Learn the Signs.

Act Early.

Marilyn Hartzell, MEd – OCCYSHN Director

Caryn Fiedler, MPP – Project ConsultantOregon Center for Children and Youth with Special Health Needs

AMCHP Act Early Technical Assistance CallState Roadmaps to Services

May 5, 2011

Oregon Commission on Autism Spectrum Disorder (OCASD)

• Report to the Governor December 2010• Recommends Navigation Map• Primary focus of the Community

Services for Children and Families Subcommittee in 2011

• Project intent is to give families a navigation tool at the moment of an ASD identification regardless of which system they enter first (medical, educational or developmental disabilities)

Project Details

• Workgroup = subset of the Community Services for Children and Families Subcommittee– Oregon Department of Health Services– Autism Society of Oregon– Families– Oregon Technical Assistance Corporation– Providers– County Health Department– Mental Health

• Starting point– Review and analysis of navigation tools from across the country– Survey of families across Oregon

Key Content Concepts

• Birth to 8 years old• Regionalized• First few months after an ASD is identified• Families enter through different systems

– Medical– Educational– Developmental Disabilities

• Acknowledgement that families feel overwhelmed

Next Steps

• Four focus groups with families around the state

• Two pilot sites with providers and families in a clinical setting

• Implementation of a dissemination and sustainability plan