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Larimer Loop Winter 2013
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FIFTH ANNUAL
“FLYING PIG 5K CHARITY
RUN/WALK”
To benefit
The Family Support Services Program
Foothills Gateway, Inc.
When: Sunday, April 14th, 2013 – 8:30 a.m.
Where: Spring Canyon Park, Fort Collins, CO
2626 W. Horsetooth Rd. Ft. Collins, CO
~CERTIFIED COURSE~ Pre-Qualifier for
Bolder-Boulder
Registration: $25.00 Fee ($30.00 day of event) - Includes tee shirt
and “pigs in a blanket” pancake breakfast.
Pancake breakfast ONLY tickets available at
Event $5.00
“PIGLET WALK” FREE FOR CHILDREN under age 10
Begins at 9:30 AM
Registration forms available at:
Altitude Running
150 E. Harmony Unit 2C
Ft.Collins, CO (970.377.8005)
Runners Roost
2720 Council Tree Ave. Ste. 112
Ft. Collins, CO (970.224.9114)
www.foothillsgateway.org, www.active.com
www.runningguru.com or call
Pam Miller @
970.266.5409
Winter 2013
What’s inside the
Loop
Day at the Capitol
Page 2
Discovery Club
Page 2
Respitality
Page 3
FSSP Staff
Page 3
Support Groups
Page 4
Online Resources
and Support
Page 5
Bulletin Board
Page 6
What is a
Medical Home
Team?
Page 7
HCP Staff
Page 7
Who’s Who at the
Loop
Page 8
5K Run/Walk
Registration Form
Insert
Page 2
For Individuals with Developmental Disabilities
Wednesday, February 20, 2013 Please join us, our member Community Centered Boards and Service Provider Organizations, people
receiving services and their families for lunch at the Denver Art Museum. Learn about the role of the
community and its’ impact on individuals with developmental disabilities.
Awareness Day Agenda
9:00am: One individual with developmental disabilities will lead the Pledge of Allegiance in the House and Senate Chambers
of the State Capitol.
9:15 am-12:00 pm: Attendees will have the opportunity to witness the reading of a resolution declaring February 20,2013 Disa-
bility Awareness Day and to listen to legislators personal stories. This will take place in both chambers consecutively. At-
tendees will also have the opportunity to tour the capitol building on their own.
12:00pm: Lunch and special guest presentation at the Denver Art Museum, North Building, Ponti Hall, 100 W 14th Ave Pkwy,
Denver, CO.
For more information on this event or carpooling opportunities please contact:
April Rikhoff
Community Outreach Coordinator
Foothills Gateway Inc
970 266-5379
What does fun, planned breaks from caregiving
(respite) and pediatric clinical hours for nursing
students have in common? Discovery Club!
By: Katie Dockery
Easter Seals of Colorado
Discovery Club is six hours of respite structured for children ages 6-18. ALL abilities welcome, including
children with mild, moderate, severe and/or complex behavioral, medical, and cognitive challenges; AND
their siblings. All needs of the children are met during this time including feeding, toileting, socialization,
transfers, assistance with engagement in program activities, and assistance with interactions. The key to
Discovery Club's success are the over 724 student nurses who provide 1:1 support while earning required
clinical hours from this community based setting. There are 6 sites in the Denver Metro, Boulder and Fort
Collins areas for any Discovery Club member to attend. There is a $30 registration fee and we ask that all
forms be submitted prior to attendance. Six hours of affordable, planned respite is hard to find at $30 per
session ($25 each for 2+ children from the same family.) Financial assistance is available. Check out our
website for forms, schedules and more information at www.eastersealscolorado.org.
Call for reservations 303-233-1666 x237.
Page 3
Foothills Gateway Inc.
