Impact: Parkinson’s Disease Foundation Biennial Report 2012-2013

Biennial Report 2012-2013

PARKINSON'S DISEASE FOUNDATION

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Letter from Leadership

People Advancing Science

Science Informing People

Our Donors

Our Researchers

Financial Reports

Our People

Table of Contents

3 | Letter from Leadership

The essence of PDF’s work over this period may be encapsulated into thefollowing theme: People Advancing Science/ Science InformingPeople. In these phrases rests the heart of PDF’s strategy: linking ourdreams for tomorrow with the necessary tasks of today.

Dear Friend of the Parkinson’s Disease Foundation: With pleasure and pride, we send you Impact, the biennial report for the

Parkinson’s Disease Foundation (PDF) for fiscal years 2012 and 2013. The essence of PDF’s work over this period may be encapsulated into the fol-

lowing theme: People Advancing Science/ Science Informing People. In thesephrases rests the heart of PDF’s strategy: linking our dreams for tomorrow with thenecessary tasks of today. Let us explain.

People Advancing Science. In this dimension of our work, PDF harnesses theenergies of committed doctors, gifted scientists and generous donors to push thescience forward in the quest for new Parkinson’s treatments and — ultimately — acure for the disease. This commitment has been at the core of PDF’s researchstrategy since the organization was created more than a half-century ago.

This research — investigator-initiated and rigorously reviewed by peers andpeople with Parkinson’s — takes many forms. One could be the individual scien-tist in her laboratory, studying potential disease-modifying treatments for Parkin-son’s. A second could be the work of a diverse panel of experts exploring thedebilitating impulse control disorders that affect so many people with Parkinson’s.A third could be the long-term collaborations of a university-based research teamexploring the role of genetics in Parkinson’s disease.

In addition to the communities of doctors, scientists and donors who have tra-ditionally led this work, PDF includes a fourth community: lay advocates in the sci-entific process, trained and deployed by PDF though in-person trainings and anonline course. Through this program, known as Parkinson’s Advocates in Re-search (PAIR), people touched by Parkinson’s can join our network of more than230 Research Advocates from 42 states who are working to bring about bettertreatments at a faster pace. These individuals are taking on a variety of chal-lenges, including recruiting individuals for drug trials, providing advice to industryand federal regulatory agencies, and educating support groups.

Impact: Biennial Report 2012-2013 | 4

Letter from Leadership

Science Informing People. As much a philosophical precept as it is a pro-gram strategy, placing information and education on the firm basis of science is acore principle at PDF. Whatever the medium — our publications and newsletters,our popular website, our online educational seminars, or our online programs ofprofessional education for nurses and physical therapists — PDF serves as an en-trepot of relevant, timely and authoritative knowledge and information on Parkin-son’s. Our goal is simple: to identify the questions that are uppermost onpeople’s minds and then to give them answers they can rely on, based on thebest science available.

Many of you who read this report will be the people who already supportPDF’s work financially. It is your generosity that powers our work — on the onehand, advancing, through research of the highest quality, our understanding ofParkinson’s disease, and on the other, through science-based education, improv-ing the lives of people who are touched by the disease. To these people, weoffer our heartfelt thanks for all that they have done to date to advance our work,and we hope that they will continue to ride with us on this journey.

We invite you to read this report carefully and to contact us at any time if youhave questions about our work or about Parkinson’s in general. In the meantime,we wish you good health and happiness during the balance of the year.

Sincerely yours,

Robin Anthony ElliottPresident

Howard DeWitt MorganChair, Board of Directors

Supporting promising, crowd-sourced, peer and patient-reviewed scientific ideas that advance the knowledge of Parkinson’s.Our comprehensive strategy is focused on three results: solving the mys-tery of its causes, developing new treatments for those who live withthe disease and ending Parkinson’s disease forever.

5 | People Advancing Science


David Sulzer, Ph.D.: Finding Potential Targets for Preventing or Treating Parkinson’s

Daniel Segal, Ph.D.: Learning from Other Diseases to Find New Treatments

Although the vast majority of cases of Parkin-son’s disease (PD) have no known genetic cause,among those that do run in families, the most com-mon mutations occur in the LRRK2 gene (leucine-rich repeat kinase-2). Now, researchers led by AnaMaria Cuervo, M.D., Ph.D., at Albert Einstein Col-lege of Medicine and David Sulzer, Ph.D., at PDF’sResearch Center at Columbia University MedicalCenter, funded in part by PDF, have shown for thefirst time, why the faulty LRRK2 protein is harmful,and how it can block the normal cell recyclingprocess. This research was published in the March3, 2013, online edition of Nature Neuroscience andbuilds upon earlier work also funded by PDF.

Normal cells, including those in the brain, use arecycling and waste disposal system to stay healthy.The process — known as chaperone-mediated au-tophagy — begins when molecules called chaper-ones patrol for damaged proteins and then

transport them to a recycling center (the lysosome).After arriving there, the damaged proteins travel tothe interior region of the lysosome, where they arebroken down into components that can be reused.

Drs. Cuervo and Sulzer showed that chaper-one-mediated autophagy was capable of recyclinghealthy LRRK2 proteins, but it was not as successfulin breaking down those LRRK2 proteins that hadthe mutation found in people with Parkinson’s dis-ease. In addition, these faulty LRRK2 proteins thenprevented other proteins, such as alpha-synuclein(a protein that causes PD), from getting brokendown and recycled.

The studies of Drs. Cuervo and Sulzer over theyears have spotlighted the need for developingtherapies that can help restart or speed up cellularrecycling — therapies that could potentially benefitpeople whose PD has no known genetic cause aswell as those who have LRRK2 mutations.

In Parkinson’s disease, the protein that clumpstogether and causes the disease is called alpha-synuclein. If scientists could stop alpha-synucleinfrom clumping in the brain, this could potentiallyprovide a new treatment for the disease.

With funding from PDF, Daniel Segal, Ph.D., of Tel Aviv University, has developed a new mole-cule, based on quinone, a compound that has beenshown to inhibit certain cellular pathways, that maybe able to do this. His molecule is small enough tofit into the brain, and is similar to another moleculeshown to stop clumping in the protein that causesAlzheimer’s disease.

Dr. Segal found that in a petri dish, this mole-cule was able to effectively prevent alpha-synucleinfrom clumping together, and that higher doses weremore effective than lower doses. Now he is testingthe molecule in animal models. His early tests in

fruit flies found that treatment with this molecule re-sulted in improved motility (measured by climbingbehavior) in PD fly models containing excess alpha-synuclein in their brains. He now will extend his test-ing to PD mice models.

If he finds this molecule to be successful, thiscould mean a promising new therapy for Parkinson’sdisease. Ofcourse, clinicaltesting would haveto be done in hu-mans to ensurethat the moleculeis safe and worksthe same way inhumans as it doesin flies and mice.


Genes, in ways still unknown, contribute sig-nificantly to the risk of Parkinson’s disease. Un-derstanding the genetics of those who live withParkinson’s disease may hold the key to finding acure. To further our understanding of genetics,PDF established in 2012 the Lucien Côté Early In-vestigator Award in Clinical Genetics, which sup-ports postdoctoral researchers and junior facultyin the New York City metropolitan area who arestudying the genetics of Parkinson’s.

One of the first recipients of this award wasSheng-Han Kuo, M.D., of Columbia UniversityMedical Center, who is using induced pluripotentstem cells (iPS cells) to study how changes, ormutations, to certain genes may cause PD. iPScells are skin cells from people with Parkinson’sdisease that have been chemically induced todevelop into dopamine neurons, which are thecells that are lost in the brains of people with PD.

Dr. Kuo is studying dopamine neurons de-rived from skin cells that have a specific changeto a gene called GBA (the full name is glucocere-brosidase). He wants to determine how changesto this gene affect normal function in the brain,especially how they affect the clumping of alpha-synuclein (a protein that causes PD). Past studiesin rats have shown that changes to the GBA genedo cause clumping of alpha-synuclein in thebrain. Now the goal is to see if this clumpingalso occurs in human brain cells containing theGBA mutation, and the mechanisms by whichthis happens. This knowledge may potentiallylead to the development of new PD treatments.

Sheng-Han Kuo, M.D.: Using Genetics to Find New Treatments



“THE PARKINSON’S DISEASEFOUNDATION HAS PROVIDED

ME WITH CRITICAL SUPPORT

TO CONTINUE MY PARKIN-

SON’S RESEARCH IN THE

EARLY PHASE OF MY

CAREER DEVELOPMENT.”Sheng-Han Kuo, M.D.

Columbia University Medical Center

Since 2000, PDF has provided over $69 million to more than 400 scientists as part of a comprehensive and multifaceted approach that supports both research and training.

The PDF Conference Award program was launched in 2012 to supportgatherings of experts in the field to address emerging clinical or basic sci-ence questions about Parkinson’s. Two of the initial recipients were Anto-nio Strafella, M.D., Ph.D., of Toronto Western Hospital and Mark Stacy,M.D., of Duke University. Together, they used the PDF award in conjunc-tion with other funding to gather clinical and preclinical experts from vari-ous research backgrounds to develop a strategic plan for studying thedebilitating impulse control disorders (ICDs) that affect so many peoplewho have Parkinson’s.

ICDs can be a side effect of dopamine agonist therapy and includebinge eating, compulsive gambling or shopping and increased sexual be-havior. The conference, “Impulse Control Disorders in Parkinson’s Dis-ease,” was held in October 2012 and featured experts from fields includingneurology, psychiatry, neurobiology, pharmacology, addiction, neurologicimaging and epidemiology.

This multidisciplinary meeting addressed the spectrum of symptomsassociated with ICDs, and generated new ideas for clinical, experimentaland translational approaches to better understand ICDs. It also facilitatedinteraction and collaboration among experts from diverse fields, and de-veloped a network of interested scientists and clinicians to further studythe disorder. The proceedings of the conference will be published inMovement Disorders.

Antonio Strafella, M.D., Ph.D., and MarkStacy, M.D.: Understanding Impulse ControlDisorders in Parkinson’s Disease



Could we be returning to the tradition ofseeing our doctors at home? This is the conceptof telehealth. But how does it compare to con-ventional in-person medical care?

Investigators led by E. Ray Dorsey, M.D.,M.B.A., at Johns Hopkins Medicine, and includingPDF Summer Fellow Benjamin George, recentlyfound that people with Parkinson’s may benefitfrom a consultation with a specialist via onlinevideo conferencing from home, providing an al-ternative to traveling to an in-person appoint-ment. These findings appeared in a studypublished on March 11, 2013, in JAMA Neurol-ogy. This study is one of the first to investigatewhether telehealth appointments are feasible andbeneficial to people with Parkinson’s disease.

Researchers measured the participants’ qual-ity of life and PD symptoms, and found the sameresults for individuals, regardless of whether theysaw a doctor in-person or via video conference.In addition, compared with in-person visits, each"virtual" visit saved participants, on average, 100miles of travel and three hours of time. Althoughthe number of participants in this study wassmall, the results provide encouragement thatvideo conferencing with a specialist can providesimilar benefits to people with PD as in-personvisits, while reducing the time and expense ofseeing the doctor.

However, before virtual visits become a reality,researchers must conduct studies with larger num-bers of participants, and with participants of morevaried socioeconomic backgrounds. In addition,issues surrounding technology and insurance re-imbursement and rules in the United States thatrequire doctors and the person being treated tobe in the same state, will need to be resolved.

Benjamin George: Measuring theBenefit of “Virtual” Office Visits


“THANK YOU FOR PROVIDINGTHE FUNDING TO ALLOW ME

TO CONTINUE TO CONDUCT

RESEARCH TO FURTHER UN-

DERSTAND AND IMPROVE AC-

CESS TO CARE FOR IN-

DIVIDUALS WITH PARKIN-

SON’S DISEASE.”Benjamin George

Johns Hopkins Medicine


“AS A DOCTOR AND A RESEARCHER, I

BELIEVE THAT WHEN

WE PARTNER WITH

THESE INFORMED RE-

SEARCH ADVOCATES,

THAT IS WHEN WE

WILL SEE TRUE

CHANGE IN PARKIN-

SON'S RESEARCH.”Joohi Jimenez-Shahed, M.D.

Baylor College of Medicine,PAIR faculty and steering

committee member

PDF believes that better treatments can be found at a faster pacewhen people with Parkinson’s are primary partners in research alongsidescientists, industry and government. Since its founding in 2008, PDF’sParkinson’s Advocates in Research (PAIR) program is making this partner-ship a reality. Here are some of the ways in which these 230 volunteeradvocates from 42 states are actively changing how research is done:• Rich Hoffman, Pharm.D.: Speeding Drug Development"As a Consumer Representative with the US Food and Drug Adminis-tration, I represent the urgency of people with Parkinson’s, while helpingto ensure that potential new drugs are effective and safe."

• Steve DeWitte: Increasing Trial Participation"When I ask people with Parkinson’s why they are not involved in re-search studies, many reply, ‘Because I have no transportation.’ My solu-tion was launching the Clinical Trial Transportation Program (CTTP).By partnering with Beth Israel Deaconess Medical Center in Boston, MA,and Columbia University Medical Center in New York, NY, CTTP hashelped 37 volunteers to participate in studies by driving them to thesetwo medical centers.”

• Jane Denmark: Informing the PD Community“This is a hard disease. The only way we are going to speed up the paceof drug development is by getting involved in research. As PDF ResearchAdvocates, my husband Al and I bring this critical message to supportgroups, health care professionals and students in our community."

