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1 The Operation Angel Awardees have been announced in New South Wales, Victoria and Queensland with later announcements throughout Australia. We’ve reflected on a few Angels who reinforce Kidney Health Australia’s mission below. Each Angel story is truly touching so check the link below to read more. Education – Pauline Byrne (Wollongong) was awarded for her exceptional work as a health professional. Not only has she spread her 31 years of knowledge with fellow staff, but is known for her ability to connect with patients – making complex medical issues simpler using car mechanics and home cooking analogies. Advocacy - Sandra Bell (Melbourne) Sandra has served as a patient ambassador since commencing dialysis in 2006. She has been an emotional support to many by speaking of her personal experiences and has notably sat on state and federal forums as a volunteer, speaking up in relation to advocacy issues for dialysis patients. Research – Karen Manley of Austin Health (Melbourne) works as a Renal Dietician, but her eager approach to guide dialysis patients is extraordinary. Karen has conducted important research on the role of Vaalia yogurt in renal patients with Vancomycin Resistant Entrerococcus (VRE; antibiotic-resistant infection) and won the Medical Journal of Australia’s annual best research article. Support – Tina Marangoni (Melbourne) moved in to care for her brother, who was on dialysis and suffered a stroke. She cared for him for 13 months, around the clock, to make him comfortable and see to his every need until his passing last year. Find more information on the Angels we have announced at www.kidney.org.au – news and events—Operation Angel 2013. Issue 29 – July 2013 Kidney Community Pictured: CEO Anne Wilson, dialysis patient Jenny Handke, Kidney Health Australia’s National Consumer Council member Bill Handke, The Hon Tanya Plibersek MP By request of local community groups, Kidney Health Australia worked in partnership with local elders and community groups to present the Take Care of Yourself Festival (healthy kidneys, healthy heart, healthy blood) in Wadeye, NT last month. Wadeye (also known as Port Keats) is a remote Aboriginal community with the largest Indigenous population in the NT. Half of the approximate 3,000 people are under 20 years of age. The focus of the festival was to learn the importance of health eating and swapping sugary soft drinks for Wadeye water. 400 people from all clans took part in the festival which had children dress up as scientists and investigate the impact of water, soft drink and sports drink on a fresh egg, a local elder spoke of her journey with chronic kidney disease and everyone sang and danced to live local music. LET’S BE FRIENDS! Like Kidney Health Australia on Facebook at www.facebook.com/KIDNEYHEALTHAUST LIKE TO RECEIVE KIDNEY COMMUNITY EVERY MONTH FOR FREE? Free call 1800 454 353 or email [email protected] to sign up! REGISTER NOW FOR THE BIG RED KIDNEY WALK! The kidney community is gearing up for the second national Big Red Kidney Walk, so register now to help us make a difference — www.kidney.org.au Operation Angels are amongst us! (L to R): Geoff Youdale, KHA CEO Anne Wilson and Angel Pauline Byrne Angel Sandra Bell Angel Tina Maragoni The project was supported by financial assistance from the Australian Government, Kindred Spirits Foundation, Victoria Daly Shire Council, Top End West Health Development NT Health and Renal Services NT Health. Kidney Health Australia thanks TRAAC for permission to hold the festival in Wadeye and acknowledges the in kind support by Palngun Wurnangat Association, Our Lady of the Sacred Heart Thamarrurr Catholic College, Catholic Care Wadeye, Health Clinic Wadeye, Cotton On Foundation and Jimmy Little Foundation. Kidney Health Australia’s Take Care of Yourself Festival

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Page 1: Kidney Community - July edition

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The operation Angel Awardees have been announced in New South Wales, Victoria and Queensland with later announcements throughout Australia.We’vereflectedonafewAngelswhoreinforceKidneyHealthAustralia’s mission below. Each Angel story is truly touching so check the link below to read more.

Education–PaulineByrne(Wollongong)wasawardedforherexceptional work as a health professional. Not only has she spread her31yearsofknowledgewithfellowstaff,butisknownforherability to connect with patients – making complex medical issues simpler using car mechanics and home cooking analogies.

