Designer labels for jeans for genes Day

Taylor, aged 5, has Cockayne Syndrome

Fundraising Guide

Friday5th October2012

Let’s raise

in 2012

Kindly sponsored by

We’re so happy to have you on board for Jeans for Genes Day 2012. Together, we’re going to make it better than ever.

Publicising your eventThe more people you tell about the great things you’re planning, the more people will join in and donate. Spread the word by talking about it, sending emails, updating your work website, tweeting and using Facebook. Don’t forget your local papers, TV and radio too – they’d love to hear from you. You’ll find posters, press releases, email templates as well as inspirational films and stories of the children we help at www.jeansforgenesday.org to get the ball rolling.

Raising money, having funAsking people to wear jeans and donate is just the start of it. Think about making more of your day by adding in unusual jeans activities – what about wearing double denim, holding a fashion show or organising a blue cake sale. Head to our website for more fundraising ideas.

Making your donationOnce you’ve done all the hard work and had a great day, don’t forget to pay in your donation, so your efforts can be put to the very best use. We’ve provided a collections box and giro slip for gathering and paying in your donations – but for other ways to donate, go to www.jeansforgenesday.org/donate. And don’t forget to ask every individual ADULT supporter to fill in the gift aid form, to make your workplace donation worth 25% extra at no cost to you!

Organising your own Jeans for Genes Day couldn’t be easier. This guide will help you get started, plus www.jeansforgenesday.org is packed full of tips and ideas to make sure that on Friday 5th October 2012 everyone you know is pulling on their jeans, digging deep and making a difference for children across the UK living with genetic disorders.

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Looking for extra Jeans for Genes Day inspiration? Try these eans ideas on for size…

WorkIf you already wear jeans or can’t wear jeans to work, why not appeal to the sweetoothed in your office with a denim-themed bake sale? Think jeans-clad gingerbread men, denim doughnuts or blueberry muffins.

SchoolsRamp up the fundraising potential from day into night, with a sponsored denim disco or an in-your-jeans class sleepover.

NurseriesGet the parents involved, with a sponsored mums’ and dads’ denim dash. A bit of healthy jeans–clad competition is sure to see the pounds rolling in.

Check out www. eansforgenesday.org for more fundraising inspiration

By signing up to Jeans for Genes Day you’re doing something amazing. Here’s just a handful of the things that your money could do…

pays for an hour of specialist telephone advice for parents caring for children with severe neurological genetic conditions.

pays for a mother to attend a support day, where she’ll get the advice and guidance she needs to care for her disabled child.

pays for a child carer to enjoy a summer camp, where they’ll meet others in a similar situation and have some much-needed fun.

goes towards creating a website where children affected with genetic disorders can get confidential information and support.

pays for five families affected by profound disabilities to enjoy an adaptive sports session, where they can build confidence and friendships with others in similar situations.

will help fund a film for teenagers with a life limiting condition encouraging them to come to terms with, and begin to take responsibility for, their condition.

Your fundraising will pay for the support and care that individual children need to really make their lives better. Children like Millie.

Five-year-old Millie is a popular, joyful girl. She likes drawing and being outside. The children on her street all love her: “She rides alongside them and feels very included,” her mum, Patsy, explains. But Millie has a rare genetic disorder that makes her different from other five year olds. Affecting just one in 25,000 children, Millie was born with Prader-Willi Syndrome (PWS), a condition that causes learning difficulties, motor skill problems and a vigorous appetite. Millie is in a wheelchair, communicates through sign language and always feels hungry.

Patsy wants Millie’s future to be happy and longs for the day when the growth hormones Millie is taking make her strong enough to walk. “I’d love to hold her hand and walk with her up the street,” she says.

Running your Jeans for Genes Day will make a difference for families like Millie’s, making it possible for Millie to meet other children living with PWS and enabling Patsy to talk to experts about the latest treatments for her child’s condition.

You’ll help children like Mi ie

Before the DayPlan it out – Will you organise extra fundraising activities? Who’s going to help you? Get a team together and get cracking.

Put up posters – you can download and create even more posters and stickers from our website.

Send emails – email all your colleagues letting them know that you’re holding a Jeans for Genes Day on Friday 5th October 2012 and encourage them to get involved. If you can’t make Friday 5th October, don’t worry, you can hold your Jeans for Genes Day any time.

Tell your local media – send out a press release to local papers, radio and TV letting them know you’re holding a Day. Templates can be found on our website.

Tweet it – use your social media channels to spread the word or even set up a dedicated Twitter or Facebook account for your Jeans for Genes Day activity – and don’t forget to follow us too!

Be prepared – collect a supply of money bags from any high street bank.

On the DayEnjoy yourself – Jeans for Genes Day is all about having fun, so encourage people to get into the spirit.

Collect and give – invite people to make donations in your ready-made collections box, fill in the gift aid form (adults only) and dish out stickers to say thank you.

Keep it safe – store your money bags safely ready to take to any high street bank or building society with your giro slip.

After the DayRound up the stragglers – collect late payments and funds raised from additional activities.

Make the donation – organise payment of your donation. You can use the giro slip included in this pack or check out www.jeansforgenesday.org/donate to find out what works best for you.

Be proud – display your Thank You certificate for everyone to see and be proud of the difference you’ve made for thousands of children with genetic disorders across the UK.

From putting up posters and rallying support to setting a target and beating it, we’ve made sure there’s all sorts of advice online so your Day goes smoothly. Here’s a handy checklist to help you get your Jeans for Genes Day started…

“Our pupils love wearing eans – and finding out about the children they are raising money for

makes all the difference. Smiles all round!”

Felicity Mayrs, Science Teacher, Dartford Grammar School

Thank you for being part of Jeans for Genes Day 2012. We couldn’t do it without you.

Jeans for Genes ® and ™ © 2012 Genetic Disorders UK. All rights reserved. Registered Charity Number: 1141583. J4G127