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THE CHILDREN’S HOSPITAL OF PHILADELPHIA CHOP CENTER FOR OUTCOMES RESEARCH CHOP POLICY LAB MENTORS: DR. STEPHANIE DOUPNIK DR. CHEN KENYON --TEAM AIR-- Improving Asthma Care within Vulnerable Populations

Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

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Page 1: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

T H E C H I L D R E N ’ S H O S P I T A L O F P H I L A D E L P H I AC H O P C E N T E R F O R O U T C O M E S R E S E A R C H

C H O P P O L I C Y L A B

M E N T O R S : D R . S T E P H A N I E D O U P N I KD R . C H E N K E N Y O N

- - T E A M A I R - -

Improving Asthma Care within Vulnerable Populations

Page 2: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Roadmap

Asthma: Nationally and Locally

Study 1: Mental Health & Hospital Risks

Study 2: Adherence Feedback Intervention

Analysis of Vulnerable Population

Page 3: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

What is Asthma?

Asthma Hospital Risk Adherence

Page 4: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Diagnosis and Treatment of Asthma

� Asthma is chronic condition

� Rescue medication and Controller medication

� The Cost of Chronic Illness¡ Asthma in

perspective6

Asthma Hospital Risk Adherence

Page 5: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Asthma: Nationally and Locally

� Socially and Medically Vulnerable Population

Asthma Hospital Risk Adherence

Socioeconomic Status

Living Conditions

Health Literacy

� Nationally¡ Pediatric Asthma Prevalence1

¡ Readmission Rates2

¡ Adherence3

� Locally: Philadelphia, PA¡ Prevalence4

¡ Readmission Rates¡ Adherence5

Page 6: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Aims of our Research

Asthma Hospital Risk Adherence

Improving Asthma

Care

Behavioral “Cue”

Increasing Adherence

to Medication

Improving Mental Health Care

Page 7: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Identifying Risk Factors for Poor Hospital Outcomes in Pediatric

Asthma Patients with Depression or Anxiety

Asthma Hospital Risk Adherence

Study 1

Page 8: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Mental Health & Readmission Risk

� Significance of Co-morbid Conditions

� Mental Health and Hospital Outcomes7-8

� Health Care and Societal Costs

Asthma Hospital Risk Adherence

Children at CHOP w/ Clinically Significant Depression and/or Anxiety

30%

Page 9: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Mental Health & Adherence

� Poor Asthma Control9-11

� Mental Health is a “driver” for asthma adherence

Asthma Hospital Risk Adherence

Page 10: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Study Design & Goals

� Study Design ¡ 2 Surveys—Parent & Child¡ Follow Up¡ Doser

Asthma Hospital Risk Adherence

� Goals:¡ Coping with Hospital Stressors

¡ Improved disease management

� Eligibility criteria¡ Age¡ Comorbidity ¡ Doser

Future Applications

Page 11: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Automated Adherence Feedback for High Risk Children with

Asthma

Asthma Hospital Risk Adherence

Study 2

Page 12: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Asthma Controller Medication Adherence

� Behavioral “Cue”

� Significance

� Objective

Asthma Hospital Risk Adherence

“Cue” Reward

Routine

Page 13: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Study Design & Goals

Asthma Hospital Risk Adherence

Page 14: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Demographic Data of Study Participants

Asthma Hospital Risk Adherence

Education Level Breakdown

Some high school, but did not graduate

High School graduate

Some college or 2-year degree

Four year college graduate

SC HS

Marital Status Breakdown

Married

Widowed

Divorced

Separated

Never Married

Living with a partner

Prefer not to answer

Page 15: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Working with a Vulnerable Population

Successes and Complications

¡ Follow-up Calls

¡ Tech Literacy & Syncing

¡ Multiple Caregivers

Similar trends in Study 1

Asthma Hospital Risk Adherence

Page 16: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Preliminary Data Analysis: Adherence Survey

0.2

.4.6

.81

Pro

babi

lity

of A

dher

ence

0 10 20 30Days

1 18.7% 2 24.8%3 43.7% 4 12.8%

Non (18.7%)Moderate (43.7%)

Early (24.8%)Sustained (12.8%)

Page 17: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Future Steps and Considerations

� Use of ClinCards: Monetary Incentive

� Aiding in Parental Responsibility

� Other Considerations

Asthma Hospital Risk Adherence

*Personalized Asthma Adherence Management*

Patient Preferences

& Needs

Asthma Control

Type of Non-

Adherence

Page 18: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Summary: Care for Chronic Conditions

� What I learned ¡ Primary Data Collection¡ Study & Survey Design¡ Use of Statistical Tools¡ Working with Patients

� What our research informs¡ Asthma Adherence¡ Broader Scope of Chronic Conditions

Asthma Adherence Hospital Risk

Page 19: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

Q&A

Page 20: Improving Asthma Care within Vulnerable Populations...¡ Coping with Hospital Stressors ... Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved

References

1. "Most Recent Asthma Data." Centers for Disease Control and Prevention. Centers for Disease Control and Prevention, Mar. 2016. Web. 15 Aug. 2016.

2. Liu, S. Y., & Pearlman, D. N. (2009, January). Hospital Readmissions For Childhood Asthma. Public Health Reports, 124(1), 65-78. Retrieved August 15, 2016.

3. Drotar D, Bonner MS. Influences on Adherence to Pediatric Asthma Treatment: A Review of Correlates and Predictors: J Dev Behav Pediatr. 2009;30(6):574-582. doi: 10.1097/DBP.0b013e3181c3c3bb.

4. Bryant-Stephens, T., West, C., Dirl, C., Banks, T., Briggs, V., & Rosenthal, M. (2012). Asthma Prevalence in Philadelphia: Description of Two Community-Based Methodologies to Assess Asthma Prevalence in an Inner-City Population. Journal of Asthma, 49(6), 581-585. doi10.3109/02770903.2012.690476

5. Bartlett SJ, LukkP, Butz A, Lampros-Klein F, Rand CS. Enhancing medication adherence amnoginner-city children with asthma: results from pilot studies. J Asthma Off J Assoc Care Asthma. 2002;39(1):47-54.

6. United States Environmental Protection Agency. Asthma Facts. March 2013. http://www.epa.gov/asthma/pdfs/asthma_fact_sheet_en.pdf

7. Knight A, Weiss P, Morales K, et al. Depression and anxiety and their association with healthcare utilization in pediatric lupus. Pediatr Rheumatol. 2014;12(1):42.

8. Baca CB, Vickrey BG, Caplan R, et al. Psychiatric and Medical Comorbidity and Quality of Life Outcomes in Childhood-Onset Epilepsy. Pediatrics. 2011;128(6):e1532-e1543.

9. Richardson L, Lozano P, Russo J, et al. Asthma Symptom Burden: Relationship to Asthma Severity and Anxiety and Depression Symptoms. Pediatrics. 2006;118(3):1042-1051.

10.Richardson L, et al. The effect of comorbid anxiety and depressive disorders on health care utilization & costs among adolescents with asthma. Gen Hosp Psych. 2008;30(5):398-406.

11. Katon WJ, Richardson L, Russo J, et al. Quality of mental health care for youth with asthma and comorbid anxiety and depression. Med Care. 2006;44(12):1064-1072.