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JOCELYN DOWNIE Faculties of Law and Medicine
Dalhousie University
PO Box 15000 Halifax, N.S., B3H 4R2
Phone: (902) 494-6883
Fax: (902) 494-1316
E-mail: [email protected]
EDUCATION
S.J.D., The University of Michigan, Ann Arbor, Michigan, USA 1999
LL.M., The University of Michigan, Ann Arbor, Michigan, USA 1996
LL.B., The University of Toronto, Toronto, Canada 1993
M.Litt. (Philosophy), The University of Cambridge, Cambridge, England 1990
M.A. (Philosophy), Queen’s University, Kingston, Canada 1985
B.A. Honours (Philosophy), Queen’s University, Kingston, Canada 1984
PROFESSIONAL AWARDS AND HONOURS
Fellow of the Royal Society of Canada 2010
Fellow of the Canadian Academy of Health Sciences 2010
Canadian Association of Law Teachers Award 2008
Canada Research Chair in Health Law and Policy 2008-13
Canada Research Chair in Health Law and Policy 2003-08
IWK Health Centre Research Centre of Excellence Scholar Award 2003-08
Abbyann D. Lynch Medal in Bioethics, Royal Society of Canada 2005
Dalhousie Medical Research Foundation Award of Excellence 2003
in Medical Research
Social Science and Humanities Research Council of Canada 1994-96
Doctoral Fellowship
Jean Royce Memorial Doctoral Fellowship (Queen’s University) 1994
James B. Milner Bronze Medal 1993
Class of 1967 Prize 1993
Honours Standing 1993
Dean’s Honours List 1991-93
Fasken Campbell Godfrey Award 1991
Laskin Prize in Constitutional Law 1991
Canada Law Book Prize in Civil Procedure 1991
Overseas Research Student Award (U.K. Government) 1987-88
Queens’ College (Cambridge) Bursary Award 1987-88
Queens’ College (Cambridge) Bursary Award 1985-86
Queen’s University Graduate Student Award 1984-85
First Class Honours, Queen’s University 1984
2
EMPLOYMENT
Associate Dean Graduate Studies, Faculty of Law, Dalhousie University, 2013-Present.
Acting Director, Health Law Institute, Dalhousie University, 2013 (January - June).
Professor, Faculties of Law & Medicine, Dalhousie University, 2006-Present (Associate
Professor 2001-2006; Assistant Professor 1996-2001).
Faculty Associate, Health Law Institute, Dalhousie University, 2006-Present.
Director, Health Law Institute, Dalhousie University, 1996-2006.
Special Advisor, Senate Committee on Euthanasia and Assisted Suicide, 1994-95.
Law Clerk, Chief Justice Lamer, Supreme Court of Canada, 1993-94.
Research Associate, Westminster Institute for Ethics and Human Values, London, Ontario,
1988-90.
PUBLICATIONS
Books
Jocelyn Downie & Jennifer Llewellyn, eds., Being Relational: Reflections on Relational Theory
and Health Law (Vancouver: UBC Press, 2012).
Jocelyn Downie, Timothy Caulfield, & Colleen Flood, eds., Canadian Health Law and Policy, 4th
ed. (Toronto: Butterworths, 2011) (3rd edition, 2007; 2nd edition 2002; 1st edition 1999).
Jocelyn Downie, Michael Hadskis, Karen McEwen, & William MacInnis, eds., Dental Law in
Canada, 2nd ed. (Toronto: Lexis-Nexis, 2010) (1st edition 2004).
Jocelyn Downie and Elaine Gibson, eds., Health Law at the Supreme Court of Canada (Toronto:
Irwin Law, 2007).
Jocelyn Downie, Dying Justice: A Case for Decriminalizing Euthanasia and Assisted Suicide in
Canada (University of Toronto Press, 2004).
Françoise Baylis, Jocelyn Downie, Barry Hoffmaster, & Susan Sherwin, eds., Health Care Ethics
in Canada, 2nd ed. (Toronto: Thomson Nelson, 2004) (1st edition 1995).
Jon Thompson, Patricia Baird, & Jocelyn Downie, The Olivieri Report: The Complete Text of the
Report of the Independent Inquiry Commissioned by the Canadian Association of University
Teachers (Toronto: James Lorimer & Co., 2001).
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Françoise Baylis, Jocelyn Downie, & Kate Dewhirst (eds.) Codes of Ethics: Ethics Codes,
Standards and Guidelines for Professionals Working in a Health Care Setting in Canada. 2nd ed.
(Toronto: Department of Bioethics, The Hospital for Sick Children, 1999) (1st edition 1992).
Susan Sherwin, Françoise Baylis, Marilynne Bell, Maria De Koninck, Jocelyn Downie, Abby
Lippman, Margaret Lock, Wendy Mitchinson, Kathryn Pauly Morgan, Janet Mosher, & Barbara
Parish, The Politics of Women’s Health: Exploring Agency and Autonomy (Philadelphia: Temple
University Press, 1998).
Françoise Baylis & Jocelyn Downie (eds.) Medical Ethics for Postgraduate Medical Students:
Symposium ’90 Proceedings. (London: Westminister Institute for Ethics and Human Values,
1990).
Françoise Baylis & Jocelyn Downie (eds.) Medical Ethics for Undergraduate Medical Students:
Symposium '89 proceedings. London, Ont.: Westminster Institute for Ethics and Human Values,
1990).
Françoise Baylis & Jocelyn Downie Undergraduate Medical Ethics Education: A Survey of
Canadian Medical Schools 142 pgs. (London: Westminister Institute for Ethics and Human
Values 1990).
Special Issues of Journals
Françoise Baylis & Jocelyn Downie eds., Transnational Reproductive Travel (2014) 7:2
International Journal of Feminist Approaches to Bioethics.
Carolyn McLeod & Jocelyn Downie eds., Conscientious Refusals in Health Care (2014) 28:1
Bioethics.
Françoise Baylis & Jocelyn Downie eds., Neuroethics (2009) 23:6 Bioethics.
Chapters in Books
Richard Devlin & Jocelyn Downie, "Public Interest Vocationalism: A Way Forward for Legal
Education in Canada" in Fiona Westwood & Karen Barton eds., The Calling of Law: The Pivotal
Role of Vocational Legal Education (Ashgate, 2014) 85-109.
Jocelyn Downie & Kate Dewhirst, “Women’s Health Law and Policy” in Borden Ladner Gervais
LLP, ed., Canadian Health Law Practice Manual (Toronto: Lexis Nexis, 2013) (earlier editions
in 2000, 2003, 2010).
Jocelyn Downie & Richard Devlin, “The Great Canadian Lawyer: A Manifesto, Eh!” in D.
Blaikie, T.A. Cromwell, & D. Pink, eds., On Being a Lawyer (Toronto: Irwin Law, 2012) 149-
165.
Jocelyn Downie, “Resistance is Essential: Relational Reponses to Recent Law and Policy
4
Initiatives Involving Reproduction” in Jocelyn Downie & Jennifer Llewellyn, eds., Being
Relational: Reflections on Relational Theory and Health Law and Policy (Vancouver: UBC Press,
2011) 209-229.
Erik Virre, Françoise Baylis, & Jocelyn Downie, "Promises and perils of cognitive performance
tools: A dialogue" in J. Giordana (ed.). Neurotechnology: Premises, Potential, and Problems
(Boca Raton: CRC, 2012) 123-139. Reprint of: Erik Virre, Françoise Baylis, & Jocelyn Downie,
"Promises and perils of cognitive performance tools: A dialogue" Technology 11, 9-25.
Jocelyn Downie, “Palliative Care in the ICU through a Legal Lens” in Graeme Rocker et al., eds.,
The ICU: From Advancing Disease to Bereavement, Oxford Specialist Handbooks End of Life
Care (Oxford: Oxford University Press, 2010) 190-195.
Jocelyn Downie, “The Ends of Life and Death: Public Policy, Spirituality, and the Law” in The
Issues of the Ends of Life: The Segelberg Lectures (Trafford Publishing, December 2009 eBook
release May 2010).
Jocelyn Downie, “On Being a Legal Academic in a Politically Charged Context” in Of What
Difference? Reflections on the Judgment and Abortion in Canada Today (National Abortion
Federation, 2009) 63-66.
Nuala Kenny, Jocelyn Downie, & Christine Harrison, “Respectful Involvement of Children in
Medical Decision-Making” in Peter Singer ed., The Cambridge Textbook of Bioethics
(Cambridge: Cambridge University Press, 2008) 121-126.
Jocelyn Downie, “Assisted Death at the Supreme Court of Canada” in Jocelyn Downie and Elaine
Gibson, eds., Health Law at the Supreme Court of Canada (Toronto: Irwin Law, 2007) 219-240.
Jocelyn Downie, “Grasping the Nettle: Confronting the Issue of Competing Interests and
Obligations in Health Research Policy” in Colleen Flood, ed., Just Medicare: What’s In, What’s
Out, How We Decide (Toronto: University of Toronto Press, 2006) 427-448.
Jocelyn Downie, Maegen Giltrow, & Alison Shea, “The Regulation of Dental Research” in
Jocelyn Downie, Karen McEwen, & William MacInnis, eds., Dental Law in Canada (Toronto:
Butterworths, 2004) 279-300.
Jocelyn Downie, “Country Report Canada” in Jochen Taupitz, ed., Regulations of Civil Law to
Safeguard the Autonomy of Patients at the End of Their Life - An International Documentation
(Berlin, Heidelberg, New York: Springer-Verlag, 2000) 173-227.
Françoise Baylis, Jocelyn Downie, & Susan Sherwin, “Women and Health Research: From
Theory, To Practice, To Policy” in Anne Donchin & Laura M. Purdy, eds., Embodying Bioethics:
Recent Feminist Advances (Lanham, MD: Rowman & Littlefield, 1999) 253-268. Reprinted in:
(2002). R. Chadwick, & D. Schroeder (Eds.), Applied ethics: Critical concepts in philosophy
(London: Routledge, 2002) 140-154.
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Françoise Baylis, Jocelyn Downie, & Susan Sherwin, “Reframing Research Involving Humans”
in Susan Sherwin et al., The Politics of Women’s Health: Exploring Agency and Autonomy
(Philadelphia: Temple University Press, 1998) 234-259. Reprinted in: E. Boetzkes, & W.
Waluchow (Eds.), Readings in Health Care Ethics (Peterborough: Broadview Press, 2000) 433-
449.
Françoise Baylis & Jocelyn Downie, “Child Abuse and Neglect: Cross-Cultural Considerations”
in Hilde Lindemann Nelson, ed., Feminism and Families (New York: Routledge, 1997) 173-187.
