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INFOMATION NEEDS and I.C.F.
Italian experience
INFOMATION NEEDS and I.C.F.
Italian experience
ISTAT Elena De Palma [email protected] Crialesi [email protected]
Washington Group on Disability Measurement
1° Meeting - 2002 February 18 - 21Comparability of Cross-National Disability Measures
Social Changes and information needs
• Policy and social context in Italy
• Medical model versus Social model
• ISTAT and data on disability
• Administrative data sources
ISTAT
•“Health Conditions and Access to Health Services”.• “Aspects of daily life” •“Families, Social subjects and condition of childhood
• health and social reforms• cultural transformation • national Law (L. 104)
• integration of indivual and social factotrs• integration of policies and inteventions • mobilizing all resources
• re-evaluation of available information sources • integration of different data sources
Project:
“Information System on Disability”
I.S. on Disability:goals and users
ISTAT
Implement a coordinated and integrated statistcal database
Information tool to orient social integration policies for persons with disabilities
Main data users: Policy-makers ResearchersAssociationsCitizens
I.S. on Disability:activities
Steps for implementation of a coordinated and integrated statistical database:
Analysis of policies Set up focus group comprised of representatives from the
various types of data user Identification of principle thematic areas Analysis of the most relevant experiences Selection of data sources Selection of main indicators Planning of data interrogation system architecture
ISTAT
I.S. on Disability:problems
Problems faced:
Lack of data sources covering all aspects
Lack of available and comparable data
Lack of an inter-institutional network
ISTAT
I.S. on Disability:products and intermediate
toolsProducts: Data ware-house Indicators system Metadata system Website: www.handicapincifre.it
Intermediate tools: Meta-survey on data sources Survey on handicap certification system In-depth research of the needs of disabled persons and their
families Information gathering on application of the national law at
regional level for the Parliamentary Annual Report
ISTAT
I.S. on Disability: Main themes
ThemesWork and employment
Transport Spending on monetary
benefitsRecipients of monetary benefits
Education and scholastic integration
Households
Health and assistance
Social life
Accidents
ISTAT
General model of components
ICF 2001
Environmental Environmental FactorsFactors
Personal Personal FactorsFactors
Health Condition Health Condition ((disorder/diseasedisorder/disease))
Body FunctionsBody Functions&&
StructuresStructuresActivitiesActivities ParticipationParticipation
ISTAT
Relationship with ICF
One level ICFActivities and participation• Chapter 3 Communication• Chapter 4 Mobility• Chapter 5 Self-care
• Chapter 8 Major life areas: Education Work and employment
Economic life
• Chapter 9 Community, social and civic life
Environmental factors• Chapter 3 Support and Relationship
• Chapter 5 Services, Systems and Policies
I. S. on Disabilities
• Difficulties with communication, mobility, self-care
• Education and scholastic integration• Work and employment• Recipients of monetary benefits
• Social life
• Families and networks
• Health and assistance• Accidents• Transport• Spending on monetary benefits• Education and scholastic integration
ISTAT
Euro Disability Data n.2 ProjectISTAT
Project:
“Indicators on Integration of Disabled Persons into Social Life”
Istat - National Institute of Statistics- Italy
ISTAT
Goals of the Project
To identify a short set of indicators useful for informing the policy-makers on the status of the integration of disabled persons
To monitor the efficacy of integration policies directed persons with disabilities
To allow policy-makers to plan new intervention strategies
Indicators on Integration of Disabled Persons into Social
Life
Indicators on Integration of Disabled Persons into Social
Life
ISTAT
Indicators
Indicators on Integration of Disabled Persons into Social
Life
Indicators on Integration of Disabled Persons into Social
Life
Core Indicators
Preconditiondimension
Target Areasdimension EDUCATION EMPLOYMENT
SOCIALPARTICIPATION
MOBILITY ANDACCESSIBILITY secondly
Social protection
Health promotion
ISTATIndicators on Integration of Disabled Persons into Social
Life:main problems
Indicators on Integration of Disabled Persons into Social
Life:main problems
The project has emphsized that:
ICF is not operative everywhere from a statistical viewpoint
To evaluate the integration of disabled persons in society is necessary to utilize data from different sources
Data sources are not available for all topics in all countries
Available Data are not always comparable