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Date:
Improving Health Outcomes for People with Learning
Disabilities
The Bridging the Gap: Reducing Health Inequalities for People
with Learning Disabilities Conference was held on October 3rd, 2019
at the Hertfordshire Development Centre, Stevenage. The conference
focused on ensuring equitable services and care is provided to
people with a learning disability. Evidence shows that people with
learning disabilities die significantly younger than the general
population and/or often receive poor treatment to manage their
health conditions or care needs. 123 people attended the event,
this included health and social care professionals Neil Hoskin,
Expert by Experience chaired the meeting and keynote speakers
Kirsten Lamb, Iain MacBeath and Jim Blair spoke about the LeDeR
Mortality Review Programme, the Role of the STP and solutions to
improving the health with and for people with learning
disabilities.
During the day attendees had the opportunity to choose from a
range of workshops which provided information about key themes
impacting on the health of people with a learning disability and
how these health inequalities can be addressed in Hertfordshire. A
number of workshops were delivered, including The Mental Capacity
Act in Practice, Supporting End of Life, This is Me! (the family),
Applying the Equalities Act and Reasonable Adjustments, Recognising
Overshadowing, Health Improvement and Advanced Care Planning –
Hospital Avoidance, Understanding Eating/Drinking Difficulties
faced by People with Complex Learning Disabilities and What I
expect!! Several stands relevant to the conference were also
present. Further conference resources: Jason’s story:
https://youtu.be/gzg9qJvHnWg LeDeR song:
https://youtu.be/HmJB3I9h3sc Conference presentations:
https://www.hertfordshire.gov.uk/services/adult-social-services/disability/learning-disabilities/learning-disability-partnership-board/information-for-professionals-and-carers.aspx
Improving Health, Improving Lives Survey - out now! This year’s
survey for adults with Learning Disabilities was posted out to 750
adults who access Social Care Services in Hertfordshire. All
received a hard copy in the post with a cover letter explaining the
contents, the survey can be completed either online or returned by
post in the supplied self-addressed envelope.
We want to make you aware of this survey as families and/ or
staff members may well be looking after /supporting someone who
requires assistance to complete the document. Please ring our team
on 01438 844686 if you have any further queries regarding the
survey.
https://youtu.be/gzg9qJvHnWghttps://youtu.be/HmJB3I9h3schttps://www.hertfordshire.gov.uk/services/adult-social-services/disability/learning-disabilities/learning-disability-partnership-board/information-for-professionals-and-carers.aspxhttps://www.hertfordshire.gov.uk/services/adult-social-services/disability/learning-disabilities/learning-disability-partnership-board/information-for-professionals-and-carers.aspxhttps://www.hertfordshire.gov.uk/services/adult-social-services/disability/learning-disabilities/learning-disability-partnership-board/information-for-professionals-and-carers.aspx
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Improving health, improving lives survey for adults with
Learning Disabilities who use services in Hertfordshire
Reference Number
Please fill in this survey and send it back in the freepost
envelope.
Answer what you can, if you get stuck on a question,
move onto the next one.
Go back later to answer the question if you want to.
Please tick boxes to answer
or
Write in the box or on the line.
If you have any questions about this survey contact:
0300 123042
or e-mail [email protected]
What town or village do you live in ?
……………………………………………...
mailto:[email protected]
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Communication
Communication is the way we share information with each other.
We can communicate in lots of different ways, for example:
Talking or making sounds Writing something in words or pictures
Making signals with our hands and faces - like
sign language Using communication aids
In the last year has anyone asked how you want to communicate
?
If you ticked YES who asked you this ?
Support Staff
Doctors
Hospital staff
YES NO DON’T KNOW
YES NO DON’T KNOW
YES NO DON’T KNOW
YES NO DON’T KNOW
Support Team
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Nurses
Dentist
Optician
Social worker or the Adult Disability Service
Other Who ? …………………………………..….
………………………………………….
In the last year, has anyone asked how you would like to receive
information ?
If you ticked YES who asked you this ?
YES NO DON’T KNOW
YES NO DON’T KNOW
YES NO DON’T KNOW
YES NO DON’T KNOW
YES NO DON’T KNOW
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‘Easy Read’ uses words and pictures to help you understand
information with or without support. Do you get information in Easy
Read ?
If you ticked YES who gives you information in Easy Read ?
Health Staff
Doctors
Hospital staff
YES NO DON’T KNOW
YES NO DON’T KNOW
YES NO DON’T KNOW
YES NO DON’T KNOW
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Nurses
Dentist
Optician
Social worker or the Adult Disability Service
Other Who ? ……………………………………………...
………………………………………...…….
……………………………………...………. ……………………………………...……….
YES NO DON’T KNOW
YES NO DON’T KNOW
YES NO DON’T KNOW
YES NO DON’T KNOW
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1. Being Healthy
Have you had an annual health check in the last year ?
Do you have a Purple Folder ?
