I have rheumatism, but … rheumatism doesn't have me! Imam ... · Imam revmo, a … revma nima mene! » 2 I have rheumatism, but … rheumatism doesn't have me! » 3 Spremna beseda

I have rheumatism, but … rheumatism doesn't have me!

Imam revmo, a … revma nima mene!

Fotografska razstava ob Svetovnem dnevu revmatikov 2016

Photographic exhibition on the World Arthritis Day 2016


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Spremna besedaV Društvu revmatikov Slovenije smo ob svetovnem dnevu revmatikov, 12. oktobru 2016, pripravili fotografsko razstavo Imam revmo, a … revma nima mene! Prikazati smo želeli izzive, ki jih bolezen s seboj prinaša, predvsem pa izpostaviti, da kljub tem simptomom in omejitvam živimo polna življenja. Vedno skušamo širiti optimizem med bolniki, saj je ta zelo pomemben v vsakdanu bolnikov.Fotograf razstave, Tonči Hozjan, s širokokotno tehniko in črno-belo fotografijo predstavlja simptome bolezni in ovire, ki se zaradi njih pojavijo, s portreti ter barvno fotografijo pa izpostavlja optimizem, veselje in polnost življenja teh bolnikov.

ForewordOn October 12, 2016 – the World Rheumatism and Arthritis Day – The Slovene Rheumatic Association organized a photographic exhibition entitled I have rheumatism… but rheumatism doesn’t have me! We wanted to show the challenges the disease brings but mostly stress the fact that despite all the symptoms and limitations patients can lead fulfilling lives. We always try to spread optimism among patients since it is a very important factor in their day to day lives.The photographer, Tonči Hozjan, uses wide-angle technique and black and white photography to show the symptoms of the disease and the obstacles they pose, while the portraits and color photography depicts optimism, happiness and »joie de vivre« of these patients.

ForewordOn October 12, 2016 – the World Arthritis Day – The Slovenian Rheumatism Association organized a photographic exhibition entitled I have rheumatism, but … rheumatism doesn’t have me! We wanted to show the challenges, the disease brings, but mostly stress the fact that despite all the symptoms and limitations patients can lead fulfilling lives. We always try to spread optimism among patients, since it is a very important factor in their day to day lives.The photographer, Tonči Hozjan, uses wide-angle technique and black and white photography to show the symptoms of the disease and the obstacles they pose, while the portraits and color photography depicts optimism, happiness and »joie de vivre« of these patients.

Spremna besedaV Društvu revmatikov Slovenije smo ob svetovnem dnevu revmatikov, 12. oktobru 2016, pripravili fotografsko razstavo Imam revmo, a … revma nima mene!Prikazati smo želeli izzive, ki jih bolezen s seboj prinaša, predvsem pa izpostaviti, da kljub tem simptomom in omejitvam živimo polna življenja. Vedno skušamo širiti optimizem med bolniki, saj je ta zelo pomemben v vsakdanu bolnikov.Fotograf razstave, Tonči Hozjan, s širokokotno tehniko in črno-belo fotografijo predstavlja simptome bolezni in ovire, ki se zaradi njih pojavijo, s portreti ter barvno fotografijo pa izpostavlja optimizem, veselje in polnost življenja teh bolnikov.


4»Vsakodnevna opravila velikokrat pomenijo tudi vsakodnevno bolečino.

Everyday chores often also mean everyday pain.

Jana 48 4


»Jana48 »

Vsakodnevna opravila velikokrat pomenijo tudi vsakodnevno bolečino.



4»Vsakodnevna opravila velikokrat pomenijo tudi vsakodnevno bolečino.


Jana 48


» 5Ne ustavim se. Bila sem na vrhu Mont Blanca!

I won’t stop. I’ve been to the top of Mont Blanc!4


5»Ne ustavim se. Bila sem na vrhu Mont Blanca!

I won’t stop. I’ve been to the top of Mont Blanc!


6»Bolečina v kolenu je bila prehuda. Smuči sem postavila v kot.

The pain in my knee was too strong. I had to put the skis away.

Urša 27 6


»Urša27 »

Bolečina v kolenu je bila prehuda. Smuči sem postavila v kot.



