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Improvements in Surveillance and Public Health from the California Environmental Health Tracking Program Paul English, PhD, MPH Jan 23, 2014

Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

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Page 1: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

Improvements in Surveillanceand Public Health from the

California Environmental HealthTracking Program

Paul English, PhD, MPH

Jan 23, 2014

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Overview

Background Components of California’s tracking program Examples and success stories

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Page 3: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

Background3

Page 4: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

California’s environmental health gap :Why we need environmental health

surveillance 2000-2001-- Nationally and state recognized:

Rise in chronic diseases, such as asthma, learning disabilities, andautism

Exposure to environmental hazards accounted for a significantproportion of many chronic diseases

Gap in basic information on the relationship between the environmentand health

$100 billion a year in California—fiscal toll from nine environmentally-related chronic diseases, due to related health care costs and lostproductivity

An effective surveillance system was needed to document andexplore links between hazards, exposures, and health

Sources: Pew Environmental Health Commission, 2000. SB702 ExpertWorking Group Report on Environmental Health Surveillance, 2004

Page 5: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

(“Tracking” = “Surveillance”)

Environmental Public HealthTracking

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Environmental Public Health Tracking Network (EPHTN)

A secure, web-based network that will provide access to environmentaland health data that are collected by a wide variety of agencies.

Compile and provide access to a core set of nationally consistent data andmeasures

Exchange data

Inform and interact with the public

Enable the systematic linking of health effects, exposures, and/or hazarddatasets on an ad-hoc or ongoing basis

Provide a toolset for data analysis, visualization, reporting, and monitoring

Provide security and protection to sensitive or critical data

Page 7: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

States added in 2009:

• Colorado

• Kansas

• Louisiana

• Minnesota

• South Carolina

Page 8: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

About us

Within the California Dept of Public Health

Mostly funded by the Centers for Disease Control andPrevention 1 of 23 grantees

Current staffing and expertise 7 (CDC-funded), 3 (other grant funded), 1 state staff Multidisciplinary project teams: Epidemiology, environmental

science, GIS, software development, health education, programmanagement, policy

Mission: to provide data and information for public healthaction

Page 9: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

CEHTP Program ValuesGuided by the principles of environmental justice andprecaution

Participatory processFacilitate and support the involvement of our stakeholders, includingthe community, throughout our program process.

Relevancy of actionsProduce meaningful tools, data, and information that is relevant toour stakeholders and useful for informing public health actions.

Scientific integrity and innovationAnalyze, interpret, and present data and information to our bestunderstanding and ability, using the latest and most appropriatemethods.

Transparency in decision makingMake the rationale for program activities and decisions available in amanner that is transparent and intelligible.

Page 10: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

What should California’sTracking Program do?

Improve: surveillance value of existing data access to data

Inform: policy and decision-making program planning and

resource allocation land use and planning

decisions

Support communityaction/advocacy

Identify communities atrisk

Support advancement ofknowledge Generate hypotheses Develop methods Facilitate research through

data and tools

10

Make data more useful, understandable, and accessiblefor public health action by stakeholders at the community,local, and state level

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Main Tracking Program Activities11

Page 12: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

Main programactivities/components Web portal, tools, and services Research and special projects Data requests and collaborations Needs assessment, outreach, and capacity

building Advisory group

12

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Web Portal, Tools,and Services Provides public access

Data queries anddownloadable datasets

General information abouttopic areas

Mapping tools

Restricted access tosome tools and services

13

Examples of topicareas/data Air Agricultural pesticide use Asthma Birth defects Biomonitoring Cancer Carbon monoxide poisoning Childhood lead poisoning Drinking water Heart attacks Heat-related vulnerability Housing Maternal and Infant Health Poverty Traffic

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www.CEHTP.org

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www.CEHTP.org

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www.CEHTP.org

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www.CEHTP.org

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www.CEHTP.org

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www.CEHTP.org

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www.CEHTP.org

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www.CEHTP.org

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www.CEHTP.org

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Research/Special Projects

Projects may utilize CEHTP Data Technical infrastructure, such as

linkage tools Other expertise

Another way to provide dataand information that is usefulfor public health action