Advocacy -SandraBell(Melbourne)Sandrahasservedas a patient ambassador since commencing dialysis in 2006. She has been an emotional support to many by speaking of her personal experiences and has notably sat on state and federal

forums as a volunteer, speaking up in relation to advocacy issues for dialysis patients.

Research –KarenManleyofAustinHealth(Melbourne)worksas a Renal Dietician, but her eager approach to guide dialysis patients is extraordinary. Karen has conducted important research on the role of Vaalia yogurt in renal patients with Vancomycin ResistantEntrerococcus(VRE;antibiotic-resistantinfection)andwon the medical Journal of Australia’s annual best research article.

Support–TinaMarangoni(Melbourne)movedintocareforher brother, who was on dialysis and suffered a stroke. She cared forhimfor13months,aroundtheclock,tomakehimcomfortableand see to his every need until his passing last year. Find more information on the Angels we have announced at www.kidney.org.au – news and events—Operation Angel 2013.

Issue29–July2013Kidney Community

Pictured: CEO Anne Wilson, dialysis patient Jenny Handke, Kidney Health Australia’s National Consumer Council member Bill Handke, The Hon Tanya Plibersek MP

By request of local community groups, Kidney health Australia worked in partnership with local elders and community groupstopresenttheTakeCareofYourselfFestival(healthykidneys,healthyheart,healthyblood)inWadeye,NTlastmonth.Wadeye(alsoknownasPortKeats)isaremoteAboriginalcommunity with the largest Indigenous population in the NT. half oftheapproximate3,000peopleareunder20yearsofage.

The focus of the festival was to learn the importance of health eating and swapping sugary soft drinks for Wadeye water. 400 people from all clans took part in the festival which had children dress up as scientists and investigate the impact of water, soft drink and sports drink on a fresh egg, a local elder spoke of her journey with chronic kidney disease and everyone sang and danced to live local music.

LET’S BE FRIENDS! Like Kidney Health Australia on Facebook at www.facebook.com/KIDNEYHEALTHAUST

LIKE TO RECEIVE KIDNEY COMMUNITY EVERY MONTH FOR FREE? Free call 1800 454 353 or

email [email protected] to sign up!

RegiSteR now foR tHe Big ReD KiDney wAlK!The kidney community is gearing up for the second national Big Red Kidney Walk, so register now

to help us make a difference — www.kidney.org.au

operation Angels are amongst us!

(L to R):Geoff Youdale, KHA CEO Anne Wilson and Angel Pauline Byrne Angel Sandra Bell Angel Tina Maragoni

The project was supported by financial assistance from the Australian government, Kindred Spirits foundation, Victoria Daly Shire Council, Top End West health Development NT health and Renal Services NT health. Kidney health Australia thanks TRAAC for permission to hold the festival in Wadeye and acknowledges the in kind support by palngun Wurnangat Association, our Lady of the Sacred heart Thamarrurr Catholic College, Catholic Care Wadeye, health Clinic Wadeye, Cotton on foundation and Jimmy Little foundation.

Kidney Health Australia’s take Care of yourself festival

Page 2: Kidney Community - July edition

hEALTh/mEDICAL

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TheRedlandsHospitalRenalUnit(Queensland)recentlypulled out all the stops to celebrate their sixth anniversary during Kidney health Week. As the staff strive to create an environment to enhance positive patient experience, the patients, carers, staff and family all took part in decorating the unit and taking part in the patient circus costume competition and circus acts!

Sharon Cottingham, the Nurse unit manager who guides the unit, uses the TheFISH!Philosophy(BeThere, play, make Their Day, ChooseYourAttitude)*1 when approaching her work. Some of the benefits that are clearly evident when you enter this renal unit include: cohesive teamwork, creating a community environment for patients, positive energy, employees who are dedicated to the kidney cause and patients who have an amazing relationship with the staff.