6»Bolečina v kolenu je bila prehuda. Smuči sem postavila v kot.


Urša 27


» 7Uživam v raziskovanju Slovenije!

I enjoy exploring Slovenia!6


7»Uživam v raziskovanju Slovenije!

I enjoy exploring Slovenia!


8»Revma mi je onemogočila preigravanje virtuoznih skladb.

Rheumatism prevented me from playing virtuoso melodies.

Dominika 38 8


»Dominika38 »

Revma mi je onemogočila preigravanje virtuoznih skladb.



8»Revma mi je onemogočila preigravanje virtuoznih skladb.


Dominika 38


» 9Klavirske nastope sem zamenjala za pevske.

Singing has replaced my piano performances.8


9»Klavirske nastope sem zamenjala za pevske.

Singing has replaced my piano performances.


10»Igranje nogometa so samo še lepi spomini.

Playing football is just a nice memory.

Franc 62 10


»Franc62 »

Igranje nogometa so samo še lepi spomini.



10»Igranje nogometa so samo še lepi spomini.


Franc 62


» 11Turistom z veseljem predstavim domače kraje.

I’m happy to guide the tourists around our local attractions.10


11»Turistom z veseljem predstavim domače kraje.

I’m happy to guide the tourists around our local attractions.


12»Na videz enostavno, a zame malo bolj zapleteno.

Things that seem so simple are a bit more complicated for me.

Romana 12


»Romana »

Na videz enostavno, a zame malo bolj zapleteno.



12»Na videz enostavno, a zame malo bolj zapleteno.


Romana


» 13Prilagojeno kolo mi spet omogoča mobilnost.

I’m mobile again with the help of an adjusted bicycle.12


13»Prilagojeno kolo mi spet omogoča mobilnost.

I’m mobile again with the help of an adjusted bicycle.


14»Gradnja hiše bi bila brez bolezni hitrejša.

Had there been no disease the house would have been finished sooner.

Aljaž 23 14


»Aljaž23 »

Gradnja hiše bi bila brez bolezni hitrejša.

Had there been no disease, the house would have been finished sooner.


14»Gradnja hiše bi bila brez bolezni hitrejša.

Had there been no disease the house would have been finished sooner.

Aljaž 23


» 15Življenje v naravi mi daje energijo.

I get a lot of energy from connecting with nature.14


15»Življenje v naravi mi daje energijo.

I get a lot of energy from connecting with nature.


16»Udeležba na tekaških polmaratonih je žal preteklost.

Running half marathons is unfortunately a thing of the past.

Petra42 16


»Petra42 »

Udeležba na tekaških polmaratonih je žal preteklost.



16»Udeležba na tekaških polmaratonih je žal preteklost.


Petra42


» 17Možnost kolesarjenja mi pomeni svobodo.

Being able to go cycling is freedom to me.16


17»Možnost kolesarjenja mi pomeni svobodo.

Being able to go cycling is freedom to me.


18»Ponavljajoči gibi pri klekljanju so prezahtevni, povzročajo oteklino in bolečino.

Repetitive movements making bobbin lace are too demanding, causing swelling and pain.

Andreja 41 18


»Andreja41 »

Ponavljajoči gibi pri klekljanju so prezahtevni, povzročajo oteklino in bolečino.



18»Ponavljajoči gibi pri klekljanju so prezahtevni, povzročajo oteklino in bolečino.


Andreja 41


» 19Aktivna telovadba za moč in vzdržljivost. Pomaga.

Active exercise for strength and endurance. It helps.18


19»Aktivna telovadba za moč in vzdržljivost. Pomaga.

Active exercise for strength and endurance. It helps.


20»Stopnice so bile skoraj nepremostljiva ovira.

Stairs were almost an insurmountable obstacle.

Helena 58 20


»Helena58 »

Stopnice so bile skoraj nepremostljiva ovira.



20»Stopnice so bile skoraj nepremostljiva ovira.


Helena 58


» 21S fotoaparatom sva nerazdružljiva.

My camera and I are inseparable.20


21»S fotoaparatom sva nerazdružljiva.

My camera and I are inseparable.