Opportunity to focus onissues of importance toCalifornians

25 Project lead / co-lead Perchlorate and

pesticide biomonitoring Breast cancer mapping HIA on cap-and-trade

Climate change communityvulnerability mapping

Agricultural pesticidesand autism study

Heat-related illness andmortality report

Pesticides and schoolsstudy

Cost of children’senvironmental disease

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Data Requests andCollaborations

Data requests For data not available on

web portal, including datagenerated using CEHTPlinkage services

Provide technicalassistance Epidemiology and statistics Communication and

facilitation Software development GIS

26 Contributed to other

projects Heat wave magnitudes & PH

impacts (Margolis)

Hypospadias, genes &environment (Stanford)

Community vulnerabilityanalysis (Pastor, Morello-Frosch)

Occupational fatality mapping(Occ. Health Branch, CDPH)

Heat vulnerability indexvalidation (UC Berkeley)

710 Freeway ExpansionProject (Human ImpactPartners)

Health-effects of wildfiresanalysis (Reid)

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Needs Assessment, Outreach,and Capacity Building Assess stakeholder needs

to inform program activities

Ensure stakeholders areaware of our resources

Enhance users’ ability tounderstand and use ourresources

Collaboration with “dataintermediaries”

27

Activities include

Needs assessments likefocus groups, surveys,usability testing

Evaluation

Ongoingcommunications, suchas newsletter

Project-specific outreach

In-person and web-basedpresentations,demonstrations, andtrainings

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Advisory Group

Provide guidance andfeedback on programactivities

27 members

Meet in person 2-3 times ayear

Representing Local, state, fed govt CBOs and NGOs Academia Healthcare

28 Roles include

Assist in data access asdata stewards and usergroups

Provide guidance ondata analysis,interpretation andvisualization

Collaborate ondissemination strategiesand activities

Use data, tools, andservices for publichealth action

Engage in programsustainability activities

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Examples and Success Stories29

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Enhancing Existing Data30

Geocoding Sub-county mapping and spatial

modeling

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Geocoding Service

Geocoding is essentialto public health Accurately mapping disease

or other information

Without our service,government programs: Paid for commercial

geocoding services

Used free services that wereless accurate

Spent resources and timecreating their own in-housegeocoding capabilities

Did not geocode their data

Created geocoding tool Free for users (CDPH and

program partners)

Highly accurate

Secure

High throughput (up to 1million records per table; cangeocode 300,000 records/hr)

Offered as web-based tool,desktop application, and API

Developed tutorial andconducted trainings

Problem What We Did31

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Geocoding Service

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Used over 63,000 times to geocode over 42 millionaddresses

Used by over 50 programs for wide variety of public healthpurposes Vital Statistics- real-time geocoding of death records Cancer Detection- map provider locations, inform service delivery Monitoring outbreaks- TB, STDs, vectors and vectorborne

diseases Emergency preparedness- mapping of sensitive sites, essential

services

“The Geocoding Service is the best in California [state government]”- Michael Byrne, former CA Geospatial Information Officer

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Geocoding Service: Successes

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Sub-County Data

County-level data are oflimited utility for local-level action

Data often displayed atcounty level Concerns about

confidentiality Higher resolution data may

be of limited utility whenrates are suppressed

Explored display ofcommunity-level datathrough use of spatialstatistics Census tract maps offer

higher resolution of patterns

Smoothed surface maps arenot limited by politicalboundaries

Verified utility of datawith stakeholderadvisory group

Problem What We Did34

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California Environmental Health Tracking Program, www.cehtp.org

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Identified communities at risk and target activities Fresno County MCH, childhood lead poisoning prevention activities Informed asthma, air quality programs

Assessed other possible risks Fresno used data to examine MIH outcomes and lead

Informed program planning Fresno’s MCH 5-year needs assessment and planning document

“You have helped us in a huge way.”- Fresno County Director of Public Health Nursing