Michael Burgess, Eugene Bereza, Bridget Campion, Jocelyn Downie, Janet Storch, & George
Webster, “Feeder Disciplines: The Education and Training of Health Care Ethics Consultants” in
Françoise Baylis, ed., The Health Care Ethics Consultant (New Jersey: Humana Press, 1994) 63-
108.
Jocelyn Downie, “The Ethics of Prenatal Screening,” Science and Technology Canada 1989
(Ottawa: Canadian Student Pugwash, 1990).
Jocelyn Downie, “Vegetarianism,” Science and Technology Canada 1989 (Ottawa: Canadian
Student Pugwash, 1990).
Peer-Reviewed Articles
Matthias Schmidt, Michael Hadskis, Jocelyn Downie, Jennifer Marshall, “Incidental Findings and
the Minimal Risk Standard in Pediatric Neuroimaging Research” IRB (forthcoming 2015)
Jocelyn Downie, Lindy Willmott, & Ben White, “Cutting the Gordian Knot of Futility: A Case
for Law Reform on Unilateral Withholding and Withdrawal of Potentially Life-Sustaining
Treatment” (2014) 26(1) New Zealand Universities Law Review 24-59.
Françoise Baylis & Jocelyn Downie eds., “Achieving National Altruistic Self-Sufficiency in
Human Eggs for Third-party Reproduction in Canada” (2014) 7:2 International Journal of
Feminist Approaches to Bioethics (Special Issue on Transnational Reproductive Travel) 164-184.
Jacquelyn Shaw, Jocelyn Downie & Carolyn McLeod, “Moving Forward with a Clear
Conscience: A Model Conscientious Objection Policy for Canadian Colleges of Physicians and
Surgeons” (2013) 21 (3) Health Law Review.
Françoise Baylis & Jocelyn Downie, "The Tale of Assisted Human Reproduction Canada: A
Tragedy in Five Acts" (2013) 25 (2) Canadian Journal of Women and the Law 183-201.
Jacquelyn Shaw & Jocelyn Downie, "Welcome to the Wild, Wild North: Conscientious Objection
Policies Governing Canada’s Medical, Nursing, Pharmacy, and Dental Professions" (2013)
Bioethics. Doi: 10.1111/bioe.12057.
Françoise Baylis & Jocelyn Downie, "Transnational Trade in Human Eggs: Law, Policy, and (In)
Action in Canada" (2013) 41(1) Journal of Law, Medicine, & Ethics 224-239.
6
Lindy Willmott, Ben P. White, & Jocelyn Downie, "Withholding and Withdrawal of ‘Futile’ Life-
Sustaining Treatment: Unilateral Medical Decision-Making in Australia and New Zealand"
(2013) 20 (4) Journal of Law and Medicine 907-924.
Jocelyn Downie & Ben White, "Prosecutorial discretion in assisted dying in Canada: A proposal
for charging guidelines" (2012) 6:2 McGill Journal of Law and Health 113-172.
Ben White & Jocelyn Downie, "Prosecutorial guidelines for voluntary euthanasia and assisted
suicide: Autonomy, public confidence and high quality decision-making" (2012) 36:2 Melbourne
University Law Review 656-705.
Jocelyn Downie, Kenneth Chambaere, & Jan Bernheim, "Pereira's attack on legalizing euthanasia
or assisted suicide: smoke and mirrors" (2012) 19:3 Current Oncology 133-138.
Elaine Gibson & Jocelyn Downie, "Consent requirements for pelvic examinations performed for
training purposes" (2012) 184:10 Canadian Medical Association Journal 1159-1161.
Françoise Baylis & Jocelyn Downie, "Unfinished Business: Ongoing ethical exceptionalism in the
oversight of human pluripotent stem cell research in Canada" (2012) 19:1 Accountability in
Research 13-26.
Audrey Steenbeek, Noni MacDonald, Françoise Baylis, Jocelyn Downie, & Mary Appleton, “Ill-
informed Consent? A Content Analysis of Physical Risk Disclosure in Canadian School-Based
HPV Vaccine Programs” (2012) 29:1 Public Health Nursing 71-9.
Jocelyn Downie & Jennifer Llewellyn, “Restorative Justice, Euthanasia, and Assisted Suicide: A
New Arena for Restorative Justice and A New Path for End of Life Law and Policy in Canada”
(2011) 48:4 Alberta Law Review 965-986.
Matthias H. Schmidt, Jennifer Marshall, Jocelyn Downie, & Michael R. Hadskis, “Pediatric
Magnetic Resonance Research and the Minimal-Risk Standard” (2011) 33:5 IRB: Ethics and
Human Research 1-6.
Cheluchi Onyemelukwe & Jocelyn Downie, “The Tunnel at the End of the Light? A Critical
Analysis of the Development of the Tri-Council Policy Statement” (2011) Canadian Journal of
Law and Society 159-176.
Jocelyn Downie & Victoria Apold, “Bad News about Bad News: The Disclosure of Risks in
Insurability in Research Consent Processes” (2011) 18:1 Accountability in Research 31-44.
Jocelyn Downie, Simon Outram & Fiona Campbell, “Caveat Emptor, Venditor, et Praescribor:
Legal Liability Associated with Methylphenidate Hydrochloride (MPH) Use by Postsecondary
Students” (2010) 18 Health Law Journal 51-71.
Richard Devlin & Jocelyn Downie, “…and the learners shall inherit the earth: Continuing
7
Professional Development, Lifelong Learning, and Legal Ethics Education” (2010) Canadian
Legal Education Annual Review 9-26.
Michelle Black & Jocelyn Downie, “Watch Your Language: A Review of the Use of Stigmatizing
Language by Canadian Judges” (2010) 5:1 Journal of Ethics in Mental Health 1-8. Reprinted in
A. Caplan, D. Sisti, & H. Rimon-Greenspan eds., Mental Healthcare: An Ethics Reader, MIT
Press (forthcoming 2013).
Robyn Bluhm, Jocelyn Downie, & Jeff Nisker, “Dr. Cézanne and the Art of Re(peat) search:
Competing Interests and Obligations in Clinical Research” (2010) 17:2 Accountability in
Research 85-95.
Matthew Kutcher, Victoria Apold & Jocelyn Downie, “Will the Brain Ever Take the Stand?
Canadian Law and the Admissibility of Neurotechnology Lie Detection Evidence” (2010) 56:1
Criminal Law Quarterly 135-163.
Jocelyn Downie & Karen McEwen, “The Manitoba College of Physicians and Surgeons Position
Statement on Withholding and Withdrawal of Life-Sustaining Treatment (2008): Three Problems
and a Solution” (2009) 17 Health Law Journal 115-138.
Chris Kaposy & Jocelyn Downie, “Reproductive Choice in Canadian Courts: An Evidence-Based
Call for a Move to Relational Autonomy” (2009) 36 Advocates’ Quarterly 86-104.
Jocelyn Downie, “Glass Houses: The Power of Money in Bioethics Research” (2009) 2:2
International Journal of Feminist Approaches to Bioethics 97-115.
Jocelyn Downie, Matthew Kutcher, Chantelle Rajotte, & Alison Shea, “Eligibility for Organ
Donation: A Medico-Legal Perspective on Defining and Determining Death” (2009) 56 Canadian
Journal of Anesthesia 851-863.
Matthias Schmidt & Jocelyn Downie, “Safety First: Recognizing the Managing of Risks to Child
Participants in Magnetic Resonance Imaging Research” (2009) 16:3 Accountability in Research
153-173.
Jocelyn Downie & Richard Devlin, “Fitness for Purpose: Mandatory Continuing Legal Ethics
Education for Lawyers” (2009) 87:3 Canadian Bar Review 773-804.
Jocelyn Downie & Simone Bern, “Rodriguez Redux” (2008) 16 Health Law Journal 27-54.
Chris Kaposy & Jocelyn Downie, “Judicial Reasoning about Pregnancy and Choice” (2008) 16
Health Law Journal 281-304.
Jocelyn Downie & Jennifer Llewellyn, “Relational Theory and Health Law and Policy” (2008)
Health Law Journal Special Edition 193-210.
Jocelyn Downie, Chantelle Rajotte, & Alison Shea, “Pre-Mortem Transplantation Optimizing
8
Interventions: The Legal Status of Consent” (2008) 55:7 Canadian Journal of Anesthesia 458-
469.
Michael Hadskis, Nuala Kenny, Jocelyn Downie, Matthias Schmidt, Ryan D’Arcy, “The
Therapeutic Misconception: A Threat to Valid Parental Consent for Paediatric Neuroimaging
Research” (2008) 15:3 Accountability in Research 133-151.
Jocelyn Downie, Alison Shea, & Chantelle Rajotte, “Family Override of Valid Donor Consent to
Post-Mortem Donation: Issues in Law and Practice” (2008) 40 Transplantation Proceedings
1255-1263.
Jocelyn Downie & Carla Nassar, “Barriers to Access to Abortion Through a Legal Lens” (2008)
15 Health Law Journal 143-173.
Erik Viirre, Françoise Baylis, & Jocelyn Downie, “Promises and Perils of Cognitive Performance
Tools: A Dialogue” (2007) Vol. 11 Technology 9-25.
Jocelyn Downie, Beth Halperin, Noni MacDonald, & Ryan Melnychuk, “When is it Permissible
to Dismiss a Family Who Refuses Vaccines? Legal, Ethical and Public Health Perspectives”
(2007) 12:10 Paediatrics and Child Health 843-845.
Jennifer Marshall, Toby Martin, Jocelyn Downie, & Krisztina Malisza, “A Comprehensive
Analysis of MRI Research Risks: In Support of Full Disclosure” (2007) 34:1 The Canadian
Journal of Neurological Sciences 11-17.
Jocelyn Downie and Matthew Herder, “Reflections on the Commercialization of Research
Conducted in Public Institutions in Canada” (2007) 1:1 The McGill Health Law Publication 23-
44.
Jocelyn Downie, Matthias Schmidt, Nuala Kenny, Ryan D’Arcy, Michael Hadskis, & Jennifer
Marshall, “Paediatric MRI Research Ethics: The Priority Issues” (2007) 4:2 Journal of Bioethical
Inquiry 85-91.
Jocelyn Downie & Jennifer Marshall, “Paediatric Neuroimaging Ethics” (2007) 16:02 Cambridge
Quarterly of Healthcare Ethics 147-160.
Jocelyn Downie, “The Canadian Agency for the Oversight of Research Involving Humans: A
Reform Proposal” (2006) 13 Accountability in Research 75-100.
Jocelyn Downie, “The Power of Money: Commercialisation of Research Conducted in Public
Institutions” (2006) 11:2 University of Otago Law Review 305-325.
Jocelyn Downie, Jennifer Llewellyn, & Françoise Baylis, “A Constitutional Defence of the
Federal Ban on Human Cloning for Research Purposes” (2005) 31:1 Queen’s Law Journal 353-
384.