Children’s Case Management
Coordinator/Part C Coordinator
Sondra Lee
(970) 266-5424
Children’s Case Managers
Malori Webb
970) 266-5422
Kodi Johnson
(970) 266-5426
Billy Hurst
(970) 266-5395
Pam Miller
(970) 266-5409
Sarah Varble
(970)266-5437
Stacie Seim
266-5418
Matt Cloven
266-5445
Christie Sebesta
266-5411
Amy Wulbecker
266-5394
Joan Sugarman
266-5439
Amy Schneider
266-5425
Laura Veradt
266-5453
Family Support Services
Program Council Members
Trista “Tree” Roecker
(Parent)-Chairperson
Gayle Timm (Parent, Co-Chair)
Kate Eleanor (Parent)
Miriam Lapp
(Individual receiving services)
BrendaTuttle
(Community Member)
Kim Walkenhorst
(LCDHE –Healthy Communities)
Debbie Lapp
(Foothills Gateway Inc.)
Sondra Lee
(Foothills Gateway Inc.)
RESPITALITY! A collaborative effort of the Foothills Gateway, Inc. Family Support Services
Program Council and Respite Care, Inc.
WHAT: A night of FREE childcare for children (up to age 21) in the Family Sup-
port Services Program (or on the waiting list for the Family Support Services
Program), and their siblings (up to the age of 12). Children will enjoy an after-
noon or evening of FUN FILLED ACTIVITIES, while parents enjoy a break in
care giving.
WHEN:
Saturday Feb. 16th, 2013, 6-10 PM
Saturday Mar. 2nd, 2013, 6-10 PM
Saturday, Mar. 30th, 2013, 1-5 PM
Saturday Apr. 6th, 2013, 6-10 PM
Saturday May 4th, 2013, 1-5 PM
WHERE: Respitality will be held at:
Respite Care
6203 S. Lemay Avenue
Fort Collins, CO 80525
Please call Natalia @ (970) 207-9435 with any questions or to make a
reservation. We’ll do our best to sign you up for your first choice Respitality
date, and add you to the wait list for any other dates you may be interested in.
Every child who attends will be paired one-on-one with a volunteer buddy for
the entire afternoon or evening who will help them complete each activity;
each group will be led by a highly trained Respite Care staff member.
No medications will be given during Respitality events.
An interactive snack will be served during each Respitality. Full meals are not
provided .
Page 4
Support Groups
Grandparents Raising
Grandchildren Support Group
Loveland Support Group
Meets the 4th Monday of every
month, 6pm-8pm
Lifespring Covenant Church,
743 S. Dotsero
Loveland, CO
Fort Collins Support Group
Meets the 2nd Tuesday of
each month, 6:00 - 8:00 pm
Foothills Gateway Inc.
301 W Skyway Dr
Fort Collins, CO
Daycare provided at both
groups.
For more information, contact
Craig Callan
(970) 669-7550 or
(970) 290-1624
Larimer County
Epilepsy Support Group
Provides support for people
with epilepsy, their family and
community members.
For further information contact
Amanda Jaksha
Parents of Asthmatic &
Allergic Children
Meetings quarterly-call for
dates and times
Cindy Coopersmith
(970) 495-8153
You Are Not Alone
A support group for families of
children with special needs.
Sponsored by Larimer County
Autism Society
Call for meeting dates and
time: (970) 377-9640
Northern Colorado Circle of
Friends Community Group for
families of children with Down
Syndrome ages 5 to 12 who
live in the Greeley, Windsor,
Ft. Collins, Loveland, Estes
Park, Red Feather Lakes,
Wellington and Berthoud
areas. For more information,
contact Bernie Connell (970)
221-3758 or send an email to
circle.of.friends.mhdsa@gmail.
com
A-Team
Autism/ Asperger’s
Parent/Community Group and
Parent Night Out
Provides advocacy and
mentorship to Thompson
School District families of
students on the Asperger’s and
Autism Spectrum Disorder.
Child care available for all
meetings. All meetings held at
800 S. Taft Ave. (District
Administration Bldg.) unless
otherwise noted.
Upcoming meetings :
February 21 -- 6:00 - 8:00pm
March 15 -- 6:00 - 9:00pm
(Parent Night Out)
March 21 -- 6:00 - 8:00pm
April 18 -- 6:00 - 8:00pm
May 4 -- 1:00 - 3:00pm (End of
the Year Potluck)--Park TBA.