PDF Research Advocates: PAIRing Up to Advance Parkinson’s Research

Developing science-based educational programs that respond tothe expressed needs of people with Parkinson’s and health care profes-sionals and collaborating with patient and professional organizationsthroughout the community.

11 | Science Informing People



Using Online Programs to Reach New CommunitiesRecognizing the need to provide people with

Parkinson’s and health care professionals with re-search updates and strategies for living well withthe disease, PDF continued in 2012 and 2013 itspopular PD ExpertBriefings series. Subjects for theone hour online seminars are selected based onsurveys of people with Parkinson’s, and the facultyare experts from around the US. More than 15,000individuals from 43 countries participated in at leastone PD ExpertBriefing. Topics covered included:• Driving and Parkinson's: Balancing Independence

and Safety (Margaret O’Connor, Ph.D., A.B.P.P.,and Lissa Robins Kapust, L.I.C.S.W., Beth IsraelDeaconess Medical Center)

• A Closer Look at Anxiety and Depression inParkinson's (Laura Marsh, M.D., Michael E. De-Bakey Veterans Affairs Medical Center and BaylorCollege of Medicine)

• Parkinson's Medications: Today and Tomorrow(Cynthia L. Comella, M.D., F.A.A.N., Rush Univer-sity Medical Center)

• Understanding the Progression of Parkinson's(Ronald F. Pfeiffer, M.D., University of TennesseeHealth Science Center)

• What is New in Genetics and Parkinson’s Disease?(Matt Farrer, Ph.D., University of British Columbia)

• Coping Skills for Parkinson’s Care Partners (JulieH. Carter, R.N., M.S., A.N.P., Oregon Health & Sci-ence University and Parkinson Center of Oregon)

• Gait, Balance, Falls and Parkinson’s (Terry Ellis, P.T.,Ph.D., N.C.S., Boston University College of Healthand Rehabilitation Sciences: Sargent College)

• Under-recognized Nonmotor Symptoms of PD (K. Ray Chaudhuri, D.Sc., M.D., F.R.C.P., NPF Interna-tional Centre of Excellence, Kings College London)

• Medical Therapies: What's in the Parkinson'sPipeline? (Kapil Sethi, M.D., F.R.C.P., GeorgiaHealth Sciences University)

• Improving Communication in Parkinson’s Disease:One Voice, Many Listeners (Angela Roberts-South,C.C.C.-S.L.P., Ph.D. Candidate, Western University)

As of September 2012, continuing educationcredits have been offered to health care profession-als — social workers, occupational therapists andothers — who participate in these seminars. Al-though these professionals work with people withParkinson’s, they often receive very little training onthe disease. CEUs are managed through PDF'ssponsorship of the American Society on Aging.

“THE INFORMATION PRO-

VIDED IN THESE PD EXPERT-

BRIEFINGS HAS HELPED

OUR FAMILY AS WE MAKE

THE PARKINSON'S JOURNEY

TOGETHER. WE NOW FEEL

PREPARED TO DEAL WITH

THE CHALLENGES THAT WE

KNOW WE WILL FACE.”Elise C., Ramsey, NJ

13 | Science Informing People

As the number of non-English speaking in-dividuals increases in the United States, theneed for resources for these communities con-tinues to grow. In fact, by 2050, the Hispanicshare of the elderly population is expected toalmost triple to 17 percent from six percent in2005. Since age remains the biggest risk factorfor Parkinson’s, the prevalence of the disease inthis community is expected to increase.

PDF is committed to ensuring that all peo-ple — regardless of who they are, where theylive, what language they speak or how muchmoney they have — receive needed Parkinson’sinformation and resources. In 2012, PDF ex-panded our HelpLine to include interpreterswho are available to speak with callers in Span-ish and more than 200 other languages. OurHelpLine is staffed by a team of informationspecialists who can answer questions aboutParkinson’s treatment and care, identify legaland financial resources and provide referrals todoctors and support groups where available.

PDF also expanded our line of educationalmaterials available in Spanish to include factsheets on topics such as deep brain stimulation(DBS) as a treatment of Parkinson’s, care partnerconcerns, the role of hospice in Parkinson’scare, managing Parkinson’s medications and un-derstanding pain in Parkinson’s. In 2012 and2013, more than 5,000 individuals requested in-formation in Spanish.

Improving Resources for Non-English Speaking Communities


“I AM EVER SO APPRECIA-TIVE OF YOUR THOROUGH

RESPONSE. OUR FAMILY BE-

LIEVES IN THE POWER OF

TEAMWORK, RESEARCH AND

ACTION. UNDERSTANDING A

DISEASE HELPS US ALL FEEL

EMPOWERED TO HELP ONE

ANOTHER.”Sylvia G., Yuma, WA

Since 2007, PDF's HelpLine has responded to inquiries from almost 50,000 individualsaround the world as part of its commitment to ensuring that everyone has access to Parkinson's information and resources.


While no treatment can prevent or reverse Parkinson's, research sug-gests that physical therapy can help improve strength, fitness level, walk-ing speed and balance, leading to reduced disability and greaterindependence. Unfortunately, there is a lack of trained physical thera-pists to care for the growing Parkinson’s community.

To address this need, PDF launched in April 2012 a free online course,“Parkinson’s Disease: A Practical Approach to Evaluation and Treatmentfor the Physical Therapist.” The course was designed by expert physicaltherapists in the field of Parkinson’s to help other physical therapists pro-vide better care to people with the disease. PDF led the development ofthis course in collaboration with the American Parkinson Disease Associa-tion (APDA), the American Physical Therapy Association (APTA) and theVisiting Nurse Service of New York (VNSNY). The course includes ten ed-ucational sessions and two interactive panel discussions. Since its launch,more than 6,000 physical therapists have participated in this program.

This program was made possible with the support of Kenneth M. andSusan Granat Weil in memory of John and Joan Haine; the Edmond J.Safra Philanthropic Foundation and the American Physical Therapy Asso-ciation. It also received kind support from Rusk Rehabilitation at NYULangone Medical Center. Additional promotion was provided throughour media partners, which include the Houston Area Parkinson Society,National Parkinson Foundation, Northwest Parkinson's Foundation andParkinson Association of the Carolinas.

Educating Physical Therapists About Parkinson’s

“THIS COURSE PUTSTHE LATEST EVI-

DENCE-BASED FIND-

INGS IN THE HANDS

OF PRACTITIONERS

AROUND THE COUN-

TRY TO HELP THEM

PROVIDE THE BEST

CARE POSSIBLE.”Terry Ellis, P.T., Ph.D., N.C.S.

Clinical Associate Profes-sor at Boston University’s

College of Health and Rehabilitation Sciences

Thanks to the generous support of nearly 36,000 donors, theParkinson’s Disease Foundation (PDF) funded almost $10 million in research throughout the world and over $3 million in national educationand advocacy programs in fiscal years 2012 and 2013. PDF gratefullyacknowledges the following donors who helped us make an impact.

15 | Our Donors

The following individuals, families, foundations and corporations have made cumulativegifts of $500 or more to PDF between July 1, 2011 and June 30, 2013.

Our Donors

Colman and Nancy Abbe

Robert and Georgean Abels

Andrew Abramson

Mark G. Ackerman

Stephen and Marsha Ackerman

Peter Adams

Steve and Rebecca Adams

Todd Adams

Brigitte Addimando

Allison Adkins

David Adler

Meeta Advani

Dr. Avadesh and Uma Agarwal

Roger E. Ailes

John and Susan Akers

Mr. and Mrs. Thomas S. Alexander

George and Jodie Allen

Eric and Melba Anderson

Joe Andronaco

Nicole Angell

Anonymous (8)

Gene Anspach

Richard Anthony

Toni Arai

Britta Arendt

Salvatore and Ruth Armenio

Daniel Armstrong

Jeffrey and Shari Aronson

Dr. Marian Ashraf

Simon Asselin

Edgar Astrove

John and Anne Atherton

Allan Atmore

Evan Avidane

Michael Axelrod

Norman and Alison Axelrod

John Ayer

Kenneth Ayer

Charles Babcock and Nancy Hamilton

Robert and Toni Bader

Sara Badler

John and Susan Baer

J. Edmonds Bafford

Patricia P. Bailey

Gerson and Barbara Bakar

William and Sharon Baker

Alex Balanevsky

Inga Balke

Buck and Leslie Balkind

Byrd and Alice Ball

Florence Barad

Benny Barak

Katie Barrow

Kathy Barthlama

Doris Bato

Peter M. Bauer

Millie Bayne

Lawrence and Sandra Beal

Michael and Marcia Beck

Bruce and Carol Bell

Mr. and Mrs. Frank M. Bell, Jr.

Janet and Lawrence Bell

Don and Carol Bender

Tom and Anne Benedict

Alison Benge

Robert L. Benjamin

Elizabeth S. Bennett

Robert Benton

Ron Bergamo

James and Suzanne Bergoffen

Fred Bering

Donald Berkowitz

Deborah Berman and Bruce Greenberg

Bernard Berner

Arnie Bernstein

Josh Bernstein

Richard A. Bernstein

Neil and Marilyn Bersch

Mr. and Mrs. David M. Berwind, Sr.

David and Jo Anne Bescherer

Beth Besen

Caryn Biancosino

Claudette Bidgood

Louis and Anne Krementz

David Binder

Simran Bindra

Jules and Helen Bingham

Kyle Blackmon

James and Shirley Blackorby

David H. and Mary B. Blair

Lawrence Blaskopf

Richard Bleikamp

Sean and Rosanne Bloodwell

Herschel and Rita Bloom

Drs. David and Jane Bloomgarden

Theodore and Flora Blumenthal

James Bobo

Ernest and Rita Bogen

Richard Bohlen

Danny Bone

Roger Bonga

Robert Book and Marcy Helfand

Dr. Doyle Booker and Linda Booker

Edward C. Booth

Mr. and Mrs. Lee Boothby

Patrick and Martha Boudewyns

Dierdra Bowditch

David Bradford

Kyle Bradstreet

Norman and Linda Braverman

Andrea Cervantes Brennan

Michael and Tracess Brenner

Irving G. Brilliant

Karen Brimberg

Individuals

PDF Champion Sean Wright and family at the 2012 Marine Corps Marathon


Toby Brimberg

Jayne Brindle

John and Patty Brissenden

Jill and Ken Brodkowitz

Mr. and Mrs. Jed Brody

David and Angela Brown

Doug and Julie Brown

James S. Brown

Rachael Brown

Drs. Russell and Susanna Brown

Steven Bruck

Vivienne Bruckman

Christian Bruner

Bunyan Bryant

Lee Buchheit

Mary Anne Buchheit

Don Buchholz

Mr. and Mrs. Mark Budd

Lieselott Buettner

Michael and Joan Burke

Dr. Robert Burke and Dr. Sharon Wardlaw

Julie Burma

John and Barbara Burns

Peter and Barbara Bye

Julie Byrne

Diane Calder

Denis Callaghan

Andrew Callan

Pete Campbell

Scott Campbell

Joaquin and Angela Campo

Jose and Lourdes Campon

Mr. and Mrs. William Canata

Dr. Jeff and Dieta Cao

Robert and Mary Capaldi

Ray Capitanini

Sharon Cardinal

Peter and Nadia Cardozo

Mr. and Mrs. Raymond W. Carlin

John K. Castle

John and Margo Catsimatidis

Joseph Curci and Lisa Centone

Michael Cerussi

Mr. and Mrs. Bernard D. Chalfin

Alfred and Nancy Chandler

Gary and Beth Ann Chard

Carol Chase

Mr. and Mrs. Adam Chasnow

Fu Tzu Chen

Terry and Brooke Cheng

Thomas Cherner

The Chiaro Family

Anthony and Patricia Cilluffo

Wayne Citrin and Deborah Arhelger

Carol C. Clark, Ph.D.

Elizabeth Clark

Aaron and Wendy Clayton

Michael Cloonen

Mark Coatney

Dr. William Coggshall

Robert and Joni Cohan

Dayl Cohen

Suzanne Cohen

Alan and Betsy Cohn

Gerard Cole, Jr.

Ray and Claudia Cole

Brenda Collins

Susan Comparato

Dr. Valerie Cooke

Mr. and Mrs. Thomas A. Cooper

Katharine T. Cornelius

Robert and Rhea Corrion

Robert Cortelyou

Jay Cossentine

Dr. and Mrs. Lucien Côté

Mr. and Mrs. Michael Cotton

Norman and Helen Coulson

Dr. C.W. and Deborah Cowles

Gabrielle Crandall

William and Clare Cribbin

Cary Cridlin

James Cronin

Sally Cross

Jennifer Csorba

Gene and Judi Curry

Edna Curtis

Joseph D'Amadeo

Stephen D'Amato

Guido D'Elia

Burke Dambly

Cynthia Danel-Frankovitch

Mr. and Mrs. Phillip A. Daniel

John Danstrom

Ernest Dampf

William Darnton

Ted and Gerald Davenport

Diana H. Davis

Mr. and Mrs. Monty Davis

Richard Davis

Elizabeth de Lima

Edwin Lee Solot and Marie De Lucia

Dennis De Pietro

Michael DeGeorge

Patricia DeGeorges

Dr. Maria De Leon

James Dellinger

Cindy DeLuz

David Dennis

Anthony DePaolo

Charles and Virginia Detoy

Individuals

17 | Our Donors

Guests enjoy CARNAVAL 2013

Robin Elliott (left) with Isobel Konecky and Family at the 2012 Bal du Printemps

Our Donors

Alvin Deutsch

Michael Deutsch

Mr. and Mrs. Chris J. Dicharry

Mark Dickinson

Ervin and Karen Dieckhoff

Neal Dimick

Albert Diringer

Aida S. Dishman

Anthony DiVito

Michael and Barbara Ditzian

Kathleen and Eamonn Dolan

Jorge and Mary Dominguez

Juan Dominguez, Esq.

