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INTERNATIONAL ASSOCIATION FOR HOSPICE & PALLIATIVE CARE Advancing Hospice & Palliative Care Worldwide July 2, 2015 Dear partners in the palliative care community, colleagues and friends As many of you already know, next year 201!" #rings an unprecedented opportunit the $% &eneral Assem#ly to review world drug policy during the 'pecial 'ession t held April 1()21 in %ew *ork+ orld drug policy directly affects palliative car frames policies that control national, regional, and local access to internation controlled essential medicines such as morphine and other opioid analgesics+ -his $%&A'' $% &eneral Assem#ly 'pecial 'ession on the orld Drug .ro#lem" will include the voices of civil society organisations through the /ivil 'ociety -ask /'- ", a 2 mem#er #ody that includes representatives for all the world s regi well as 3affected populations+4 A full list of mem#ers can #e downloaded here http 66www+eurad+net6filestore6.D 6/ivil'ociety-ask orcefulllistofmem#ers2015)0 271+pdf , and a #ackground document on the /'- can #e found here http 66www+unodc+org6unodc6en6ngos6D/%11)8aunch)of)the)/ivil)'ociety)-ask) orce+html+ -he /'- appointed Dr+ 9atherine .ettus, in her capacity as Advocacy :fficer for ;nternational Association for <ospice and .alliative /are ;A<./", to represent populations affected #y lack of access to internationally controlled essential m such as opioid analgesics and methadone+ .rior to $%&A'', and #y the end of July, 2015, /'- mem#ers have #een asked to collect information from partners for a #aseline survey6=uestionnaire regarding know a#out $%&A'' and which outcomes they hope for and expect+ e ask you to please fill out this survey6=uestionnaire which can #e found here http 66vngoc+org6details+php>id?cat@2 Bid?cnt@10 5535 Memorial Drive Suite F – PM 5!" # Hou$to% T' ((!!( )SA PH *"3+, 3-./"01+ FA' *(.3, 50"/3+5( Toll Free *0++, 3(1/-1(- www.hospicecare.com

IAHPC Letter to Partners on CSTF Survey FINAL

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The UNGASS2016 is an opportunity for civil society to address member states on the issue of controlled substances, including lack of access to essential medicines such as morphine and methadone in many parts of the world. Please take the time to read this letter from IAHPC and fill out the survey before the end of July.

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INTERNATIONAL ASSOCIATION FOR HOSPICE & PALLIATIVE CARE Advancing Hospice & Palliative Care Worldwide