9
Jocelyn Downie, Jon Thompson, Patricia Baird, & Susan Dodds, “The Olivieri Case: Lessons for
Australasia” (2005) 2:2 Journal of Bioethical Inquiry 90-105.
Jocelyn Downie & Fiona McDonald, “Revisioning the Oversight of Research Involving Humans
in Canada” (2004) 12 Health Law Journal 159-181.
Jocelyn Downie, “Unilateral Withholding and Withdrawal of Potentially Life-Sustaining
Treatment: A Violation of Dignity under the Law” (2004) 20:3 Journal of Palliative Care 143-49.
Merril A. Pauls & Jocelyn Downie, “Shooting Ourselves in the Foot: Why Mandatory Reporting
of Gunshot Wounds is a Bad Idea” (2004) 170:8 Canadian Medical Association Journal 1255-
1256.
Jocelyn Downie & Fiona McDonald, “Research Ethics Review Bodies: An International
Comparative Review” (2003) 3:11 Clinical Researcher 14-25.
Jocelyn Downie, Martina Munden, & Lorna Butler, “Women and Clinical Trials: A Review of
Unacceptable Practices” (2003) 3:10 Clinical Researcher 16-20.
Jocelyn Downie, “Contemporary Health Research: A Cautionary Tale” (2003) Health Law
Journal, Special Edition 1-20.
Jennifer Llewellyn, Jocelyn Downie, & Robert Holmes, “Protecting Human Research Subjects: A
Jurisdictional Analysis” (2003) Health Law Journal, Special Edition 207-242.
Jocelyn Downie, Patricia Baird, & Jon Thompson, “Industry and the Academy: Conflicts of
Interest in Contemporary Health Research” (2002) 10 Health Law Journal 103-122.
Carolyn Ells, Jocelyn Downie, & Nuala Kenny, “An Assessment of Ethical Climate in Three
Health Care Organizations” (2002) 13:1 Journal of Clinical Ethics 18-28.
Lorna Butler, Kim Taylor, & Jocelyn Downie, “Women, Pregnancy, and Research: A Study of
Ethics Review of Pregnancy and Inclusion of Women in Phase 2 and 3 Clinical Trials” (2001) 2:6
Research Practitioner 201-211.
Sheila Wildeman & Jocelyn Downie, “Genetic and Metabolic Screening of Newborns: Must
Health Care Providers Seek Explicit Parental Consent?” (2001) 9 Health Law Journal 61-111
[shorter version: (2001) 2:3 ISUMA 56-64].
Françoise Baylis & Jocelyn Downie, “Professional Recommendations: Disclosing Facts and
Values” (2001) 27 Journal of Medical Ethics 20-24.
Jocelyn Downie, “The Contested Lessons of Euthanasia in the Netherlands” (2000) 8 Health Law
Journal 119-139.
Mary McNally & Jocelyn Downie, “The Ethics of Water Fluoridation” (2000) 66:11 Journal of
10
the Canadian Dental Association 592-593.
Nuala Kenny, Jocelyn Downie, Carolyn Ells, & Chris MacDonald, “Organizational Ethics
Canadian Style” (2000) 12:2 HEC Forum 141-148.
Françoise Baylis, Jocelyn Downie & Nuala Kenny, “Children and Decision-Making in Health
Research” IRB: A Review of Human Subjects Research (1999) 21(4) 5-10. Reprinted in: Health
Law Review (1999) 8(2) 3-9.
Françoise Baylis, Jocelyn Downie, & Sue Sherwin “Medical Ethics and Women” (1990) 143
Canadian Medical Association Journal 250-251.
Jocelyn Downie, Mike Deturbide, & Laura Fraser, “A Computer Assisted Legal Research and
Writing Course” (1998) 21:2 Dalhousie Law Journal 429-439.
Jocelyn Downie, “A Case for Compulsory Legal Ethics Education in Canadian Law Schools”
(1997) 20:1 Dalhousie Law Journal 222-236.
Jocelyn Downie & Susan Sherwin, “A Feminist Exploration of Issues Around Assisted Death”
(1996) 15 St. Louis University Public Law Review 303 - 330.
Jocelyn Downie, “A Choice for K’aila: Child Protection and First Nations Children” (1994) 2
Health Law Journal 99-120.
Jocelyn Downie, “Voluntary Euthanasia in Canada” (1993) 14:1 Health Law in Canada 13-30.
Jocelyn Downie & Susan Sherwin, “Feminist Health Care Ethics Consultation” (1993) 5:3 HEC
Forum 165-175.
Françoise Baylis & Jocelyn Downie, “An Ethical and Criminal Law Framework for Research
Involving Children in Canada” (1993) 1 Health Law Journal 39-64.
Jocelyn Downie, “’Where There is a Will, There May Be a Better Way’: Legislating Advance
Directives” (1992) 12:3 Health Law in Canada 73-80.
Françoise Baylis & Jocelyn Downie, “Ethics Education for Canadian Medical Students” (1991)
66:7 Academic Medicine 413-14.
Jocelyn Downie, “Brain Death and Brain Life: Rethinking the Connection” (1990) 4:3 Bioethics
216-226.
Jocelyn Downie, “The Biology of the Persistent Vegetative State: Legal, Ethical, and
Philosophical Implications for Transplantation” (1990) 22:3 Transplantation Proceedings 995-
996.
Reports
11
Udo Schuklenk, Johannes J.M. Van Delden, Jocelyn Downie, Sheila A.M. McLean, Ross Upshur,
and Daniel Weinstock, "Final Report of The Royal Society of Canada Expert Panel: End-of-Life
Decision-Making" November 2011 (available at www.rsc-src.ca). Concurrently published as
"End-of-Life Decision-Making in Canada: The Report by the Royal Society of Canada Expert
Panel on End-of-Life Decision-Making" (2011) 25 S1 Bioethics 1-73.
“Patient Safety: From Silos to Systems” for Health Canada (available at http://hli.law.dal.ca)
Jocelyn Downie, Don Ford, Elaine Gibson, William Lahey, Mary Thompson, Tom Ward, Alison
Shea, & Fiona MacDonald (2006).
“Rules for Human DNA Banks: A Canadian and International Comparative Analysis” for Health
Sciences Policy Division Health Canada, with Michael Hadskis, Françoise Baylis, & Elaine
Gibson (2003).
“Biotechnology, Genetics and Knowledge Management Project” for Biotechnology Working
Group of the Department of Justice, Canada, with Brad Abernethy (2002).
“Intersection of the Charter and Health Policy: A Primer on the Canadian Charter of Rights &
Freedom for Health Law & Policy Purposes” for Health Canada, with Ronalda Murphy (2001).
“Access to HIV/AIDS Medication: A Policy Analysis” for Health Canada, with Elaine Gibson,
Colleen Flood, Mark Stabile, & Fred McGinn (2000-01).
“Community-Based Research Ethics Roundtable Report” for Population Health Fund, Health
Canada Atlantic Region, with Barbara Cottrell (2000).
“Integrating bioethics and health law into the Canadian Institutes of Health Research” with Susan
Sherwin, Francoise Baylis, Alan Bernstein, Timothy Caulfield, Bernard Dickens, et al. (1999)
“Tri-Council Policy Statement on Ethical Conduct for Research Involving Humans: A review of
the requirements with respect to research involving women & other systematically disadvantaged
groups” for Health Canada, with Françoise Baylis (1998).
“Research on Provincial Dependent Adult Legislation (Consent of Incompetent Patients to
Medical Research)” for Health Canada (1997).
“A Report to the Combined Ethics Committee of the Canadian Fertility and Andrology Society
and the Society of Obstetricians and Gynaecologists of Canada” for the Canadian Fertility and
Andrology Society (1990).
Non-Peer-Reviewed Articles
Jocelyn Downie & Georgia Lloyd-Smith, “The making of a myth: Unreliable data on access to
palliative care in Canada” Health Law Review (forthcoming 2015).
12
Richard Devlin & Jocelyn Downie, “Teaching ‘Professionalism in the Public Interest’: Law as a
Case Study” Symposium Proceedings (forthcoming 2015).
Françoise Baylis & Jocelyn Downie, “Introduction to Special Issue: Reproductive Travel” (2014)
7:2 International Journal of Feminist Approaches to Bioethics 1-9.
Jocelyn Downie, “’Speak up, we can’t hear you’: A commentary on ‘End of Life in Canada’”
(2014) 14:10 Healthcare Papers 21-26.
Jocelyn Downie & Michael Hadskis, “In Defence of Consent and Capacity Boards for End-of-life
Care” (2014) 61:10 Canadian Journal of Anesthesia 899-904.
Françoise Baylis, Jocelyn Downie, & Dave Snow, “Fake it ‘till you make it: Policymaking and
assisted human reproduction in Canada” (June 2014) Journal of Obstetrics and Gynaecology 510-
512.
Carolyn McLeod & Jocelyn Downie, “Introduction to Special Issue: Conscientious Refusals in
Health Care” (2014) 28:1 Bioethics ii-iv.
Ruth Macklin, Lois Shepherd, Alice Dreger et.al., “The OHRP and Support: Another View”
(2013) E3 New England Journal of Medicine 1-3. (45 Contributors).
Françoise Baylis & Jocelyn Downie, “Confusion Worse Confounded” (2011) British Medical
Journal 342:d2570.
Jocelyn Downie, “Canadian Parliament must Act on Assisted Human Reproduction” (June 7,
2010) 561 BioNews (www.BioNews.org.uk).
Jocelyn Downie, “A Conflict by Any Other Name would Smell as Foul: A Comment on the
Appointment of a Vice-president of Pfizer to the CIHR Governing Council” (September 27,
2010) Ottawa Life.
Françoise Baylis & Jocelyn Downie “Introduction to Special Issue: Neuroethics” (2009) 23:6
Bioethics, iii-iv. DOI: 10.1111/j.1467-8519.2009.01730.x
Richard Devlin and Jocelyn Downie, “Mandatory Legal Education is a Step in the Right
Direction” (2008) 27:44 Lawyers Weekly 3.
Jocelyn Downie and Richard Devlin, “Are Law Schools Amoral Boot Camps?” book review of
Lawyers Gone Bad: Money, Sex and Madness in Canada’s Legal Profession by Philip Slayton
(2008) 16:1 Literary Review of Canada 6-7.
Jocelyn Downie in William A. Darity, Editor-in-Chief, International Encyclopedia of the Social
Sciences, 2nd Ed. (MacMillan Reference USA: Thomson Gale, 2007) s.v. “assisted death”.
Richard Devlin, Jocelyn Downie, and Stephanie Lane, “Taking Responsibility: Mandatory Legal
13
Ethics in Canadian Law Schools” (2007) 65:6 The Advocate 761-778.