Birkdale dialysis patient, Kathleen harding said: “It’s the personal touches that the Redlands renal staff provide to the patients that makes our dialysis experience much better. The staff create an interesting and engaging environment for us

like creating costume or colour themes, playing bingo, holding luckydoorprizes,runningraffles,andcelebratingourspecialdays - these activities break up the monotony of regular dialysis sessions, it’s these little things that go along way.

“There are times when I have to drag myself in for dialysis, however when I get here the staff work miracles and I immediately feel better, they have created an environment for patients, and dare I say it - I look forward to coming in”.*1“Fish! Tales” by Stephen C Lundin, Ph.D., John Christensen and Harry Paul.

mEDICAL mATTERS –

the circus comes to Redlands Hospital renal unit!

on a cold and wintery day in late may I was fortunate enough to find myself on a plane heading to the sub-tropical, bustling metropolis of hong Kong,toattendthe2013WorldCongressofNephrology. With a theme of “sustainability and diversity” the conference hosted high profile national and international speakers and representatives from all corners of the globe. The opening ceremony was a theatrical extravaganza showcasing Easterntraditionsincludingafluorescentdragon dance, musical performances and exquisite sand painting art.

The scientific program emphasised the best of kidney medicine, and demonstrated the diverse range of circumstances in which nephrologists around the world pursue improved outcomes for people with kidney disease. program highlights included a fascinating discussion of the genetic

basisofkidneydiseasebyNineKnoers(TheNetherlands),insightsintopolycystickidneydiseasebyDorienPeters(TheNetherlands)andVincentGattone(USA),andnew

developments in the understanding of salt-sensitivehypertensionbyToshiroFujita(Japan).

ElmiMuller(SouthAfrica),showcasedtheamazingoutcomes of hIV positive to positive transplantation in Cape Town, where seriously ill people are offered

a last chance of life. The meeting provided invaluable opportunities to network with local

and international colleagues, and to witness the extraordinary achievements of kidney specialists around the world.

I gratefully acknowledge the Australian and New Zealand Society of Nephrology, and

Amgen Australia who provided travel support to attend this meeting. Photo: hemocue.com

A global exchange BY DR mARIE LuDLoW (PhD)

Kidney Health Australia at the world Congress of nephrology

Page 3: Kidney Community - July edition

CoNSumER CoRNER

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Remembering my mother BY TAhNEE pEDERSEN

My mum, Dianne passed away this March at 54 years after a life long journey with kidney disease.

She was 16 when diagnosed and commenced dialysis right away. She dialysed for six years until her mother Bobbie donated a kidney that lasted an amazing 34 years. Dianne thought herself so lucky in life - she had two children, myself and my brother Wade, she saw the birth of my son Logan, competed in three transplant games, underwent three fistula operations and won a battle with cancer.

Mum never made out like she was different to anyone, she always did everything and more than anyone else would do, even after all the pills she had to take and the doctor’s visits. She even reached out to the local community and newspapers to advocate on behalf of the Kidney Foundation (previous name of Kidney Health Australia). Wade and I are truly proud of Mum and everything she achieved. She made us understand that when you’re going through hell, there’s always someone else worse off so you just have to hold your head high and keep smiling.

After she passed away, my family found a scrapbook that detailed her life with kidney disease. She wrote a beautiful poem that I wanted to share with the rest of the kidney community; I hope that you can relate to them and that they make you feel a little less alone.

My LifeIt always has its problemsAll wound up in a tight little ballSomething always crops up to remind meAnd bring back a memory of it all.

I have a type of barrierA cage of my very ownIt shuts out the whole worldAnd makes me feel very alone.

Only by myself can I lead the wayAnd help brighten up my very next day.I like people to think, and feel and say“Gee Di looks good and bright and gay”.

But who am I kidding; it hurts deep downwhen that smile won’t come outOnly a snarl or a frown.

At first I began to get used to my visitsThey were then two a weekBut now they seem so never-endingAnd they make me feel so weak.

How can I pick my head up off the groundAnd not make it as bad as it really sounds.That’s easy for you to sayYou don’t know how I feelOnly I know my own lifeAnd how it turns like a wheel.

