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www.ostomysnj.org SERVING OSTOMATES IN SOUTH JERSEY SINCE 1977 June 2015
INSIGHTS
The Newsletter of the
OSTOMY ASSOCIATION OF SOUTHERN NEW JERSEY
WELCOME!
The Ostomy Association of Southern New Jersey (OASNJ) is dedicated to providing information, advocacy and peer support to our members, their family and caregivers, and to the area’s intestinal and urinary diversion community at large.
We meet regularly to share experiences, provide mutual support and learn about the latest products and information for colostomy, ileostomy, urostomy and con-tinent diversions.
Meetings are held at the Virtua-Memorial Hospital Burlington County, located at 175 Madison Avenue, Mt. Holly, NJ 08060 in the 1st floor Con-ference Center. We meet on the 3rd Monday of each month with the ex-ception of July and August. The June meeting is traditionally held in an area restaurant. Meetings begin at 7:00 pm and adjourn by 9:00 pm. Families and friends of ostomy patients are always welcome to attend. There is no fee to at-tend and refreshments are served.
For more information about the OASNJ, contact us at 609-315-8115 or visit our website at www.ostomysnj.org
AFFILIATION:
OASNJ is an affiliate of UOAA, the United Ostomy Associations of America. It has IRS 501(c)(3) Charity Status and 360 affiliates nationwide. Contact UOAA at 800 –826 –0826 or www.ostomy.org For more info sign on to Twitter.com/UOAA or Facebook.com/UOAAinc.
_________ SCHEDULE______________
JUNE 15th: We will have our traditional Anniversary Dinner at the Asian Chef Restaurant in Mt. Laurel. See flyer of page 3 for all of the details.
JULY: 14 to 19 are the dates for this year’s Annual fund raising Pretzel Sale at the Burlington County Farm Fair.
AUGUST: No Meeting at Memorial Hospital but there will be one at the Virrtua Wellness Center on Wednes-day, July 1st.
OASNJ Satellite Support Group . Where: Virtua Health Wellness Center, 401 Young Avenue, Moorestown, NJ When: The 1st Wednesday of the month, from Noon to 2:00 PM ... Upcoming meetings June 3rd & July 1st. Contact: Lois Moskowitz, 609-707-4368 or e-mail: [email protected] for details.
Attention Gloucester County Ostomates and any-one else that is interested! The Woodbury Ostomy Sup-port Group meets the 3rd Wednesday of each month at the Inspira Medical Center Woodbury (Underwood Hos-pital’s new name) , Medical Arts Building, Suite #14 Next meeting June17th at 6:00pm. Contact Kathy Pfleger at [email protected] for details.
VISITING PROGRAM ... Please Note ... We Have a New “Help Line” Tel # ... 856-983-1433 If you, or someone you know is in need of a trained ostomy patient visitor, call Sandy Ritter at 856-983-1433 to arrange for an in-person or telephone visit.
Production and distribution of this INSIGHTS
newsletter is made possible thanks to the generosity of the:
AMERICAN CANCER SOCIETY.
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EXECUTIVE TEAM OF THE OSTOMY ASSOCIATION OF SOUTHERN NEWJERSEY
Ken Aukett .. Chair, Newsletter Editor, Treasurer George Bishop ... Board Member 609-315-8115 ... [email protected] 609-871-6920 ... [email protected]
Cos Contento ... Board Member Vikki Brisko ... Board Member 856-235-1899 ... [email protected] 856-336-2646 ... [email protected]
Sandy Ritter ... Visiting Program Coordinator 856-983-1433 ... [email protected] Medical Advisors
Kathleen Schuler ... Board Member Stephen Pilipshen, MD. Colon & Rectal Surgeon 856-813-5930 ... [email protected] 856-234-3322 www.pilipshencolonandrectal.com
Lois Moskowitz ... Patient Advocate Jane N. Johnson, CWOCN, MSN, APRN, ANP-C 856-273-1493 ... [email protected] [email protected] [email protected]
DISCLAIMER : No suggestions made, or any products named in any article or advertisement in this news-
letter, at our meetings or recommended by a member of our organization is to be considered as an endorse-ment by the Ostomy Association of Southern New Jersey or the United Ostomy Associations of America, Inc.. Always consult your doctor and/or WOCNurse before using any products of ostomy management procedures published in this newsletter.