Jocelyn Downie & Ronalda Murphy, “Inadmissible, Eh?” (2007) 7:9 The American Journal of
Bioethics 67-69.
Jocelyn Downie, Nuala Kenny, & Chantelle Rajotte, “Problematic Principles: The CMA on
Public/Private Health Care” (2007) 15:2 Health Law Review 15-16.
Noni MacDonald & Jocelyn Downie, “Editorial Policy: Industry Funding and Editorial
Independence” (editorial) (2006) 174:13 Canadian Medical Association Journal 1817.
Jon Thompson, Patricia Baird, & Jocelyn Downie, “The Olivieri Case: Context and Significance”
(December 2005) Ecclectica (www.ecclectica.ca).
Jocelyn Downie & Françoise Baylis, “An Embryonic Debate: The Importance of Shedding More
Light than Heat on Stem Cell Research” (2005) 13:2 Literary Review of Canada 1-13.
Jocelyn Downie & Michael Hadskis, “Finding the Right Compass for Issue-Mapping in
Neuroimaging” (2005) 5:2 The American Journal of Bioethics 27-29.
Richard Devlin & Jocelyn Downie, “Self-Regulation in the Shire” (2004) 22:1 Society Record 18-
19.
Françoise Baylis & Jocelyn Downie, “The Limits of Altruism and Arbitrary Age Limits” (2003)
3:4 The American Journal of Bioethics 19-21.
Patricia Baird, Jocelyn Downie, & Jon Thompson, “Clinical Trials and Industry” (2002) 297
Science 2211.
Jocelyn Downie & Barbara Cottrell, “Community-Based Research Ethics Review: Reflections on
Experience and Recommendations for Action” (2001) 10:1 Health Law Review 8-17.
Jocelyn Downie, “Law Societies as Arbiters of Mental Fitness” (2001) 24:4 Advocates’ Quarterly
467-477.
Toni Laidlaw, Françoise Baylis, Jocelyn Downie, Heather MacLeod, & Mark Ludman, “The
Inclusion of Ethics, Law, and Communication Issues in Genetics Education: A Survey of
Canadian Medical Schools” (2001) Canadian College of Medical Genetics Newsletter.
Jocelyn Downie, “Health Care Ethics Experts in Canadian Courts” (2001) 9:3 Health Law Review
19-26.
Jocelyn Downie, “Where There’s a Will, There’s a Way: Advance Directives (a.k.a. Living Wills)
in Canada” (2001) 5:1 The Philanthropist (Dalhousie Medical Research Foundation) 3.
Jocelyn Downie, “Egregious Inaction: A Five Year Review of ‘Of Life and Death’” (2000) 9:1
14
Health Law Review 13-21.
Jocelyn Downie, “Information/Consent/Authorization for Minors’ Participation in Research”
(1999) 8:2 Health Law Review 10-12.
Françoise Baylis, Jocelyn Downie, & Nuala Kenny, “Children and Decision-Making in Health
Research” (1999) 21:4 IRB: A Review of Human Subjects Research 5 - 10. Reprinted with
permission in (1999) 8:2 Health Law Review 3-9.
Jocelyn Downie & Karen Anthony, “The Push-Me/Pull-You of Euthanasia in Canada: A
Chronology of the Nancy Morrison Case” (1998) 7:2 Health Law Review 16-19.
Blogs, Newspaper Opinions, and Newsletter Articles
Jocelyn Downie and Georgia Lloyd-Smith, “Debunking the Myth about Access to
Palliative Care” Impact Ethics online: <http://impactethics.ca/2014/09/30/debunking-the-myth-
about-access-to-palliative-care>
Françoise Baylis and Jocelyn Downie, “Silencing Ethics at CIHR” Impact Ethics online:
<http://impactethics.ca/2014/07/02/silencing-ethics-at-cihr/>.
Françoise Baylis and Jocelyn Downie, “Mayday, Mayday, Mayday for Ethics at CIHR” Impact
Ethics online: <http://impactethics.ca/2014/02/25/mayday-mayday-mayday-for-ethics-at-cihr>.
Jocelyn Downie “End of Life Care in Quebec: It’s a New Dawn” Impact Ethics online:
<http://impactethics.ca/2014/02/10/end-of-life-care-in-quebec-its-a-new-dawn>.
Françoise Baylis and Jocelyn Downie “Wishing Doesn’t Make It So” Impact Ethics online:
<http://impactethics.ca/2013/12/17/wishing-doesnt-make-it-so>.
Jocelyn Downie “Beware Misinformation on Aid In Dying” Impact Ethics online:
<http://impactethics.ca/2013/11/13/beware-misinformation-on-aid-in-dying>.
Jocelyn Downie “A Win For Those Who Care For and About the Critically Ill in Canada” Impact
Ethics online:< http://impactethics.ca/2013/10/23/a-win-for-those-who-care-for-and-about-the-
critically-ill-in-canada>.
Jocelyn Downie “The Supreme Court Decision in Rasouli” Impact Ethics online:
<http://impactethics.ca/2013/10/21/the-supreme-court-decision-in-rasouli>.
Jocelyn Downie “Assisted Dying At 301 Wellington Street, Ottawa K1A 0J1” Impact Ethics
online:< http://impactethics.ca/2013/10/11/assisted-dying-at-301-wellington-street-ottawa-k1a-
0j1>.
Jocelyn Downie “Withholding “the necessaries of life”? Impact Ethics online
<http://impactethics.ca/2013/07/24/witholding-the-necessaries-of-life>.
15
Jocelyn Downie “Kudos to Quebec: A Comprehensive, Consistent, and Coherent Approach to
End-of-Life Care” Impact Ethics online: <http://impactethics.ca/2013/06/24/kudos-to-quebec-a-
comprehensive-consistent-and-coherent-approach-to-end-of-life-care>.
Jocelyn Downie, “Patient Safety Law: From Silos to Systems” Canadian Patient Safety Institute
(October 2006) 3.
Jocelyn Downie, “How Far Should We Go?” The Globe and Mail (April 23, 2003) A15.
Françoise Baylis & Jocelyn Downie, “Cloning for Stem Cell Research Unnecessary and
Dangerous” Commentary, The Hill Times (February 3, 2003) 16. Reprinted in: CellLines
(February 2003) 2, 3-4 and The Bulletin, The Genetics Society of Canada (March 2003) 34(1), 21-
23.
Françoise Baylis & Jocelyn Downie, “Ban Cloning. Do You Copy?” The Globe and Mail (July 3,
2002) A13.
Jocelyn Downie, “The Latimer Case: Some Public Policy Issues” (1995) 5:1 Calyx: Ethical Issues
in Paediatrics 2-3.
Jocelyn Downie, “The Limits on Research Involving Children” (1991) 1:3 Calyx: Ethical Issues
in Paediatrics 1-2.
Françoise Baylis & Jocelyn Downie, “The New Canadian Law on Abortion” (1990) 4:1
Westminster Affairs 10-11.
Françoise Baylis & Jocelyn Downie, “The Nature of Medical Ethics” (1990) 4:1 Westminster
Affairs 11-12.
Jocelyn Downie, “Teaching Ethics in Physical and Occupational Therapy” (1990) 3:3
Westminster Affairs 1-2.
Françoise Baylis & Jocelyn Downie, “Avoid Undue Pressure to Donate Organs” The Gazette
(November 23, 1989) B4.
Françoise Baylis & Jocelyn Downie, “Ensuring Freedom to Say No” London Free Press
(November 25, 1989) A13.
Jocelyn Downie, “Journalism Ethics: Mapping the Terrain” (1989) 3:1 Westminster Affairs 2.
Jocelyn Downie, “Focus On...Death: Definitions, Criteria, and Tests” (1989) 3:1 Westminster
Affairs 6-7.
Jocelyn Downie, “Ethics, Justice and Commerce in Transplantation: A Global Issue” (1989) 2:4
Westminster Affairs 4-5.
Jocelyn Downie, “Bioethics Discussion Group” (1989) 2:4 Westminster Affairs 7-8.
16
Jocelyn Downie, “The Ethics of Prenatal Screening” (1989) 2:2 Westminster Affairs 11.
Jocelyn Downie, “’...and multiply the delights of life’: A Study of the Foundations of Bioethics”
(1988) 4:3 Synapse 10-11.
Letters in Refereed Journals
Sanda Rodgers & Jocelyn Downie, “Abortion: Ensuring Access Response” (2007) 176:4
Canadian Medical Association Journal 494.
Sanda Rodgers & Jocelyn Downie, “Abortion: Ensuring Access” (editorial) (2006) 175:1
Canadian Medical Association Journal 9.
Patricia Baird, Jon Thompson, & Jocelyn Downie, “Independent Inquiry” (Letter) (2002) 167:1
Canadian Medical Association Journal 12-13.
Françoise Baylis & Jocelyn Downie, “Sentence: Education in Ethics” (Letters) (1994) 151:4
Canadian Medical Association Journal 416-417; (1994) 150:8 Canadian Medical Association
Journal 1195; (1993) 149:12 Canadian Medical Association Journal 1772; (1993) 149:5
Canadian Medical Association Journal 532-533.
Françoise Baylis, Jocelyn Downie, & Susan Sherwin, “Medical Ethics and Women” (Letter)
(1990) 143 Canadian Medical Association Journal 250-251.
PRESENTATIONS
Presentations at International Meetings
“Withholding and Withdrawal of Potentially Life-Sustaining Treatment: Who Decides?” (First
International End of Life Law, Policy and Practice Conference, Brisbane, Australia, August
2014).
"Canada on the Verge: The Newest Permissive Assisted Dying Regime?" (11th World Congress
of the International Association of Bioethics, Rotterdam, Holland, June 2012).
"Watch your language: Stigmatization of mental illness in the Federation of Law Societies Model
Code of Professional Conduct" (International Legal Ethics Conference V, Banff, Alberta, July
2012).
"Notes from a Menace: On Regulating Health Care Providers' Conscientious Refusals" (Feminist
Approaches to Bioethics Congress, Rotterdam, Holland, June 2012).
“Cutting the Gordian Knot of Futility” (Australasian Association of Bioethics and Health Law
2011 Conference, Gold Coast, Australia, July 1011).
17
“Judicial Reasoning about Pregnancy and Choice in Canada: Some hopes and fears” (7th World
Congress of Feminist Approaches to Bioethics Conference, Rijeka, Croatia, September 2008)
(with Chris Kaposy)).
“Voice, Power, and Responsibility in Bioethics Research (aka ‘People who Live in Glass
Houses...’)” (7th World Congress of Feminist Approaches to Bioethics Conference, Rijeka,
Croatia, September 2008).
“The Olivieri Case: Lessons for Australia” (Ethics in Human Research Conference, Canberra,
Australia, May 2005 (with Susan Dodds)).