37

Sub-County Data: Successes

Page 38: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

Making Data More Useful andAccessible

38

Childhood lead poisoning Mapping and linkage tools

Page 39: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

Childhood Lead Poisoning

Childhood leadpoisoning still a problemin CA

Blood lead screeningdata collected by CLPPB

County-level data wasnot publicly available

Worked with CLPPB toget permission to displaydata

Developed text and dataquery system to displaydata on Blood lead levels

Age of housing

Poverty

Problem What We Did39

Page 40: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

Data on childhood lead poisoning now available publiclyfor the first time

Used for program planning in Nevada County To identify data discrepancies

To assess trends and gaps to inform 3-year planning process

Used to advocate for more funding for childhood leadpoisoning prevention programs

40

Childhood Lead Poisoning:Successes

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Mapping and Linkage Tools

Data for environmentalhazards often notavailable in useful oraccessible formats

Pesticide use data indatasets containingmillions of records

Traffic data not easilyaccessed or interpretedfor public health use

Developed mappingtools that enable usersto visualize pesticideand traffic data for theircommunity

Developed linkage toolsthat enable users to linktheir data with pesticideor traffic data bygeography and time

Problem What We Did41

Page 42: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

California Environmental Health Tracking Program, www.cehtp.org

Pesticide Mapping and LinkageTools

Page 43: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

California Environmental Health Tracking Program, www.cehtp.org

Traffic volumelinkage tool

Page 44: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

Public data now more accessible to the public and moreuseful for public health purposes

Uses of pesticide mapping and linkage tools Identify site for pesticide biomonitoring project Conduct studies on pesticides and autism; pesticides and birth

defects

Uses of traffic linkage tool Screen proposed development projects for possible health

impacts Conduct study on traffic and asthma

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Mapping and Linkage Tools:Successes

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Conducting Surveillance andCollecting Data

Breast cancer mapping project Water system boundary tool

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Page 46: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

Breast Cancer Mapping Project

No proactive breastcancer “cluster”detection

Breast cancerinformation notprovided at communitylevel

Scientific expertsunsure about selectinga method for sub-county mapping Concern about utility and

potential formisunderstanding bycommunity members

Convened advisorygroup of breast canceradvocates Guided the development of

breast cancer mappingprotocol, resultsdissemination

Created mappingprotocol Use Scan Statistic at

census tract level Exclude results arising

from population shifts ortemporary changes indetection rates

Includes demographicanalysis from clinical andcensus data

Problem What We Did46

Page 47: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

Final Areasof Concern

Many areas arelocated withincounties that do not,as a whole, haverates much higherthan the state rate

47

North SF BaySouth SF Bay

West LA / East VenturaSouth OrangeCounty boundaries

Data  Source:  California  Cancer  Registry,  2000-­‐2008Prepared  by  the  California  Breast  Cancer  Mapping  Project

West LA / East VenturaSouth SF BayNorth SF Bay

South OrangeCounty boundaries

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Final Areas ofConcern

48

West LA / East VenturaSouth SF BayNorth SF Bay

South OrangeCounty boundaries

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Comparing areas of concern with counties

49

Invasive breast cancer rates aggregated over 2000-2008

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Breast Cancer Mapping Project:Successes Established community-led proactive breast cancer

mapping protocol using established statistical methods

Identified areas of concern in counties previouslyunknown to have elevated rates

Ventura County hospital used results to educateproviders and target outreach activities to populations atrisk as identified in report

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Water System Boundary Tool

8000+ public watersystems No requirement for

reporting of customerservice areas

Many water systems lackthe capacity to digitizetheir maps

System boundaryinformation needed Emergency

preparedness Outbreak investigations Epidemiology

Developed web-basedtool to crowd-sourceboundary data collection Secure access by public

water system and statepersonnel

Can upload, draw, edit,and download boundaries

Can input multipleboundaries per system totrack changes over time

Boundaries available tothe public as a singlestatewide map as well asfor individual systems

Problem What We Did51

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Water System Boundary Tool:Successes Collected data for water systems serving 90% of state

population

Enabled or enhanced research studies Water costs; nitrate pollution in agricultural communities;

cumulative impacts

Support drinking water management activities Water supply permits, sample siting plans, reporting

requirements Identify locations of private well users Create plans to improve drinking water quality and waste water

management

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Conducting Research

Pesticides use near schools Cost of environmental disease in

children

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Pesticides and Schools Study