May 16 -- 6:00 - 8:00pm
For Further information please
contact: Cecilia Gasner
Autism Specialist
Exceptional Student Services
(970) 613-6771
co.us
Moms” Night Out
Support and friendship for
Northern Colorado Mothers of
Children with and without
special needs.
Meets the last Wednesday of
each month 7-9pm
Locations vary.
Please contact :Brenda Tuttle
(970) 267-8705 or email
Upcoming dates and locations
are:
February 27, 2013
Bisetti’s Italian Restaruant
120 S College Ave
Fort Collins, CO 80524
March 27, 2013
El Monte Grill & Lounge
1611 S College Ave, Suite 100
Fort Collins, Co 80525
April 24, 2013
Jax Fish House & Oyster Bar
123 N College Ave
Fort Collins, Co
Poudre School District Special
Education Advisory Committee
SEAC is comprised of teachers,
school staff, service providers
(occupational and speech
therapists, psychologists, etc),
community members and
parents who advocate for
quality special education in
Poudre School District.
Meetings are the 3rd
Wednesday of the month
6:30 - 8:00 pm
Riffenburgh Elementary
1320 E. Stuart Street
Fort Collins, CO 80525
For further information contact:
Becki Austin
(970) 490-3225 or
D.I.S.H Dietary Intervention
Support and Hope
Provides personal one on one
FREE consultations and
individual meetings. These
services are open to anyone
who is inquiring, starting out or
is a veteran of the gluten-free,
casein-free diet and biomedical
interventions.
Contact: Phyllis Zimmerman
(970) 206-4979
Email: dzerman2@yahoo.
BeauJo ‘s Family Pizza Night
1st Wednesday of the month
530- 7pm
100 N College Ave
Fort Collins, CO 80524
PH: 970-498-8898
A support group for families of
children with special needs.
Sponsored by Larimer County
Autism Society
970 377-9640
More than a BUMP on the
HEAD…If you or someone you
care about is dealing with brain
injury, you do not have to do it
ALONE!
TBI CONNECTIONS support
group in Northern Colorado,
invites you to join us.
Meets 2nd & 4th Tuesday of
the month
Westbridge Medical
Suites –Conference Center
1107 S. Lemay Ave.
Fort Collins, CO 80524
For more information please
contact
Arla (970) 310-4495
Special Online Support for
Parents of Special Kids is a
list serve for parents who
reside in Northern Colorado.
To join email
or contact
Brenda Tuttle at
(970) 498-6752.
www.p2p-co.org
Parent-to-Parent of Colorado
We are a non-profit organization
committed to quality Parent to
Parent support across Colorado.
We offer encouragement to each
other on the journey of parenting
our sons and daughters with
disabilities or special health care
needs. We do this by providing
emotional and informational
support, resources and by
matching parents seeking sup-
port with a support parent.
www.peakparent.org
PEAK Parent Center .
800-284-0251
The mission of PEAK Parent
Center is to provide training,
information and technical
assistance to equip families of
children birth through twenty-six,
including all disability conditions,
with strategies to advocate suc-
cessfully for their children. As a
result of PEAK’s services to fami-
lies and professionals, children
and adults with disabilities will
live rich, active lives participat-
ing as full members of their
schools and communities.
www.arclc.org
The Arc of Larimer County
advocates for all individuals who
have developmental disabilities
to have opportunities and choic-
es for inclusion and
involvement in all aspects of life
within our communities.
www.autismcolorado.org
Autism Society of Colorado
Our mission is to promote the
quality of life for people with
autism spectrum disorders and
their families.