I don’t want two kidneys, or three, or fourI’ll settle for one just to even up the score.I must have been bad for him to not hear my prayerBut I only want what is right and fair.

It’s not right to go on like this anymore.Oh! Can’t you see deep downThere’s an ache and its sore.

I’m not trying to put it acrossWith the sharp end of a knifeI just want to tell you all about my life.

A global exchange BY DR mARIE LuDLoW (PhD)

Kidney Health Australia at the world Congress of nephrology

Page 4: Kidney Community - July edition

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KIDNEY CALENDAR AND EVENTS

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Enjoyed a good read?Then do a good deed,When you get to the end,

Please send to a friend!

Join in!1 July SuppoRTINg LEAVE foR LIVINg DoNoRS SChEmE CommENCES – more info at www.kidney.org.au

14-20 July NATIoNAL DIABETES WEEK – Let’s Prevent Diabetes

27-28 July KIDNEY KIDS CApERS – NSW. Info at http://bit.ly/11vmbe6

28 July – 4 August19Th WoRLD TRANSpLANT gAmES –Durban South Africa

16-24 August25Th KIDNEY KAR RALLY – Tamworth to Armidale via Bundaberg – more: www.kidneykarrally.com.au

30 AugustAppLICATIoNS CLoSE – for Kidney health Australia’s 2014 medical Research program categories

1, 8 September JoIN IN oN ThE BIg RED KIDNEY WALK - on the 1st in Adelaide, Launceston, melbourne, perth, Sydney and in Toowoomba on the 8th. www.kidney.org.au

A new chat forum has recently been launched for people contemplating home dialysis and those already managing their dialysis at home. ‘home Connect’ is part of the home dialysis website and aims to provide an interactive space for consumers to share information and advice on a wide range of topics such as holidays, training, dietary restrictions and financial support concessions. The forum will be moderated by Kidney health Australia’s health professionals and does not intend to provide medical advice or information, yet aims to create a space for open conversation among kidney consumers.

To get involved with Home Dialysis Connect or join in the conversation, simply go to www.homedialysis.org.au and click on the link.

Carrot & chicken soup

LIfESTYLE RECIpE

This recipe is dialysis, CKD and diabetes-friendly. Hearty and warming, this soup is perfect for a wintery lunch or light meal. Recipe taken from ‘Dining In – Delicious Dialysis Recipes and Meals’, Renal Resource Centre.

INgREDIENTS•2teaspoonsvegetableoil•1mediumonion,peeledand

roughly chopped•Groundpepper•2bayleaves•5largecarrots(350g),

peeled and roughly chopped•2clovesgarlic,crushed•1tablespoonplainflour•1litreofhomemadeor

reduced salt chicken stock•(add2teaspoonsMassel™

salt reduced stock powder to1litreofwater)

•1chickenbreast,cookedandshredded(about2cupsofchicken)

•¼cuplightcream

CKD, DIALYSIS AND DIABETES-fRIENDLY

Questions about this recipe? Email [email protected]

Each serve of this recipe will provide:Carrot & chicken soup - 1160kJ, 18g protein, 17g fat, 9g carbohydrate, 410mg potassium,180mg phosphate, 445mg sodium. Carrot & chicken soup with 1 slice bread and margarine - 1725kJ, 20g protein, 22g fat, 25g carbohydrate, 450mg potassium, 200mg phosphate, 600mg sodium

mEThoD1. heat oil in large saucepan over

low-medium heat. Add onion, pepper and bay leaves and cook for up to 20 minutes or until onion is soft.

2. Add carrots and garlic to pan andstir.Addflourandstirtocoatingredients in pan. Add stock and stir well.

3.Simmerfor30minutesuntilcarrots soft.

4. Remove bay leaves from soup. Pureesoup(ifdesired),thenaddshredded chicken and reheat gently. Add cream and heat gently.

5. Serve soup with bread if desired.

SERVES 4

Photo: eatforhealth.gov.au

HomeDialysisConnect