Edward Dondzila

Mr. and Mrs. Francis Donnantuono

Michael Donnantuono

Julie Donovan

Neil Doppelt and Audrey Adams

Vicky Dorn-Fontana

Krista Douglas

Ezra and Elizabeth Doverman

Richard and Sarah Draut

Craig and Monica Drill

Jennifer Drinan

Chris and Jill Drury

Ryan Duffy

Richard and Jane Dunbar

Roger C. Dunn

John Dwyer

Brian and Karen Eckhart

Hollis and Sharon Eddins

Mark D. Edie

Abbie Edwards

G. Pennington Egbert III

Adele Eger

Drs. David and Jane Eger

Ronald A. Eger

Roberta Ehre

Frances Ehrlich

Joanne Eickhoff

Charlotte Einstein

Ronald and Nanette Elenbaas

Stafford Elias

Diane Elliott

Robin A. Elliott and Dr. Sheila Gordon

John Ellis

Samuel and Maryann Ellsworth

Stephen Ellis

Kim and Lizabeth Erickson

Arnold and Shirley Erickson

Mr. and Mrs. Jeffery Ettinger

Dr. Stanley and Charlotte Fahn

Fernando U. Fajardo

Steven Farber

R.T. Farmer

Vincent and Jeanine Fatato

John Fatteross

Mark Faught

Burt and Noelle Faure

Gian Favalli

Leonard and Gloria Fazio

Andrew and Michelle Feinberg

Dr. Daniel Feinberg

Steven Feldman

Julia Ferguson

Eda Ferman

Richard and Schuyler Field

Philip Fierro

Debbie Finkel

Eric and Keryn Fishman

Scott Fitcher

Thomas and Barbara Fleming

Anthony and Patricia Forgione

Mr. and Mrs. Alan J. Forman

Andrew and Jean Fornato

Cathy Forsberg

Dr. and Mrs. Brian Forst

Jack Fortinsky

Dr. Craig and Blake Foster

Mr. and Mrs. Thomas D. Fowler

Dave and Jill Fox

Patrick Franc

Jonathan Franzen

Mr. and Mrs. Stuart Fraser

Dr. Jay Freed

Gary and Carol Freidman

Rick and Shelley Friedland

Dr. and Mrs. Lawrence Friedman

William C. Friend

Elizabeth B. Friou

Meyer and Florence Frucher

Dr. Paul Fuchs

Mark Funderburk

F. Daniel and Bunny Gabel

John and Cynthia Gallagher

Ronald and Kroupa Galowich

Sarah Belk Gambrell

Alan and Marion Garfield

Diane Garrett

Gary Garrison

Thomas Garrison

David and Gail Gasser

Gary and Ellen Johnson

Debra Gaynor

Willie and Christina Geist

Vic and Joan Gelb

Seth Gelblum

Venita Georgieff

Adeline Gersen

Gerald Z. Gibian

Joel Gibson

Nora Gibson

Dr. George and Anisia Gifford

Robert M. Gilhooley

Eric Gillert

Christopher Gillock

Robert and Gail Ginsberg

Don Ginsburg

Catherine Giordano

Gerald and Deanne Gitner

Jeffrey Gittleman

Seymour and Rita Glanzer

Jerry Glennie

Roger and Sandra Goetti

Morton and Claire Goetz

Capt. Lewis and Ada Goldbek

Allan Goldberg

Stephanie Goldman-Pittel

Amy Goldman

David Goldman

James and Sarah Goldman

Molly Goldstein

Joseph and Mary Golemme

Mr. and Mrs. Benjamin Gomez

Dr. Robert R. Goodman

Scott Goodman

James and Ann Gordon

John Gordon

Patrice Gordon


Willie and Christina Geist at the 2013 Bal du Printemps

Dr. Simone Gordon

James T. Gottwald

Peter John Goulandris and Dr. Karen E. Burke

Mr. and Mrs. Peter Grad

Stephen L. Graessle

Joan Graham

Richard and Marcia Grand

Rachel Granger

Dr. Michael and Dena Granhof

Christine Grant

Clair Grant

Mr. and Mrs. James Graves

Kent Gray

Michael Gray

Joshua Greenberg

B.J. and Howard Greenberger

Robert W. Greene

Sherwin Greenwald

Nicholas and Marjorie Greville

H. Duane and Sandra Griffin

Mr. and Mrs. John Scott Griffin

Lisa Griffin

Richard Griffith

Scott and Susan Grodnick

Lexi Gross

Pete and Emily Gross

Stuart Gross

Henry Strater and Lillian Grossman-Strater

Bill and Rhea Grous

Leonard and Jennifer Gruenberg

G. Guist and Robin Guist

Geoffrey and Sarah Gund

Sharyn L. Gunderson

Arlen R. Gunner

Chris Gunner

Jon and Stevi Gurkoff

Andrew Gustin

Mark Guzzi

Lois Gwinn

Eleanor Hagan

Scott Hahn

Barry and Jane Haimes

Alyce C. Halchak

Dr. William and Katherine Hale

John Haley

Jennifer Hallenbeck

Christina Halpern

Jeffrey Hamer

Norma Hammond

Sulabha Hardikar

J. Alan and Karen Harding

Gilbert Haroche

Nancy Harold

Dr. Steven G. Harper

Janet Harris-Ahl

Charles Harris

Mark Harrison

Randy Hartshorn

Lauren Hauser

Jeffrey Havsy

Gregory and Sharon Hawkins

Dr. and Mrs. Joseph Hawkins

Mr. and Mrs. Richard Hay

George Hebard

Susan Heidenberg

Dr. John and Peggy Heilman

Dr. Sydney and Roslyn Helfen

Mr. and Mrs. Lewis Helfstein

Michael Hencel

Richard and Rose Henneberger

Patrick Henry

Troy D. Henry

Margaret S. Herold

Tino and Rosie Herran

Mr. and Mrs. Stuart A. Hersch

Dr. Daniel and Natalie Hertz

Mr. and Mrs. Steven Herzog

Steve and Toby Hess

Steven and Sherry C. Hibshman

William and Mary Hicks

Timothy and Tracy Hilbert

Richard L. Hildbold

Roger Hildeen

Lane and Laura Hill

Sara Hill

Mallory Hiltz

Jerry and Joyce Hirsch

Robert Hirsch

Olga Hirshhorn

James Hirst

Ian Hodgson

Monty Hoeflein

Elizabeth and Marvin Hoekstra

Mr. and Mrs. F. William Hoffman

Mr. and Mrs. Joseph Hoffman

Mr. and Mrs. Neil Hoffman

Philip and Mary Hogan

Stephen and Margot Holland

Joseph and Jean Holman

Alexander Holtzman

Joan Hornig

Mr. and Mrs. Hornstein

David Horwitz

Rev. and Mrs. Alanson Houghton

Thomas and Anne Hubbard

Patricia Huggard

Craig and Lane Huggins

Risto Huovinen

Individuals

19 | Our Donors

Stephanie Goldman-Pittel (left), Jerry and Arlene Levine(center) and Robin Elliott at the 2013 Bal du Printemps

PDF Champion Margaux Minutolo (left) and friend modeling Mind Over Matter T-Shirts

Our Donors

Francis Hyman

Andy and Margo Illobre

Mark Indelicato

Gary Irwin

Howard Isermann

Clifford Ishmael

John Isley

Nancy Isserlis

Ralph and Barbara Italie

William and Judith Jackson

Alan and Barbara Jacobs

Randi S. Jacobs

Selwyn and Marjorie Jacobs

Ben and Martha Jacoby

Peter and Karen Jakes

Molly and Marshall Janes

Allan Janoff

April Jansen

Raymond Jasen

Judi Jecmen

William Jeffery

Charles Jenkins and Jeni Forshier-Jenkins

Lynn and Sue Jenkins

Maurice and Linda Jennings

Beverly Jensen

Mr. and Mrs. Arthur P. Jentoft

Charles and Linda Johnson

Donald and Marian Johnson

Kevin P. Johnson and Laurel E. Johnson-Smith

Larry Johnson

Mary Johnson

Michael Johnson

R.A. Johnson

Rhona Johnson

Ronald Johnson

Thad and Suzanne Johnson

Wes Johnson

David and Carolyn Jones

Lauren Jones

Nathaniel and Judith Jones

Eleanor N. Jordan

Reynold and Margaret Jordan

Colleen Joyce

Dr. Daniel Judd

Andrew Kampf

Vikram Kanda

Daniel and Susan Kane

Robert and Jane Kantor

Gary M. Karlitz

Dr. George Karnoutsos

Richard and Jane Karp

Arnold A. Katz

George Kaufman

James Kaufman

Arlan and Lori Kay

Paul Kebabian

Christopher Keber

Judithann C. Keefe

Dr. David L. Keller

Douglas Keller

Denise Kellogg

Edward and Kathleen Kelly

Dolores Kennedy

John Kiernan and Catherine Ruvolo

Mary and Franklin Kilgore

David and Hyun-Min Kim

Thomas Kimbis

Dr. and Mrs. William King Stubbs

Kevin and Sarah King

Donald and Bonnie Kinzer

Lori Kirsch

Kevin Kissell

Dr. and Mrs. Francis l. Kittredge

Andy Klein

Jayne Klein

Gary M. Kleingartner

Dr. David L. Klionsky and Eva Youshock

James Knowles

Suzanne Knowles

Edgar and Eileen Koerner

A. Kohn and Barbara Kohn

Shiro Koike

Patricia Kolb

Isobel R. Konecky

John and Cheryl Korth

Marcia and Walter Kortschak

Kay Kowitt

David and Susan Kraus

Myer and Phyllis Kravetz

James Kress

Mark B. Kristof and Beth V. Ward

Gloria Kronenberg

Mr. and Dr. Rhett Krulla

Charles Krusen

Mr. and Mrs. John Kuelbs

Robert Kuhbach

Kenneth and Cheryl Kuliga

Howard and Gail Kunreuther

Barbara Kyse

James Lacroix

Patrick Lagrange

Rutherford C. Lake, III

Louise Lallier

Elina Lam

Dr. Lenny LaManna

Scott and Ann Landes

Steve and Keala Landry

Mark Lane

Robert and Susan Larson

Robert O. Laven

Pauline M. Lecomte

Bennie and Donna Lee

Mr. and Mrs. Gregory Lee

So Young Lee

Brian Leffler

Mark and Gaby R. Lehrer

Thomas A. Lehrer

Jill Leinbach

Laurie Leiner and Morton Katz

Walter F. Leinhardt

Herbert and Barbara Lembcke

Sally W. Leung

Drs. Ilan and Barbara Levi

Dina L. Levin

Jerome and Arlene Levine

Dr. Irwin and Francine Levine

Burt and Mary Ann Lewis

Kevin Lewis

Melanie Lewis

Wesley and Diann Lewis

Dr. Stanley and Anita Liebowitz

Mr. and Mrs. William Lifland

Paula Lightfoot

John and Catherine Liguori

Richard Linhart

Joan Lipkowitz

Joseph Liss

Dr. Nan and Doug Little


Genna Farber, Stevi Gurkoff, Jon Gurkoff, GeneGurkoff (front row left to right) and David Far-ber, Kate Drury and Jack Drury (back row left

