Dear Everybody,

See how

you’re creating

a world

of possibility

IMPACT REPORT 2018-2019

Impact Report 2018-2019 2

About

Holland Bloorview

Kids Rehabilitation Hospital

Holland Bloorview has done so much for us. We see the gains our daughter has made. We want people to know the potential children with disabilities have if they’re given the proper support in a caring environment. This is what Holland Bloorview offers to all children. Lena, Mia’s mom

Holland Bloorview Kids Rehabilitation Hospital creates a world of possibility by supporting children and youth living with disability, medical complexity, illness and injury. Our vision is to create the most meaningful and healthy futures for all children, youth and families.

We take a holistic approach to helping over 8000 families who come through our doors each year as inpatients and outpatients, and are renowned for our expertise in partnering with clients and families to provide exceptional care

Holland Bloorview is a top 40 Canadian research hospital that is fully affiliated with the University of Toronto. Our innovations, research and evidence-informed care impacts the lives of children and youth around the globe.

We are guided by a goal to lead and model social change by eliminating stigma aimed at kids and youth living with disability.

“ “

Personalized Care is Vital When Holland Bloorview Becomes a Second HomeWhen hospital stays extend for months for children undergoing rehabilitation, personalized care for them and their families is top of mind. From smoothing out administrative matters to making the families feel as comfortable and cared for as possible, Holland Bloorview strives to make a difference. Just ask six-year-old Carson and five-year-old Alex, who share a room together.

Using Music for Brain Health and Unlocking Inner Rock Stars “When the music starts, they are in charge, they are in control. They can just be who they want to be. Music gives them that permission to just be themselves.” One of the most magical things about Holland Bloorview’s music therapy program is that kids enjoy themselves so much, they don’t even realize it’s a treatment unto itself.

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Poised for Huge Growth, Bloorview Research Institute Delivers Newfound Hope to FamiliesThe Bloorview Research Institute is poised for huge growth, with a $25 million campaign underway to promote world-leading efforts in neuroscience, recruit renowned scientists, drive machine learning and artificial intelligence, and bring life-changing discoveries to the market. Research is, as one Holland Bloorview parent put it, hope for the future. “That hope, mixed with love, gives our kids the strength to face their challenges and get through tough days when everything seems too hard to handle.”

Giving Parents a Community of Support“I don’t know what we would do without Parent Talks,” says Jen whose young son has autism. “It’s given us a sense of safety, and peace in what can be an incredibly difficult journey.” Holland Bloorview is expanding this peer support program to broaden its impact on parents adjusting to raising a child with autism or cerebral palsy.

Building the Next Generation of Developmental Pediatric SpecialistsAt least 400,000 Canadian children live with disabilities. It’s more important than ever to train and encourage new developmental pediatric specialists to help manage the complex needs of these youth. That’s why Holland Bloorview runs a two-year residency and fellowship program in partnership with the University of Toronto.

Lifting Innovative Projects off the Ground KneuroKnits, a new group devised by a Holland Bloorview clinician-scientist, studies the benefits of a knitting club for children and youth with autism spectrum disorder. It’s one of dozens of innovative projects to emerge in recent years from our donor-funded Centre for Leadership, whose seed funding gets great ideas off the ground.

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A Powerful Anti-Stigma Campaign Fueled by Powerful Stories “I hope that Dear Everybody makes people a little bit more comfortable seeing people with disabilities around, because they’re here,” says Jen whose seven-month-old son had a stroke that may leave him with life-long disabilities. “Accept it and let’s embrace it.” Hers was among the incredible stories shared in a national campaign to end disability stigma.

An Energized Community of Supporters Raises the Bar for Care Over 9,500 donors and 1,300 volunteers play integral roles in Holland Bloorview’s model of care. This incredible community of individuals contributes time, energy and insight help to end stigma and improve the lives of children with disabilities – and literally energizes our hospital.

7Impact Report 2018-2019

Family as Faculty Program Recognizes Families as Experts in Their Own CareFamily as Faculty leaders participate in teaching or facilitation roles as equal partners with front-line staff not only across Holland Bloorview, but into the community too.

“The idea is that families are experts in their own care, and are therefore the best people to convey that knowledge to clinicians and staff,” says one Family as Faculty leader.

Charting a Course with Help from Children and FamiliesFrom many angles, Holland Bloorview gathers, analyzes and actions the feedback of our clients and families. The newest is from videos recorded at Youth Feedback Corner, an idea created by Jadine, a client with cerebral palsy. “This way, we can answer the questions we want and have a safe place to share our stories,” she says.

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Holland Bloorview

By the numbers

WHERE OUR CLIENTS AND FAMILIES LIVE

4%

5% 34%

26%

22%

9%

Other Local Health Integrated Networks around Ontario

Toronto central

Mississauga Halton

Central west

Central

Central east

WHO WE ARE

1,093STAFF

505STUDENTS

1,023VOLUNTEERS

WHO WE SERVE

8,313TOTAL CLIENTS

455INPATIENT

ADMISSIONS

53,491 OUTPATIENT

VISITS

2,310NUMBER OF UNIQUE

DIAGNOSES

AVERAGE FAMILY INCOME

28%$17,100

19%$30,200

16%$41,300

16%$55,000

18%$89,500

GENDER DISTRIBUTION

Male – 60.3% Female – 39.7%

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WHERE DO HOSPITAL FUNDS COME FROM?