22»Včasih je izziv že pogled levo in desno.

Sometimes it’s difficult to turn left and right.

Andrej 70 22


»Andrej70 »

Včasih je izziv že pogled levo in desno.



22»Včasih je izziv že pogled levo in desno.


Andrej 70


» 23Biti predsednik Društva revmatikov je zame poslanstvo.

Being the President of the Rheumatic Association is my calling.22


23»Biti predsednik Društva revmatikov je zame poslanstvo.

Being the President of the Rheumatism Association is my calling.


24»Rada imam telovadbo, vendar ne, kadar mi revma povzroča bolečine.

I like exercise, but not when rheumatism causes me pain.

Eva 17 24


»Eva17 »

Rada imam telovadbo, vendar ne, kadar mi revma povzroča bolečine.



24»Rada imam telovadbo, vendar ne, kadar mi revma povzroča bolečine.


Eva 17


» 25Moja prihodnost je delo z otroki.

Working with children is my future.24


25»Moja prihodnost je delo z otroki.

Working with children is my future.


26»Revma mi je vzela sanje o uniformi.

Rheumatism killed my dreams of wearing a uniform.

Aladar 42 26


»Aladar42 »

Revma mi je vzela sanje o uniformi.



26»Revma mi je vzela sanje o uniformi.


Aladar 42


» 27Vsak dan znova prekosim samega sebe.

I outdo myself each and every day.26


27»Vsak dan znova prekosim samega sebe.

I outdo myself each and every day.


28»Ko so se pojavile težave zaradi revme nisem več zmogel rednih treningov.

Once I started having troubles with rheumatism I couldn’t train regularly any more.

Tilen 15 28


»Tilen15 »

Ko so se pojavile težave zaradi revme nisem več zmogel rednih treningov.



28»Ko so se pojavile težave zaradi revme nisem več zmogel rednih treningov.


Tilen 15


» 29Mladost je polna zgodb.

Youth is full of stories.28


29»Mladost je polna zgodb.

Youth is full of stories.


30»Zaradi revme sem morala spremeniti odločitev o poklicu.

Rheumatism made me rethink my profession.

Ines 33 30


»Ines33 »

Zaradi revme sem morala spremeniti odločitev o poklicu.



30»Zaradi revme sem morala spremeniti odločitev o poklicu.


Ines 33


» 31Canicross mi vedno pričara nasmeh.

Canicross always brings a smile to my face.30


31»Canicross mi vedno pričara nasmeh.

Canicross always brings a smile to my face.


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Vnetne revmatične bolezniPo podatkih Društva revmatikov Slovenije (DRS) je v Sloveniji med 40

do 60 tisoč bolnikov z vnetnim revmatizmom. Revmatizem v širšem smislu ima okrog 230.000 bolnikov oziroma 11 % populacije, hujše oblike pa okoli 3 % prebivalcev. Gre za ene najpogostejših bolezni, zaradi katerih ljudje poiščejo pomoč svojega zdravnika.

Avtoimunske vnetne revmatične bolezni se razvrščajo v šest velikih skupin: spondiloartritisi, revmatoidni artritis, ki je najpogostejša revmatična bolezen odraslih, juvenilni idiopatski artritis, ki prizadene otroke, s kristali povzročeno sklepno vnetje (npr. protin-putika), sistemsko vezivo tkivne bolezni (npr. sistemski lupus eritematozus) in vaskulitisi (vnetja sten žil). Skupni simptomi pri večini revmatičnih boleznih so vnetje sklepov in posledično bolečina.

Natančni vzrok za nastanek vnetnih revmatičnih bolezni ni povsem znan. Pogosto so povezane z genetsko zasnovo, ki skupaj z vplivom in delovanjem neznanega drugega dejavnika iz okolja sproži bolezen. Lahko gre za virusne okužbe, stres, poškodbe ali zdravila, vendar mehanizmi tega delovanja še niso dobro pojasnjeni. Pri vnetnem revmatizmu zaradi motnje delovanja imunskega sistema, telo ne loči več svojih lastnih tkiv in jih napade. To povzroča kronična vnetja, kar vodi v bolečine in postopno zatrdevanje sklepov, ki posledično postanejo vse manj gibljivi. Poleg gibal lahko prizadene celo telo (notranji organi, koža, organski sistemi in čutila).

