How do you gather feedback from Young people, Parents and carers re: their experience of transition?
11.11% 11.11%
77.78%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
all the data on transition aremonitored through own database
Annual particiaption in the Nationalpaediatric Diabetes Audit (NPDA )
YES
Answer Responses
5How is data and information re quality and performance gathered. What data is collected?
38
Question 6 - How are the transition needs of young people identified?
Question 7 - What are the challenges and barriers in relation to transition?
12.50% 12.50%
75.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
YES
Answer Responses
6How are the transition needs of young people identified?
20.00% 20.00%
60.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
Lack of resources to do joint clinicswith paediatric and adult teams ;
Relucrtance of CYP & Parents/carersto move to adult services
Time and clinic space YES
Answer Responses
7What are the challenges and barriers in relation to transition?
39
Question 8 - How old are young people when transition process begins?
Question 9 - Do young people have a transition plan?
14.29% 14.29%
71.43%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
14 years 15-16 years YES
Answer Responses
8How old are young people when transition process begins?
9.09%
81.82%
9.09% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
NO YES yes. All patients are informed atdiagnosis. Plan is made which is
discussed at 14 years
Answer Responses
9Do young people have a transition plan?
40
Question 10 - Do you have a transition lead? Who?
Question 11 - Do Young People have a ‘Health Passport’ or other similar
documentation?
10.00% 20.00%
70.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
Key worker for the young person (Brenda Light & Jane Edmunds)
NO YES
Answer Responses
10Do you have a transition lead? Who?
10.00%
60.00%
30.00% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
Individualised care plan - updated inregular clinic letters; On Trust
electronic record and copied to CYP/Parents/carers and Primary care
providers (GPs)
NO YES
Answer Responses
11Do Young People have a ‘Health Passport’ or other similar documentation?
41
Question 12 - Are young people allocated a key worker for transition?
Question 13 - Do you hold joint transition clinics?
9.09% 9.09%
81.82%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
All patients have key worker fromdiagnosis, but no separate key
worker for transition
NO YES
Answer Responses
12Are young people allocated a key worker for transition?
9.09% 9.09%
81.82%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
DON’T KNOW NO YES
Answer Responses
13Do you hold joint transition clinics?
42
Question 14 - If yes, are these virtual clinics or in education/work settings to minimise
time and promote take up of transitions?
Question 15 - Following the joint clinic, is a risk management plan produced?
10.00%
60.00%
10.00% 20.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
Clinics are held inoutpatients which are
attended by Children andAdult MDT teams
NO not currently done YES
Answer Responses
14If yes, are these virtual clinics or in education/work settings to minimise time and promote take up of transitions?
16.67%
41.67%
8.33%
33.33%
0.00%
5.00%
10.00%
15.00%
20.00%
25.00%
30.00%
35.00%
40.00%
45.00%
DON’T KNOW NO not currently done YES
Answer Responses
15Following the joint clinic, is a risk management plan produced?
43
Question 16 - Is work force development & Training in place for staff involved in
transition?
Question 17 - Are there any plans for the future around transition?
10.00% 30.00%
60.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
General Diabetes training is doneby all memebers of the MDT; Not
specific for transition
NO YES
Answer Responses
16Is work force development & Training in place for staff involved in transition?
15.38%
84.62%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
NO YES
Answer Responses
17Are there any plans for the future around transition?
44
Epilepsy Paediatric Audit
Epilepsy analysis section
Question 1 - Do you have a named clinical lead for paediatric epilepsy ?
Question 2 - If yes, please indicate what this Epilepsy Clinical Lead role
entails. E.g. Training, re-design, audits etc.
21.43%
78.57%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
NO YES
Response answers
1Do you have a named clinical lead for paediatric epilepsy ?
12.50%
87.50%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
DON'T KNOW YES
Response answers
2If yes, please indicate what this Epilepsy Clinical Lead role entails. Eg Training, re-design, audits etc
45
Question 3 - Please provide their name(s) and email address(es)
Question 4 - Do you have a named Epilepsy Nurse?
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
YES
Response answers
3Please provide their name(s) and email address(es)
18.18%
81.82%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
NO YES
Response answers
4Do you have a named Epilepsy Nurse?
46
Question 5 - Please provide their name(s) and email address(es)
Question 6 - Do you have a trust wide pathway for management of paediatric
Epilepsy
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
YES
Response answers
5Please provide their name(s) and email address(es)
50.00% 50.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
NO YES
Response answers
6Do you have a trust wide pathway for management of paediatric Epilepsy
47
Question 7 - Does your current epilepsy service specification include the
following requirements? Please answer yes/no for each
No Data
Question 7a – Children and young people with epilepsy are seen by an
epilepsy specialist nurse who they can contact between scheduled reviews
Question 7b - Children and young people with a history of prolonged or
repeated seizures have an agreed written emergency care plan
28.57%
71.43%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
NO YES
Response answers
7aChildren and young people with epilepsy are seen by an epilepsy specialist nurse who
they can contact between scheduled reviews
7.69%
92.31%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
MOSTLY YES
Response answers
7bChildren and young people with a history of prolonged or repeated seizures have an
agreed written emergency care plan.
48
Question 7c - Children and young people who meet the criteria for referral to a
tertiary care specialist are seen within 4 weeks of referral
Questions 7d - Children and young people with epilepsy have a structured
review with a paediatric epilepsy specialist at least annually
8.33%
58.33%
16.67% 16.67%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
DON'T KNOW NO NOT ALL YES
Response answers
7cChildren and young people who meet the criteria for referral to a tertiary care specialist are seen within 4 weeks of referral.