OSTOMY PRODUCT DISTRIBUTORS OSTOMY PRODUCT MANUFACTURERS American Ostomy Supply .... (800) 858-5858 Coloplast .......................... (888) 726-7872 Bruce Medical Supply ....... .. (800) 225-8446 ConvaTec .......................... (800) 422-8811 Byram Healthcare .................(877) 90-BYRAM Cymed ............................... (800) 582-0707 Edgepark Surgical .................(800) 321-0591 Dansac .............................. (800) 538-0890 Express Medical Supply ........(800) 633-2139 Genairex ........................... (877) 726-4400 Liberty Medical Supply ..........(866) 486-2379 Hollister Incorporated ...... (888) 740-8999 Medical Care Products ..........(800) 741-0110 Marlen Manufacturing .... (216) 292-7060 Ostomy Care Supply ..............(866) 207-5909 New Hope Laboratories ... (800) 899-5017 Parthenon ..............................(800) 453-8898 Ostaway x-Bag ................. (800) 774-6097 SGV .......................................(800) 395-6099 Ostomy Secrets ................ (800) 518-8515 Shield Healthcare ..................(800)-675-8847 Torbot .............................. (800) 545-4254 Sterling Medical Services ......(877)-856-1286 TOTAL eMEDICAL ............... (800)-809-9806
WOUND, OSTOMY and CONTINENCE NURSES SOCIETY ... www.wocn.org
Area WOCNurses: Arlene Peahota (856) 764-6634 Diane Wagner (215) 707-3092 Kathy Pfleger (856) 845-0100 x 3725__________ Gillian Reeve_______ (856) 566-2059
Nancy Fonte, WOCN ... (609)-484-7300 ext 185 ... [email protected] Ostomy Support Group meets 2nd Wed of each month at 4:00 PM at the Atlanticare Center,
2500 English Creek Avenue, Bldg 400, Egg Harbor Township, NJ
WHEN TO CALL A DOCTOR OR WOC NURSE 1. If cramps last more than two or three hours. 2. If you get a deep cut in your stoma or bleeding at the juncture of the skin and stoma. 3. If you have excessive bleeding from the stoma opening or a moderate amount in the
pouch after several emptying. 4. If you have a strong odor lasting more than a week. 5. If you have severe skin irritation or deep ulcers. 6. If you have severe watery discharge lasting more than five or six hours. 7. If you have an unusual change in the size or appearance of your stoma.
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OSTOMY ASSOCIATION OF SOUTHERN NEW JERSEY
38TH ANNIVERSARY DINNER MONDAY, JUNE 15TH , 6:30 pm
at
Your Choice of Soup ... Wonton (Won), Egg Drop (ED), or Hot and Sour (H&S) Egg Roll Your Choice of Rice ... White (W), Brown (B) or Pork Fried Rice (PFR) Your Choice of an Entree:
C-2 ...... Chow Mein with Chicken (C-2-C) ... Pork (C-2-P) ... Beef (C-2-B) ... or Shrimp (C-2-S) C-4 ...... Chicken with Cashew Nuts C-5 ...... Moo Goo Gai Pan C-6 ...... Chicken with Broccoli C-9 ...... Sweet and Sour Pork C-11 .... Beef with Broccoli C-13 .... Shrimp with Chinese Vegetables C-14 .... Kung Pao Shrimp C-15 .... General Tso's Chicken C-18 .... BBQ Pork Boneless Spare Ribs
Your Choice of a Beverage ... Tea, Soda (several types to choice from – tell waiter)
YOUR COST FOR THIS CHINESE DINNER: $ 10.00 / Person
........................................................................................ cut and mail ........................................................................................