Vnetne revmatske bolezni ne izbirajo spola in starosti ter lahko prizadenejo vsakogar. Nekatere oblike so pogostejše pri ženskah, druge pri moških. Bolezen se lahko pojavi v vseh življenjskih obdobjih. Zbolijo lahko že otroci in mladostniki, nekatere oblike pa se pojavljajo le pri starostnikih. Najpogosteje se vnetne revmatične bolezni pojavljajo med 30. in 50. letom starosti. Med obolelimi je kljub napredku na področju zdravljenja revmatskih obolenj še vedno veliko invalidov, ki brez pomoči drugih ne morejo samostojno živeti. Do invalidnosti lahko pri bolnikih z vnetnim revmatizmom pride zelo kmalu ali pa nikoli, odvisno je od teže bolezni in hitrosti njenega napredovanja.


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Vnetne revmatične bolezniPo podatkih Društva revmatikov Slovenije (DRS) je v Sloveniji med 40

do 60 tisoč bolnikov z vnetnim revmatizmom. Revmatizem v širšem smislu ima okrog 230.000 bolnikov oziroma 11 % populacije, hujše oblike pa okoli 3 % prebivalcev. Gre za ene najpogostejših bolezni, zaradi katerih ljudje poiščejo pomoč svojega zdravnika.

Avtoimunske vnetne revmatične bolezni se razvrščajo v šest velikih skupin: spondiloartritisi, revmatoidni artritis, ki je najpogostejša revmatična bolezen odraslih, juvenilni idiopatski artritis, ki prizadene otroke, s kristali povzročeno sklepno vnetje (npr. protin-putika), sistemsko vezivo tkivne bolezni (npr. sistemski lupus eritematozus) in vaskulitisi (vnetja sten žil). Skupni simptomi pri večini revmatičnih boleznih so vnetje sklepov in posledično bolečina.

Natančni vzrok za nastanek vnetnih revmatičnih bolezni ni povsem znan. Pogosto so povezane z genetsko zasnovo, ki skupaj z vplivom in delovanjem neznanega drugega dejavnika iz okolja sproži bolezen. Lahko gre za virusne okužbe, stres, poškodbe ali zdravila, vendar mehanizmi tega delovanja še niso dobro pojasnjeni. Pri vnetnem revmatizmu zaradi motnje delovanja imunskega sistema, telo ne loči več svojih lastnih tkiv in jih napade. To povzroča kronična vnetja, kar vodi v bolečine in postopno zatrdevanje sklepov, ki posledično postanejo vse manj gibljivi. Poleg gibal lahko prizadene celo telo (notranji organi, koža, organski sistemi in čutila).

Vnetne revmatske bolezni ne izbirajo spola in starosti ter lahko prizadenejo vsakogar. Nekatere oblike so pogostejše pri ženskah, druge pri moških. Bolezen se lahko pojavi v vseh življenjskih obdobjih. Zbolijo lahko že otroci in mladostniki, nekatere oblike pa se pojavljajo le pri starostnikih. Najpogosteje se vnetne revmatične bolezni pojavljajo med 30. in 50. letom starosti. Med obolelimi je kljub napredku na področju zdravljenja revmatskih obolenj še vedno veliko invalidov, ki brez pomoči drugih ne morejo samostojno živeti. Do invalidnosti lahko pri bolnikih z vnetnim revmatizmom pride zelo kmalu ali pa nikoli, odvisno je od teže bolezni in hitrosti njenega napredovanja.


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Zaradi težav in omejitev, ki so posledica bolezni in invalidnosti, se bolniki z vnetnim revmatizmom lahko soočajo s številnimi težavami na vseh področjih življenja – v družinskem in delovnem okolju, vključevanju v izobraževalne procese, pri prostočasnih aktivnostih in širšem družbenem vključevanju.

