Living with and Beyond Cancer in London Cancer

Charlotte Williams Director of Integrated Cancer, UCLPartners

26 March 2013

London Cancer is the Cancer Programme at UCLPartners

• Academic Health Science Centre (AHSC)

• Academic Health Science Network (AHSN)

• NIHR CLAHRC (Collaboration for Leadership in Applied Health Research and Care)

• UCLP Education

Our Objectives

• To increase one year survival for patients in North Central & North East

London and West Essex by improving earlier diagnosis, to reduce deaths

by 200 per year from 2015/16.

• Improve patient experience by delivering 90% positive level of

response on 10 areas most important to patients on the annual

Cancer Patient Survey in 2015, with annual improvement.

• Give patients access to innovation by increasing participation in

clinical trials to 33% enrolment over 3 years

Where are our cancer patients on their pathway?

Maher & McConnell, Macmillan Cancer Support, Quantifying new pathways of care for cancer survivors (2008)

Patients are diagnosed at an earlier stage

Ethos – Patients are treated holistically as individuals, and with dignity, sensitivity and respect so patients do not feel they are treated as a set of cancer symptoms

Communication – written and verbal information about diagnosis, all treatment options including side effects and quality of life implications

Choice - patients /carers fully involved in choice of hospital and treatment options

Support – information provided on support groups, benefits entitlement, offered emotional/psychosocial support

Carers- fully involved and supported throughout pathway

Holistic assessment at appropriate stages throughout the pathway, with action as a result to meet their needs

Seamless care – all patients assigned a CNS when diagnosed and community keyworker on discharge

Transport – travel when necessary, appropriate arrangements made for immune-suppressed patients; patients provided with free parking or transport vouchers

Discharge – patient and GP provided with discharge information and follow up advice

What matters most to our patients?

LWBC as a priority in London Cancer

- “Survivorship” a key work stream for London Cancer since our first

working groups in early 2011

- Key priority in improving those things that matter most to patients,

patient experience and ‘value’ in the cancer pathway

- A high commissioning priority due to the increasing number of

survivors

LWBC as a priority in London Cancer

- Focusing on tangible impacts for most patients:

• Embed holistic needs assessments within all pathways

• Embed treatment summaries within all pathways

• Integrate rehabilitation into all pathways

• Improve access to lymphoedema services

A strategic partnership with Macmillan

There is a defined and agreed sustainable model for survivorship built

into all pathways that are prioritised for redesign in the London Cancer

integrated System

Significant investment in project management, events and supporting

the development of the Living With and Beyond Cancer community

formally in the ICS

London Cancer Board

Chair: Pelham Allen, CMO: Kathy Pritchard-Jones NEDs: (Tony Brzezicki (GP) Tim Walls (MD, Newcastle) Elizabeth Benns (ICPV charity) Emma Ream (Prof. Nursing) Charlotte Williams (Director UCLP) David Colin-Thome (GP)

Nigel Marchbank (MD, Brighton)

UCLP Executives Group Joint Development Group

Expert Reference Groups

• Cancer Partnership Groups

• Network Acute Oncology A. Tookman, RFH E. Boleti, RFH

• Chemotherapy C. Gallagher, Barts Health

• Nursing J. Douglas, BHRT

• Primary Care & Prevention

• Psychosocial Support M Barrington, Barts Health

• Radiotherapy K. Piggott, RFH C. Cottrill, Barts Health

Education, Training and Workforce

TBC

Research Implementation

Nick Lemoine, Barts Health

Clinical Information Astrid Mayer,

RFH

Living With and Beyond Cancer Sharon Cavanagh

Earlier Diagnosis

TBC

Cancer Pathway Boards

• Brain & Spine: A. Elsmore, Barts & J. Rees, UCLH

• Breast: R. Roylance, Barts Health

• Colorectal: M. Machesney, Barts Health

• Gynaecology: T. Mould, UCLH

• Haematology: K. Ardeshna, UCLH

• Head & Neck: S. Whitley, Barts Health & PAH

• Lung: S. Janes, UCLH

• Skin: D. Chao, RFH

• Upper GI (OG): D. Khoo, BHRT & M. Mughal, UCLH

• Upper GI (HPB): A. Millar, NMUH

• Urology: J Hines, Barts Health

Subgroups Workstreams

Specialist Boards

•Children and Young People: D. Hargrave, GOSH

R. Hough, UCLH

(pan-North Thames)

•Sarcoma:

J. Whelan, UCLH

A Hayes, RMH

(pan-London & South East)

London Cancer Medical Directors’ Forum

London Cancer Operational Leads’ Group

• Psychosocial Support M Barrington, Barts Health

Some things we have done

- Created a Living With and Beyond Cancer Board

- Worked closely with London Cancer Alliance to agree standard HNA

- 4 organisations to pilot e-HNA

- Facilitated children’s cancer project on behalf of NCSI across

London and the South East

You will hear much more this afternoon….

Thank you for coming today

Charlotte Williams

Director of Integrated Cancer, UCLPartners

charlotte.williams@londoncancer.org;

Tel: 02031082346

www.londoncancer.org