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Arnau Valls
Innovation Departament, Hospital Sant Joan de Déu
05/07/2018
Liquid Hospital Project: The experience in the integration of data from different origins in a hospital cloud platform
1
The strategy of the HSJD. Reference center 2
Change in the habits of the reference population
Why?
Democratization of technology 3
Information and Communication
78% of Spanish adolescents use social networks 66% at least one once a day
Professionals ask for data
[Clinical Data: Patient Care + Research]
Patient-specific Care (Precision medicine): Stratification
Patient-Reported Data for Continuum of Care (Chronicity)
Treatment based on the “Outcomes”
PROMs, PREMs,…
Democratization of technology
2015: Illumina $1000 human genome
http://www.gosreports.com/gene-sequencing-market-analysis-and-development/
Consulta online
Tele-consulta
Tele-rehabilitación
Tele-monitorización
Segunda opinión
Portal del Paciente
Servicios
ReToc (RetCam)
A B
E-Health Learning
C
Online
Communities
D
Social
Media
Online Care
Tele-Medicine Ideas
E-learning
202.756 contactos virtuales
diarios
Digital Contact Points
In Person Contact Points
Multipling the impact
by 100
Liquid Hospital To go beyond the walls of the hospital
Simplification Complex digital and data ecosystem
Liquid Hospital 4.0 FEDER-RIS3CAT 2016-2019
1
2
Model of attention and provision of services that ensures multi-channel: CRM – Contact Center – COACH NEW Patient Portal Health Literacy
Create value from the data: • Health Data Management (HDM)
“FRONT-OFFICE”
“BACK-OFFICE”
PROMs PREMs ‘O M I C S Brain Genética I
‘OMICS
PACIENTE
HCE HOSPITAL
Big Data & Predictive Analytics
BB.DD.
"Past / Present" “Present / Future”
Radiología
Medical Devices
Anatomía Patológica
Redes Sociales
Nutrición
Internet of Things
Wearables
Webs temáticas / Comunidad
es online
Apps
Investigación biomédica
Clinical
Biological
HSJD
Clinical
Biological
EXTERNAL
Machines
Social Cuestionarios
online (web/app)
Farma. Lab.
I Genética
PROMs PREMs ‘O M I C S Brain Genética I
‘OMICS
Big Data & Predictive Analytics
"Past / Present" “Present / Future”
Radiología
Medical Devices
Anatomía Patológica
Redes Sociales
Nutrición
Internet of Things
Wearables
Webs temáticas / Comunidad
es online
Apps
Investigación biomédica
Clinical
Biological
HSJD
Clinical
Biological
EXTERNAL
Machines
Social Cuestionarios
online (web/app)
Farma. Lab.
I Genética
HDM
PACIENTE
HCE HOSPITAL
BB.DD.
HL4.0
BI
DWH
HDM
DataLake
Management Control Healthcare Processes
(KPI, Outcomes, Scores, Operations Control…)
Predictive Analytics Data Discovery
Research (Rules of clinical support, Data
science, DSS)
HL4.0 – HDM Cloud-based Data Lake for Clinial Decision Support
Research (Internal)
Data Analysis and Exploration
DIABETES
Prediction of crises (hypoglycemic events)
Clinical Decision Support System
360º view of the patient
OBESITY
Datasets Heterogeneous
- Standards - Terminologies - Diccionari
Interoperability - Lack of APIs - Little homogeneity
Silos - Many origins - Data in non-integrated
databases
Fear of sharing data
- Governance - Traceability - Security - Ethics
Co-existence of Codings
Onthologias
- SNOMED CT - ICD10-2018 / CIE09 - ORPHA - …
Fear of change - Cloud Infrastructure - GDPR
Barriers
Barriers
• Dispersion in Data Silos
• Dependencies with multiple stakeholders
• Lack of APIs and Standards
Interoperability and Integration
Data Sharing: How do we give patients the tools and information to manage their data? For Research… Within Institutions… Security, Standardization, Interoperability, Traceability,…
Challenges