FortCollinsAspergers_Austim@yahoo
groups.com A group for parents, caretakers,
teachers, of children on the
autism spectrum to share infor-
mation in the Larimer County,
Northeastern Colorado areas.
www.uchsc.edu/atp
Assistive Technology Partners
800-255-3477
Device exchange program, data
base of potential AT funding
resources. Make and Take di-
rections on various low cost AT
adaptations and devices. Com-
munity based demonstrations,
annual conference
www.ccdconline.org
Colorado Cross Disability
Coalition
(303) 839-1775
Information and assistance on
disability rights issues for youth
and adults. Advances legislation
and public policy impacting the
disability community
www.cde.state.co.us/index_spec
ial.htm
Colorado Department of
Education-Exceptional Student
Leadership Unit
(303) 866-6694
Website resources on special
education law/school/district
programs etc. FAST FACTS on a
variety of topics. Information on
educational specialists, parent-
professional partnerships
www.citizensforpatientsafety.org
Citizens for Patient Safety
(303) 226-5526
Patient safety information and
referral. Advocacy training for
those who have family members
in the hospital. Support for
families/individuals dealing with
legal issues in the medical
system
www.cdhs.state.co.us/ddd
Division for Developmental
Disabilities
(303) 866-7450
Provides various services to
individuals with developmental
disabilities. Administers children
and family program, adult pro-
grams. Information on CCBS
(Community Centered Boards)
www.eastersealscolorado.org
Easter Seals Colorado
(303)233-1666 x237
Respite, including Discovery
Club, weekend programs and
summer camp. Warm water
therapy and aquatic programs.
Employment services/support,
transition trainings, transporta-
tion assessments.
www.eicolorado.org
Early Intervention Colorado
888-777-4041
Connects families with early
intervention services to help
infants and toddlers under age
three grow and develop as well
as help their families in the pro-
cess
www.elgrupovida.org
El Grupo Vida
(303) 904-6073
Information, referrals and sup-
port groups for Spanish speak-
ing families of children with spe-
cial needs. Annual free confer-
ence.
www.empowercolorado.com
Support, education, advocacy for
families of children/youth with
mental health issues. Support
groups throughout the state.
Statewide listserve
www.familyvoicesco.org
Advocacy for children with
special health care needs. As-
sists families in navigating
health systems including Medi-
caid, Medicaid waivers and pri-
vate insurance
www.guardianshipallianceof
colorado.org
Guardianship Alliance
of Colorado
(303) 228-5382
Information and referral on
guardianship, including
volunteer guardianship matching
program. Information and train-
ing for those wishing to become
a guardian for a family member
who is 18 yrs or older.
www.cde.state.co.us/cdesped/P
EP.asp
Parents Encouraging Parents
(303) 866-6846
Free conference including
lodging and meals, held twice
per year at various statewide
location (apply early as waiting
lists occur frequently). Brings
together parents and profession-
al for education on supporting
your child in school and
the community
www.thelegalcenter.org
The Legal Center for People with
Disabilities and Older People
800-288-1376
Advice on the legal rights of
people with disabilities.
Publishes: “Everyday Guide to
Special Education Law”
DS-Autism Connection - Offered
in collaboration with the Denver
Adult Down Syndrome Clinic
(DADSC) and the Autism Society
of Colorado (ASC).
Focus: Providing support,
education, resources and
inspiration to families, health
care providers, teachers and
community support persons who
provide care and services to
individuals with Down syndrome
and autism/complex behaviors.
Interested? Please email rob-
[email protected] to learn
how to join our listserve and to
receive updates on this new
initiative. Please email familypro-
[email protected] to be invited
to join our new listserv for fami-
lies and providers (All ages)
Online
Resources and
Support
Page 5
BULLETIN BOARD In Partnership with the Autism
Society, AMC Cinema Saver 6
is Offering Sensory Friendly
Films to Families Affected by
Autism on a Monthly Basis
here in Larimer County.
The program provides a special
opportunity for families to
enjoy their favorite films in a
safe and accepting
environment. The auditoriums
dedicated to the program have
their lights up, the sound
turned down and audience
members are invited to get up
and dance, walk, shout or sing!
For further Information contact
AMC Cinema Saver 6
2525 Worthington Cir
Fort Collins, CO 80526
888-AMC-4FUN
2013 Parents Encouraging
Parents (PEP) Conferences
Parents Encouraging Parents
(PEP) Conferences are
family-centered events
designed to offer support,
information and education to
both parents and professionals
who work with children with
disabilities across Colorado.