Your Name/Companion’s Name: _____________________________________________________________________________________
Your Selection: Entrée # _______ ... Soup choice _______ ... Rice choice _______
Companion’s Selection: Entrée # _______ ... Soup choice _______ ... Rice choice _______
Mail this coupon along with your check, made payable to “OASNJ”, to:
Ken Aukett at P.O. Box 318, Collingswood, NJ 08108
LOCATION
The Asian Chef Restaurant is at 882 Union Mill Road, Mt. Laurel
in the ShopRite Shopping Center at Union Mill Road and Elbo Lane
(856)866-8899
DINNER CONSISTS OF
Your Choice of Soup
Entrée Rice
Beverage and Fried Banana w/Ice
Cream
After June 10th Make your
Reservation by calling Ken Aukett
At 609-315-8115
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Caring For Your Ostomy By Pat Murphy, RN, CETN, Middle GA, Ostomy Rumble
UOAA Updated May 2015
Here are some simple pointers for ostomy care. They may not be new, but sometimes it is good to be reminded of them. Good ostomy care habits can catch and nip problems in the bud-the rosebud that is. Inspect your stoma and skin each time you change your skin barrier. Your stoma should be bright red, smooth and shiny. Inspect the lower edge especially well. Use a mirror if necessary. Look for any signs of irritation or bleeding. These signs may mean your skin barrier is rubbing there. Your skin should not be pinkish-red, purple or gray, even right next to the stoma. You may, how-ever, notice some pink skin under pressure points when you first remove the skin barrier from your body. This is the same as when you take off your watch or a pair of stockings and is normal. Inspect your skin in a sitting position to see if creases or low areas form around the stoma. This will tell you where to take special steps to even out the area when you put on your skin barrier. Stretch-ing the skin to make it smooth may be all you need to do, or you may need a dab of ostomy paste to help fill the crease sealing the area. Remember: a new stoma can change size for up to a year. Re-measure your stoma every time you change the skin barrier for the first six months after surgery and every month thereafter. Always re-measure if you are having a leak. Measure the stoma at the base from side to side and from top to bottom. Many stomas are oval. If you are cutting a skin barrier to fit your stoma, no skin should show when it is in place. However, making sure the skin barrier doesn't touch the stoma unless it is an ex-tended-wear skin barrier manufactured to be able to touch the stoma (these skin barriers are de-signed to "turtleneck" where they touch the stoma). Since it can be tricky to cut the opening to the correct shape without leaving gaps around the stoma, manufacturers have developed skin barrier seals and ostomy paste that can be used to fill the gaps. If your stoma is not perfectly round, do not trace and cut a round circle. Instead, make the skin barrier fit exactly. Your ostomy nurse can show you how. It should just miss the stoma, sealing down on the skin right next to it. Your skin barrier should not go over any red, wet mucosal tissue, the kind that forms the stoma. @@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@
Virtua Ostomy Outpatient Clinics
Jane N. Johnson, CWOCN, MSN, APRN, ANP-C and Kathy K. Judge ACNS-BC, NP-C, NEA-BC, CWON-AP, have advised that Virtua has two ostomy outpatient clinics, one in Virtua, 175 Madison Avenue, Mt. Holly headed up by Jane, and one in the Virtua Berlin Wound Healing Center, 100 Townsend Avenue, Berlin headed up by Kathy . These medical professionals are available to help patients that have problems with their ostomy appliances or other related medical issues. Jane , at the surgeons request can also stoma site pre-op patients. Appointment to see either Jane or Kathy can be obtained by calling 856-322-3222.
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HELLO PRETZEL PEOPLE … SECOND ALERT!!! TIME FOR OUR GROUP’S ANNUAL $$ RAISING PROJECT
FOR THE 36th CONSECUTIVE YEAR
OUR SUPPORT GROUP WILL BE SELLING
THOSE WORLD FAMOUS, HOT, J&J SNACKS
“SUPER PRETZELS”
AT THE BURLINGTON COUNTY FARM FAIR’S
NEW LOCATION That’s at the corner of Route 206 & Jacksonville-Jobstown
Road ... just 1/4 mile south of the Columbus Farmer's Market
TUESDAY, JULY 14TH THROUGH SUNDAY, JULY 19th
SELL PRETZELS AT THE FARM FAIR … get some fresh air and meet
great people. Volunteers are needed for each of our two daily shifts ... in the afternoon from 4:00 to 7:00 pm, or the night shift, from 7:00 to 10:00 pm.