8.33% 8.33% 8.33%
75.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
DON'T KNOW NO Some patients YES
Response answers
7dChildren and young people with epilepsy have a structured review with a paediatric
epilepsy specialist at least annually.
49
Questions 7e - Young people with epilepsy have an agreed transition period
during which their continuing epilepsy care is reviewed jointly by paediatric
and adult services
58.33%
41.67%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
NO YES
Response answers
7eYoung people with epilepsy have an agreed transition period during which their continuing epilepsy care is reviewed jointly by paediatric and adult services.
50
Question 1 - Do you have a structured Transition process/model/pathway/policy for
within your Trust?
Question 2 - How many cases of children with epilepsy required transition support to
adult services in 2015/16?
57.14%
42.86%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
NO YES
Response Answers
1Do you have a structured Transition process/model/pathway/policy for within your Trust?
35.71%
7.14%
57.14%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
DON'T KNOW NO YES
Response Answers
2How many cases of children with epilepsy required transition support to adult services in 2015/16?
51
Question 3 - How do you gather feedback from Young people, Parents and carers re:
their experience of transition?
Question 4 - How is data and information re quality and performance gathered. What
data is collected?
13.33%
53.33%
33.33%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
DON'T KNOW NO YES
Response Answers
3How do you gather feedback from Young people, Parents and carers re: their experience of transition?
28.57%
35.71% 35.71%
0.00%
5.00%
10.00%
15.00%
20.00%
25.00%
30.00%
35.00%
40.00%
DON'T KNOW NO YES
Response Answers
4How is data and information re quality and performance gathered. What data is collected?
52
Question 5 - How are the transition needs of young people identified?
Question 6 - What are the challenges and barriers in relation to transition?
21.43%
78.57%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
DON'T KNOW YES
Response Answers
5How are the transition needs of young people identified?
100.00%
0.00%
20.00%
40.00%
60.00%
80.00%
100.00%
120.00%
YES
Response Answers
6What are the challenges and barriers in relation to transition?
53
Question 7 - How old are young people when transition process begins?
Question 8 - Do young people have a transition plan?
7.14%
92.86%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
DON'T KNOW YES
Response Answers
7How old are young people when transition process begins?
53.33%
46.67%
42.00%
44.00%
46.00%
48.00%
50.00%
52.00%
54.00%
NO YES
Response Answers
8Do young people have a transition plan?
54
Question 9 - Do you have a transition lead? Who?
Question 10 - Do Young People have a ‘Health Passport’ or other similar
documentation?
80.00%
20.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
NO YES
Response Answers
9Do you have a transition lead? Who?
6.67% 13.33%
80.00%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
DON'T KNOW NO YES
Response Answers
10Do Young People have a ‘Health Passport’ or other similar documentation?
55
Question 11 - Are young people allocated a key worker for transition?
Question 12 - Do you hold joint transition clinics?
92.86%
7.14% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
100.00%
NO YES
Response Answers
11Are young people allocated a key worker for transition?
85.71%
14.29% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
90.00%
NO YES
Response Answers
12Do you hold joint transition clinics?
56
Question 13 - Is work force development & Training in place for staff involved in
transition
Question 14 - Are there any plans for the future around transition?
14.29%
71.43%
14.29% 0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
80.00%
DON'T KNOW NO YES
Response Answers
13Is work force development & Training in place for staff involved in transition
21.43% 14.29%
64.29%
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
DON'T KNOW NO YES
Response Answers
14Are there any plans for the future around transition?
57
Common questions within transition Asthma, Diabetes and
Epilepsy audits
Transition thematic analysis section
Question – Are there any plans around transition?
Question – Are young people allocated a key worker for transition?
50%
0%
50%
15%
0%
85%
14% 21%
64%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
AsthmaNo
Asthma Don’t Know
AsthmaYes
DiabetesNo
Diabetes Don’t Know
DiabetesYes
EpilepsyNo
Epilepsy Don’t Know
EpilepsyYes
Are there any plans for the future around transition?
DIABETES EPILEPSY ASTHMA
79%
7% 14% 10%
0%
90% 93%
0% 7% 0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
AsthmaNo
Asthma Don’t Know
AsthmaYes
DiabetesNo
Diabetes Don’t Know
DiabetesYes
EpilepsyNo
Epilepsy Don’t Know
EpilepsyYes
Are young people allocated a key worker for transition?
DIABETES EPILEPSY ASTHMA
58
Question – Do you have a structured Transition process/model/pathway/policy
for within your Trust?
Question – Do you have a transition lead? Who?
59
Question – Do you hold joint transition clinics?
Do Young People have a ‘Health Passport’ or other similar documentation?
60
Do young people have a transition plan?
Following the joint clinic, is a risk management plan produced?
61
How are the transition needs of young people identified?
How are the transition needs of young people identified?
62
How do you provide information that’s allows for things such as literacy,
physical/sensory needs/technology?
How is data and information re quality and performance gathered. What data
is collected?
63
How many cases of children with asthma required transition support to adult
services in 2015/16?
How many cases of children with diabetes required transition support to adult
services in 2015/16?
64
How many cases of children with epilepsy required transition support to adult
services in 2015/16?
How old are young people when transition process begins?
65
If yes, are these virtual clinics or in education/work settings to minimise time
and promote take up of transitions?
Is work force development & Training in place for staff involved in transition?
66
What are the challenges and barriers in relation to transition?
End of report