“Nudging the Law: How to Move Legalized Aid-in-Dying Forward” (World Federation of Right
to Die Societies 16th Biennial Conference, Toronto, Ontario, September 2006).
“Unilateral Withholding and Withdrawal of Potentially Life-Sustaining Treatment: A Violation of
Dignity Under the Law” (Human Dignity, Narrative Integrity and Ethical Decision-Making at the
End of Life: An International, Interdisciplinary Symposium, St. John’s, Newfoundland, June
2004).
“Institutional Conflict of Interest: An Overview” (The 2004 Forum for IRBs/REBs in Canada and
the U.S. (FOCUS) Conference, Washington, D.C., June 2004).
“Continental Divide: Reflections on Legal Liability in Human Subjects Research in Canada”
(General Clinical Research Centers 2004 Annual National Meeting, Chicago, Illinois, April
2004).
“Stem Cells and Big Picture Bioethics: Comparing Policy-Making in Liberal Democracies”
(International Association of Bioethics, 7th World Congress, Sydney, Australia, November 2004
(with Françoise Baylis, Susan Dodds, & Rachel Ankeny)).
“Expanding the Gaze for Research Ethics Reform,” Canadian and U.S. Systems for Human
Research Protection (Joint American Society for Bioethics and Humanities and Canadian
Bioethics Society Meeting, Montreal, Quebec, October 2003).
“Oversight of Research Involving Humans: Challenges for Ethics Review Through the Lens of
Genetics Research in Mental Health” (International Congress on Law and Mental Health, Plenary,
Sydney, Australia, October 2003).
“Policy Politics: Conflicts of Interest, Industry and Research Policy” (International Congress on
Law and Mental Health, Pre-Conference, Sydney, Australia, September 2003).
“The Promises and Perils of Contemporary Health Research” (Health Law in the 21st Century, 1st
National Health Law Conference, University of Alberta Health Law Institute, Edmonton, Alberta,
September 2002).
“End of Life Issues” (Canadian Conference of Public Trustees and Official Guardians, Halifax,
18
Nova Scotia, May 2001).
“Ethical and Legal Issues in Genetic Testing: A Canadian Perspective” (2000 National Policy
Research Conference, [email protected], Ottawa, Ontario, November 2000).
“The Contested Lessons of the Netherlands” (Canadian Bioethics Society Annual Meeting,
Edmonton, Alberta, October 1999).
“Mandatory Testing of Dental Professionals for Hepatitis B” (Canadian Dental Association
Annual Meeting, Halifax, Nova Scotia, August 1999).
“Collaborative Interdisciplinary Feminist Health Care Ethics” (International Association of
Bioethics, 2nd Conference of the International Association on Feminist Approaches to Bioethics,
Tsukuba, Japan, November 1998 (with Françoise Baylis & Susan Sherwin)).
“Dying Justice: Reflections on End-of-Life Policy in Canada” (International Association of
Bioethics, 4th World Congress of Bioethics, Tokyo, Japan, November 1998).
“Physician-Assisted Suicide in Canada” (Eighth Annual Comparative Health Law Conference,
Comparative Perspectives on Law and Medicine: The Case of Primary Care, Dublin, Ireland, June
1997).
“Reflections on Autonomy, Agency, and Resistance” (International Association of Bioethics, 1st
International Conference of Feminist Approaches to Bioethics, San Francisco, California,
November 1996 (with Françoise Baylis, Maria De Koninck, Margaret Lock, Kathryn Pauly
Morgan, & Susan Sherwin)).
“Feminist Perspectives on Bioethics Consultation” (Society for Bioethics Consultation (U.S.A.)
Annual Meeting, Toronto, Ontario, September 1991).
“Ethics in Paediatric Rehabilitation” (American Academy for Cerebral Palsy and Developmental
Medicine (AACPDM) Annual Meeting, Orlando, Florida, October 1990 (with Mervyn Fox)).
“The Biology of the Persistent Vegetative State: Ethical Implications for Transplantation”
(International Transplantation Society Congress on Ethics, Justice and Commerce in
Transplantation: A Global Issue, Ottawa, Ontario, August 1989).
Presentations at National Meetings
"Assisted Suicide and Voluntary Euthanasia in Canada" (National Health Law Summit, Canadian
Bar Association, Halifax, Nova Scotia, May 2013).
"The legal status of unilateral withholding and withdrawal of potentially life-sustaining treatment:
Whose decision is it anyway?" (National Health Law Summit, Canadian Bar Association, Halifax,
Nova Scotia, May 2013).
19
"Abortion and Conscientious Objection" (Bodies of Law: Women's Health and Equality,
Kingston, Ontario, March 2013).
"A Momentous Year: End of Life Law and Policy in Canada 2011-2012" (Dying With Dignity
Annual Meeting, Toronto, Ontario, June 2012).
"Transnational Trade in Human Eggs: What has/does/should (Canadian) law got to do, got to do
With it?" (National Health Law Conference, Toronto, Ontario, May 2012).
“The HPV Vaccine Initiative – Lessons to be Learned” (Canadian Immunization Conference,
Quebec, December 2010)
“School-based vaccine programs through a health law and policy lens: A view from Nova Scotia”
(Canadian Public Health Association Conference, Halifax, June 2008).
“HPV Vaccine Out of the Box” (Canada Public Health Association Annual Conference, Halifax,
Nova Scotia, June 2008).
“From Public Interest Requirements to Compulsory Legal Ethics” (Can Legal Ethics Be Taught,
Toronto, Ontario, April 2008) with Richard Devlin.
“Barriers to Access to Abortion: What They Are and What You Can Do” (Medical Students for
Choice, National Conference, Halifax, Nova Scotia, February 2007).
“Physician Assisted Suicide: Common Concerns and Respectful Difference” opening plenary (4th
Annual Advance Learning in Palliative Medicine, Conference of the Canadian Society of
Palliative Care Physicians, plenary session (with Nuala Kenny), Halifax, Nova Scotia, May
2007).
“Relational Theory & Health Law and Policy” (Visions: 4th National Health Law Conference,
Banff, Alberta, November 2007).
“Legal, Ethical, and Clinical Issues at the End of Life” (Elder Law: The Dawn of a New Age,
National Elder Law Section, Canadian Bar Association, Fredericton, New Brunswick, June 2007).
“Dying Justice: End of Life Law at the Supreme Court of Canada” (Health Law at the Supreme
Court of Canada, 3rd National Health Law Conference, Halifax, Nova Scotia, February 2006).
“Money and Bioethics” (Canadian Bioethics Society Annual Meeting, Halifax, Nova Scotia,
October 2005).
“Competing Interests and Obligations in the Creation of Research Policy” (Who Gets It? Who
Decides? Issues of Access and Allocation in Health Care, 2nd National Health Law Conference,
University of Toronto, Toronto, Ontario, January 2004).
“Women and Health Research: New Canadian Research Guidelines” (Canadian Bioethics Society
20
Annual Meeting, Reflections on a Decade of Bioethics, Toronto, Ontario, October 1998 (with
Françoise Baylis & Susan Sherwin)).
“Dramatic Improvisation as a Bioethics Teaching Tool (Mandatory Treatment for Pregnant
Women: The Case of Mrs. (G))” (Canadian Bioethics Society Annual Meeting, Reflections on a
Decade of Bioethics, Toronto, Ontario, October 1998 (with Jeff Nisker & Sanda Rodgers)).
“Elderly Women, Health, and Law” (Association of Canadian Medical Colleges Gender Issues
Workshop, Halifax, Nova Scotia, May 1997).
“Reframing Process: Research Involving Humans” (Canadian Society of Women in Philosophy
Annual Meeting, Halifax, Nova Scotia, September 1997 (with Françoise Baylis & Susan
Sherwin)).
“Health Care Ethics ‘Experts’ in Canadian Courts” (Canadian Bioethics Society Annual Meeting,
Changing the System: Interprofessional and Interdisciplinary Approaches, Halifax, Nova Scotia,
October 1997).
“Feminist Ethics and Assisted Death” (Canadian Health Care Ethics Forum III: Bioethics
Education: Teaching the Teachers, Halifax, Nova Scotia, October 1996).
“Living Wills: What Do They Mean for Health Care Workers?” (Dynamics ‘91: Canadian
Association of Critical Care Nursing, Toronto, Ontario, September 1991).
“A Feminist Analysis of Women and Research” (Canadian Bioethics Society Annual Meeting,
Vancouver, British Columbia, November 1995).
“Child Abuse Through the Lens of Gender and Culture” (Canadian Bioethics Society Annual
Meeting, Ottawa, Ontario, October 1994 (with Françoise Baylis)).
“Rethinking Autonomy in Health Care Contexts: Research Involving Human Subjects in Canada”
(Canadian Society of Women in Philosophy, Toronto, Ontario, October 1994 (with Susan
Sherwin & Kathryn Pauly Morgan)).
“The Legal and Ethical Status of Research Involving Children in Canada” (Canadian Bioethics
Society Annual Meeting, Hamilton, Ontario, November 1991 (with Françoise Baylis)).
“Research: A Way of Caring for Children” (Canadian Bioethics Society Annual Meeting,
Hamilton, Ontario, November 1991 (with Françoise Baylis)).
“Death and Dying in Children’s Literature” King’s College, Death and Bereavement: Creative
Strategies, London, Ontario, May 1990 (with Françoise Baylis).
“’Where there is a will, there may be a better way’: An Argument for Legislating Respect for
Advance Directives” (Moral Philosophy in the Public Domain, Vancouver, British Columbia,
June 1990).
21
“Ethics in Paediatric Rehabilitation” (Association of Treatment Centres of Ontario (ATCO)
Annual Meeting, Ottawa, Ontario, May 1990 (with Mervyn Fox)).
“Responsibility for the Costs of ‘Unhealthy’ Lifestyles” (Health Care Ethics 2001: Issues of
Justice and Responsibility, London, Ontario, May 1990).
“Death and Dying in Children’s Literature” (Death and Bereavement: Creative Responses to
Living, London, Ontario, May 1990 (with Françoise Baylis)).
“Toward an Ethic of Care” (Canadian Bioethics Society Annual Meeting, Calgary, Alberta,
November 1989).
“Evaluation in Medical Ethics Education” (Canadian Bioethics Society Annual Meeting, Ottawa,
Ontario, November 1988 (with Françoise Baylis & Abbyann Lynch)).
Other Invited Presentations
“End of life law and policy reform in common law jurisdictions” (La réforme des soins de fin de
vie et le regard du droit compare, Association Québécoise de droit comparé, Montreal, May 9,
2014).
“End of Life Law and Policy in Canada” (Nova Scotia Health Ethics Network, National Health
Ethics Week, Halifax, March 2014).