to right) at the 2102 Bal du Printemps

David Littleton and Susan Stevenson

Robert LoBue

William Lockeretz

Arnold and Pamela Loeb

Marshall Loeb

James Long

Robert A. and Joan H. Long

Robert Lonier

Evelyn Lord

Mary Love

Dr. Jack and Lenore Lowenthal

Dina Lowy

Harry Luebbe

Joseph Luetje

Walter Lyczkowski

William and Louise Lydic

Michael Mackey

Darin Magedanz

George R. and Linda L. Mahoney

Mr. and Mrs. Burton C. Mallory

Larry and Janis J. Malone

Terence Malone

Reid and Jeanne Mandel

Virginia Mankin

Vincent Marano

Adam Margolis

Sidney and Phyllis Margolis

Linda Markeloff

Leon Markoff

James Markowski

Lizzy Markus

Kay Marmorek

Stephen Marotta

John Marozzi

John Marquiss

Sharon Marr

Adolfo Marrero

Christine Martino

David J. Marx

Yvonne L. Mason

Tom and Bev Mathis

George and Priscilla Matouk

Ray Matra

Diane Matusiak

William and Natalie Mauskopf

Robert M. Maxwell

Michael and Jessica Mayerson

Theodore Maynard

Alexander and Marianna McAfee

Mr. and Mrs. Kevin McCabe

Alexandra McCagg

Dr. Wesley McCain

Randall T. McCallum

Maureen McCarthy

Robert and Marsha McCleary

Mr. and Mrs. Todd McClutchy

Michael and Cynthia McConnell

Erin McGarry Cubero

John and Helen McGrath

W. McMillin

Iris McQuistion

Paul and Kay Meister

David P. Melillo

Dr. Vincent Memoli

Andrew and Gigi Menard

Dr. Robert Mencher

Gerardo Mendez and Melissa Roth Mendez

Anna Merker

Dr. Karim Mezran

Thomas Milana

Dr. David Miller

Elizabeth Miller and James Dinan

Jim Miller

Jody Miller

Richard and Lois Miller

Walter and Marion Minton

Thomas and Marilyn Mints

Zareen Mirza

Lawrence and Ruth Misrok

Lucile Missimer

William Mitchell

Catherine Mock

Gina Modica

Eric Moede

Donna Mondani

David Moody and Eileen Guilfoyl

Mr. and Mrs. Robert E. Moore

Miriam Moran

Howard and Ginger Morgan

James and Laura Morgan

John and Debbie Morken

Deborah Morrow

Pam Moshe

Erin Montameni

Patrick and Debra Mucci

Sheila Muldoon

George and Ellie Munroe

Kenneth Musen

Jean Myers

John Myers

Catherine Nabulsi

Dorotea Nathan

Paul and Marcy Nathan

Sunil Nayar

Douglas and Jean Nelson

Harold Nelson

Alfred Netter

Dr. George Neuman

John New

George Newmark

Joan Nicolais

Sally Nightingale

Agnes E. Nixon

Marla E. Nock

Edward J. Noha

Maryellen Noreika

Robert S. Northington

Sabato Noto

Allan Novak

Carol Noymer

Mr. and Mrs. Lawrence C. Nussdorf

Terrance O'Bar

George and Barbara O'Connor

Patricia O'Donnell

Daniel O'Neill

Carol Okane

Aksel and Kamma Olesen

Marie Oliver

John and Marnie Olson

Walter and Gloria Olson

Mr. and Mrs. Timothy Onders

Lila Ontiveros

Timothy and Nicole Oprisu

Richard Orechovsky

Dr. Salvatore Orsini

Aura Oslapas

Marc and Neil Ozanich-McNinch

Individuals

21 | Our Donors

Peter Dorn (center) and friends at CARNAVAL 2013

Our Donors

Stephen and Judith Pagano

Mr. and Mrs. Robert Paglia and Family

Lisa Painter

Thomas and Jeanette Palizzi

Tony Pallagrosi

Kathy Patrick

Hugh Patterson

James Patterson

Nicholas and Carol Paumgarten

Jeanne Payne

Sandy Payne

David and Mary Peachin

Melba Pearlstein, Esq.

Elaine Z. Peck

Dr. Timothy Pedley and Dr. Barbara Koppel

Deborah Pelle

John Pepples

Sura Peter

Amanda Peterson

Mr. and Mrs. Frank A. Petitti

George Petras

Michael and Nancy Peters

Monica Phifer

Richard and Eleanor Phillips

Donna Pickett

Nina Platt

William Platt

Carol Pogash

Drs. John and Susan Pollack

Martin and Ruth Pollack

Mr. and Mrs. Henry A. Pope, Jr.

James and Sandra Porter


Todd Adams

Thelma R. Balbes

James and Suzanne Bergoffen

Bikini Offroad

Rose-Marie H. Boller

D. R. Booker

Brown Charitable Foundation

Mr. and Mrs. Mark Budd

Denis Callaghan

Robert Chartoff

James Cronin

William Cunningham

Vincente T. Dipatre, Jr.

The DuBose Family Foundation

Bob Duncan

Joanne Eickhoff

Paul Ellis

Epstein, Becker & Green, P.C.

Ferguson Family Trusts

Ronald H. Galowich

Stanley F. Goldfein

Preston Goodrich

The Jack Webster Grigsby Foundation

Wilma P. Hawk

Majorie and William Hill

Selwyn and Marjorie Jacobs

Eleanor N. Jordan

Colleen Joyce

Dr. and Mrs. Francis l. Kittredge

Barbara Kyse

The Light of Day Foundation, Inc.

Mark D. Litt

Dr. Nan and Doug Little

Arnold and Pamela Loeb

Lovinger Family Foundation

Dr. Jack and Lenore Lowenthal

Lower Shore Parkinson's Support Group

Burton Mallory

Ellen H. Manian

Andrew Menard

MetLife Alico

Joseph W. Metz

Marion Minton

Andrea Moletteri

Sunil Nayar

Robert Northington

Dorothy S. Oda

Rick Oddo

John and Marnie Olson

Michael Opalak

Peaceful Meadows FarmsIce Cream

Dana C. Puddy

Monica Reed

Stephen Reed

Ezra and Nilofer Reese

Henry Richmond

Steve and Teresa Riffle

Sherie Ritzler

Christopher Rohwetter

St. Jude Medical

Stan M. Sandberg

Arnold and Marie Schwartz Fund

Dr. and Mrs. Thomas Shiftan

Mr. and Mrs. Clyde W.Smith, Jr.

John W. & Laura S. Stewart Foundation

Rebecca C. Swan

Martin Typer

U.M.R. Foundation

Mark Viviano

Nancy C. Wheeler

Dr. Fred and Mary Woodlief

The following individuals, companies, foundations and organizations contributed $500or more to help PDF meet the Irving G. Brilliant $100,000 Research Challenge and/or

the Light of Day Foundation $100,000 Challenge in fiscal years 2012 and 2013.

Irving G. Brilliant $100,000 Research Challenge and Light of Day Foundation $100,000 Challenge Supporters

Margaret Posthumus

Ruth Ann Potts

John Pougiales

Arjun Prabhu

Jeffrey and Sarah Pribyl

Mr. and Mrs. Michael Price

Warner Price

Dr. Serge Przedborski

Dana C. Puddy

Bhaskar Pulikal

Roland Quade

Laurence and Marjorie Quaife

Winifred Quinn Dejesus

Ashley Quinn

Judith Rader

W. Matt and Amelia Ralls

John Raphael

Joshua Raskin

Tim Rath

Leonard and Ruth Rau

Mary Rauhe

Edwin and Nancy Redkey

Michael and Kristin Reed

Jonathan Reeves

Allan Reine

Kurt Reinsberg

Ralph and Barbara Reis

Samuel Rensin

Llewelyn and Billie Rentel

Ian Spencer Rice

Harold and Jane Richard

Paul and Takako Richards

Alan and April Richstein

April Rickey

Mr. and Mrs. Michael A. Riddick

Steve and Teresa Riffle

Sandra L. Rigopoulos

William F. Ringier

Frank and Nora Joan Ritchey

Sherie Ritzler

Lawrence and Carol Rizzolo

Mr. and Mrs. Jeffrey D. Roberts

Matthew Roberts

Thomas and Brenda Roberts

Eric Robertson

Sally Robinson

Robert Southern and Karin Rodgers

Clint Rogers

Michael Romano

Robert and Heddie Romanoff

The Romero Family

Gregory and Barbara Romero

Robert Roriston and Sarah Bird

Mr. and Mrs. Jonathan Rosen

Mark Rosen

Charles Rosenbaum

Jean Rosenberg

Mr. and Mrs. Edward Rosenblum

Martin and Carol Rosenblum

Melvin S. Rosenthal

Roxanne Rosoman

Dr. Stephen Ross

Dr. Harley and Sara Rotbart

Mr. and Mrs. Steven Rourke

Robert Rouse

Dr. and Mrs. Lewis P. Rowland

Lewis and Gail Rubin

Milton and Adele Rubinfeld

Antonio Ruiz

Frank Rumuro

Danny and Melesia Rutland

Jamie Saccardo

Mr. and Mrs. Albert Safer

Jane Safer

Olga Salazar

Saul M. Salka

Leslie Samuels

Stan Sanberg and Stacey Mayesh

David Sands

Hellyn L. Sarek and Barbara Davis

Lawton Sargent and Audrey Meyer Sargent

Scott Sassa

Anand and Padma Savur

Elizabeth Scanlon

Donald Schaefer

Mr. and Mrs. Robert A. Schaefer, Jr.

Matthew and Frances Schaeffer

Gregg Schenker

Michael and Melissa Schilling

Joseph and Bonnie Schinagle

Susan Schindler

Steven Schirripa

Dr. Gregory and Patricia Schlegel

Dr. Herbert Schlesinger

Sanford Schlesinger and Lianne Lazetera

Bob Schmitz

Mr. and Mrs. Scott Schneider

Mr. and Mrs. Thomas Schneider

Jay and Suzette Schochet

Dr. Thomas and Jean Schreiber

Michael and Janice Shrimmer

Shelley and Blair Schrum

David M. Schuld

Brian and Kathy Schultz

Howard and Phyllis Schwartz

Marie D. Schwartz

Individuals

23 | Our Donors

PDF Champion Anna Rinaldo and friends at the 2013 Vintage Tea Party Event

Gregory and Barbara Romero at the 2012 Celebrate Spring

Our Donors

Martin Schwartz

Max and Nancy Schwartz

Frederick and Ruth Schwarzmann

Rosanna Scotto

Julie Seibert

Edmund and Dorothy Seyfried

Leslie Shapiro

Ronald and Evelyn Shapiro

Missy Egbert Sheehan and William B. Sheehan

Mr. and Mrs. Sidney J. Sheinberg

Diane Shenberger

John Sheridan

Jack and Paula Sherman

Dr. and Mrs. Thomas Shiftan

Ellen Shiro

Mr. and Mrs. Edward L. Shugrue III

Ann Shult

Rose L. Shure

David and Carol Sidman

Allen and Claudine Siegel

Dr. Sandra and Arthur Siler

Fred Silton

Drs. Paul and Terri Silverman

Mr. and Mrs. Mark K. Silverstein

Stephen Simko

David and Joy Simon

J. Robert and Linda Sims

Richard and Marcia Sinclair

Nicholas Singer

Phillip S. Sirianni, Jr.

Samuel J. Sirota

Benjamin Slate

Jerome and Susan Slate

Andrew Slepoy

Dr. Bernard and Sheila Small

Annalise Smith

Clyde and Bonnie Smith

Courtney Smith

Ethel and Leonard Smith

James Smith

Kathryn H. Smith

Leon and Elaine Smith

Steven and Georgiann Smith

Wade Smith

Albert and Martha Sneed

Mr. and Mrs. Marcellus Snow

B. Robert and Mary A. Snyder

Glenn Snyder

Mr. and Mrs. Paul W. Snyder, Jr.

Perry and Elaine Snyderman

Kenneth and Joanne Sold

Amy Sole

Phyllis Sonnega

Douglas and Ann Spaniol

Sue Sperger

David Stagg

Mr. and Mrs. Doug Standley

Mr. and Mrs. Steven Starker

Kenneth and Alice Starr

Athena Starry

Dr. Philip and Bonnie Stein

Stephen and Gail Steining

Scott Steinman

Gail Stelter

Douglas and Lisa Stern

Jonathan and Sydney Stern

Sandra and Evan Stern

John Stewart

Todd Stewart

Mr. and Mrs. Abbott Stillman

Rev. F. Barry and Colette Stipp

Keith Stoltz

Scott Strickland

Richard Strobel

Christianna L. Strohbeck and Dr. Ramaswamy Murari

Sharon Sturges

Fred Sullivan

Dr. and Mrs. Ira Sutton

Dr. Lois Sutton

Mr. Thomas Sutton and Dr. Marilyn Sutton

Rebecca C. Swan

Daniel Swanson

Edward and Nancy Sweeney

Edward Swenson

Diane Swonk

William and Christine Syers

Douglas and Hope Syverson

James and Mary Talmage

Carol and Melvin Taub

Mary Elizabeth Taylor

Nathan and May Teitelman


If you have made estate plans which include PDF or wish to establish a charitable gift annuity which provides you with income for life, please contact PDF at (800) 457-6676.

James Parkinson Legacy Society

Gertrude S. Bell

Roger M. Bowman

Ann Cavalli

Aila G. Dawe

Jean Dewdney

Guy Estes

Elizabeth A. Geiser

Matilda Goodman

Annette Korn

Viola B. Marshall

Lisa Painter

Edith Perman-Allen

Marie D. Schwartz

Stephanie and Bernard Schwartz

Mr. and Mrs. Robert W. Smith

Charles L. Thomas

Lucy Venable

M. R. Weingardt

James B. Wittrock

We thank the following members of the James Parkinson Legacy Society who have included PDF in their estate plans or who

have established a charitablegift annuity with us.

