KHWANDR.SHAN NARAYANAN

CONSULTANT PAEDIATRICIANINDIVIDUAL WITH FACTOR XIII

DEFICIENCYMALAYSIA

AWAKENING

PENGUIN TRIP

REALISATION

• Bleeding disorder in women is a significant issue

• The impact on them was equally significant

• Vulnerable group as they don’t usually/easily talk about their issues

TAKE HOME MESSAGE

• We need a support group for women with bleeding disorder in Malaysia

• HOW WILL IT BE DONE? • Dr.Jameela SatharConsultant HaematologistHospital Ampang , SelangorMalaysia

STAGE 1INTRODUCTION & GET TOGETHER

25 SEPTEMBER 2014

• Dr. Jameela takes the idea to a higher level

STAGE 2

• NNHF FUNDING APPLICATION IS DONE BY DR.JAMEELA DESPITE A TIGHT SCHEDULE.

• NNHF VERY STRINGENT IN THEIR REQUIREMENTS, THE PROPOSAL IS REVISED ON 2 OCCASIONS

STAGE 3INVITATION FOR GUIDANCE

STAGE 4DEVELOPING A WOMEN’S LEADERSHIP ORGANISATION

FOR WOMEN WITH BLEEDING DISORDERS

STAGE 4DEVELOPING A WOMEN’S LEADERSHIP ORGANISATION

FOR WOMEN WITH BLEEDING DISORDERS

STAGE 4DEVELOPING A WOMEN’S LEADERSHIP ORGANISATION

FOR WOMEN WITH BLEEDING DISORDERS

STAGE 4DEVELOPING A WOMEN’S LEADERSHIP ORGANISATION

FOR WOMEN WITH BLEEDING DISORDERS

STAGE 4DEVELOPING A WOMEN’S LEADERSHIP ORGANISATION

FOR WOMEN WITH BLEEDING DISORDERS

STAGE 4DEVELOPING A WOMEN’S LEADERSHIP ORGANISATION

FOR WOMEN WITH BLEEDING DISORDERS

STAGE 4DEVELOPING A WOMEN’S LEADERSHIP ORGANISATION

FOR WOMEN WITH BLEEDING DISORDERS

STAGE 4DEVELOPING A WOMEN’S LEADERSHIP ORGANISATION

FOR WOMEN WITH BLEEDING DISORDERS

STAGE 4DEVELOPING A WOMEN’S LEADERSHIP ORGANISATION

FOR WOMEN WITH BLEEDING DISORDERS

Stage 5

VISION : TO UPLIFIT HEALTH OF WOMEN

STAGE 5

MISSION :TO ENSURE ADEQUATE MEDICAL AND PSYCHOSOCIAL SUPPORT FOR WOMEN WITH HAEMOSTATIC DISORDERS

STAGE 5OBJECTIVES

• 1.Creating awareness of bleeding and clotting disorders in women. 2. Early diagnosis and treatment of women affected by bleeding and clotting disorders3. To provide psycosocial support for women affected by bleeding and clotting disorders4. To empower women with bleeding and clotting disorder to advocate for adequate healthcare.

Stage 6LINKING KHWAN WITH HSM

STAGE 7IMPLEMENTATION IN PHASES

• CREATING AWARENESS AMONG CLINICIAN AND PATIENTS IDENTIFYING WOMEN LEADERS TRAINING OF WOMEN LEADERS PREPARING GUIDE FOR WOMEN LEADERS WORKING WITH OTHER WOMEN SUPPORT GROUPS

STAGE 7IMPLEMENTATION IN PHASES

• HOPE TO GET NNHF FUNDING.

• WE WILL BE LAUNCHING THE WOMEN’S GROUP PROJECT IN KOTA KINABALU, SABAH

ON 26 APRIL 2015

THANK YOU