“Research Governance – Best Practices” (CAURA East and CAREB Atlantic Conference 2013
Fredericton November 2013).
“Turbulent Times: End of Life Law and Policy in Canada” (Nova Scotia Medico-Legal Society
Annual General Meeting, November 2013).
"Ethical Decision-Making and Government Lawyering: Through the lens of public interest
vocationalism and other tools" with Richard Devlin (Ketcheson Lecture, Regina, Saskatchewan,
April 2013).
"An Overview of End of Life Law and Policy in Canada and Abroad" (Dr. Ken Rozee Memorial
Lectures, Seniors' College Association of Nova Scotia, Halifax, Nova Scotia, April 2013).
"Poised: End of Life Law and Policy in Canada" University of Toronto Health Law and Policy
Seminar Series (University of Toronto, Toronto, Ontario, February 2013).
"A Good Death: The Legal Situation" (Atlantic School of Theology, Halifax, Nova Scotia,
January 2013).
"End of Life Law, Policy, and Practice in Canada: A discussion of recent developments" with
Graeme Rocker (Senior and Retired Doctors Section of Doctors Nova Scotia, Halifax, Nova
Scotia, October 2012).
22
"What is Academic Freedom?" (University of Alberta, Edmonton, Alberta, September 2012).
"Being Relational: Relational Theory and Health Law and Policy" (with Jennifer Llewellyn)
(Health Law and Policy Seminar Series, Dalhousie University, Halifax, Nova Scotia, March
2012).
"Turbulent Times: End of Life Law and Policy in Canada" (Mini-U, Schulich School of Law,
Halifax, Nova Scotia, March 2012)
"Governance of Assisted Human Reproduction in Canada: The AHR Agency and Board" (with
Françoise Baylis) (New Approaches to Assisted Human Reproduction in Canada after the
Supreme Court of Canada Reference: A Research Roundtable, University of Manitoba, Winnipeg,
Manitoba, February 2012).
"End of Life Law and Policy: 'The Times They Are A-changin''" (University of Manitoba,
Winnipeg, Manitoba, February 2012).
"Turbulent Times: End of Life Law and Policy in Canada" (Alberta Law Review Annual
Banquet, Edmonton, Alberta, February 2012).
"'A Change is Gonna Come': End of Life Law and Policy in Canada" (Ivan C. Rand Memorial
Lecture, University of New Brunswick, Fredericton, New Brunswick, February 2012).
"Dying Justice: The decriminalization of euthanasia and assisted suicide" (QUT, Brisbane,
Australia, September 2011).
"Restorative Justice, Euthanasia and Assisted Suicide: A new arena for restorative justice and a
new path for end of life law and policy" (Macquarie University, Sydney, Australia, September
2011).
“Just Dying: A Discussion of Euthanasia, Assisted Suicide, and the Law” (Third Annual Lecture
in Health and Law, Montreal, Quebec, January 2011).
“At the Cutting Edge: Law and Policy in Respirology and Critical Care” (Annual Atlantic
Respirology and Critical Care Conference, Halifax, Nova Scotia, November 2010).
“Relational Theory and Health Law and Policy” (Exploring Boundaries: An International
Dialogue on Socio-Legal Feminism, St. James, Barbados, June 2010 (with Jennifer Llewellyn)).
“Development of Policy and Consent and the Conduct of Pelvic Exams in Surgical Procedures on
Anaesthetized Women” (Exploring Boundaries: An International Dialogue on Socio-Legal
Feminism, St. James, Barbados, June 2010 (with Elaine Gibson)).
“Promises and Perils of Industry-Sponsored Clinical Trials” (Clinician Investigator Winterlude
Break, Clinical Trials and Tribulations, Liverpool, Nova Scotia, April 2010).
23
“It’s a No-Brainer: The (In) admissibility of Functional MRI Evidence on Credibility” (Health
Law and Policy Seminar Series, Halifax, NS, March 2010 (with Ronalda Murphy)).
“Whose decision is it anyway? An exploration of unilateral withholding and withdrawal of
potentially life-sustaining treatment” (End of Life Ethics and Decision-Making: Current Policy
Debates about Withholding and Withdrawing Life-Sustaining Treatment, Winnipeg, June 2008).
“The legal status of unilateral withholding and withdrawal of treatment: A national overview”
(HEAL Rounds, Winnipeg, June 2008).
“American College of Dentists Special Lecture on Ethics” (Dalhousie University Faculty of
Dentistry, Halifax, Nova Scotia, November 2007).
“The Commercialization of Research in Public Institutions” (Institute Advisory Board Meeting,
Institute for Health Services and Policy Research, Canadian Institutes of Health Research,
Halifax, Nova Scotia, June 2007).
“The Ends of Life and Death: Public Policy, Spirituality, and the Law” (Segelberg Trust Lecture
Series, Dalhousie University, Halifax, Nova Scotia, October 2006).
“The Power of Money in the Research World” (IWK Health Centre, Halifax, Nova Scotia, July
2006).
“The Power of Money: Reflections on Influences” (IWK Health Centre, Halifax, Nova Scotia,
July 2006).
“End of Life Decision-Making” (Ontario Bar Association, Toronto, Ontario, January 2006).
“Reflections on Advance Directives from the Ivory Tower” (Canadian Bar Association, Nova
Scotia Branch, 10th Annual Fall Forum, Halifax, Nova Scotia, Fall 2005).
“The Power of Money: The Commercialization of Research in Public Institutions” (Health Law
and Policy Seminar Series, Dalhousie Health Law Institute, Halifax, Nova Scotia, September
2005).
“The Olivieri Case: Lessons for Australia” (University of Wollongong, Sydney, Australia, May
2005 (with Susan Dodds)).
“Commercialization of Research in Public Institutions: Implications for Discussions of Conflicts
of Interest” (Staff Seminar, Faculty of Law, University of Otago, Dunedin, New Zealand, May
2005).
“Dying Justice: A Case for the Decriminalization of Euthanasia and Assisted Suicide” (Seminar
Series, Bioethics Centre, University of Otago, Dunedin, New Zealand, April 2005).
24
“Contemporary Health Research: A Cautionary Tale” (Seminar Series, Bioethics Centre,
University of Otago, Dunedin, New Zealand, November 2004).
“Contemporary Health Research: A Cautionary Tale” (2nd Annual Meeting at the Crossroads:
Graduate Research in Health, Dalhousie Faculty of Health Professions, Halifax, Nova Scotia,
April 2004).
“Women in Clinical Trials” (Dalhousie Association of Women and the Law, Halifax, Nova
Scotia, February 2004).
“The Promises and Perils of Contemporary Health Research” (Legal Studies Dinner Seminar,
Faculty of Law, University of Manitoba, Winnipeg, Manitoba, November 2003).
“Dying Justice: Reflections on End-of-Life Policy in Canada” (Distinguished Visiting Lecture,
Faculty of Law, University of Manitoba, Winnipeg, Manitoba, November 2003).
“Health Law Issues for the Elderly” (The 2003 Isaac Pitblado Lectures, Winnipeg, Manitoba,
November 2003).
“A Cautionary Tale: Lessons from the Dr. Nancy Olivieri, the Hospital for Sick Children, the
University of Toronto, and Apotex Inc. Case” (University of Wollongong, Sydney, Australia,
October 2003).
“Reforming the Consent Form Requirements” (Capital District Health Authority Research Ethics
Board Retreat, Halifax, Nova Scotia, May 2003).
“Collaborative Ethics Review” (Children’s Oncology Group Research Ethics Board Workshop,
Halifax, Nova Scotia, May 2003).
“The Promises and Perils of Contemporary Health Research” (Huggins High School Science
Seminar, Acadia University Division of Continuing and Distance Education, Wolfville, Nova
Scotia, May 2003).
“The Promises and Perils of Contemporary Health Research” (University of Houston Health Law
and Policy Institute, Houston, Texas, February 2003).
“The Promises and Perils of Contemporary Health Research” (National Research Council Public
Lecture, Winnipeg, Manitoba, January 2003).
“Withdrawing and Withholding Treatment: Whose Decision Is It Anyway?” (St. Boniface
General Hospital Health Care Ethics Quarterly Rounds, Winnipeg, Manitoba, January 2003).
“The Research Ethics Board as Initial Arbiter of Benefit: Who Are We To Decide?,” “The Power
of Money: An Exploration of the Issues Arising Out of the Increasing Commercialization of
Research,” and “A Cautionary Tale: The Case of Dr. Nancy Olivieri, the Hospital for Sick
Children, the University of Toronto, and Apotex Inc.” (National Research Council Institute of
25
Biodiagnostics Research Ethics Board Annual Retreat, Winnipeg, Manitoba, January 2003).
“Promises and Perils: Ethics in Health Research in the New Millennium” (Dalhousie Health Law
Institute, Health Law and Policy Seminar Series, Halifax, Nova Scotia, November 2001).
“Promises and Perils: Ethics in Health Research in the New Millennium” (The Honourable Mr.
Justice Michael O’Bryne/AHFMR Lecturer on Law, Medicine and Ethics, Calgary and
Edmonton, Alberta, October 2001).
“Where There is a Will, There May be a Better Way: Advance Directives in Nova Scotia” (Nova
Scotia Hospice Palliative Care Association Annual Meeting, Greenwich, Nova Scotia, June
2001).
“Pervasive Nature of the Policy Challenges Posed by the Genomics Revolution” (Institute on
Governance, The Insurmountable Opportunity Round Table: A Policy Exchange Program,
Ottawa, Ontario, February 2001).
“Dying Justice: Reflections on End of Life Policy in Canada” (Kingston General Hospital
Bioethics Conference, Kingston, Ontario, October 2000).
“An Overview of Advance Directives - What Are They and How Do They Work?” (Nova Scotia
Association of Health Organizations Conference, Dartmouth, Nova Scotia, September 2000).
“Dying Justice: Reflections on Assisted Death Policy in Canada” (University of Toronto Faculty
of Law, Health Law and Policy Seminar Series, Toronto, Ontario, September 2000).
“Assisted Death in Canada” (The Bank of Montreal Visiting Lectureship, Acadia University,
Wolfville, Nova Scotia, March 2000).
“Dying Justice: The Legal Status of Assisted Death in Canada” (Dalhousie Medical Humanities
Series, Halifax, Nova Scotia, March 2000).
“Research Ethics Board Operational Issues: Implementing the Tri-Council Policy Statement”
(National Council on Ethics in Human Research Workshop, Halifax, Nova Scotia, November
1999).
“Dying Justice: Reflections on End of Life Policy in Canada” (University of New Brunswick
Faculty of Law, Law Hour, Fredericton, New Brunswick, March 1999).
“Where There’s a Will, There’s a Way” (Dalhousie Development Office, Leave a Legacy Week,
Halifax, Nova Scotia, October 1998).