Rocky and Cynthia Terrel

Jeff and Rachel Theilacker

Josh and Ellen Thomas

Ann Thompson

Rae Ann Thompson

U.T. and Judy Thompson

David and Mary Tidwell

Melvin and Charlotte Timm

Mr. and Mrs. David Timony

John and Patricia Toebe

Maureen Tokar

Mr. and Mrs. David Tolli

Robert and Phyllis Topchik

Mark Topp

Alison Torres

Mr. and Mrs. Dennis Trifletti

Martin and Margaret Tuchman

Darla Turlington

Elliot and Johanna Utrecht

Louis Vaccaro III

Mr. and Mrs. Alexander Valvezan

Mr. and Mrs. Peter Van Nice

Gregory and Lucienne Van Schaack

Craig Varrelman

Yvonne Vasicek

Marshall Vass

Lloyd Vaughan

Richard N. Vaughan

Judith Velho Baker

Darla Jean Verdin

Dorothy Vetrano

Andrew McLaughlin and Anna Vietor

Edward M. Vietor

Catherine Villeminot

Mary Violette

Joseph and Patricia Vitelli

Paul Volcker

Matthew and Sonja Vorwald

Jules and Florine Wachter

Richard and Cheryl Wade

John Wadsworth

Doris C. Wages

Mr. and Mrs. Alan S. Waldenberg

Philip Walker

Michael and Gail Walsh

Audrey Warfield

Sandi Wasch

Toshi Watanabe

Elsa Watson

Ralph and Jennifer Watts

Larry and Anne Wayne

Brad Weddle

James M. Weichert

Mr. George Weiksner

Susan G. Weil

Jeffery L. Weiner

Jon and Jill Weiner

Andrew Weinrich

Albert Weinstein

Mr. and Mrs. Bernard W. Weiser

Dr. James Weiss

Marvin Weitz

Don and Evelyn Wells

Diane Wetterlin

Madelin Wexler

Bruce and Pamela Wexler

Nancy Wheeler

Robert and Jennifer Wheelock

William White

Robert and Shirley Whiteford

Mary Wiebke

Sara Wilford

John Wilkins

Kenneth and Kimberly Williams

Wendy Williams

John and Karen Winkel

Dorothy Winkey

Nicole Winslow

Rich Winter

Ray Wirta

Charles and Meryl Witmer

Joel Wojnilower

Bill Wolf and Meredith Bluhm-Wolf

Adam and Kim Wolfberg

Ann Wolfe

Philip Wolfe

Eve Wolff

Dr. Fred and Mary Woodlief

Dave and Alice Wopat

Gregg Wysocki

Beverly Yoder

Kathy York

Lt. Cmdr. Cassin Young

Jeanne Young

Pat Younts

James D. Zankel

Michael and Rose Zaretsky

Judy Zendell

Louis G. Zimmerman

Cynthia Zirinsky

Donald and Lynn Zucker

Susan Zwick

Mr. and Ms. Jeff Zygler

Individuals

25 | Our Donors

PDF Champion Brian DeFord and family at the 2012 Death Valley Hike-A-Thon Event

Kyle Blackmon (left) and Evan and Sandra Stern at the 2012 Bal du Printemps

Our Donors

Estate Gifts Trust GiftsEthel S. Allen

Julius Alpert

Hilda M. Anderson

Stanley August

Carmen Becker

Jack M. Berghuis

Margery B. Brodsky

Gloria Broward

Margery D. Bruno

Dawn C. Bulle

Martha Carle

J. Stuart Cassilly

Lois A. Chazen

Alvin Colt

Carol Crimi

J. B. Daiches

Helen Dalenberg

Catherine T. Davitt

Nelson C. Doland, Jr.

Lillian Dursht

Jane C. Fink

Earline Foiles

Dinah Friedman

Charles B. Green

Sylvia B. Greenberg

Theodore R. Grimes

Howard M. Halpern

Beatrice S. Harrison

Frederick G. Heimberger

Nurine Hoke

Bernice H. Jacobsen

Ruby Jefferson

Lars and Lena Johansson

Bonnie Kaltenborn

Natalie B. King

Dolly Koler

George Kozam

Mary Lee

Leila S. Lenagh

Irene M. Matto

Appolonia Mayer

Paul Edwin Melcher

Lena Meyers

Velma R. Nagel

Doris Helen Plopper

Frances K. Porter

Raymond Radish

John J. Robinson

Angela M. Salatti

Adele Selldorff

Rochelle G. Semel

Albina D. Silveri

Naomi L. Smith

Carol A. Spengler

Invin L. Steinbach

John H. Winans

James B. Wozniak

The Balz Trust

Arlene M. Bevilacqua RevocableTrust

Adele Blank Charitable Lead Trust

Dorothy M. Booth Charitable Trust

BettyLou Burton Trust

Ruth D'Atri Trust

Rita Muriel Dougherty Trust

Trust of Edith Eisler

Lida Ferguson Testamentary Trust

Gladys Field Charitable Lead Annuity Trust

Mildred Goldstein Trust

Annette Goodrich Revocable Trust

Hudson Charitable Trust

Gladys T. Hyman Trust

Charles Irwin Trust

Rose A. Kalns Trust

Mary M. Kneibler Living Trust

Trust of Virginia Ladensohn

Hortley G. Leblang Charitable Trust

Leprince Grantors Trust

Toni Lieberman Family Charitable Trust

Margaret D. Lienemann Charitable Trust

Trust of Quirino Lomini

Marjorie Maiden Trust

Gordon McLean Trust

Richard P. Rost Trust

Esther Ruddick Trust

Lester W. Stevenson, Jr. Trust

Bernice M. Stiers Trust

Thomas F. Tipi Revocable Living Trust

Dorothy G. Verhoff Trust

Harold W. Verhoff Trust

Audrey F. Wee Revocable Trust

The William White Revocable Trust

Esther Wright Trust

Edward Wsolak Trust


Bob Benjamin (second from left) and Light of Day Foun-dation Board Members at the 2013 Bal du Printemps

John and Margo Catsimatidis and Rosanna Scotto at the 2012 Bal du Printemps

27 | Our Donors

We thank our PDF Champions whose efforts from July 1, 2011 to June 30, 2013 helped us fund promising research and also raised awareness in communities around the US.

Max AdelmanTaking the Plunge Against Parkinson's

Stephanie Adler

Carolyn Anderson

Kathleen Andruschat

Pamela Aultman

Alethea BancaleNiagara Falls International Marathon 2011

Diane BanksSycamore Hills Golf Fundraiser

David BlomquistCanoeing for Parkinson's

Laura BlumZumba-thon for PD

Roger BongaRoger's Run Across Michigan to Fight Parkinson's

Natasha BrownIn Honor of Dani Rotholz

Tomee BrownIn Honor of Mike Puzzi

David and Audra Byer

Don CaruanaIn Memory of Donna Caruana

Stacey CatapanoBrooklyn Makeup Studio Grand Opening and Fund-raiser to Benefit Parkinson's

Gary and Beth Ann ChardGary's 60th Birthday Party

Elizabeth ClapsMarine Corps Marathon 2012

Deirdre M. CruzPennies for Parkinson's

David DavisRide for Parkinson's

Jason DavisBill Lowery Memorial Fund

Brian DeFordDeFord Mountain Hike,Death Valley Hike-a-Thon

Maria L. De Leon, M.D.Third Annual Parkinson’s Disease Foundation Fundraiser

Cindy DeLuz

Deana DeModenaIn Honor of Grazia Guarino

Jeana DeNardoNike Women's Marathon

Kate DeWitteSenior Project on Parkinson's

Herbert Dolaway

Theresa Donahoe

David J. Eger, Ph.D.Music for Parkinson's Research, 2011 & 2012;Manhattan Comes to Mamaroneck

Emily Alice JewelryJewelry Sale for Parkinson’s

John V. FaggioneLady Warriors vs. Lady Raiders Softball Game

Sam Falk

Jeni Forshier-JenkinsShuffle 'n' Shake Parkinson's Awareness Celebration 2012;Cookie Bake Sale 2013

Sarah K. FreePotholders for Parkinson's

Caley Frunzi

Ashley GarrettRock 'n' Roll San Diego Marathon

Antoinette and Ken GeraciIn Memory of Maria Paratore

Renee Gillpatrick

Linda Giorgilli Rice

Joseph and Mary Golemme

John Gollisz

Alexandria Gorski

Jessie GunterMarine Corps Marathon 2012

Hillary HackettSenior Project, Barry's Fight for Parkinson's

Eleanor HaganBody in Balance First Annual Move to Cure Parkinson's

Noah HartsockCones for Parkinson's

Linda Heise

Blair Hoffman

Michael HornungSplash for a Cause

Raymond HullKingswood Golf Tournament for Parkinson's

Integrated Care Communities, Inc.Walk-a-Thon and BBQ

Rachel H. IsenbergMt. Kilimanjaro Climb 2011;Pittsburgh to Philly Bike 2012;Mt. Whitney Climb for Parkinson's 2013

Randi S. Jacobs

Becky JarnaginIn Honor of Mom

Jesus, John, Scott & MichaelPoker for Jesus

Heidi JohnsonPars Fore Parkinson’s Golf Tournament

Elizabeth Keshish

June KeszegIn Honor of Tommy McEaddy

James KnowlesNew York City Marathon

Tammy KozumplikCut-a-Thon for Parkinson’s

Ivory Latta1st Annual Ivory Latta Celebrities for Parkinson's Bowling Tournament

Cody LedsworthKayak for Parkinson's

Adrienne LeeIn Memory of Fae Hong Lee

Kevin LewisBass Fishing PD Tournament of Champions

Melanie LewisNational Technical Honor Society Beckfield Tri-County Campus 5k Race for Parkinson's

Rachel V. LoeserBat Mitzvah

The Meadows of Glen Ellyn

PDF Champion Jessie Gunter at the 2012 Marine Corps Marathon

Our Donors


Lisa MicarelliIn Memory of Frank Micarelli

Parkinson's Support Group of the Mid-Hudson ValleyMid-Hudson Valley Walk Over the Hudson 2012 and 2013

Thomas Milana

Margaux MinutoloKarma for a Cure

Blake MorganBlake Morgan Concert

John MorrisBicycle from Montauk Point to Niagara Falls

Jennifer NeatherySt. Jude Country Music Marathon 2011;Nashville Marathon 2012

Maria Nelson

Thomas NguyenNorfeldt Elementary School

Thomas Palizzi

Jon Paparsenos

Marina ParrishIn Honor of Papaw Clyde Hardin

Jim PattersonPints for Parkinsons

Rita PetersOklahoma City Marathon 2012

Kimberly PhillippePancakes for Parkinson's

Natalie PiccinWedding Donations for Parkinson's

Pillinger Miller Tarallo, LLP

Debra PinonIn Honor of Gloria Ruth DiOrio

Tanya PuckettAlbany, Georgia Marathon 2012

Alexander Ranieri and Kristin MazzoneLong Island Half Marathon

Joe Rich

Molly K. RiddickPancakes for Parkinson's

Teresa RiffleCircleville, OH Walk for a Cure 2012

Roy RodenPD Challenge Ride Across America

Michael RoushParkinson's Walk for a Cure/In Memory of Lloyd Roush

Frank Rumoro1st Annual "Stepping Out" Fundraising Walk

Hailey and Taylor SalhaLemonade Sale

Wendy A. SchreiberIn Memory of Fern Hoover

S. Jane SchrickMarine Corps Marathon 2012

Carol S. Schulte

Peggy SensabaughJosh Faircloth Memorial 5k Run

Michael Showstead70th Birthday Party

Scott Shtofman

Angela Sipes

Annalise SmithBig Sur International Marathon

Megan SmithQuidditch for Parkinson's

Linda SpenceErnie's Favorites

Sports Physical Therapy of New York

St. Luke’s Center for Neuroscience Movement Disorder CenterPolka for Parkinson’s

Patricia S. Stearns

AJ Stelacio

Rob Stevenson

Mel StewartThe Cape Epic Mountain Bike Race

Pamela StromStand up to Parkinson’s

Tracy Stuckey

Danielle SuraceVincent Fillingeri Memorial

Carol Tahsuda

Cynthia TaylorIn Memory of George Higgins

Tekk FusionGolf for Parkinson's

Bryce Van Dusen

Doris VasquezIn Honor of Segundo Vazquez

Sierra VerdinPasta for Parkinson's

Jacob Wagner

Waldwick High SchoolGlobal Empathy Project by Students

Ellen WarrenHelping Hand Cuffs

Alicia Wasson

Matt WelchWhidbey Island Marathon

Evelyn P. WellsHands for Heroes

Brittany West

Gillian WoodsSecond Annual Stepping Up the Pace 5k;Third Annual Stepping Up the Pace 5k

Sean WrightMarine Corps Marathon 2012;Marine Corps Marathon 10k 2013

Yacso - Meyer

Eric Young5-Mile Swim for Parkinson's

ZogSportsZogSports — Play for a Cause

Zwick Pro Am 2011 & 2012

PDF Champions Ambassador Ivory Latta and her father, Charles Latta

A&M Label

Abbott Laboratories

Academy 4 Lil' Angels, LLC

Adams and Maland Fund

ADM Information Services

Agarwal Family Foundation

Kenneth Aidekman Family Foundation

The George and Jodie Allen Charitable Fund

Allen-Toebe Foundation

Alliance Bernstein

Allstate Giving Campaign

The Allyn Foundation

Altronix

America's Charities

American Physical Therapy Association

American Society of Appraisers

AMG Charitable Gift Foundation

Amicus Therapeutics

Antz Foundation

Archer & Greiner, P.C.

The Arena Energy Foundation

AT&T United Way

The Atmos Foundation

Avenue Capital Management

BAE Systems Employee Community Fund, Inc.

BAE Systems

The Bane Foundation

Mitchell and Roslyn Barash Foundation

Barish Family Foundation

Bart & Associates, Inc.

Alvin H. Baum Family Fund

Robert and Lois Baylis Charitable Gift Fund

Beck & Masten Buick-GMC, Inc.

Patricia and Gardner Bemis Fund

The Bendheim Foundation

Berdon, LLP

The Berner Charitable and Scholarship Foundation

Berwind Corporation

Biotechnology Industry Organization

Bisgeier Family Foundation

BlackRock Kelso Capital

The David H. and Mary B. Blair Charitable Fund

Blaskopf Family Fund

Blue Cross Blue Shield of Kansas City

Bonner Family Private Foundation

Booz | Allen | Hamilton

Arnold Bortman Family Foundation

Boucher Charitable Foundation

The John and Patty Brissenden Fund

Brooklyn Mechanical Corporation

Brown Charitable Foundation

BTIG, LLC

Bucy Family Fund

Burson-Marsteller

The Calder-Belsley Family Foundation

California Community Foundation

Canata Family Foundation

CANTEX, Inc.

Cantor Fitzgerald Securities

The Carefree Foundation

Castle Harlan, Inc.