GOVERNMENT

DONORS

CLIENT SERVICES

PARKING, FOOD AND OTHER

RESEARCH GRANTS

INVESTMENT INCOME

Government 69%, Donors 10%, Client services 7%, Parking, food and other 7%, Research grants 5%, Investment income 3%69%

10%

7%6%

5%3%

HOW DO WE SPEND HOSPITAL FUNDS?

Care 55%, Administration 16%, Clinical and Client Support 15%, Research 13%, Professional Development 1%

CARE

ADMINISTRATION

CLINICAL AND CLIENT SUPPORT

RESEARCH

PROFESSIONAL DEVELOPMENT

55%

16%

15%

13%1%

WHERE DO FOUNDATION FUNDS COME FROM?

$9.5M RAISED

Individuals 33%, Special Events 20%, Corporations 19%, Community Giving 14%, Foundations 11%, Bequests 3%

INDIVIDUALS

SPECIAL EVENTS

CORPORATIONS

COMMUNITY GIVING

FOUNDATIONS

BEQUESTS

33%

20%19%

14%

11%3%

HOW DO WE GRANT FOUNDATION FUNDS?

$9.9M GRANTEDResearch 29%, Research Institute Core Funding 19%, Participation And Inclusion 16%, Client And Family Centred Care 15%, Teaching And Learning 13%, Community Resources 8%

RESEARCH

RESEARCH INSTITUTE CORE FUNDING

PARTICIPATION AND INCLUSION

CLIENT AND FAMILY CENTRED CARE

TEACHING AND LEARNING

COMMUNITY RESOURCES

29%

19%

16%15%

13%

8%

Impact Report 2018-2019 10

OUR SCIENTISTS

3SENIOR CLINICIAN

SCIENTISTS

8SENIOR

SCIENTISTS

43TOTAL NUMBER OF SCIENTISTS/INVESTIGATORS

3SCIENTISTS

23CLINICAL TEAM/INVESTIGATORS

6CLINICIAN

SCIENTISTS/INVESTIGATORS

OUR RESEARCH TRAINEES

37UNDERGRADUATE

37MASTERS

35PhD

18POST-DOC FELLOW

21CLINICALMASTERS

6NON-THESIS

BASED

$6.45 MIN EXTERNAL

RESEARCH FUNDING

25.74% TRICOUNCIL

25.76% PROVINCIAL

10.95% DONATIONS

8.34% CANADIAN FOUNDATIONS, SOCIETIES AND ASSOCIATIONS

7.70% SUBGRANT COLLABORATIONS

5.68% INDIRECT

4.76% SCIENTIST AWARDS

4.71% INTERNATIONAL

2.62% INDUSTRY SPONSORSHIPS

1.72% FEDERAL

1.26% STUDENTSHIPS

0.39% OTHER - PEER REVIEWED

0.37 % ROYALTIES / OTHER REVENUE

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40KIDS PARTICIPATED

IN INPATIENT MUSIC THERAPY

PROGRAMS

108 KIDS

PARTICIPATED IN ART

PROGRAMS

4,531FAMILIES

REGISTERED

235KIDS PARTICIPATEDIN SPIRAL GARDEN

READERS IN

146COUNTRIES ARE READING OUR BLOOM BLOG

1,160FAMILIES FOUND

SUPPORT IN THE FAMILY RESOURCE CENTRE

181FAMILIES WELCOMED

AT PARENT EDUCATION WORKSHOPS

644FAMILIES ACCESSED

THE FAMILY SUPPORT FUND

132FAMILY LEADERS VOLUNTEERED

2,533HOURS

TOP 5 LANGUAGES SPOKEN BY FAMILIES

Hello

1.9%ARABIC

81.6%ENGLISH

10.3%OTHER

1.5%CANTONESE

1.6%MANDARIN

1.5%TAMIL

7.5%OF CLIENTS REQUIRE

INTERPRETER SERVICES

4000+INPATIENT VISITS

FROM OUR THERAPEUTIC CLOWNS

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AGES OF CLIENTS

0-2 YEARS

3-5 YEARS

6-9 YEARS

10-14 YEARS

15+ YEARS

14%

32%

19%

17%

18%

COMPLEXITY OF THE CLIENTS WE SERVE

30%1

DIAGNOSIS

18%2

DIAGNOSES

13%3

DIAGNOSES

10%4

DIAGNOSES

19%5-9

DIAGNOSES

6%10-14

DIAGNOSES

70%CLIENTS WITH MORE

THAN ONE DIAGNOSIS

MOST COMMON DIAGNOSESINPATIENT

24%CEREBRAL

PALSY

32%ACQUIRED

BRAIN INJURY

5%MUSCULAR DYSTROPHY

OUTPATIENT

29%AUTISM

SPECTRUM DISORDER

20%CEREBRAL

PALSY

18%DEVELOPMENTAL

DISORDERS

39 DAYSAVERAGE LENGTH OF STAY

Read the full

report online

hollandbloorview.ca/

ImpactReport18

A TEACHING HOSPITAL FULLY AFFILIATED WITH Charitable Business # 88932-6278-RR0001

Holland Bloorview Kids Rehabilitation Hospital150 Kilgour Road, Toronto, ON M4G 1R8 416-425-6220 info@hollandbloorview.ca

hollandbloorviewfoundation.ca hollandbloorview.ca

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Holland Bloorview Kids Rehabilitation Hospital receives funding from Toronto Central Local Health Integration Network.

The opinions expressed in this publication do not necessarily represent the views of Toronto Central Local Health Integration Network.