Free Fair parking is provided.
To volunteer as part of our sales team, please complete the following form and return it to: Ken Aukett, P.O. Box 318, Collingswood, NJ 08108 or e-mail Ken at [email protected] or
give a call at 609-315-8115
_ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ cut here and mail _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _
YES, Count Me In!!! Check the shift/s you can work:
TUE-14 WED– 15 THU-16 FRI– 17 SAT-18 SUN-19
4:00 – 7:00 PM ______ _______ ______ ______ ______ ______ 7:00 – 10:00 PM ______ _______ ______ ______ ______ ______
Name: _____________________________Tel No: ____________________ e-mail _____________________ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ cut here and mail _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _
OR, if you can’t help us bake and sell the PRETZELS, but would like to
contribute to our Group’s success, you can show your support with your DOUGH
So put me down for: $ ______________ Name: _____________________________________
Make Your Check Payable To “OASNJ” and mail it to:
Ken Aukett, P.O. Box 318, Collingswood, NJ 08108. THANK YOU!!
Your Support is KNEADED
Now Here’s The TWIST
You Can
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:Johns Hopkins Cancer Update
After Years Of Telling People Chemotherapy Is The Only Way To Try ('Try', Being The Key Word) To
Eliminate Cancer, Johns Hopkins Is Finally Starting To Tell You There Is An Alternative Way .
1. Every person has cancer cells in their body. These cancer cells do not show up in the standard tests until they have multiplied to a few billion. When doctors tell cancer patients that there are no more cancer cells in their bodies after treatment, it just means the tests are unable to detect the cancer cells because they have not reached the detectable size. 2. Cancer cells occur between 6 to more than 10 times in a person's lifetime. 3. When the person's immune system is strong the cancer cells will be destroyed and prevented from multiplying and forming tumors. 4. When a person has cancer it indicates the person has nutritional deficiencies. These could be due to genetic, but also to environmental, food and lifestyle factors. 5. To overcome the multiple nutritional deficiencies, changing diet to eat more adequately and healthy, 4-5 times/day and by including supplements will strengthen the immune system. 6. Chemotherapy involves poisoning the rapidly-growing cancer cells and also destroys rapidly-growing healthy cells in the bone marrow, gastrointestinal tract, and can cause organ damage, like liver, kidneys, heart, lungs, etc. 7. Radiation while destroying cancer cells also burns, scars and damages healthy cells, tissues and or-gans. 8. Initial treatment with chemotherapy and radiation will often reduce tumor size. However pro-longed use of chemotherapy and radiation do not result in more tumor destruction. 9. When the body has too much toxic burden from chemotherapy and radiation the immune system is either compromised or destroyed, hence the person can succumb to various kinds of infections and complications. 10. Chemotherapy and radiation can cause cancer cells to mutate and become resistant and difficult to destroy. Surgery can also cause cancer cells to spread to other sites. 11. An effective way to battle cancer is to starve the cancer cells by not feeding it with the foods it needs to multiply. Cancer Cells Feed On: a. Sugar substitutes like NutraSweet, Equal, Spoonful, etc. are made with Aspartame and it is harmful. A better natural substitute would be Manuka honey or molasses, but only in very small amounts. Table salt has a chemical added to make it white in color Better alternative is Bragg's aminos or sea salt. b. Milk causes the body to produce mucus, especially in the gastro-intestinal tract. Cancer feeds on mucus. By cutting off milk and substituting with unsweetened soy milk cancer cells are being starved.