Cemex Materials, LLC

Center United Methodist Church

Central Texas Ob/Gyn Associates

Linda and Bernard Chalfin Charitable Fund

Terry Cheng Gift Fund

Chernega Family Fund

The Cimino Group, Inc.

Citizens Bank

Clarus Therapeutics

Clayton Family Charitable Gift Fund

Louis and Virginia Clemente Foundation

Cochran Family Foundation

Scott M. Cohen Memorial Foundation

The Betsy and Alan Cohn Foundation

Cole Family Fund

Cole-Crone Family Foundation

Simon and Eve Colin Foundation

Colliers Bennett & Kahnweiler, Inc.

Colligas Family Markets, LP

The Colomby Group

The Color Fund

Columbia University Neurological Institue

The Community Foundation of Western North Carolina

Community Health Charities of Alabama

Community Health Charities of Arizona

Community Health Charities of California

Community Health Charities of Colorado

Community Health Charities of Florida

Community Health Charities of Georgia

Community Health Charities of Illinois

Community Health Charities of Louisiana and Mississippi

Community Health Charities of Michigan

Community Health Charities of Minnesota

Community Health Charities of New England

Community Health Charities of New Mexico

Community Health Charities of New Jersey

Community Health Charities of New York

Community Health Charities of Oklahoma

Community Health Charities of South Carolina

Community Health Charities of Texas

Community Health Charities of Virginia

Community Health Charities of Washington & Idaho

Consumer Cellular

Consumer Electronics Association

Cox Communications

CSX Corporation

Cumberland Community Foundation

Edna Williams Curl and Myron R. Curl Endowment for Parkinson's

Cushman & Wakefield

Cuzson Associates, LLC

The Dana Foundation

Danem Foundation

The Darrow Company, Inc.

Deloitte & Touche

Diamantine Family Foundation

Foundations/Corporations/Organizations

29 | Our Donors

PDF Champions Port Jervis Softball Team at the 2013 Lady Warriors vs. Lady Raiders Softball Game

Our Donors

The Dinan Family Foundation

Direct Marketing Solutions

Barbara and Michael Ditzian Charitable Fund

Eamonn and Kathleen Dolan Charitable Fund

Don Ayres Honda

The Dopkin-Singer-Dannenberg Foundation

Anne and Gerald Down Charitable Fund

Dreiseszun Family Foundation

Drug Information Association

DuBose Family Foundation

Eagel Sports Promotions, Inc.

Early, Lucarelli, Sweeney & Strauss

Easter Foundation

The Echlin Foundation

El Paso Corporation

Eli Lilly and Company Foundation

Elias Charitable Foundation

Elma Eagle Riders

Emily Alice Jewellery

Empire Blue Cross Blue Shield

Encana Oil & Gas (USA), Inc.

EP Energy

Epic Systems Corporation

Ernst Foundation

Essex Plaza Management Associates

Evergreen Management

ExxonMobil Foundation

Fairchild Martindale Foundation

Farrell Fritz, P.C.

Arthur and Eve Fastenberg Philanthropic Fund

First Baptist Church of Ellenwood

First Fruit Charity Trust Fund

FirstGiving

The Floors For Cures Foundation

Forest Family Foundation

Fr. Maurice J. Wolfe Council, Knights of Columbus

The Connie Frank Foundation

Frankfurt Kurnit Klein & Selz, P.C.

Daniel and Harriett Freed Foundation

The Freidman Family Fund

The Fremont Foundation

Friedman, LLP

The Gabel Foundation

Gabelli & Company, Inc.

Gallagher-Kaiser Corporation

The Cynthia F. and John F. Gallagher, III Charitable Fund

The Gambrell Family Foundation

Gap, Inc.

GE Foundation

Gemtron Corporation

General Electric Company

The Gerald and Deanne Gitner Charitable Fund

Give with Liberty

Ruth and Jack Glantz Family Foundation

GlaxoSmithKline Foundation

Glickenhaus Foundation

The GMK Family Fund

Ron and Judy Gold Family Fund

Joseph H. Goldberg Family Foundation

Edward and Marjorie GoldbergerFoundation

The Sarah and James Goldman Charitable Fund

Sol Goldman Charitable Trust

Goldman Sonnenfeldt Foundation

Jerome and Molly Goldstein Philanthropic Fund

Google

Gorlitz Foundation, LTD

Gottwald Foundation

Grand Council Cryptic Masons

Grand Lodge Benevolent, Patriotic Order of Does

Eugene and Emily Grant Foundation

Greco Traficante Schulz & Brick

Alan C. Greenberg Philanthropic Fund

Greenberger Family Fund

The Jack Webster Grigsby Foundation

Gristedes

Gulf Parkinson's Source

Gutterman Foundation

The Gwendolyn Halsey-Albertson Foundation

Hang It Up Corporation

Harrah's North Kansas City, LLC

Harriet Ford Dickenson Foundation

George W. Harris Foundation

The Harte Auto Group

Hawaii Permanente Medical Group, Inc.

Leona M. and Harry B. Helmsley Foundation

Helping Hand Foundation

The Heming Foundation

Herndon Foundation

HighVista Strategies, LLC

Philip M. Hogan Family Fund

Margot and Stephen Holland Charitable Fund

Homestead Foundation

The Huggins Family Charitable Foundation

Sheila and Milton Hyman Foundation

Inserra Supermarkets, Inc.

IPACT, Inc.

Isermann Family Foundation

Jaclyn, Inc.

The Anna and Alexander Jacobs Charitable Fund

Alan L. and Barbara S. Jacobs Philanthropic Fund

Jacoby Family Fund

J&K Ingredients, Inc.

Jerome Haims Realty, Inc.

Jewish Community Endowment Fund

JMC Search, LLC

Johnson & Johnson Family of Companies

Thad and Suzanne Johnson Charitable Fund

Mary F. Johnson Fund

The Jordan Family Foundation

Dr. Rudolph and Mildred Joseph Foundation

Joseph Rosen Foundation

JP Maguire Associates

Just Give

The Kandell Fund

Jerome A. Kaplan and Deena L. Kaplan Family Foundation

The Marcia and Ned Kaplin Foundation

Robert and Florence Kaufman Foundation


Missy Egbert Sheehan and G. Pennington Egbert IIIwith their mother, Mrs. George P. Egbert, Jr.

(center) at the 2012 Celebrate Spring

Henry and Elaine Kaufman Foundation

Kelly Family Foundation

Kelly Refrigeration & Freezer, Inc.

Kesselhaut Family Foundation

Kidderbrook Foundation

The Richard E. and Marianne B. Kipper Foundation

Sam W. Klein Charitable Foundation

Worth Knight and Kimberly Knight Charitable Fund

Kohl's

The Kortschak Family Foundation

The Kosher Nosh

KTR Capital Partners, LP

Howard and Gail Kunreuther Charitable Fund

Seryl and Charles Kushner Family Foundation

Law Office of Howard F. Angione

Lawrence Livermore National Laboratory

Leesfield Family Foundation

Legatus Foundation

The Eileen and Peter Lehrer Family Foundation

Lettuce Entertain You

The Ilan M. and Barbara G. Levi Fund

Lewis, Rice & Fingersh, L.C.

Anita and Stanley Liebowitz Fund

William and Nancy Lifland Fund

Light of Day Foundation

Linhart Family Philanthropic Fund

Linsone, Inc.

The Lisette Model Foundation

Litterman Family Foundation

The Little Family Fund

Loeb & Loeb, LLP

Jane P. Long Fund of NY Community Trust

Loureiro Engineering Associates, Inc.

Lovinger Family Foundation

Lower Shore Parkinson's Support Group

M&A Rubinfeld Family Fund

MAERSK, Inc.

The Mahoney Donor Fund

The Jamie and Paige Malone Foundation

Mana Products, Inc.

Management Planning, Inc.

Mar-Ber Development Corporation

Massimo Zanetti Beverage USA, Inc.

The Noreene Storrie and Wesley G. McCain Family Fund

John L. and Helen B. McGrath Fund

The McGraw-Hill Companies

McIrvin Brothers, Inc.

McKesson Foundation

Medtronic, Inc.

The Elena Melius Foundation

Merck Partnership For Giving

Microsoft Giving Campaign

Midstate Radiology Associates, LLC

The Millison Foundation

Mirken Foundation

Howard and Virginia Morgan Fund

Morton Capital Management

Nanell Foundation

National Notary Foundation

NCREIF

The Netter Foundation

Network Consulting, Inc.

New Dramatists

New York Life Insurance Company

New York Yankees Foundation

Newport News Ship Building

Robert and Kate Niehaus Foundation

Sally Nightingale Charitable Fund

Northern Trust Company

Northrop Grumman Corporation

Northwoods League Foundation

NYC Human Resources Administration

Thomas P. and Patricia A. O'Donnell Foundation

The Calvin and Flavia Oak Foundation

The Oak Hill Charitable Fund

Office Automation System

Ogden Cap Properties, LLC

OH Local

On The Ave

Richard and Harriet Orkand Charitable Fund

P. E. C. United Charities, Inc.

P. M. Lecomte Fund

Regina Pargament Trust Fund

Parkinson's Unity Walk

Hyman and Bessie Passman Family Charitable Foundation

PATCO Construction

Patton Holdings, Inc.

Peaceful Meadows Farms Ice Cream

Pearson Education

Pella Windows and Doors

Amy and Joe Perella Charitable Fund

Pfizer, Inc. - Neuroscience Research Unit

The Phillies

Pillinger Miller Tarallo, LLP

Port Jervis Public Schools

James and Sandra Porter Charitable Fund

The Portmann Family Charitable Fund

Premiere Paddle Surf

The David C. and Jeannie Price Fund

Prince Charitable Trusts

Propeller Club Sport Organization

Prudential Financial

Public Financial Management Group

Puddy Family Fund

PY vs. PD Foundation

Qualcomm

R & R Endowment Fund

R. C. Bigelow, Inc.

Ralph J. Duffie, Inc.

Red Apple Group

Redding Golf Shop

Kristin and Michael Reed Family Foundation

The Donald Reich Family Charitable Fund

The Kurt Reinsberg Philanthropic Fund

Ralph Reis Family Fund

Richard and Gail Ullman Charitable Fund

31 | Our Donors

PDF Champion Jennifer Neathery and husband at the 2013 Ran Grand Canyon Rim to Rim Event

Foundations/Corporations/Organizations

Our Donors

The Richard Foundation

Rios of Mercedes

Toby and Nataly Ritter Family Foundation

Eli and Mae Rosen Foundation

Joseph Rosen Foundation

Rosie's Charitable Fund

The Irene Herbert Ross and Harper Grant Ross Foundation

The Ross-Kolmerten Fund

The Miriam and Samuel Rotrosen Charitable Fund

Royal Neighbors of America

Lawrence Ruben Foundation

The Martha and Max Rubinstein Family Foundation

RZR Realty Management Company, LLC

S & D Contractors, Inc.

S & S Roofing

SAD Foundation

The Safer-Fearer Fund

Edmond J. Safra Foundation

Sanford C. Bernstein & Company, LLC

Sanky Communications, Inc.

Charles and Mildred Schnurmacher Foundation

The Jean and Thomas Schreiber Philanthropic Fund

The Schrum Family Fund of Triangle Community Foundation

Schwab Charitable Fund

Arnold and Marie Schwartz Fund

Phyllis and Howard Schwartz Philanthropic Fund

Scievelbein Family Foundation Trust

Secure Real Estate Management,L.P.

Semmes

The Shafir Family Fund

The Ron Shapiro Charitable Foundation

Shapiro Family Foundation

Shepaug Valley Regional High School

The Shubert Organization, Inc.

Fred Siegel Foundation

Siegel, O'Connor, O'Donnell & Beck, P. C.

The Oscar and Edith Simon Foundation

Singers for Enjoyment

Samuel and Beverly Sirota Family Philanthropic Fund

Skadden, Arps, Slate, Meagher & Flom, LLP

The Herbert and Arline Slepoy Charitable Fund

Smith Barney (Citi) Global Impact Funding Trust, Inc.

The Lee and Perry Smith Fund

Smith Haven Ministries, Inc.

The Solomon Organization

Southwest Contractors

SPA Products Import & Distribution Co., LLC

The Spurlino Foundation

St. Irene's Philoptochos Society

St. Luke’s University Hospital and Health Network

Fred and Mary Stahmann Family Fund of the SFACF

Frank and Domna Stanton Foundation

James and Janice Stanton Foundation

The Starr Foundation

Starrett City, Inc.

The Dorothy Strelsin Foundation

Sullivan Solar Power

Suplove, Inc.

The Sutton Family Charitable Fund

SVM Foundation

Syde Hurdus Foundation

Alexandra and Martin Symonds Foundation

Henry and Marilyn Taub Foundation

Judy and Warren Tenney Foundation

The David Tepper Charitable Foundation

Teva Neuroscience, Inc.

Theresa Fatato Foundation

Ellen and Josh Thomas Fund

Thomas Neal Foundation

Three Swallows Foundation

Timber Creek Capital Management, LLC

TJM Investments, LLC

TLR Fund

The Trukenbrod Family Foundation

The Tuchman Foundation

Turnaround Management Association

Tyco Electronics

U.M.R. Foundation

UCB, Inc.

UHY Advisors NY, Inc.