PEP promotes the partnerships
between parents and
professionals that are
essential in supporting and
including children with
disabilities in schools and
communities.
2013 PEP Conferences will be
held:
February 28 – March 2, 2013
Estes Park, CO
May 2-4, 2013 (Location to be
determined)
For more information about
PEP and to complete an
application for 2012-2013,
please visit
http://www.cde.state.co.us/cd
esped/PEP.asp. You may also
call 303-866-6846 or
1-877-834-0588 outside Met-
ro Denver. (Please leave your
name and phone
number.)
Communication Intervention:
Developing a Balanced and
Generative Verbal Interaction
Style
2/1/2013 - 2/1/2013
12:30:00 PM - 3:30:00 PM
Rocky Mountain Autism
Center is offering a
three-hour workshop focused
on classroom strategies that
provide opportunities for the
student to understand how
and when to initiate, respond
and maintain social
communication interactions
with adult partners and peers.
We will discuss how to promote
an equal balance of
communication skills without
the partner prompting
directing, or “thinking” for the
child (prompt-dependency). We
will also discuss how to move
the student beyond the use of
echoic, scripted or rote-learned
verbalizations to the use of
more generative and creative
verbal utterances for behavior
regulation, joint attention and
social purposes with adults
and peers.
Location:
Rocky Mountain
Autism Center
Contact Information:
Shannon Pfeiffer
303-866-6969
The 12th Annual CP of
Colorado, Mother’s Tea
May 11, 2012
11am
Westin Denver Downtown
For more information:
http://www.cpco.org/motherst
ea.html
Funds are available to any
family in Colorado with a child
(3 – 21 years of age) who is
eligible for special education
services under Part B of the
Individuals with Disabilities
Education Act (IDEA).
Funds may be used to assist
families with the cost of
registration for one
conference every three years.
Maximum amount of
reimbursement is $250.00 per
family.
For further information
contact:
DeLinda Rose
Colorado Department
of Education
Exceptional Student Services
Unit
1560 Broadway, Suite 1175
Denver, CO 80202
Email: [email protected]
Rocky Mountain Early
Childhood Conference 2013
Friday, March 1, 2013 to Sat-
urday, March 2, 2013
Colorado Convention
Center
700 14th Street
Denver, CO 80202
This regional conference will
examine issues facing the early
childhood education field, with
discussions being led by
experts from a variety of
disciplines. Topics to be cov-
ered include - but are not l
imited to - advocacy,
assessments, curriculum,
family engagement, public
policy, professional
development, social-emotional
development, and special
needs education. This
conference is intended for
administrators, advocates,
parents, policymakers, and
teachers, amongst others.
Early Bird Registration is now
open
Visit
:http://www.ecconference.com
The Incredible Years
Parenting Class
You are invited to attend
this award winning FREE
parenting group for
families with children ages
0 to 12. This ten week
program sets the stage for
sensitive, nurturing, and
competent parenting that
fosters positive social
behaviors in children as
well as enhanced
self-esteem.
Groups start
Feb. 4 & 5th
April 8 & 9th
Two time options:
Tuesday Morning s
10:30 a.m. – 12:30 p.m.
Or Wednesday Evenings
5:30 p.m. – 7:30 p.m.
Touchstone Health Partners
1250 N. Wilson Ave. Loveland
Childcare provided.
Please call to sign up:
Abbey Schneider, M.S.