“Should Physicians be Legally Allowed to Give Lethal Injections to Patients with the Intent to
End the Patient’s Life?” (Dalhousie Medical Alumni Association, Issues at the End of Life
Workshop, Halifax, Nova Scotia, September 1998 (Debate with Graeme Rocker)).
26
“Toward a Gender-Based Analysis of Assisted Death in Canada” (Nova Scotia Advisory Council
on the Status of Women Board, Halifax, Nova Scotia, March 1998).
“Women and Health Research: From Theory to Policy” (Dalhousie Women’s Studies Seminar
Series, Halifax, Nova Scotia, February 1998).
“Assisted Death: Recent Developments in Health Law” (Canadian Bar Association, Health Law
Section Meeting, Halifax, Nova Scotia, October 1997).
“Assisted Death: Legal, Philosophical and Clinical Perspectives” (Dalhousie Law School Reunion
‘97, Continuing Legal Education: Contemporary Legal Issues in Health Law, Halifax, Nova
Scotia, October 1997).
“Assisted Death: Recent Developments in Health Law” (Dalhousie Faculty of Law, Law Hour,
Halifax, Nova Scotia, September 1997).
“Assisted Death in Canada: Recent Developments” (Dalhousie Health Law Institute Seminar
Series, Halifax, Nova Scotia, September 1997).
“Ethics Experts in Canadian Courts” (Dalhousie University Bioethics Interest Group, Halifax,
Nova Scotia, April 1997).
“Institutional Ethics Policy-Making” (IWK Grace Hospital Ethics Committee, Halifax, Nova
Scotia, January 1997).
“A Feminist Analysis of the Legal Regulation of Medical Research Involving Women”
(University of Toronto Bioethics Series, Toronto, Ontario, March 1995).
“Feminist Perspectives on Medical Ethics” (McMaster Summer Gerontological Institute,
Hamilton, Ontario, June 1992).
“The Legal Status of Advance Directives in Canada” (Canadian Bar Association (Ontario) Trusts
and Estates Division, London, Ontario, April 1992).
“Ethics in Rehabilitation Medicine” (Northwestern University Medical School/Prince Visiting
Professorship, Chicago, Illinois, February 1992).
“The Legal and Ethical Status of Advance Directives” (University of Toronto Centre for
Bioethics Dupont Seminar, Toronto, Ontario, May 1991).
“Nursing Ethics” (Victoria Hospital Nursing Department, London, Ontario, April 1990).
“Bioethics” (Norfolk General Hospital, Norfolk, Ontario, April 1990).
“Ethics Rounds in the Paediatric Critical Care Setting” (Symposium ‘90: Graduate Medical Ethics
Education (sponsored by the Westminster Institute), London, Ontario, March 1990).
27
“Bioethics” (Clinton General Hospital, Clinton, Ontario, February 1990).
“Ethics in Safety Engineering” (Canadian Association of Safety Engineering, London, Ontario,
January 1990).
“Ethical Issues in Burn Care” (Fanshawe College and Victoria Hospital Burns Seminar, London,
Ontario, November 1989).
“Ethical Issues in Physical Therapy” (Canadian Physical Therapy Association, London Branch,
London, Ontario, November 1989).
“Ethics and You: The Step Beyond Humanism” (Assumption University, Windsor, Ontario,
November 1989).
“Euthanasia” (Clergy Day, Welland, Ontario, September 1989).
“Bioethics” (Goderich Rotary Club, Goderich, Ontario, May 1989).
“Reproductive Technologies and Tomorrow’s Families” (Today’s Challenges, Tomorrow’s
Families, Hamilton, Ontario, May 1989).
“Informed Consent and the Occupational Therapist” (St. Joseph’s Hospital Occupational Therapy
Rounds, London, Ontario, March 1989).
“Ethics in Occupational Therapy” (University Hospital Occupational Therapy Rounds, London,
Ontario, March 1989).
“Ethics in Occupational Therapy” (University Hospital Occupational Therapy Retreat, London,
Ontario, February 1989).
“Euthanasia” (Wheable Centre for Adult Education, London, Ontario, December 1988).
“Bioethics: Past, Present, and Future” (Bayfield Historical Society, Bayfield, Ontario, November
1988).
“Is There Ethics in Your Future?” (Ethics, Law, and Jurisprudence in Applied Health, London,
Ontario, October 1988).
“The Ethics of Reproductive Technologies” (Queen’s University Ban Righ Foundation, Kingston,
Ontario, September 1987).
“The Foundations of Biomedical Ethics” (Queen’s University Philosophy Department
Colloquium, Kingston, Ontario, December 1986).
Testimony Before Committees
28
“Comments on Bill 52 An Act respecting end-of-life care” Quebec National Assembly, Quebec
City, Quebec (by videoconference), October 2013.
"Discussion on end of life law and policy in Canada," Quebec National Assembly Select
Committee on Dying with Dignity, Quebec City, Quebec (by videoconference), March 2010.
"The appointment of Dr. B. Prigent (Vice President of Pfizer Inc.) to the Governing Council of
CIHR," House of Commons Standing Committee on Health, December 2009.
“Comments on the Proposed Mandatory Gunshot and Stab Wound Reporting Legislation,” Law
Amendments Committee, Halifax, Nova Scotia, December 2007.
“Comments on the Proposed Assisted Reproductive Technologies Legislation,” Standing
Committee on Health (Hearings on the Draft Legislation on Assisted Human Reproduction),
Ottawa, Ontario, November 2001.
“Five Year Report on the Legal Status Sections and Unanimous Recommendations Made by the
Special Senate Committee on Euthanasia and Assisted Suicide in ‘Of Life and Death’,”
Subcommittee of the Standing Committee on Social Affairs to Update “Of Life and Death”
Ottawa, Ontario, February 2000.
Invited Panel Participation
“Comparative flash points in end of life law, ethics and policy: Plenary Panel Discussion” (First
International End of Life Law, Policy and Practice Conference, Brisbane, Australia, August
2014).
“End of life law and policy – A Primer for Parliamentarians” (Parliament of Canada, Ottawa, June
10, 2014).
“Roundtable: Practice Readiness in Practice: Discourse & Design” (Canadian Association of Law
Teachers, Winnipeg, June 8, 2014).
“Assisted Suicide: A Right?” (Panel Discussion with Advocates, Academics, & Spiritual Leaders,
Saint Andrew’s United Church, March 21, 2014).
“Withdrawing Life-sustaining Care” (Café Scientifique, Halifax, Nova Scotia, March 24, 2014).
“End of life decisions” (Canadian Bar Association Mid-Winter Meeting, Ottawa, February 14,
2014).
"Crisis of conscience: conscientious refusal by healthcare providers and access to care" (Café
Scientifique, Halifax, Nova Scotia, February 4, 2013).
"The Human Egg Trade" (Café Scientifique, Halifax, Nova Scotia, January 29, 2013).
29
"The Relevance of Academic Freedom" (University of Alberta, Edmonton, Alberta,
September 28, 2012).
"Conference Reflections and Future Directions: Plenary Panel Discussion" (End of Life Care in
Canada: The Last 100 Days, Canadian Academy of Health Sciences Annual Meeting, Ottawa,
Ontario, September 21, 2012).
"Legal Permissibility of Conscientious Refusals: A View from Canada", Panel Presentation on the
Moral and Legal Permissibility of Conscientious Refusals (The Spark of Conscience Inflames
Debate: Conflicts of Conscience in Health Care, Santa Clara University, San Jose, California,
November 2011).
“The Spark of Conscience Inflames Debate: Conflicts of Conscience in Medicine” (Café
Scientifique, London, Ontario, November 2010).
“Shaping Health Policy for Community Involvement” (Café Scientifique, Halifax, Nova Scotia,
November 2010).
“Whose Life is it Anyway? Assisted Suicide in Canada” (Café Scientifique, Ottawa, Ontario,
March 2009).
“Whose Life is it Anyway? Assisted Suicide in Canada” (Café Scientifique, Halifax, Nova Scotia,
February 2008).
“Genetic Screening: Are Your Genes Your Own?” (Discovery Centre Youth Forum, Halifax,
Nova Scotia, February 2006).
“Rescuing Research Through Regulation” (Canadian Association of Law Teachers Annual
Conference, Panel: The Roles of Power and Trust in the Health Care Context, Halifax, Nova
Scotia, June 2003).
“Preserving and Adapting Core Values in the Contemporary University” (Dalhousie Conference
on University Teaching and Learning, Halifax, Nova Scotia, May 2003).
“Crimes of Compassion: How to Cover the Uncoverable” (Canadian Association of Journalists,
Halifax, Nova Scotia, September 1997).
“Human Genetics, Medicine, & Industry” (Atlantic Research Centre, Halifax, Nova Scotia, May
1997).
“Is Kevorkian Right?: Assisted Suicide in Canada” (Nova Scotia Medical Legal Society, Halifax,
Nova Scotia, January 1997).
Poster Presentation
30
“Organizational Ethics and Health Policy: A Canadian Model” (American Society for Bioethics
and Humanities, Philadelphia, Pennsylvania, October 1999 (with Nuala Kenny)).
RESEARCH GRANTS
The CIHR Training Program in Health Law, Ethics, and Policy, $1,947,000 Canadian
Institutes of Health Research, Co-Investigator (Principal Investigator: Colleen Flood), 2009-2015.
The Ethics of End-of-Life Care: Understanding the Moral Landscape of Medicalized Dying
in Canada, $203,360 Canadian Institutes of Health Research, Co-investigator (Principal
Investigators: Jennifer Fishman and Mary Ellen MacDonald), 2011-2014.
A Comparative Study of Assisted Human Reproduction Patients' Views About the Donation
of Eggs and Embryos for Scientific and Clinical Research, $345,399 Canadian Institutes of
Health Research, Program Advisory Committee (Principal Investigator: Françoise Baylis), 2011-
2013.
Canada Research Chair in Health Law and Policy, $1,000,000 Government of Canada, 2003-
13
Let Conscience be their Guide? Conscientious Refusals in Reproductive Health Care,
$240,296, Canadian Institutes of Health Research, Co-Investigator (Principal Investigator:
Carolyn McLeod), 2009-2012.
Determination of Death Practices in Intensive Care Units, $133,000 Physician Services Inc.,
$29, RI, $9,714 Canadian Institutes of Health Research, Co-Investigator (Principal Investigator:
Sonny Dhanani), 2009-2012.
Envisioning Pathways to Community Health Through the Eyes of North End Haligonians,
CIHR Café Scientifique Program, $3,000 Canadian Institutes of Health Research, Co-Investigator
(Principal Investigator: Dorothy Barnard), 2010-2011.