Zdravljenje in obvladovanje bolezniRazlične vnetne revmatske bolezni se zdravi na različne načine, zelo

pomemben pa je celosten in multidisciplinaren pristop k zdravljenju. Poleg fizioterapije imajo revmatiki na voljo tudi delovno terapijo. Cilji zdravljenja so lajšanje bolečin, umirjanje vnetja, izboljšanje gibljivosti, upočasnitev napredovanja bolezni v invalidnost in izboljšanje kakovosti življenja.

Aktivna vloga bolnika je nujnaRevmatičnih bolezni ne zdravimo zgolj z zdravili, ampak so ključne tudi

druge aktivnosti in aktivno sodelovanje posameznika. Vsak posameznik mora sam narediti čim več, da je bolezen ustrezno obvladana. Velik poudarek je na telesni vadbi za izboljšanje oziroma ohranjanje čim bolj normalne telesne drže ter gibljivosti hrbtenice in sklepov. Ohranjena gibljivost, krepke mišice in pravilna telesna drža zmanjšujejo bolečine, izboljšajo splošno počutje in preprečujejo nepravilne obremenitve.


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Inflammatory Rheumatic DiseasesAccording to the Slovene Rheumatic Association (SRA) there are 40 –

60 thousand patients with inflammatory rheumatism in Slovenia. Around 230.000 patients have rheumatism in the more general sense, that is 11% of the population, while 3% have more severe forms of the disease. These are one of the most common diseases due to which people seek medical help.

Autoimmune inflammatory rheumatic diseases can be classified into six large groups: spondyloarthritis, rheumatoid arthritis, which are the most frequent rheumatic diseases in adults, juvenile idiopathic arthritis, which afflicts children, crystal induced joint inflammation (e.g. gout), system binder tissue diseases (e.g. system lupus eritematosus) and vasculitis (vascular wall inflammation). The common symptoms in most of the rheumatic diseases are joint inflammation and consequently pain.

The actual cause of inflammatory rheumatic diseases is not entirely known. It is often connected with the genetic makeup, which together with an unknown external factor causes the onset of the disease. It can be a virus infection, stress, injury or medicine, but the operational mechanism has not been well explained yet. Due to a disturbed immune system in inflammatory rheumatism the body no longer distinguishes its own tissue and attacks it. This causes chronic inflammation, which leads to pain, hard joints which get stiffer and stiffer. Apart from limbs the whole body can also be affected (internal organs, skin, organs and senses).

Inflammatory rheumatic diseases can affect anyone, regardless of sex and age. Some forms are more common in women, others in men. The disease can appear in any period. It can appear in children and teenagers, some forms only appear with the elderly. Inflammatory rheumatic diseases most commonly appear between the ages 30 and 50. Despite all the progress in treatment of rheumatic diseases there are still many disabled who are unable to live independently without the help of others. Disability can occur very soon or never with rheumatic patients, depending on the gravity of the disease and the speed of its progression.

Inflammatory Rheumatic DiseasesAccording to the Slovene Rheumatic Association (SRA) there are 40 – 60 thousand

patients with inflammatory rheumatism in Slovenia. Around 230.000 patients have rheumatism in the more general sense, that is 11% of the population, while 3% have more severe forms of the disease. These are one of the most common diseases due to which people seek medical help.



Inflammatory rheumatic diseases can affect anyone, regardless of sex and age. Some forms are more common in women, others in men. The disease can appear at any age period. It can appear in children and teenagers, some forms only appear with the elderly. Inflammatory rheumatic diseases most commonly appear between the ages 30 and 50. Despite all the progress in treatment of rheumatic diseases there are still many disabled who are unable to live independently without the help of others. Disability can occur very soon or never with rheumatic patients, depending on the gravity of the disease and the speed of its progression.


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Inflammatory Rheumatic DiseasesAccording to the Slovene Rheumatic Association (SRA) there are 40 –

60 thousand patients with inflammatory rheumatism in Slovenia. Around 230.000 patients have rheumatism in the more general sense, that is 11% of the population, while 3% have more severe forms of the disease. These are one of the most common diseases due to which people seek medical help.