7
Cancer cells thrive in an acid environment. A meat-based diet is acidic and it is best to eat fish, and a little other meat, like chicken. Meat also contains livestock antibiotics, growth hormones and para-sites, which are all harmful, especially to people with cancer.
d. A diet made of 80% fresh vegetables and juice, whole grains, seeds, nuts and a little fruits help put the body into an alkaline environment. About 20% can be from cooked food including beans. Fresh vegetable juices provide live enzymes that are easily absorbed and reach down to cellular levels within 15 minutes to nourish and enhance growth of healthy cells. To obtain live enzymes for building healthy cells try and drink fresh vegetable juice (most vegetables including bean sprouts) and eat some raw vegetables 2 or 3 times a day. Enzymes are destroyed at temperatures of 104 degrees F (40 degrees C). e. Avoid coffee, tea, and chocolate, which have high caffeine Green tea is a better alternative and has cancer fighting properties. Water-best to drink purified water, or filtered, to avoid known toxins and heavy metals in tap water. Distilled water is acidic, avoid it. 12. Meat protein is difficult to digest and requires a lot of digestive enzymes. Undigested meat re-maining in the intestines becomes putrefied and leads to more toxic buildup. 13. Cancer cell walls have a tough protein covering. By refraining from or eating less meat it frees more enzymes to attack the protein walls of cancer cells and allows the body's killer cells to destroy the cancer cells. 14. Some supplements build up the immune system (IP6, Flor-ssence, Essiac, anti-oxidants, vitamins, minerals, EFAs ) to enable the body’s own killer cells to destroy cancer cells. Other supplements like vitamin E are known to cause apoptosis, or programmed cell death, the body's normal method of dis-posing of damaged, unwanted, or unneeded cells. 15. Cancer is a disease of the mind, body, and spirit. A proactive and positive spirit will help the can-cer warrior be a survivor. Anger, un-forgiveness and bitterness put the body into a stressful and acidic environment. Learn to have a loving and forgiving spirit. Learn to relax and enjoy life. 16. Cancer cells cannot thrive in an oxygenated environment. Exercising daily and deep breath-ing help to get more oxygen down to the cellular level. Oxygen therapy is another means employed to destroy cancer cells. Johns Hopkins has recently advised: 1) Not to use plastic containers or plastic wrap in the microwave; 2) Not to put water bottles in the freezer. Dioxin chemicals cause cancer, especially breast cancer. Dioxins are highly poisonous to the cells of our bodies. Don't freeze your plastic bottles with water in them as this releases dioxins from the plas-tic; and, we should not be heating our food in the microwave using plastic containers or containers covered with plastic wrap. This especially applies to foods that contain fat. The combination of fat, high heat, and plastics releases dioxin into the food and ultimately into the cells of the body. Instead use glass, such as Corning Ware, Pyrex or ceramic containers for heating food. You get the same re-sults, only without the dioxin. So such things as TV dinners, instant ramen and soups, etc., should be removed from the container and heated in something else like tempered glass. Paper isn't bad but you don't know what is in the paper. As the food is nuked, the high heat causes poisonous toxins to actu-ally melt out of the plastic wrap and drip into the food. Cover food with a paper towel instead.
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UOAA Conference ... A View On The Short Side By Kathy Ward
The UOAA's 5th National Conference will be held in St. Louis MO, from September 1st through 5th and the closer the event gets the more calls I get. Here are a few questions I've been receiving about the upcoming Conference: Question: Are there rooms still available at the Hyatt Regency St. Louis at the Arch for the UOAA's 5th National Conference? Answer: Yes, there are still rooms available and it looks like this year's Conference is going to be spectacular as is the room rate, just $109/night, single/double + taxes. The cutoff date to get this special room rate is August 10th. So don't miss out! You can register for the Conference and make your room reservations with the Hyatt by going online at www.ostomy.org, or you may call the office, 800-826-0826 and I would be happy to assist you. Remember the Conference date is September 1st through 5th. Question: Is St. Louis safe?
Answer: YES, the hotel is located in downtown St. Louis in the shadow of the Arch. During the day the is area is filled with business people and at night there are many restaurants just a short walk from the hotel. The area is patrolled by both police and Federal Park Rangers. Question: What kinds of events and/or workshops will be available at the Conference?