Agricultural pesticideswidely used in CA

Childhood exposure topesticides raisesspecial concerns,because children

Proximity to fieldsincreases probability ofexposure

Assess amount andtypes of ag pesticidesused near public schools For top 15 ag counties Public schools: 2,511 Students enrolled:

1,457,230 2.3 million pesticide

records

Enhanced data Digitized school

boundaries Linked pesticide use data,

field location data, andschool propertyboundaries

Problem What We Did55

Page 56: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

Pesticides and Schools Study

Undergoing final approval Created list of “pesticides of public health concern” Improved geographic data on schools Identified pesticides with highest use near schools Identified counties/schools with highest pesticide use nearby Characterized populations attending schools near the most

pesticide use

56

1.2 miles

Geocoded point

Page 57: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

Cost of Environmental Diseasein Children

Growing concern aboutthe environment andthe relationship withhealth

Costs drive many policydecisions

Economic analysisuseful for settingpriorities, resourceallocation, andconsidering pollutionprevention

Currently conductingstudy1) Select significant

childhood diseasesknown to be impacted bythe environment

2) Calculate the diseaseburden

3) Determine the costs(direct, indirect, lostpotential earnings, annual&/or lifetime)

4) Estimate theenvironmentalcontribution to thedisease

5) Calculate cost of diseaseattributed to theenvironment

Problem What We Did57

Page 58: Improvements in Surveillance and Public Health from the ......California’s environmental health gap : Why we need environmental health surveillance 2000-2001-- Nationally and state

Informing Policy andPlanning

Validation of heat alerts Climate change vulnerability

assessment

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Heat Alert Sensitivity Study

Due to budget cuts, theCity of San Josewanted evidence formaintaining for coolingcenters

Heat alert systems area first line of defense,trigger preventativeaction

No overall consistentcriteria to definethresholds for heatalerts

No systematicevaluation on sensitivityof heat alerts to healthoutcomes

Used CEHTP data toconfirmed accuracy ofheat alerts

Assessed if heat alertspredicted times whenpeople suffered the mostheat illness

In San Jose area, heat-related emergency roomvisits peaked followingheat alerts

Visit subsided when theheat alerts stopped

Problem What We Did59

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Results informed budget, policy decisions City of San Jose decided to allow cooling centers to

open as part of the city’s heat alert response

Conducted similar analysis in Los Angeles

61

Heat Alert Sensitivity Study:Successes

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Climate Change VulnerabilityAssessment

Multiple factors affect acommunity’svulnerability to climatechange Risk of exposure to

environmental impacts ofclimate change

Capacity to adapt tochanging environment

Sensitivity to climatechange events

Developedmethodology toscreen for areas ofgreatest concern

Piloted in twocounties: Fresno andLos Angeles

Problem What We Did62

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Climate Change Vulnerability Assessment*

• Data were ranked by quintiles and mapped forcensus tracts; Final vulnerability score a sum &re-ranking across all metric ranks

* English et al, Intl J Climate Change, 2013

Metric Source

Central air conditioning CA Energy Commission (2009)Tree canopy National Land Cover Database (2001)Impervious surface National Land Cover Database (2001)Public transit routes SCAG 2011; Fresno COG 2011Elderly living alone Census 2000Household car access Census 2000Wildfire risk CAL FIRE 2003Flood risk FEMA (Fresno 2009; LA 2008)Sea rise inundation Pacific Institute 2009 (LA only)

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LA County (including residential & sensitive populations land use mask)

Final CDPH Climate Scores

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46% of African Americans and 36% of Latinosreside in the two highest risk categoriescompared to 30% of whites

Los Angeles County

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In LA County, median income in thehighest risk area is 40% lower than thelowest risk area

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Climate Change VulnerabilityAssessment: Successes Developed screening methodology that can be used and

adapted locally

Los Angeles Department of Public Health used resultsto: Plan for service deliveries during climate related emergencies