If you ticked YES, do you take your Purple Folder to ALL your
health appointments and emergency visits (like A and E - Accident
and Emergency) ?
Do people write actions from all your health appointments or
emergency visits in your Purple Folder ?
It is important for you to take the Purple Folder to all your
health appointments and emergency visits so that staff can learn
about you and keep information about you up to date.
Do you know how to get help from the Learning Disability Nurse
(sometimes called the Health Liaison Nurse) ?
When you are in hospital or have a hospital appointment ?
YES NO DON’T KNOW
YES NO NOT SURE
YES NO SOMETIMES
YES NO SOMETIMES
YES NO NOT SURE
Health Check
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When you have a doctor’s appointment ?
Do you see an optician to get your eyes checked ?
When did you last see an optician ? Look in your Purple Folder
for the date and write it here:
If you take your Purple Folder, does the optician write up about
your check in it ?
Do you visit the dentist to get your teeth checked ?
If you take your Purple Folder, does your dentist write up about
your check in it ?
YES NO NOT SURE
YES NO
YES NO
YES NO NOT SURE
YES NO NOT SURE
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Do you have the yearly flu injection ?
If NO, why is this ?
Tell us what you do to keep yourself fit and healthy ? For
example, I do a brisk walk every day, or I eat lots of food high in
fibre and low in sugar.
Tell us what would help you to keep fit and healthy ?
Your mental health can affect the way you think, feel and
behave. Sometimes people use words like ‘depression’ and ‘anxiety’
when they talk about their mental health.
A mental health problem can feel just as bad, or worse, than any
other illness, only you cannot see it.
Has anyone asked you about your mental health and how you are
feeling ?
If you want to tell us more about your experience of being
healthy, please see the ‘Sharing Stories’ page at the end of the
survey.
YES NO NOT SURE
YES NO DON’T KNOW
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2. Living Locally
Where do you live ? Tick more than 1 box if you need :
I live with my Family
I live in Residential Services
I live in Supported Living
I live independently in the community (Independent Living)
I live in a Group Home Other
…………………………………………………..
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Do you hold your own housing tenancy?
Do you own or part-own your house ?
Do you like where you live ?
Please tell us what you like or don’t like about where you live
?
Think about your neighbours, being near to shops, the doctors or
a bus stop, whether it is noisy, is it safe ?
Do you know who to contact if you have a problem where you live
?
YES NO NOT SURE
YES NO
YES NO
YES NO DON’T KNOW
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Do you have any paid support ?
If you ticked YES were you involved in interviewing them ?
How do you get to places you want to get to ?
Tick more than 1 box if you need to
Walk
Cycle
Bus
YES NO
YES NO SOMETIMES
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Car or Taxi
Train
Minibus
Hertfordshire County Council Transport
Hertfordshire Community Transport
Do you know about travel training ?
Contact Herts Help for information on travel training
Is it easy to travel by bus or train ?
If it is not easy, please say why this is.
……………………………………………….
If you want to tell us more about your experience of living
locally, please see the ‘Sharing Stories’ page at the end of the
survey.
YES NO DON’T KNOW
YES NO
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3. Being involved in the local community
Do you know of the local learning disability forums ?
Are you involved with any local groups ?
Please tell how you are involved or why you are not involved
?
Do you know how to find out about things to do locally ?
How do you find out what is happening locally ?
……………………………………………………………….. ……………………………………………………………………..
……………………………………………………………….……..
Do you know how to contact and get help from different services
?
YES NO NOT SURE
YES NO
YES NO DON’T KNOW
YES NO DON’T KNOW
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Do you know what Herts Help is ?
Do you know how to contact Herts Help ?
What would make it easier to find out what is happening in your
local area ?
…………………………………………………………………
…………………………………………………………….. ……………………………………………………………..
……………………………………………………………..
If you want to contact the police, can you do this ?
Do you know what a hate crime is ?
YES NO DON’T KNOW
YES NO
YES NO
YES NO
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Please can you fill in this timetable to give us an idea of how
you spend your time
Monday Tuesday Wednesday Thursday Friday Saturday Sunday
Morning
Afternoon
Evening
What is good about the things you do in the week ? What is the
best bit ?
Talk to your family or support staff if you would like things to
be different for you. Look at the information sheet that came with
this survey for ideas.
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Have you been on any course or done any learning in the last 12
months ?
What did you learn ?
What would you like to learn or do a course or training on ?
What has stopped you from going on a course or other learning or
training ?
Do you do any paid work ?
If you ticked NO, would you like to work?
YES NO DON’T KNOW
Nov
2018
YES NO
YES NO
STOP
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If you ticked YES: Are you being helped to look for paid work
?
Would you like to do voluntary work ?
Are you being helped to look for voluntary work ?
If you do paid work do you enjoy it ?
Did you vote in the last election ?
If you ticked NO why didn’t you vote ? If you ticked YES was it
easy to vote ?
Advocacy is about your voice being heard. Advocates support you
to speak up, or they might speak up on your behalf if needed.