Answer: The list is long, but here are just a few from each day: (See UOAA website for a complete listing)
Tuesday, Sept. 1st Conference Open Registration UOAA President's Reception ... Open to all
Wednesday, Sept 2nd
Yoga & Meditation ... every morning from 6:30 to 7:30am Free Stoma Clinic ... meet 1 on 1 with WOCNurse ... every day Ask the Docs Pain Management Support Group Leadership Academy 1st Timers orientation and Reception sponsored by Coloplast Opening night with motivational speaker and Hollister UOAA 10th Birthday Party
Thursday, Sept 3rd
Basic Ostomy workshops: Ileostomy/Colostomy/Urostomy/Continent Diversion Spouses of Partners with an Ostomy Meetings, Non Ostomates Only Coloplast Medical Chair, motivational speaker by Dr. Katherine Jeter Exhibition Hall Opening. Afternoon refreshments and breakfast sponsored by Shire
Friday, Sept 4th Exhibition Hall with continental breakfast The TSA and You Meet with UOAA President followed by Support Group Chatter The "Barrier" Cooking Show
Saturday, Sept. 5th Nutrition and the Ostomate The Ostomate and their Drugs Social Life and Dating after Ostomy Have Ostomy Will Travel Closing Ceremonies w/motivational speaker ... conference video Till We Meet Again Festivities ... Dessert, Entertainment, Dancing sponsored by ConvaTec
9
Join with us
in Celebrating
UOAA’s decade of
sharing and caring
for our ostomy
community.
Enter the
“GATEWAY
TO A NEW LIFE”
September 1 - 6* at the Hyatt Regency St. Louis at the Arch
* with Educational and Social programming September 2 through 5
Hotel Information The Hyatt Regency St. Louis at the Arch 315 Chestnut Street, St. Louis, MO 63102 Phone: 314.655.1234 Fax: 314.241.9839 Website: www.stlouisarch.hyatt.com
The Hyatt Regency St. Louis at the Arch is perfect for our conference. It is in an area within walking distance of the many downtown attractions and restaurants and it is very conveniently designed for easy access to the meeting space.
UOAA has a National Conference Discounted Rate of $109.00* night/ single or double + tax. ( *Reservations received by the hotel after August 10th will be accepted on a space available basis at the best rate available at the time of the reservation.) To get this discounted rate, USE THE UOAA WEBSITE, WWW.OSTOMY.ORG TO RESERVE YOUR ROOM AND TO REGISTER
Conference Registration Fees Individual: $125; Spouse/Companion: $75; Children 5-17: $25, Under 5, Free; Medical Professional: $125;1 Day Only: $75 Register on-line at: www.ostomy.org
Note: OASNJ will pay the registration fee for any member who wishes to attend.
Conference Highlights ASG Leadership Academy
1st Timers Reception spon-sored by Coloplast
Free Ice Cream Social spon-sored by Hollister
Free Stoma Clinic
Exhibition Hall showcasing the latest in ostomy pouching sys-tems, accessories, clothing and suppliers with refreshments in the afternoon and breakfast the next morning sponsored by Shire
NuHope Fun Run
Free Closing Night “Desserts” and entertainment sponsored by ConvaTec
Motivational presentations by Joanna Burgess, Bo Parish and Dr. Katherine Jeter
For all programming go to UOAA website, www.ostomy.org
Questions? Call the UOAA office at 800.826.0826
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~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ TO BECOME A MEMBER OF THE ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ OSTOMY ASSOCIATION OF SOUTHERN NEW JERSEY
Membership in the Ostomy Association of Southern New Jersey is open to all persons in-terested in ostomy rehabilitation. Membership dues are only $10.00 per year.
PLEASE PRINT THIS INFORMATION:
NAME: ________________________________________________ PHONE: ____-_____-_______
ADDRESS: ________________________________________ EMAIL: ________________________
CITY: _________________________________ STATE: _______ ZIPCODE: ____________________
To help us complete our records, please answer the following:
Please check if you have/are: ____ Colostomy ____ Continent Ileostomy ____ Other: ___________________________ ____ Ileostomy ____ Continent Urostomy ____ Spouse/partner/family member ____ Urostomy ____ Ileo-anal Pull Thru ____ Friend
Date(s) of Ostomy Surgery: ________________________________ Date of Birth: ____________
Make check payable to “OASNJ” and mail to: Ken Aukett, P.O. Box 318, Collingswood, NJ 08108