July 2, 2015Dear partners in the palliative care community, colleagues and friendsAs many of you already know, next year (2016) brings an unprecedented opportunity for the UN General Assembly to review world drug policy during the Special Session to be held April 19-21 in New York. World drug policy directly affects palliative care because it frames policies that control national, regional, and local access to internationally controlled essential medicines such as morphine and other opioid analgesics. This UNGASS (UN General Assembly Special Session on the World Drug Problem) will include the voices of civil society organisations through the Civil Society Task Force (CSTF), a 27 member body that includes representatives for all the worlds regions, as well as affected populations. A full list of members can be downloaded here: http://www.eurad.net/filestore/PDF/CivilSocietyTaskForcefulllistofmembers2015-02-231.pdf, and a background document on the CSTF can be found here: http://www.unodc.org/unodc/en/ngos/DCN11-Launch-of-the-Civil-Society-Task-Force.html. The CSTF appointed Dr. Katherine Pettus, in her capacity as Advocacy Officer for International Association for Hospice and Palliative Care (IAHPC), to represent populations affected by lack of access to internationally controlled essential medicines such as opioid analgesics and methadone.Prior to UNGASS, and by the end of July, 2015, CSTF members have been asked to collect information from partners for a baseline survey/questionnaire regarding what they know about UNGASS and which outcomes they hope for and expect. We ask you to please fill out this survey/questionnaire which can be found here: http://vngoc.org/details.php?id_cat=28&id_cnt=107*********************We have prepared this cover letter to assist you in answering questions regarding our sectors response to the survey, with some text about what those of us who advocate at the international level, would like to see result from the process and from the event itself. It is meant just as a rough guide for your thinking, and not as a text to be reproduced verbatim.For more background information, please see the text of Resolution 58/8, which describes the format for the session, and outlines expectations for member state and civil society participation. As you will see from the resolution, the UNGASS will include five roundtables on drug related issues, one of which (Drugs and from Health) will include improving access to essential controlled medicines. Civil society representatives are expected to participate and take part in those roundtables. The text of the resolution can be found on P. 3 of the CND Report, available here: https://www.unodc.org/documents/commissions/CND/CND_Sessions/CND_58/E2015_28_ADVANCE_UNEDITED_VERSION.pdf and attached in PDF. Please take time in the next week, to fill out the survey (it should not take more than half an hour of your time), submit it in through the link, and let Katherine know (for her report back to CSTF) that you have taken it. Please feel free to send Katherine your responses if you wish, and any other thoughts you may have on the process ([email protected]://hospicecare.com/about-iahpc/contact-us/contact-katherine-pettus/) There will be a further, follow up, contact period during the summer, and afterwards, to gather more information and support for our strategy.We begin our suggestions and review with Question 7 of the survey:7. Is your organisation planning to participate in the preparation/discussions for UNGASS 2016? We hope you will answer yes to this question, if only by saying you are participating by responding to the survey! We will do our best to support you in any of the responses you check in the answer to Question 8. 8. If you answered Yes to the previous question, how is your organization planning to participate? Please check all that apply.You can do any of the below (except for CSTF) Sending a report to the CSTF representative for your region (see the link above to the CSTF roster) or other affected populations. Check Other - holding press conferences to sensitise the community and opinion leaders about UNGASS, including influencing your government leaders and ministers who might be participating in UNGASS, to report on how your civil society organisations, as well as government ministries, are acting to improve access to opioids at the local, national, and regional level. Attending preparatory meetings Producing reports Organizing events Contributing funds /personnel Other - please specify:13. Given your organizations expertise, which are your drug-related area(s) of interest? Please check all that apply. Check drugs and health and others that may apply. If you are involved in palliative care you can also check Other, and write improving access to internationally controlled essential medicines.14. What do you expect in terms of civil society participation in the UNGASS 2016 preparation? Civil Society Inclusion Invitation to preparatory meeting Consultation on Thematic Areas Other - please specify:Note: we recommend checking all of these15. What are the top 3 priorities you believe should be addressed in the UNGASS 2016 preparation? We suggest the following three. Feel free to suggest your own.1. Including civil society representatives as equal participants in the roundtables (see introduction to this letter)2. Encouraging member states to include civil society experts, including high level members of national palliative care associations, on their official delegations for UNGASS3. Ensuring that CSOs have timely access to all the relevant preparatory documents and that comments are included and recommendations for changes in language and procedure considered carefully. 16. What do you expect in terms of civil society participation in the UNGASS 2016 event itself?1. Opportunity to be speaker at the UNGASS event2. Possibility to host side events3. Invitation to moderate some of the session/panel4. Possibility to have a table display5. Opportunity to have NGO dedicated space6. Possibility to deliver written and oral statementOther - please specify:We recommend that you check all of these, as well as Other, which we suggest includes opportunity to participate in/contribute to, drafting the final report for the outcome document.

17. What are the top 3 priorities you believe should be addressed in the UNGASS 2016 event itself? We suggest the following. Please feel free to suggest your own.1 - The need to align international, regional, and national drug policies, with human rights standards, particularly regarding enjoyment of the right to the highest attainable standard of physical and mental health. Specifically for our sector, this alignment would address and ensure adequate access to internationally controlled essential medicines for pain and palliative care.2 - Inclusion on an equal basis of all UN agencies primarily UNAIDS, WHO, UNDP, with CND in the formulation of evidence based drug policies that result in measurable and improved public health and human rights outcomes at the local, national, and regional levels. This procedural priority requires member states to be open to shifting their drug policy focus, including earmarked funding and training, from law enforcement to evidence based public health priorities, and joint/synergistic training within an overarching public health framework.3 - Open discussion about the fact that the highest authorities of public international jurisprudence confirm that the three cornerstone UN drug control treaties are open to interpretation and modernisation. Such flexible interpretations and best practices should be evidence based on innovative local, national, and regional strategies. As such they will address urgent public health needs and thereby advance the health and welfare of mankind, the stated aim of the Single Convention on Narcotic Drugs18.What concrete outcomes do you expect from UNGASS 2016? (Please limit your answer to 200 words)We would like the UNGASS to commit to a concerted UN-wide effort, including UNODC, INCB, WHO and UNDP, to close the gap in availability of and access to controlled substances for medical use while reinforcing efforts to prevent their diversion and misuse where relevant.

We have the following requests:

WHO and UNODC should develop an action plan that ensures the adequate availability of controlled substances for medical purposes while preventing misuse and diversion, including specific objectives, indicators and responsibilities, in cooperation with Member States, other relevant UN agencies and civil society, to be presented to the Commission on Narcotic Drugs and the World Health Assembly in 2017; and to

WHO and UNODC and other relevant UN agencies should work together to implement World Health Assembly resolution 67.19, Commission on Narcotic Drugs resolutions 53/4 and 54/6.

The Secretary-General, in close collaboration with Member States, the UNODC, WHO and relevant funds, programs and specialized agencies of the United Nations system should present to the General Assembly in 2019 a report on the progress achieved in implementation of the action plan.

Under the principle of mutual and shared responsibility, Member States should consider making voluntary contributions to facilitate the full implementation of the convention objectives with respect to the medical and scientific use of controlled substances.

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