United Refining Company

United Technologies

United Way of Central Indiana

United Way of Rhode Island

United Way Of The Greater Lehigh Valley

United Way

The V & L Marx Foundation

The Van Nice Foundation

Vanguard Charitable Endowment Program

The Vermont Community Foundation

Veson Nautical Corporation

Victory Park Securities

Visa Givingstation

Visiting Nurse Service of New York

The Walt Disney Company Foundation

The Wasily Family Foundation

Waste Management South Atlantic Area

Wechsler Foundation

J. Weinstein Foundation

Wellpoint Associate Giving Campaign

Wells Fargo Bank, N.A.

Wells Fargo Community Support Campaign

West Fuels, Inc.

WESTAT

The Kirk and Elizabeth Wheeler Fund

The Windbrook Fund

Yorkshire Food Sales Corporation

Peggy and Adam Young Charitable Foundation

Ziff Brothers Investments, LLC

Mary and George Herbert Zimmerman Foundation

Zoe's Best Friend, Inc.


PDF Champion Stacey Catapano at the 2012 Brooklyn Make Up Studio Event

33 | Our Researchers

In 2012 and 2013, PDF awarded almost $10 million for Parkin-son’s research. These 80 awards were chosen by members of our Sci-entific Advisory Board, joined by PDF Research Advocates. We thank thefollowing grant recipients for their commitment to improving the lives andfutures of people touched by Parkinson’s.

Research Centers | $5.34 Million

Allow talented scientists the flexibility and long-term support to collaborate on basic, translational andclinical research.

Columbia University Medical CenterUn Jung Kang, M.D., Principal Investigator�

Roy N. Alcalay, M.D., M.Sc.�Robert E. Burke, M.D.Lorraine N. Clark, Ph.D.�Stanley Fahn, M.D.Blair Ford, M.D.Jill S. Goldman, M.S., M.Phil.

Lloyd A. Greene, Ph.D.�Paul E. Greene, M.D.�Sheng-Han Kuo, M.D., Ph.D.Elan D. Louis, M.D., M.Sc.�Karen Marder, M.D., M.P.H.Pietro Mazzoni, M.D., Ph.D.Eugene Mosharov, Ph.D.�Serge Przedborski, M.D., Ph.D.

�Seth L. Pullman, M.D., F.R.C.P.C. �Yaakov Stern, Ph.D.David Sulzer, Ph.D.Jean Paul G. Vonsattel, M.D.Cheryl H. Waters, M.D., F.R.C.P.C.�Ai Yamamoto, Ph.D.

International Research Grants | $1.48 Million

Promote innovative research projects that have high potential to significantly advance the knowledge of Parkinson’s.

Epigenetic Dysregulation in Lev-odopa-Induced Dyskinesia�David Anderson, Ph.D., and JaySchneider, Ph.D., Thomas JeffersonUniversity

Stability of Tetrameric Alpha-synucleinas a Biomarker in Parkinson’s Disease* Tim Bartels, M.Sc., Ph.D., and DennisJ. Selkoe, M.D., Harvard MedicalSchool and Brigham and Women’sHospital

Evaluating the Role of MitochondrialDynamics in Parkinson's Disease in anin Vivo Vertebrate Model: Real-TimeLive Imaging of Mitochondrial Dy-namics in Dopamine Neurons inWhole Zebrafish*Sarah B. Berman, Ph.D., M.D., andEdward Burton M.D., D.Phil., F.R.C.P.,University of Pittsburgh

Rush University Medical CenterChristopher G. Goetz, M.D., Principal Investigator�

Brandon R. Barton, M.D., M.S.�Bryan A. Bernard, Ph.D.�Cynthia L. Comella, M.D.�Jennifer G. Goldman, M.D., M.S.�Deborah A. Hall, M.D., Ph.D.

Katie Kompoliti, M.D.Jeffrey H. Kordower, Ph.D.�Leo Verhagen-Metman, M.D., Ph.D.T. Celeste Napier, Ph.D.�Kalipada Pahan, Ph.D.Kathleen M. Shannon, M.D.�Glenn T. Stebbins, Ph.D.

Weill Cornell Medical CenterM. Flint Beal, M.D., Co-Principal Investigator

Claire Henchcliffe, M.D.,�D.Phil., Co-Principal Investigator

Chaorui Huang M.D., Ph.D.�Alexander Shtilbans, M.D., Ph.D.

*Denotes second year of funding

Our Researchers


Impact of Low- and High-Frequency Electrical Stimulationon the Inputs, Integrative Properties and Output of the Subthalamic Nucleus*�Mark D. Bevan, Ph.D., Northwestern University

Elucidation of the Role of Cholinergic Interneurons inLevo-dopa-Induced Dyskinesias�Tomas Björklund, Ph.D., Lund University, Sweden

Dissecting the Different Properties of Human Alphasynu-clein Between Dopamine and Non-Dopamine Neuronsin Vivo* �Linan Chen, M.D., Ph.D., and Xiaoxi Zhuang, Ph.D., Uni-versity of Chicago

Cellular Mechanisms of Semaphorin 3E-Plexin-D1 Signal-ing in Basal Ganglia Circuitry Formation and Neurodegen-erative Diseases*�Chenghua Gu, D.V.M., Ph.D., Harvard Medical School

Identification and Characterization of a Novel Gene forParkinsonism*Paul Lockhart, Ph.D., and Gabrielle Wilson, Ph.D., BruceLefroy Centre, Murdoch Childrens Research Institute,Royal Children's Hospital, Australia

Interaction of LRRK2 and Tau in Mediating Neurodegener-ation in Mouse Models of Parkinson's Disease Darren Moore, Ph.D., Swiss Federal Institute of Technol-ogy in Lausanne (EPFL), Switzerland

Identifying Connectivity Changes with Deep Brain Stimula-tion in Parkinson’s DiseaseMatthias Schröeter, M.D., Ph.D., and Karsten Müller,Ph.D., Max Planck Institute for Human Cognitive andBrain Sciences, Germany

Small Aromatic Molecules as Novel Inhibitors of Alpha-synuclein Aggregation*Daniel Segal, Ph.D., Tel Aviv University, Israel

Imaging Impulsive Control Disorders in Parkinson’s�Antonio Strafella, M.D., Ph.D., Toronto Western Hospital,Canada

Cyclic GMP Signaling and Experimental Parkinsonism*Anthony R. West, Ph.D., and Kuei-Yuan Tseng, M.D.,Ph.D., Rosalind Franklin University

Identification of Genes for Parkinson's in an Isolated GreekCommunity and a Greek Population Cohort*Georgia Xiromerisiou, Ph.D., M.D., University of Thessaly,Greece, and Henry Houlden, M.D., M.R.C.P., Ph.D., Uni-versity College, London, England

Research Fellowship Projects | $380,000Regulation of Alpha-synuclein mRNA Translation inSNCA Expressing Neurons�Ianai Fishbein, Ph.D., Institute for Human Genetics, Uni-versity of California, San Francisco

Optogenetic Characterization of the PallidostriatalSynapse in Parkinsonian Mice�Kelly Glajch, Ph.D., Northwestern University

Characterization of a Novel Component That FunctionsUpstream of PINK1 Linking Mitochondrial Unfolded Pro-tein Stress to Mitophagy�Yi-Fan Lin, Ph.D., Sloan-Kettering Institute

Dopaminergic Neuron Subtype Differences in OXPHOSCapacity and Mitophagy in Response to mtDNA Damage�Alicia Pickrell, Ph.D., Division of Intramural Research,National Institute of Neurological Disorders and Stroke(NINDS)

Role of Parkin in the Clearance of Defective Mitochon-dria with Deleted mtDNA: A New Mouse Model ofParkinson's DiseaseMilena Pinto, Ph.D., University of Miami

Clearing Defective Mitochondria: How is Parkin Re-cruited and Activated?�Evgeny Shlevkov, Ph.D., Children's Hospital Boston

The Role of Parkin in Regulating Mitochondrial Dynamicsand Homeostasis in Cortical and Dopaminergic Neurons*Victor Van Laar, Ph.D., University of Pittsburgh

Locus Coeruleus as a Substrate for Parkinsonian Cogni-tive Inflexibility*�Elena Vazey, Ph.D., Medical University of South Carolina

Fellowship and Career Development Awards | $2.23 Million

Prepare leaders in Parkinson’s research and clinical practice.


Summer Student Fellowship Projects | $105,000LRRK2-dependent Olfactory Deficits in MiceRachel Bailey, mentor Jada Lewis, Ph.D., University ofFlorida

Towards Elucidating the Structural Details of Alpha-synu-clein in Parkinson’s Disease: Development and Applica-tion of Double-Labeled Alpha-synuclein�Solongo Batjargal, mentor E. James Petersson, Ph.D.,University of Pennsylvania

Small Molecule Modulation of the Unfolded Protein Re-sponse as a Novel Therapeutic Avenue in the Treatmentof Parkinson's Disease�Joel Credle, mentor Anita Sidhu, Ph.D., GeorgetownUniversity

Mechanistic Investigation of Alpha-synuclein- MediatedMicroglial Activation in PD�Connor Davenport, mentor Kathleen Maguire-Zeiss,Ph.D., Georgetown University

Effects of Training on Learning and Retention of Tool-Re-lated Skilled Action in Parkinson's DiseaseHolly Fernandes, mentor Norman Park, Ph.D., York Uni-versity, Canada

CD200/CD200R-mediated Neuroinflammation in Parkin-sonism�Collin Flanagan, mentor J. Timothy Greenamyre, M.D.,Ph.D., University of Pittsburgh School of Medicine��

A Novel Evaluation of Daytime Vigilance in Individualswith Parkinson's Disease Using a Virtual Reality StreetCrossing Task�Kristin Ford, mentor Amy Amara, M.D., Ph.D., Univer-sity of Alabama at Birmingham

Comparative Effectiveness Study to Evaluate In-HomeTelemedicine as a Means to Increase Access to Sub-spe-cialty Care for Individuals with Parkinson's Disease�Benjamin George, mentor E. Ray Dorsey, M.D., M.B.A.,Johns Hopkins University��

Investigating the Role of Enzyme-Mediated NeuronalProtection in Parkinson's Disease�William Johnson, mentor Amy Wilson-Delfosse, Ph.D.,Case Western Reserve University

Effect of p11 Inhibition on D1 and D2 Dopamine �Recep-tors ActivityDarya Khazanova, mentor Michael G. Kaplitt, Ph.D.,M.D., Weill Cornell Medical College

Dopamine Receptor Expression and Function in the Ex-ternal Globus PallidusDavid Klein, mentor C. Savio Chan, Ph.D., Northwest-ern University

Evaluation of Splice and C-terminal Truncation Variantsof Alpha-synuclein in Yeast Models�Natalie Kukulka, mentor Shubhik DebBurman, Ph.D.,Lake Forest College

Columbia University Medical CenterDavid Arkadir, M.D., Ph.D.�Christopher W. Hess, M.D.�Meir Kestenbaum, M.D.Ruben Martinez, M.D.�

Daphne Robakis, M.D.David Rydz, M.D. Hiral Shah, M.D.Madeline Sharp, M.D.�

Sirinan Tazen, M.D.�Tuhin Virmani, M.D., Ph.D.Brenton Wright, M.D.

Clinical Training Fellowships | $1.54 million

Rush University Medical Center�Sheila Eichenscer, M.D. Houman Homayoun, M.D.�Gian Dev Pal, M.D.�Padmaja Vittal, M.D.

Fellowship and Career Development Awards (Cont’d.)

Study of the Roles and Mechanisms of PINK1 and Parkinin Mitophagy�Paul Lebot, mentor Serge Przedborski, M.D., Ph.D., Co-lumbia University Medical Center��

The Molecular Interaction of Non-catechol Drugs withDopamine D1 Receptors: Towards Improved Therapy forParkinson’s Disease�Sang Min Lee, mentor Richard Mailman, Ph.D., ThePennsylvania State University College of Medicine��

Effects of Alpha-synuclein Immunotherapy in a MouseModel of Parkinson's Disease�Eric Lin, mentor Virginia M.-Y. Lee, Ph.D., PerelmanSchool of Medicine at the University of Pennsylvania

Using Drosophila to Investigate the Synaptic Effects ofZiram, a Parkinson’s Disease-Linked PesticideCiara Martin, mentor David Krantz, M.D., Ph.D., Univer-sity of California, Los Angeles

Interactions Between Tyrosine Hydroxylase and 14-3-3ProteinEwa Nowara, mentor S. Colette Daubner, Ph.D., Univer-sity of Texas Health Science Center at San Antonio��

Rescue of Tyrosine Hydroxylase by Soluble GFR Alpha-1in 6-OHDA Parkinson’s Model�Catherine Owens, mentor Michael Salvatore, Ph.D.,Louisiana State University Health Sciences CenterShreveport

Mild Cognitive Impairment and Health-Related Qualityof Life in Non-demented Parkinson's Disease Patients�William Reginold, mentor Connie Marras, M.D., Ph.D.,Toronto Western Hospital��

Comparing Diagnostic Criteria of Mild Cognitive Impair-ment over Three Year Follow-up in People with Parkin-son’s Disease without Dementia�William Reginold, mentor Connie Marras, M.D., Ph.D.,Toronto Western Hospital

The Utilization of Mobile Technology for the Optimiza-tion of Deep Brain Stimulation Parameters for the Treat-ment of Postural StabilitySarah Richardson, mentor Jay Alberts, Ph.D., ClevelandClinic

Dissecting the Role of c-Abl in Parkinson's�Andi Shahu, mentor Ted Dawson, M.D., Ph.D., JohnsHopkins University School of Medicine Neuropsycho-logical Predictors of Disease��

Progression in Early Onset Parkinson’s DiseaseMegha Subramanian, mentor Paul J. Eslinger, Ph.D.,The Pennsylvania State University College of Medicine��

The Effect of Unilateral vs. Bilateral Deep Brain Stimula-tion of the Subthalamic Nucleus on Memory-Guided Se-quential Pointing�Ruth Tangonan, mentor Daniel Corcos, Ph.D., Universityof Illinois at Chicago

Comparison of a Bimanual and Unimanual Finger Tap-ping Test for Detection of Upper-Limb Movement Vari-ability and Freezing Episodes in Parkinson'sMegan Trager, mentor Helen Bronte-Stewart, M.D.,M.S.E., Stanford University

The Characterization of Autophagy in MPP+-induced�Dopaminergic Cells�Eric Tsai, mentor Karen O'Malley, Ph.D., WashingtonUniversity School of Medicine in St. Louis

Molecular Mechanisms by Which Excess Synuclein Im-pairs Synapse Function: Implications for Parkinson’s�Alexandra van Brummen, mentor Jennifer Morgan,Ph.D., The University of Texas at Austin��

Phenotype-Specific Cell Loss in the Human OlfactoryBulb Associated with Parkinson’s Disease�Ava Weibman, mentor John Cave, Ph.D., Burke Medical Research Institute

Protection of Dissociated Rat Substantia Nigra Culturesfrom MPP+ Toxicity by a Combination of NeurotrophicFactorsStephanie Wyrostek, mentor Michael J. Zigmond,Ph.D., University of Pittsburgh

Evaluation of Peripheral Olfactory Adaptation as a Po-tential Biomarker for Parkinson’s DiseaseWendy Yoder, mentor David Smith, Ph.D., University ofFlorida

Our Researchers



Fellowship and Career Development Awards (Cont’d.)

