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INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma [email protected] Roberta Crialesi [email protected] Washington Group on Disability Measurement 1° Meeting - 2002 February 18 - 21 Comparability of Cross-National Disability Measures

INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma [email protected] Roberta Crialesi [email protected] Washington Group on Disability

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Page 1: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

INFOMATION NEEDS and I.C.F.

Italian experience

INFOMATION NEEDS and I.C.F.

Italian experience

ISTAT Elena De Palma [email protected] Crialesi [email protected]

Washington Group on Disability Measurement

1° Meeting - 2002 February 18 - 21Comparability of Cross-National Disability Measures

Page 2: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

Social Changes and information needs

• Policy and social context in Italy

• Medical model versus Social model

• ISTAT and data on disability

• Administrative data sources

ISTAT

•“Health Conditions and Access to Health Services”.• “Aspects of daily life” •“Families, Social subjects and condition of childhood

• health and social reforms• cultural transformation • national Law (L. 104)

• integration of indivual and social factotrs• integration of policies and inteventions • mobilizing all resources

• re-evaluation of available information sources • integration of different data sources

Page 3: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

Project:

“Information System on Disability”

Page 4: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

I.S. on Disability:goals and users

ISTAT

Implement a coordinated and integrated statistcal database

Information tool to orient social integration policies for persons with disabilities

Main data users: Policy-makers ResearchersAssociationsCitizens

Page 5: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

I.S. on Disability:activities

Steps for implementation of a coordinated and integrated statistical database:

Analysis of policies Set up focus group comprised of representatives from the

various types of data user Identification of principle thematic areas Analysis of the most relevant experiences Selection of data sources Selection of main indicators Planning of data interrogation system architecture

ISTAT

Page 6: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

I.S. on Disability:problems

Problems faced:

Lack of data sources covering all aspects

Lack of available and comparable data

Lack of an inter-institutional network

ISTAT

Page 7: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

I.S. on Disability:products and intermediate

toolsProducts: Data ware-house Indicators system Metadata system Website: www.handicapincifre.it

Intermediate tools: Meta-survey on data sources Survey on handicap certification system In-depth research of the needs of disabled persons and their

families Information gathering on application of the national law at

regional level for the Parliamentary Annual Report

ISTAT

Page 8: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

I.S. on Disability: Main themes

ThemesWork and employment

Transport Spending on monetary

benefitsRecipients of monetary benefits

Education and scholastic integration

Households

Health and assistance

Social life

Accidents

ISTAT

Page 9: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

General model of components

ICF 2001

Environmental Environmental FactorsFactors

Personal Personal FactorsFactors

Health Condition Health Condition ((disorder/diseasedisorder/disease))

Body FunctionsBody Functions&&

StructuresStructuresActivitiesActivities ParticipationParticipation

ISTAT

Page 10: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

Relationship with ICF

One level ICFActivities and participation• Chapter 3 Communication• Chapter 4 Mobility• Chapter 5 Self-care

• Chapter 8 Major life areas: Education   Work and employment

Economic life

• Chapter 9 Community, social and civic life

Environmental factors• Chapter 3 Support and Relationship

• Chapter 5 Services, Systems and Policies

I. S. on Disabilities

• Difficulties with communication, mobility, self-care

• Education and scholastic integration• Work and employment• Recipients of monetary benefits

• Social life

• Families and networks

• Health and assistance• Accidents• Transport• Spending on monetary benefits• Education and scholastic integration

ISTAT

Page 11: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

Euro Disability Data n.2 ProjectISTAT

Project:

“Indicators on Integration of Disabled Persons into Social Life”

Istat - National Institute of Statistics- Italy

Page 12: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

ISTAT

Goals of the Project

To identify a short set of indicators useful for informing the policy-makers on the status of the integration of disabled persons

To monitor the efficacy of integration policies directed persons with disabilities

To allow policy-makers to plan new intervention strategies

Indicators on Integration of Disabled Persons into Social

Life

Indicators on Integration of Disabled Persons into Social

Life

Page 13: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

ISTAT

Indicators

Indicators on Integration of Disabled Persons into Social

Life

Indicators on Integration of Disabled Persons into Social

Life

Core Indicators

Preconditiondimension

Target Areasdimension EDUCATION EMPLOYMENT

SOCIALPARTICIPATION

MOBILITY ANDACCESSIBILITY secondly

Social protection

Health promotion

Page 14: INFOMATION NEEDS and I.C.F. Italian experience ISTAT Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it Washington Group on Disability

ISTATIndicators on Integration of Disabled Persons into Social

Life:main problems

Indicators on Integration of Disabled Persons into Social

Life:main problems

The project has emphsized that:

ICF is not operative everywhere from a statistical viewpoint

To evaluate the integration of disabled persons in society is necessary to utilize data from different sources

Data sources are not available for all topics in all countries

Available Data are not always comparable