Inflammatory rheumatic diseases can affect anyone, regardless of sex and age. Some forms are more common in women, others in men. The disease can appear in any period. It can appear in children and teenagers, some forms only appear with the elderly. Inflammatory rheumatic diseases most commonly appear between the ages 30 and 50. Despite all the progress in treatment of rheumatic diseases there are still many disabled who are unable to live independently without the help of others. Disability can occur very soon or never with rheumatic patients, depending on the gravity of the disease and the speed of its progression.


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As a consequence of the disease and disability, patients with inflammatory rheumatism can face different problems and limitations in all areas of life – in their family and work environment, during the educational process, with leisure activities and social inclusion in general.

Treatment and disease controlDifferent inflammatory rheumatic diseases are treated in different

ways, while an integrated, multi-disciplinary approach to treatment is very important. Apart from physiotherapy the rheumatic patients can also make use of the work therapy. The aim of the treatment is to ease the pain, soothe the inflammation, improve mobility, slow down the disease progression to disability and improve the quality of life.

Active participation of the patient is necessaryRheumatic diseases are not treated merely with medicine, other activities

and active participation of the patient are of utmost importance. Each individual must do as much as possible to control the disease. Physical exercise is greatly emphasized in order to improve and maintain normal posture and mobility of the spine and joints. Greater mobility, firm muscles and correct posture reduce the pain, improve general wellbeing and prevent irregular strain.

As a consequence of the disease and disability, patients with inflammatory rheumatism can face different problems and limitations in all areas of life – in their family and work environment, during the educational process, with leisure activities and social inclusion in general.

Treatment and disease controlDifferent inflammatory rheumatic diseases are treated in different ways, while an

integrated, multi-disciplinary approach to treatment is very important. Apart from physiotherapy the rheumatic patients can also make use of the work therapy. The aim of the treatment is to ease the pain, soothe the inflammation, improve mobility, slow down the disease progression to disability and improve the quality of life.

Active participation of the patient is necessaryRheumatic diseases are not treated merely with medicine, other activities and

active participation of the patient are of utmost importance. Each individual must do as much as possible to control the disease. Physical exercise is greatly emphasized in order to improve and maintain normal posture and mobility of the spine and joints. Greater mobility, firm muscles and correct posture reduce the pain, improve general wellbeing and prevent irregular strain.


36»www.revmatiki.si

Društvo revmatikov Slovenije Društvo revmatikov združuje ljudi z diagnozo vnetnih revmatičnih

obolenj, ki zaradi bolezni in pridobljenih okvar in oviranosti, ne morejo biti popolnoma samostojni v okolju, v katerem živijo in delajo. Deluje od leta 1983, danes šteje trinajst podružnic po vsej Sloveniji in več kot 1.650 članov.

V društvu se trudijo iskati rešitve za socialne in zdravstvene probleme obolelih in invalidov, s ciljem doseganja boljše kvalitete njihovih življenj in polnopravne vključenosti revmatikov v družbo. Bolnikom in invalidom preko različnih socialnovarstvenih programov nudijo ustrezno pomoč pri udejstvovanju v družinskem, delovnem in širšem družbenem okolju, pri preseganju izolacije ter psihofizične in socialne stiske. Člani se tako lahko vključijo v različne strokovno vodene rehabilitacijske vadbe, rekreativne in kulturne dejavnosti. Ene pomembnejših dejavnosti društva so tudi svetovanje in izobraževanje revmatikov in njihovih družin ter osveščanje širše javnosti o različnih vidikih življenja z vnetnim revmatizmom.

Redni član društva lahko postane bolnik ali invalid z diagnozo vnetnega revmatičnega obolenja, v njihovih vrstah pa so kot podporni člani dobrodošli tudi partnerji in drugi ožji družinski člani revmatikov, prijatelji, strokovnjaki in vsi, ki na kakršenkoli način želijo sodelovati pri aktivnostih in razvoju društva.

Društvo revmatikov SlovenijeNacionalna reprezentativna invalidska organizacijaParmova ulica 531000 Ljubljana

Uradne ure: torek in četrtek od 10. do 14. ureTelefon: 05 90 75 366 Faks: 05 90 75 361E-naslov: [email protected]: www.facebook.com/revmatiki


36»www.revmatiki.si

Društvo revmatikov Slovenije Društvo revmatikov združuje ljudi z diagnozo vnetnih revmatičnih

obolenj, ki zaradi bolezni in pridobljenih okvar in oviranosti, ne morejo biti popolnoma samostojni v okolju, v katerem živijo in delajo. Deluje od leta 1983, danes šteje trinajst podružnic po vsej Sloveniji in več kot 1.650 članov.