Collaborative Fellowships | $205,000PDF-ABF Clinician-Scientist Development Award |$105,000(Co-sponsored by American Brain Foundation)Mechanisms of Cell Type-Specific Vulnerability in Synu-cleinopathy: A Yeast Stem Cell Dual Discovery Platform*�Vikram Khurana, M.D., Ph.D., Massachusetts GeneralHospital

PDF-PSG Mentored Clinical Research Award | $100,000(Funded by a grant from PDF to the Parkinson StudyGroup)Neurophysiology Adaptations to Tango Dancing in Indi-viduals with Parkinson's DiseaseKristen Pickett, Ph.D., mentors Gammon M. Earhart,P.T., Ph.D., and Joel Perlmutter, M.D., Washington Uni-versity School of Medicine in St. Louis

Behavioral Treatment for Anxiety in PDJessica Caileo, Ph. D., mentors Laura Marsh, M.D., andMelissa Shanley, Ph.D.

Conference Awards | $76,500West Coast Conference: Determining Factors in PD Pro-gression RateMarie-Françoise Chesselet, M.D., Ph.D., University ofCalifornia, Los Angeles

International Symposium on Falls in PDLeland Dibble, P.T., Ph.D., University of Utah, GammonM. Earhart, P.T., Ph.D., Washington University School ofMedicine, Colleen Canning, Ph.D., University of Sydney,Theresa Ellis, P.T., Ph.D., Boston University

Cognitive Assessment for Parkinson's Disease in Multi-Cultural/ Linguistic Populations�Ignacio F. Mata, Ph.D., James. B. Leverenz, M.D., G.Stennis Watson, Ph.D., and Cyrus P. Zabetian, M.D.,M.S., University of Washington��

Evaluating the Effectiveness of a Novel Patient Work-shop/ Symposium in Parkinson’s DiseaseLisa M. Shulman, M.D., University of Maryland School ofMedicine

Impulse Control Disorders in Parkinson’s �Antonio Strafella, M.D., Ph.D., F.R.C.P.C., University ofToronto, and Mark A. Stacy, M.D., Duke University

Innovations Awards | $300,000Training of New Parkinson’s Clinical Research Investiga-tors through the PSG Annual Meeting �Parkinson Study Group

Datamining to Better Understand Parkinson’s DiseaseProgression, Treatment Response, Complications andOutcomes�Parkinson Study Group

Advancing Parkinson's Treatments Grants | $376,500

Facilitate the movement of treatments from bench to bedside.

Our Researchers

Parkinson Disease in a Minority Inner City Population: Clin-ical Phenotypes and Genetic Etiologies, Focus on Afro-Caribbean Populations�Jose C. Cabassa, M.D., mentor Rachel Saunders-Pullman,M.D., M.P.H., SUNY Downstate Medical Center and BethIsrael Medical Center, Einstein College of Medicine ��

Implications of Antigen Presentation by DopaminergicNeurons in an AAV2-synuclein Mouse Model of Parkin-son's DiseaseCarolina Cebrián, Ph.D., mentor David Sulzer, Ph.D., Co-lumbia University Medical Center

Amperometric Measurement of Quantal Dopamine Re-lease from Primary Mouse Neurons and Human InducedPluripotent Stem Cells (iPSCs)�Se Joon Choi, Ph.D., mentor Eugene Mosharov, Ph.D.,Columbia University Medical Center

Localization of Alpha-synuclein in Mitochondrial-associ-ated ER Membranes (MAM): A New Insight into the Patho-genesis of PD� (competively renewed in 2013)Cristina Guardia-Laguarta, Ph.D., mentor Serge Przed-borski, M.D., Ph.D., Columbia University Medical Center��

Mutant Glucocerebrosidase Causes Dysfunctional Chaper-one-mediated Autophagy and Alpha-synuclein Accumula-tion in Patient Fibroblast-derived Dopaminergic Neurons�Sheng-Han Kuo, M.D., Ph.D., mentor David Sulzer, Ph.D.,Columbia University Medical Center

Molecular Characterization of MAPT Haplotypes in Parkin-son’s DiseaseOren Levy, M.D., Ph.D., mentor Lloyd A. Greene, Ph.D.,Columbia University Medical Center

Identifying Genetic Causes Underlying Early-onset Parkin-son’s Disease�Coro Paisán-Ruiz, Ph.D., mentor Joseph D. Buxbaum,Ph.D., Mount Sinai School of Medicine

Côté Clinical Genetics Initiative | $440,000

Identify and understand the role of genetic markers in Parkinson’s.


39 | Financial Reports

In fiscal years 2012 and 2013, PDF was awarded both a four-star rating from Charity Navigator (the highest) and the Charity Seal of Approval from the Wise Giving Alliance of the Better Business Bureau (BBB).

Cash and cash equivalents

Contributions and other receivables

Other current assets

Investments, at fair value

Fixed assets, net of accumulated depreciation

Other noncurrent assets

Investments — restricted as to use

Total assets

Liabilities and net assets

Accounts payable and accrued expenses

Grants payable

Deferred compensation plan

Total liabilities

Net assets

Unrestricted

Restricted

Total net assets

Total liabilities and net assets

Assets

Balance Sheet June 30

20122013 2011

$385,179

393,774

87,006

10,468,207

157,516

56,540

189,676

$11,737,898

$663,943

1,602,592

189,676

2,456,211

5,886,973

3,394,714

9,281,687

$11,737,898

$779,578

550,651

74,161

12,446,070

235,521

56,540

210,723

$14,353,244

$766,321

1,327,440

210,723

2,304,483

8,608,353

3,440,408

12,048,761

$14,353,244

$933,498

1,630,844

90,094

8,862,184

99,119

56,540

186,371

$11,858,650

$558,129

1,721,567

186,371

2,466,067

6,033,208

3,359,375

9,392,583

$11,858,650

Financial Reports

Research 60%

20%Administration & Fundraising

5%Advocacy

15%Education

$4,752,851

2,155,027

238,541

(15,926)

154,234

-

7,284,727

6,084,574

2,045,879

8,130,453

570,880

1,350,467

1,921,347

10,051,800

(2,767,073)

12,048,761

$9,281,688

-

4,306

-

-

-

(50,000)

(45,694)

-

-

-

-

-

-

(45,694)

3,440,408

$3,394,714

$4,752,851

2,150,721

238,541

(15,926)

154,234

50,000

7,330,421

6,084,574

2,045,879

8,130,453

570,880

1,350,467

1,921,347

10,051,800

(2,721,379)

8,608,353

$5,886,974

Unrestricted Restricted Total

$4,195,159

4,764,782

348,050

976,398

-

-

10,284,389

5,671,135

1,990,591

7,661,726

586,536

1,269,557

1,856,093

9,517,819

766,570

11,282,191

$12,048,761

$172,277

2,366,462

-

-

-

(833,314)

1,705,425

-

-

-

-

-

-

1,705,425

1,734,983

$3,440,408

$4,022,882

2,398,320

348,050

976,398

-

833,314

8,578,964

5,671,135

1,990,591

7,661,726

586,536

1,269,557

1,856,093

9,517,819

(938,855)

9,547,208

$8,608,353


$4,299,967

4,553,286

298,105

723,742

226,548

-

10,101,648

5,934,056

1,997,921

7,931,977

598,136

1,460,640

2,058,776

9,990,753

110,895

9,281,688

$9,392,583

-

14,661

-

-

-

(50,000)

(35,339)

-

-

-

-

-

-

(35,339)

3,394,714

$3,359,375

$4,299,967

4,538,625

298,105

723,742

226,548

50,000

10,136,987

5,934,056

1,997,921

7,931,977

598,136

1,460,640

2,058,776

9,990,753

146,234

5,886,974

$6,033,208

Year ended June 30, 2013


Statement of Activities

Operating support and revenue:

Year ended June 30, 2012

Year endedJune 30, 2011

ContributionsBequestsSpecial events revenue, netInvestment incomeIn-Kind donationNet assets released from restrictionsTotal operating support and revenue

Operating expenses:Program services:

ResearchPublic information/patient information and referral services

Total program servicesSupporting services:

Management and general Fundraising

Total supporting servicesTotal operating expensesChange in net assetsNet assets, beginning of yearNet assets, end of year


2013

Our People

OfficersHoward D. MorganChair

Constance W. Atwell, Ph.D. Vice Chair

Stephen AckermanTreasurer

Isobel Robins KoneckySecretary

Stanley Fahn, M.D.Scientific Director

DirectorsKaren Elizabeth Burke, M.D., Ph.D.Margo CatsimatidisPeter DornGeorge Pennington Egbert IIIRichard D. Field Sarah Belk GambrellStephanie Goldman-PittelArlene LevineMarshall LoebThomas A. PalizziTimothy A. Pedley, M.D.Gregory RomeroLewis P. Rowland, M.D., President EmeritusMarie D. Schwartz Domna Stanton, Ph.D.Melvin S. TaubMartin Tuchman

Founding ChairsWilliam Black Page Morton Black

PresidentRobin Anthony Elliott

Board of Directors

Thomas A. Palizzi, ChairFred Woodlief, D.D.S., Vice ChairClaire BermanChristine Colón, M.S.Diane CookMaria De Leon, M.D.Steve DeWitteHao Dong, Ph.D.Eric HellingerNan Little, Ph.D.Linda M. Morgan, M.B.A., R.Ph.Marc Sherman, J.D.Karen SmithPeggy Willocks

People with Parkinson'sAdvisory Council

Stanley Fahn, M.D., ChairConstance W. Atwell, Ph.D.�M. Flint Beal, M.D.Robert Burke, M.D.�Cynthia L. Comella, M.D.�David Eidelberg, M.D.Christopher Goetz, M.D.�Lloyd Greene, Ph.D. J. Timothy Greenamyre, M.D., Ph.D.�Danna Jennings, M.D.�Katie Kompoliti, M.D.Jeffrey H. Kordower, Ph.D.J. William Langston, M.D.Karen Marder, M.D., M.P.HSerge Przedborski, M.D., Ph.D. Kathleen Shannon, M.D.�Yaakov Stern, Ph.D.David Sulzer, Ph.D.�G. Frederick Wooten, M.D. �Anne B. Young, M.D., Ph.D.

Scientific Advisory Board

41 | Our People

Page Morton Black: 1916-2013

In 2013, the Parkinson's Disease Foundation (PDF) lost a great, much-loved, deeply admired ambassador for all those who live with Parkin-son’s disease — our Chairman Emeritus Page Morton Black. It was

William Black, Mrs. Black’s late husband and founder of the Chock fullo’Nuts coffee and restaurant chain, who created PDF in 1957. Mrs.Black served as Secretary of PDF until assuming the role of Chairmanafter her husband’s death in 1983. She resigned from the Board in2012, serving as Chairman Emeritus until her death. In 2005, PDF

presented Mrs. Black with its Lifetime Achievement Award.

Page 4 Janet CharlesPage 6 Courtesy of Dr. Sheng-Han KuoPage 8 Courtesy of Dr. E. Ray DorseyPage 9 Luigi D’AstolfoPage 10 Janet CharlesPage 14 Michael BlanchardPage 16 Janet Charles (top)/

Patrick McMullan (bottom)Page 17 Patrick McMullanPage 18 Janet Charles (bottom)Page 19 Janet CharlesPage 20 Patrick McMullanPage 21 Janet CharlesPage 22 Patrick McMullan (top)Page 24 Janet Charles (top)Page 25 Patrick McMullan (top)/

Janet Charles (bottom)Page 29 Patrick McMullan

Image Credits:

©2014 Parkinson’s Disease Foundation

(800) 457-6676 | www.pdf.org | [email protected]

Documents

Impact: Parkinson’s Disease Foundation Biennial Report 2012-2013