(such as extended heat events and power outages) Coordinate with Community Emergency Response Teams to

assist the vulnerable populations in their cities when impacted

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California Environmental Health Tracking Program,www.cehtp.org

CEHTP staff: Natalie Collins Liang Guo Galatea King Max Richardson Eric Roberts Jackie Valle Alexa Wilkie Michelle Wong

Tracking ImplementationAdvisory Group

Environmental HealthInvestigations Branch, CaliforniaDepartment of Public Health

National Environmental HealthTracking Program, Centers forDisease Control and Prevention

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Publications69

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Publications (cont)

Roberts EM, English PB, Wong M, Wolff C, Falade M. 2008. Continuous Local Rate Modeling forCommunication in Public Health: A Practical Approach. Journal of Public Health Managementand Practice 14(6):562-568.

Knowlton K, Rotkin-Ellman M, King G, Margolis H, Smith D, Solomon G, Trent R, English P.2008. The 2006 California Heat Wave: Impacts on Hospitalizations and Emergency DepartmentVisits. . Environ Health Perspect doi:10.1289/ehp.11594 available via http://dx.doi.org/ [Online 22August 2008]

Roberts EM, English PB, Grether JK, Windham GC, Somberg L, Wolff C. 2007. MaternalResidence Near Agricultural Pesticide Applications and Autism Spectrum Disorders AmongChildren in the California Central Valley. Environ Health Perspect: doi:10.1289/ehp.10168.[Online 30 July 2007]http://ehp.niehs.nih.gov/docs/2007/10168/abstract.html

Roberts E, English P, Van den Eeeden S, Ray G. Progress in Pediatric Asthma Surveillance I:The Application of Health Service Utilization Data in Alameda County, CA. 2006. Prev Chronic DisJul. http: www.cdc.gov/pcd/issues/2006/jul/05_0186.htm.

Roberts E, English P, Wong M, Wolff C, Valdez S, Van den Eeden S, Ray G. 2006

Progress in Pediatric Asthma Surveillance II: Geospatial Patterns of Asthma in Alameda County,California. Prev Chronic Dis Jul. http: www.cdc.gov/pcd/issues/2006/jul/05_0186.htm.

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Dataacquisition

Datacleaning,

management, geocoding

CalculateNCDMs,

othermeasures,

andmodeledstatistics

Incorporateinto

indicatorsrepository

Create/update

dataquery

interface

Create/update

supportingtext and

metadata

Deployment Outreach

Data refresh(annuallyand as

needed)

PushNCDMsto CDC

Checkdata for

consistency

Check withcontent

experts*/resources

Checkdata

display

Review bycontentexperts*

Usertesting /usability

Flowchart  for  ContentAreas:

TesFng:

*Content  experts  include  data  stewards  and  staff  from  content  specific  programs  and  organizaFons.    Background  text  willbe  developed  in  a  parallel  process,  and  will  also  be  reviewed  by  content  experts  when  appropriate.

ValidateXML and/orconfirmationfrom CDC

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Dataacquisition

Datacleaning,

management

Pilot  majorfuncFons

DevelopsoPware(web-­‐enable)

CommunicaFons:

-­‐InstrucFons-­‐DocumentaFon-­‐Text-­‐Tutorials-­‐Metadata-­‐Other  usabilityenhancements

Deployment

Outreach

Data  refresh(as  needed)

Checkdata for

consistency

Flowchart  for  Tools:

Tes$ng:

Checkdata for

consistency

Check  formajor

boUlenecks

TestfuncFonality

User  tesFngInternal  and

partner  reviewfor  usability

Outline/refine  user

requirements

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What we track/data we use

Health Environmental Demographic Geographic

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Maternal andInfant Health

Childhood leadpoisoning

Air qualityHazards:

Exposures:

Health:

Differ  by:

 Data  steward

Purpose for collection

Data quality, format

 Data  availability

 Funding

Drinkingwater quality

Pesticides

Traffic

Carbon Monoxidepoisoning

CancerAsthma

Heart Attacks

Birth defects

Biomonitoring

Data collection and access