June 2009 World Hospice and Palliative Care Day Discovering your voice

June 2009

World Hospice and Palliative Care Day

Discovering your voice

2October 10 2009 | World Hospice and Palliative Care Day – Discovering your voice

World Hospice and Palliative Care Day•Background

•Aims and objectives of World Day

•Annual activities

•Themes

• Impact

•World Day and advocacy strategies

•Challenges

•Advocacy successes

•Conclusion


Background

•A unified day of action to celebrate and support hospice and palliative care worldwide

•Second Saturday of October

•An activity of the Worldwide Palliative Care Alliance

•Facilitated by Help the Hospices

•Global organising committee consisting of regional representatives worldwide


Aims and objectives of World Day•To share our vision to increase the availability of

hospice and palliative care throughout the world by creating opportunities to speak out about the issues

•To raise awareness and understanding of the needs – medical, social, practical, spiritual – of people living with a life limiting illness and their families.

•To raise funds to support and develop hospice and palliative care services around the world.


Annual activities

•Activities in approximately 70 countries worldwide•Events worldwide registered online•A unifying theme around palliative care issues•Materials available online•Messages of support•Press and PR work•Voices for Hospices every two years•Global reports•Other e.g. petition, declaration, merchandise•Evaluation


The themes over the years

•2006 –Access for all

•2007 –Across the ages from children to older people

•2008 – Hospice and palliative care: a human right

•2009 –Discovering your voice


Impact - 2008


Impact - 2008


1. Issue identification

5. Identifying targets

3. Developing the advocacy message

6. Identifying allies7. Identifying

resources

8. Action plan and time frame

9. Implementation

10. Evaluation

2. Analysis

4. Goal and objectives

Developing a strategy


Benefits of using World Hospice and Palliative Care Day•Opportunity to undertake activities

•Stronger together

•Reduces isolation

•Credibility - WHO co-sponsorship/ international partners

•One global theme

•Opportunity for coalition building

•A hook for PR and press work

•Resources prepared for adaptation

•Messages of support


Missing key stepsLets do a concert

Let’s invite all our

database of contacts

I know a famous singer

Lets charge £10 for the

tickets Let’s do a press

release too

What shall we do for the Day

this year?

Let’s do it alone to raise our

organisation’s profile


1. Using World Day in your strategyIssue Analysis Activity Target

audienceUsing World Day

Lack of funding

People who used to donate are not giving any more because they have not been kept informed or involved.

Re-engagement and motivational fundraising event.

Existing donors who have lapsed.

Event related to global theme. World Day materials. Branding. PR

Lack of trained health care workers

Palliative care is not in the national medical curricula due to lack of understanding and commitment by Deans of universities.

Research, production of report and campaigning letter to deans

Deans of university

Use World Day materials. Support of WHO. Theme.


2. Creating a strategy around World DayWorld Day theme

Issue Analysis Activity Target audience

Discovering your Voice

Palliative care is not in national health plan.

Lack of commitment by policy makers. Public pressure may work.

Public letter writing campaign to ‘Discover the voice’ of policy makers on the issue.

Policy makers

Discovering your Voice

Chinese community are not accessing palliative care.

Because of lack of information and understanding about pc.

Media and information campaign to reach out to Chinese community.

Chinese community


Building coalitions for World Day activities

Health professionals

Government

Networks of people living with illnesses

Patients, family and carers

Volunteers

Funders


Resources – www.worldday.org


Resources on website

•Key messages

•Media toolkit

•Advocacy toolkit

•What is happening around the world

•Messages of support

•Template press releases

•Stories of people affected by hospice and palliative care around the world


Challenges

•World Day fatigue

•Adapting the unifying theme

•Lack of funding and human resources to deliver activities

•Communication e.g. translation


Examples of advocacy success stories•Romania 2005

•Kenya 2008

•Mexico 2008


Romania 2005The problemPeople with life-limiting illness not being able to access pain

reliefAnalysisBarriers identified included restrictive laws partly due to lack of

commitment and understanding by key policy makers.Activity• Used World Day as an advocacy opportunity to present

materials and arrange lobbying meetings to push for change in law regarding opioids.

Result• Change in opiate legislation was adopted by parliament, a new

task force was set up and a person was appointed for PC in the MoH


Kenya 2008The problemHospice and palliative care not in the national health planAnalysisLack of awareness about hospice and palliative care in KenyaLack of commitment by government health officials

Activity• Walk for hospice and palliative care with 200 participants, speeches by

government health officials and a performance by youth on the causes of Cancer and the transmission of HIV.

Result• The government health officials discussed in speeches the need for a:

– Change in national health care programmes and policies– Increased understanding by government and policy makers

• Raised public understanding about hospice and palliative care through media, public engagement



Mexico - 2008

Problem

Lack of access to palliative care for people across the country.

Analysis

Palliative care not recognised as a human right and lack of public awareness about the issue and what palliative care as a human right means.

Activity

Media work, information campaign and linked with Human Rights Commission. Utilised the World Day global theme and the key messages.

Result

A newspaper article, magazine article, TV special and circulation of an e-mail

explaining the meaning of ‘Palliative care: a human right’. The article was also published on the Mexican website of the Human Rights Commission.


October 10 2009

Theme: Discovering your voice

World Day and Voices for Hospices

www.worldday.org


Contact us

•[email protected]

•+ 44 (0) 207 520 8250

•www.worldday.org

We will be happy to do what we can to support your activities.

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June 2009 World Hospice and Palliative Care Day Discovering your voice