Relational Theory & Health Law and Policy, $25,000 Canadian Institutes of Health Research
Principal Investigator with Jennifer Llewellyn, 2009-2011.
Identifying Practices, Challenges and Solutions for REB Review of Advanced Neuroimaging
Research in Canada, $100,000 CIHR Ethics Catalyst Grant, Canadian Institutes of Health
Research, Collaborator, (Principal Investigator: Eric Racine), 2007-2010.
The Concept of Choice in Canadian Judicial Reasoning about Reproduction, $6,685 Law
Foundation of Nova Scotia, Co-Principal Investigator, (with Chris Kaposy), 2007-2009.
Pandemic Planning and Foundational Ethical Questions of Justice, the Common Good and
the Public Interest, $130,347 Canadian Institutes of Health Research (CIHR), Co-Investigator
(Principal Investigator: Françoise Baylis), 2007-2009.
31
Neuroimaging Ethics: From Theory to Practice, $1,484,868 Canadian Institutes of Health
Research, Principal Investigator, 2004-2011.
CIHR Training Program in Health Law and Policy, $1,800,000 Institute of Health Services
and Policy Research (lead), Institute of Genetics, Institute of Gender and Health, and Alberta
Heritage Foundation for Medical Research, Principal Investigator, 2002-2010.
CIHR Ethics of Health Research and Policy Training Program, $1,717,375 Co-investigator
(Principal Investigator: Michael McDonald), 2002-09.
Big Picture Bioethics: Policy Making and Liberal Democracy, $450,863 (CDN) Discovery
Projects, Australian Research Council, Co-Investigator (Principal Investigator: Susan Dodds),
2005-2008.
Establishment of the Canadian Centre for Vaccinology (Halifax) with Laboratories for
Basic, Translational, and Multidisciplinary Research and Facilities for Human Challenge
Studies, $2,251,893 Canada Foundation for Innovation; $2,263,309 Office of Economic
Development, Government of Nova Scotia; $1,126,340 IWK Health Centre and other partners,
Co-Investigator (Principal Applicant: Scott A. Halperin), 2004-2008.
IWK Health Centre Research Centre of Excellence Scholar Award, $200,000 IWK Health
Centre, 2003-08.
CIHR Training Program in Health Law and Policy Matching Funds Award, $100,000 Nova
Scotia Health Research Foundation, Principal Applicant 2005-2007.
The Development of New Conceptual Paradigms Responding to Privacy and Access
Challenges in Health Research, $71,500 Canadian Institutes of Health Research, Co-Applicant
(Principal Applicant: Elaine Gibson), 2004-2007.
Canada Research Chair Matching Funds Award, $30,098 Nova Scotia Health Research
Foundation, Principal Applicant, 2003-2005.
Big Picture Bioethics: Policy Making and Liberal Democracy, $15,000 University of
Wollongong, New South Wales, Australia, Co-Investigator (Principal Investigator: Susan Dodds),
2004.
Proposal Development Support (CIHR Neuroethics NET Application), $7,136 Nova Scotia
Health Research Foundation, Principal Applicant, 2004.
End of Life Treatment Policy and Practice in Canada, $300,982 Max Bell Foundation and
Nova Scotia Health Research Foundation, Co-Director, 2002-2004.
End of Life/Palliative Care: Planning for a Quality Finish a Multidisciplinary National
Research Workshop, $50,000 Canadian Institutes of Health Research New Frontiers Grant, Co-
Applicant, 2002-2003.
32
CIHR Training Program in Health Law and Policy Application Support Grant, $5,000
Canadian Institutes of Health Research, Principal Investigator, 2002.
Preparing an Application for a S.S.H.R.C. Standard Research Grant on Research Involving
Humans, $5,000 Dalhousie University S.S.H.R.C. Special, One-time Grant, Principal
Investigator, 2001.
Proposal for an Ethics of Health Research Training Program, $1,717,375 Canadian Institutes
of Health Research, (Principal Investigator, Michael Francis McDonald). 2001 – 2009.
Women, Pregnancy and Research: A Study of Ethics Reviews of Pregnancy and Inclusion of
Women in Clinical Trials, $2,150 QEII Nursing Research Fund, Co-Principal Investigator,
1999-2000.
Law and Ethics Education in Canadian Faculties of Dentistry, $10,688 Dentistry Canada
Fund, Principal Investigator, 1997-2000.
Canadian Institutes of Health Research Institute Design Grant: Bioethics and Health Law,
$40,000 S.S.H.R.C., Co-Investigator, 1999.
Community-Based Research Ethics Review, $8,200 Health Canada, Co-Principal Investigator,
1998-1999.
Enriching the COPS Curriculum Through Integration: Genetics, Communication, Ethics
and Law, $13,400 Research and Development Fund, Dalhousie Division of Medical Education,
Co-Investigator, 1997-1999.
The Role of Assent and Dissent in Research Involving Children in Canada, $41,812 M.R.C,
S.S.H.R.C., IWK Grace Health Centre Foundation, National Cancer Institute, and the Hospital
For Sick Children, Co-Investigator, 1997-1998.
Feminist Health Care Ethics, $120,000 S.S.H.R.C. Strategic Research Network Grant,
Co-Investigator, 1993-1997.
Ethics Consultation in Health Care, $70,000 S.S.H.R.C. Strategic Research Network Grant,
Co-Investigator, 1990-1993.
Health Care Ethics Project, $100,000 Associated Medical Services Inc. (AMS), Ivey Fund and
University of Western Ontario Academic Development Fund, Research Associate, 1987-1990.
RESEARCH CONTRACTS
Legal Issues in Organ and Tissue Donation and Transplantation, $40,000 Canadian Council
for Donation and Transplantation, 2006.
33
Directory of Researchers. Ottawa: Industry Canada, Canadian Biotechnology Secretariat, with
Francoise Baylis, 2006- 07.
Health Legislation Renewal Collaboration, $200,000 Nova Scotia Department of Health, for
Health Law Institute, 2004-06.
Health Law and Policy, $220,000 Nova Scotia Department of Health, for Health Law Institute,
2004-06.
Governance Choices and Health Care Quality: A Focus on Patient Safety, $187,710 Health
Canada, with Don Ford, Elaine Gibson, William Lahey, Mary Thompson, Tom Ward, Alison
Shea, & Fiona MacDonald, 2004-06.
Assisted Human Reproduction, $2,000 Department of Justice, Human Rights Law Section, with
Jennifer Llewellyn, 2004.
Rules for Human DNA Banks: A Canadian and International Comparative Analysis,
$49,300 Health Canada, with Françoise Baylis, Elaine Gibson, & Michael Hadskis, 2003.
Working with Research Ethics Boards to Determine Best Practices: A Pilot Study Proposal,
$23,350 Health Canada, 2002.
Biotechnology, Genetics, and Knowledge Management, $24,000 Federal Department of
Justice, with Brad Abernethy, 2002.
Organizational Ethics, Law and Policy, $550,000 Nova Scotia Department of Health, with
Nuala Kenny, 1999-04.
Organizational Ethics, Law and Policy, $300,000 QEII Health Sciences Centre, IWK Grace
Health Centre, Nova Scotia Hospital, with Nuala Kenny, 1999-02.
Intersection of the Charter and Health Policy, $7,500 Health Canada, with Ronalda Murphy,
2001.
Use of Human Genetic Information, $930 Health Canada, 2001.
Access to HIV/AIDS Medication: A Policy Analysis, $30,000 Health Canada, with Elaine
Gibson, Colleen Flood, Fred McGinn, & Mark Stabile, 2000-01.
Tri-Council Policy Statement on Ethical conduct for Research Involving Humans: A Review
of the Requirements with Respect to Research Involving Women and Other Systematically
disadvantaged Groups, $1,000 Women’s Health Bureau, Health Canada, with Françoise Baylis,
1997-98.
Substitute Decision-Making about Research Participation for Incompetent Adults in
Canada, $4,200 Health Canada, 1996-97.
34
SERVICE WITHIN DALHOUSIE
Law School: Curriculum Review (Chair); Appointments; Tenure and Promotion; Admissions,
Graduate Studies Chair; International Linkages; Studies; Legal Aid Service; Teaching and
Teaching Evaluation (Chair); and Professional Development Day.
University: Research Advisory Council; Senate.
SERVICE OUTSIDE DALHOUSIE
Member, Board of Directors, Canadian Centre for Ethics in Sport, 2014 - Present
Member, Board of Directors, Surdna Foundation, 2007-Present (Chair 2013-Present)
Division Director, Division 1, Academy II, Royal Society of Canada 2013-present.
Member, Nominating Committee, Academy II, Division 1, Royal Society of Canada, 2012-
present.
Chair, Nominating Committee, Academy II, Division 1, Royal Society of Canada,
2013-present
Member, pro-bono legal team, Carter v. Canada (Attorney General), 2011-present.
Member, End of Life Experts Panel, Royal Society of Canada, 2009-2011.
Member, Academic Consultative Group on the Federation of Law Societies of Canada Model
Code, 2013.
Member, International Advisory Board, Journal of Bioethical Inquiry, 2004-Present.
Member, Experts Committee for Human Research Participant Protection in Canada, Sponsors
Table, 2006-2008.
Special Advisor, Interim Editorial Board, Canadian Medical Association Journal,
2006- 2007.
Member, External Working Group on the Registration of Clinical Trial Information, Health
Canada, 2006.
Member, IWK Health Centre Research Management Committee – Ethics, 2003-06.
Member, Canadian Association of University Teachers Advisory Group on Ethics in Research
Involving Humans, 2003-04.
35
Member, Canadian Institutes of Health Research Steering Committee, Training Programs
Evaluation Framework, 2003-04.
Member, Health Canada Advisory Committee on a National System of Governance for Research
Involving Humans, 2002-04.
Member, IWK Women’s Health Program Advisory Committee, 2001-03.
Member, National Blood Safety Council, 1998-2003.
Member, Advisory Committee on Population Health (Advisory to Federal/Provincial/Territorial
Conference of Deputy Ministers of Health), 2000-02.
Member, Canadian HIV Trials Network National Ethics Review Committee, 1998-2001.
Member, IWK Grace Health Centre Research Ethics Board, 1996-2000.
Editorial Board, Journal of Women’s Health and Law, 1999-2000.
Chair, Advisory Committee, Member, Steering Committee, Maritime Centre of Excellence in
Women’s Health, 1997-99.
Advisory Council, Canadian Bioethics Society, 1996-98.
Peer Reviewer, CIHR, SSHRC, CHSRF, CRC, Health Canada, New Zealand Government, and
numerous journals (e.g., Canadian Medical Association Journal, Health Law Journal, Journal of
Bioethical Inquiry, Dalhousie Law Journal, Canadian Journal of Women and the Law, New
England Journal of Medicine, Monash University Law Review) 1996-Present.