V društvu se trudijo iskati rešitve za socialne in zdravstvene probleme obolelih in invalidov, s ciljem doseganja boljše kvalitete njihovih življenj in polnopravne vključenosti revmatikov v družbo. Bolnikom in invalidom preko različnih socialnovarstvenih programov nudijo ustrezno pomoč pri udejstvovanju v družinskem, delovnem in širšem družbenem okolju, pri preseganju izolacije ter psihofizične in socialne stiske. Člani se tako lahko vključijo v različne strokovno vodene rehabilitacijske vadbe, rekreativne in kulturne dejavnosti. Ene pomembnejših dejavnosti društva so tudi svetovanje in izobraževanje revmatikov in njihovih družin ter osveščanje širše javnosti o različnih vidikih življenja z vnetnim revmatizmom.

Redni član društva lahko postane bolnik ali invalid z diagnozo vnetnega revmatičnega obolenja, v njihovih vrstah pa so kot podporni člani dobrodošli tudi partnerji in drugi ožji družinski člani revmatikov, prijatelji, strokovnjaki in vsi, ki na kakršenkoli način želijo sodelovati pri aktivnostih in razvoju društva.

Društvo revmatikov SlovenijeNacionalna reprezentativna invalidska organizacijaParmova ulica 531000 Ljubljana

Uradne ure: torek in četrtek od 10. do 14. ureTelefon: 05 90 75 366 Faks: 05 90 75 361E-naslov: [email protected]: www.facebook.com/revmatiki

Imam revmo, a … revma nima mene! I have rheumatism, but … rheumatism doesn't have me!

» 3736www.revmatiki.si

The Slovene Rheumatic AssociationThe Rheumatic Association brings together people with inflammatory

rheumatic diseases that are not able to function completely independently in their environment due to their illness, the acquired disabilities and limitations. It has been functioning since 1983. It has 13 subsidiaries all over Slovenia today and more than 1.650 members.

The association is trying to find solutions for the social and healthcare problems of the rheumatic patients and the disabled, with the aim of improving the quality of their lives, ensuring active inclusion in society. Through different social programs they try to provide adequate help to patients and the disabled as they try to get active in their family and work environment or society in general, try to overcome the isolation and their mental, physical and social anxieties. The members of the Association therefore take part in different professionally managed rehabilitation exercises, recreational and cultural activities. Counselling and education of the patients and their families is also one of the most important activities of the Association, as well as raising awareness of the general public on different aspects of life with inflammatory rheumatism.

Patients or the disabled diagnosed with an inflammatory rheumatic disease can become full members, while the Association also welcome partners, close family members, friends, experts and anyone who wishes to participate in the activities and the development of the Association in any way.

The Slovene Rheumatic Association National representative disabled organizationParmova ulica 531000 Ljubljana

Office hours: Tuesday and Thursday from 10 a.m. to 2 p.m.Phone: 05 90 75 366Fax: 05 90 75 361Email: [email protected]: www.facebook.com/revmatiki

The Slovenian Rheumatism AssociationThe Slovenian Rheumatism Association brings together people with inflammatory

rheumatic diseases that are not able to function completely independently in their living and working environment due to their illness, the acquired disabilities and limitations. It has been functioning since 1983. Today it t has 13 subsidiaries branches all over Slovenia and more than 1.650 members.

The association is trying to find solutions for the social and healthcare problems of the rheumatic patients and the disabled, with the aim of improving the quality of their lives and ensuring active inclusion in society. Through different social programs we try to provide adequate help to patients and the disabled as they try to get active in their family and work environment or society in general, try to overcome the isolation and their mental, physical and social anxieties. The members of the Association therefore take part in different professionally managed rehabilitation exercises, recreational and cultural activities. Counselling and education of the patients and their families is also one of the most important activities of the Association, as well as raising awareness of the general public on different aspects of life with inflammatory rheumatism.