Touchstone Health Partners
(970) 494-4273 (direct)
Page 6
Health Care Program
for Children with Special Needs
Mailing Address and Phone Number:
Health Care Program for
Children with Special Needs
Larimer County Department
of Health and Environment
1525 Blue Spruce Dr
Fort Collins, CO 80524
(970) 498-6732
Larimer County Staff
Team Leader/Community Health Services
Director
Averil Strand, RN, MSN
(970) 498-6760
Nursing Coordinator
Cindy Bradrick, RN BSN
498-6747
Social Work Regional Coordinator
Meagan Walker, MSW
(970) 498-6733
Program Coordinator
Ginger Hillyard, BSW
(970) 498-6732
CO-HEAR Regional Coordinator
Annette Landes, SLP
(970) 217-9532
Family Regional Consultant
Brenda Tuttle
(970) 267-8705
Nutrition Regional Coordinator
Donna Uhlrich, RD
(970) 498-6732
OT/PT Regional Coordinator
Caryn Stanwyck, MS, PT
(970) 691-1223
Audiology Coordinator
Nancy Alexander, MA, CCC-A
(970) 586-6812
Page 7
What is a MEDICAL HOME TEAM? A Medical Home Team is you and your chosen group of trusted health care
professionals working Together to organize the health care needs of your
whole family using the best available tools, Information and technology.
Players on your Medical Home Team may include: doctors, specialists, nurs-
es, dentists, therapists, pharmacists, teachers and care coordinator or
navigator.
You know you have a MEDICAL HOME TEAM
when the players on your team…
Works with you to coordinate all of your family’s
health care needs.
Helps to build your Medical Home Team.
Really listens and respects your ideas.
Is sensitive to the values of your family.
Shares information with you about resources in
your community.
Helps you find specialists when they are needed
How a MEDICAL HOME TEAM helps your family:
Establishes partnerships for your health care needs
Coordinates your healthcare
Avoids unnecessary Emergency Room visits.
Offers help to find the right information, resources and people.
Promotes a healthy lifestyle
Prepares you for tomorrow’s health needs
What you can do to form a MEDICAL HOME TEAM:
Select a health provider you trust. If you don’t have a trusted health
provider ask us at the Larimer County Health Care Program for Children
with Special Needs for help finding one. Contact us at (970) 498-6732.
Ask for suggestions for who should be included on your Medical Home
Team.
MAKE LISTS of what is happening with your family’s health concerns,
medications and supplements. Be sure to share this list with your health
provider.
Contact your health provider before going to the EMERGENCY ROOM.
Decide together when it makes sense to go to the ER.
Have your INSURANCE CARD with you at all times.
Teach your children to ask questions and to talk with you and their
providers about concerns and health needs.
GET TO KNOW your health provider - your Medical Home Team
coach
ASK, ASK, ASK. If you don’t understand something, be sure to get the
explanations you need.
SOURCE:http://coloradomedicalhome.com/Resources/CMHI%20Brochure_F
inal.pdf
Nonprofit Organization
U.S. Postage Paid
Fort Collins. CO
Permit No. 483
Larimer LOOP
C/O Brenda Tuttle
Family Support Services Program Council
Foothills Gateway Inc.
301 W. Skyway Drive
Fort Collins, CO 80525
(970) 498-6752
Have you received two copies of this newsletter? Would you prefer to receive this newsletter electronically or in Spanish?
Please contact Brenda Tuttle at [email protected] or (970) 498-6752
Newsletter Editor:
Brenda Tuttle,
HCP Family Consultant and FSSP Council Member
(970) 498-6752
Newsletter Review Team:
Ginger Hillyard,
HCP Program Coordinator
(970) 498-6732 .
Kim Walkenhorst,
Healthy Communities Program Coordinator and
FSSP Council Member
(970) 498-6755
Sondra Lee
Children’s Case Management Coordinator
Foothills Gateway Inc
(970)266-5424
Tim O’Neill
Executive Director at Foothills Gateway Inc.
(970) 226-2345
Debbie Lapp
Director of Resource Coordination and Development
Foothills Gateway Inc.
(970) 226-2345
Averil Strand, RN, MSN
HCP Team Leader/Community Health Services Director
(970) 498-6760
Health Care Program for Children with Special Needs
Larimer County Department of Health and Environment
1525 Blue Spruce Dr
Fort Collins, CO 80524
(970) 498-6732
Foothills Gateway, Inc.
301 W. Skyway Drive
Fort Collins, CO 80525
Phone: (970) 226-2345
Who’s Who at the Larimer Loop