Are you able to speak up for yourself ?
If you ticked NO, is there someone who can support you or speak
on your behalf ?
If you want to tell us more about your experience of being
involved in the local community, please see the ‘Sharing Stories’
page at the end of the survey.
YES NO
YES NO
YES NO DON’T KNOW SOMETIMES
YES NO
YES NO SOMETIMES
YES NO DON’T KNOW
YES NO DON’T KNOW
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Sharing Stories
This sheet is for anything else you would like to tell us.
It can be about good or bad experiences of services. It could be
about your health care, or services in the community services or
other things in your life. You don’t have to fill the following
section in.
Sharing your story will help us to see how people are getting on
with their lives in Hertfordshire.
Please write down the details of the place or service where your
story happened.
Please give your story a title and write down what happened.
What do you think we can learn from your story ?
Thank you for taking the time
to fill in this survey.
matt mardleFile AttachmentLD Survey 2019 Sample Final
Version_.pdf
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Integrated Health and Care Commissioning Team SFAR 224, 2nd
Floor Farnham House Six Hills Way Stevenage SG1 2FQ
Hello
Improving health and lives survey for adults with
learning disabilities who use services in Hertfordshire.
This letter is to ask you if you can help us.
There is a survey with this letter that asks some questions. The
questions ask about things like being healthy, living locally and
being part of the community.
If you answer these questions you will help us find out how
people are living their lives. This will help us - people that pay
for services, make the services better for people with learning
disabilities in Hertfordshire.
Please help us by filling in the survey. Or you can do it on –
line using the internet at:
www.hertfordshire.gov.uk/survey
http://www.hertfordshire.gov.uk/survey
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When you have filled in the survey post it back in the envelope
sent with this letter.
You do not need a stamp. We need your form back by Friday 7
th February 2020.
If you need help to fill the form in you can ask a friend or
family member to help you. Remember that we want to know what you
think about things and not the person helping you to complete the
form.
If you don’t have people that can help you fill in the form you
can phone 01438 844686 and someone there will help you.
If we use any stories you share with us we won’t use your
name.
Do not use the form to tell us if you are being hurt or are in
danger and need help. Phone 0300 123 4042 so that you get the right
support quickly.
If you want to find out more about why we are asking these
questions you can phone 01438 844686
Thank you for your help
Yours sincerely
Integrated Health and Care Commissioning Team
matt mardleFile AttachmentSurvey cover letter 2019 Sample Final
Version.pdf
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Date:
Improving Health Outcomes for People with Learning
Disabilities
STOMP (Stopping over medication of people with a learning
disability, autism or both) Psychotropic Medicines - A group of
West Hertfordshire Hospital Trust (WHHT) pharmacists have been
reviewing our inpatient Learning Disability drug charts to ensure
that they are not prescribed psychotropic medicines inappropriately
as part of STOMP. This has been ongoing over a 3 month period. A
report of the findings is in the process of being written.
STOMP-LD Reviews - Charlie Gray, Community Learning Disability
Nurse, Hertfordshire County Council has been working with GP
practices across the county to help them with their STOMP-LD
reviews. So far, she has managed to support 16 practices to review
their LD patient list and identify people who should have a STOMP-
LD risk assessment. From those 16 practices so far 32 people have
been identified and Charlie is in the process of carrying out the
STOMP risk assessments for those people and working with the GP to
weigh up the risks and benefits of making medication
reductions.
Acute Care
West Hertfordshire Hospital Trust (WHHT) Learning Disability
Forum - The Named Nurse for safeguarding adults ran a Learning
disability forum for all WHHT staff in October. Over 40 staff
attended. Topics included issues raised from the findings in this
years LeDeR annual report. Guest speakers included the Sepsis
specialist nurse who did an interactive session on sepsis and
recognising the deteriorating Learning disability patient, Speech
and Language Therapy staff talked about how to present aspiration
pneumonia, Palliative care team talked about end of life and our
Acute Health liaison team talked about having difficult
conversations and the importance of included carers/family.
Feedback was very positive.
Makaton signing at West Hertfordshire Hospital Trust (WHHT) - As
part of Learning disability awareness week in May, the safeguarding
team took a pledge to improve care and communication for people
with learning disabilities. Staff learnt Makaton signs to declare
each individual promise. Lanyards were issued to staff with common
signs that may be used in hospital attached to them. This has
proved really popular with staff and there is a plan to make
more.
Primary Care Flu Vaccine and Annual Health Check - Reminder to
providers/staff to make sure that people with a Learning Disability
are registered with their GP to receive their Annual Health Check
and their free Flu vaccine either by injection or nasal spray. Link
to EasyRead flu leaflet for people with a learning disability:
https://campaignresources.phe.gov.uk/resources/campaigns/34/resources/4049
For any queries around the LeDeR Mortality Review Programme
please contact: [email protected]
To be added or removed from the distribution list please
contact: [email protected]
https://campaignresources.phe.gov.uk/resources/campaigns/34/resources/4049