Patients or the disabled people diagnosed with an inflammatory rheumatic disease can become full members, while the Association also welcome partners, close family members, friends, experts and anyone who wishes to participate in the activities and the development of the Association in any way.

Zmote o revmatičnih boleznihRevma je bolezen starejših.To ne drži. Revmatične bolezni lahko prizadenejo ljudi vseh starosti, zbolijo torej tudi dojenčki, otroci in mladostniki.

Revmo dobimo, če sedimo na hladnih tleh, hodimo po dežju ali smo dlje časa izpostavljeni mrazu in prepihu.Revmatične bolezni so posledica različnih, predvsem vnetnih in tudi drugih procesov v telesu. Revmatičnih bolezni ne povzročajo sedenje na hladnih tleh, izpostavljanje mrzli vodi ali mrazu in prepihu.

Revma razen bolečin nima veliko posledic za bolnike. Revmatizmi so resne, kronične bolezni z velikim negativnim vplivom na vsa področja življenja. Če diagnoza ni dovolj zgodnja in oboleli ni pravočasno ter ustrezno zdravljen, lahko pride do nepovratnih sprememb hrbtenice in drugih sklepov, kar lahko vodi tudi v invalidnost.


Podporniki razstave

Supporters of the exhibition


Zmote o revmatičnih boleznihRevma je bolezen starejših.To ne drži. Revmatične bolezni lahko prizadenejo ljudi vseh starosti, zbolijo torej tudi dojenčki, otroci in mladostniki.

Revmo dobimo, če sedimo na hladnih tleh, hodimo po dežju ali smo dlje časa izpostavljeni mrazu in prepihu.Revmatične bolezni so posledica različnih, predvsem vnetnih in tudi drugih procesov v telesu. Revmatičnih bolezni ne povzročajo sedenje na hladnih tleh, izpostavljanje mrzli vodi ali mrazu in prepihu.

Revma razen bolečin nima veliko posledic za bolnike. Revmatizmi so resne, kronične bolezni z velikim negativnim vplivom na vsa področja življenja. Če diagnoza ni dovolj zgodnja in oboleli ni pravočasno ter ustrezno zdravljen, lahko pride do nepovratnih sprememb hrbtenice in drugih sklepov, kar lahko vodi tudi v invalidnost.


Podporniki razstave

Supporters of the exhibition

Assumptions about rheumatic diseasesRheumatism is a disease of the elderly.Not true. Rheumatic diseases can afflict people of all ages, including babies, children and teenagers.

One can get rheumatism from sitting on cold floors, walking in the rain or long exposure to cold and draft. Rheumatic diseases are a consequence of different, mainly inflammatory and other processes in our bodies. They are not caused by sitting on cold floors, exposure to cold water, cold and draft.

Apart from the pain, rheumatism does not have many consequences for the patient.Rheumatic diseases are serious, chronic diseases with a lot of negative influence in all areas of life. If not diagnosed early enough or if the patient is not treated adequately and in time, they can cause irreversible damage to the spine and other joints, which can also lead to disability.

I have rheumatism, but … rheumatism doesn't have me!I have rheumatism, but … rheumatism doesn't have me!

Assumptions about rheumatic diseasesRheumatism is a disease of the elderly.Not true. Rheumatic diseases can afflict people of all ages, including babies, children and teenagers.

One can get rheumatism from sitting on cold floors, walking in the rain or long exposure to cold and draft. Rheumatic diseases are a consequence of different, mainly inflammatory and other processes in our bodies. They are not caused by sitting on cold floors, exposure to cold water, cold and draft.

Apart from the pain, rheumatism does not have many consequences for the patient.Rheumatic diseases are serious, chronic diseases with a lot of negative influence in all areas of life. If not diagnosed early enough or if the patient is not treated adequately and in time, they can cause irreversible damage to the spine and other joints, which can also lead to disability.

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I have rheumatism, but … rheumatism doesn't have me! Imam ... · Imam revmo, a … revma nima mene! » 2 I have rheumatism, but … rheumatism doesn't have me! » 3 Spremna beseda